Re:Debbie/all (Insurance coverage issue)

[Guest guest]

That is really sad that the Insurance Company won't pay for the Pediasure.

Don't they realize by keeping your child healthy, they avoid further

complications such as illness, hospital stays, malnutrition, dehydration,

etc. (ALL of which cost them MORE money) caused by some people's lack of

ability to afford enough of it? Thankfully we have a wonderful caseworker

at our insurance who has been able to get tons covered for our girls. Since

our girls are enteral fed, there was no problem at all getting it covered.

Our only problem is trying to find space to hold one months supply for both

girls, which is about 330 cans! My bedroom has become a medical facility so

packed with them, medical equipment, meds, and the month supply of delivered

diapers for Asenath (Once they are 4 and not potty trained, diapers are paid

for by Medicaid), etc. I need to get another cabinet to hold some of it

(when we come up with a little cash to get one).

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Ensure/Pedia sure was RE: a couple of ?'s about

carnitine supp

> Ensure/Pedia sure was RE: a couple of ?'s aboutIs there anyone

out

there that has a mito child that drinks Pediasure, by mouth, not tube fed

& gets

it covered by their insurance somehow?

Insurance won't pay for it without a script. No insurance will, including

medicaid. If you have a script, the rare insurance company will. Medicaid

will

also pay with a script. WIC will also pay with a script (for children

under five).

Carnation instant breakfast is less expensive and contains just about the

same nutrients. I would use this instead of pediasure for a low weight

child.

You can also add cream to boost calories.

Please contact mito-owner with any problems or questions.

[Guest guest]

That is really sad that the Insurance Company won't pay for the Pediasure.

Don't they realize by keeping your child healthy, they avoid further

complications such as illness, hospital stays, malnutrition, dehydration,

etc. (ALL of which cost them MORE money) caused by some people's lack of

ability to afford enough of it? Thankfully we have a wonderful caseworker

at our insurance who has been able to get tons covered for our girls. Since

our girls are enteral fed, there was no problem at all getting it covered.

Our only problem is trying to find space to hold one months supply for both

girls, which is about 330 cans! My bedroom has become a medical facility so

packed with them, medical equipment, meds, and the month supply of delivered

diapers for Asenath (Once they are 4 and not potty trained, diapers are paid

for by Medicaid), etc. I need to get another cabinet to hold some of it

(when we come up with a little cash to get one).

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

Re: Ensure/Pedia sure was RE: a couple of ?'s about

carnitine supp

> Ensure/Pedia sure was RE: a couple of ?'s aboutIs there anyone

out

there that has a mito child that drinks Pediasure, by mouth, not tube fed

& gets

it covered by their insurance somehow?

Insurance won't pay for it without a script. No insurance will, including

medicaid. If you have a script, the rare insurance company will. Medicaid

will

also pay with a script. WIC will also pay with a script (for children

under five).

Carnation instant breakfast is less expensive and contains just about the

same nutrients. I would use this instead of pediasure for a low weight

child.

You can also add cream to boost calories.

Please contact mito-owner with any problems or questions.