Re: Advice of avoiding tenetomy

[Guest guest]

Krishna-

Congrats on -she is a beautiful baby. With regards to her

colic-I can not personally relate as my son had only 1 true episode.

However, my little niece was a colic baby until she was 4months old.

It ended up she had acid reflux-once they put her on nexium(baby

version) and got her formula straighten out-she was a much happier

baby. I have heard that the potential with the casts weighing their

legs down may affect their ability to pass gas-however, david did

not have that problem. I wanted to pipe in about the no tenetomy-

is almost 13 months old and to this point, he is tenetomy

free. His feet look great(Dr ponseti just concurred via email) and

we are glad that he has not had to have this procedure done. Who is

your doctor at shriner's? Is he an actual ponseti certified doctor?

Her feet looked good and you mentioned you were not able to take a

picture. Are her casts outwardly rotated to 70degrees? Just want to

make sure she is getting fully corrected! Hope this helps-I am sure

more moms will pipe in.

Keep us updated!

kathleen

mom to david bcf fab 10/7

> Hello everyone-

> It has been a while since I have posted. This motherhood role is

> tough to get the hang of. is 6 weeks old and getting

better

> at a routine--however her colic is getting the best of her. BTW,

my

> pediatrician thinks the casts might of added to her colic since

she

> can't raise her legs up to expel gas. Have any of you with a

colic

> baby had a problem with this? Any advice out there for colic

> babies. I do the tummy drops, massage, and gripe water. And just

> recently I changed bottles. It seems to be getting better but she

> goes in bouts.

> Anyway, since I have been out of the loop, I want to let you all

know

> I read most of the emails, but sometimes it is tough when I open

my

> email it says 300 messages or so to read. Yikes!! In any case, I

> want to say how wonderful I think the three wishes project went--I

am

> bummed because I did not have the opportnity to add our names to

the

> list. And Naomi--how wonderful that they are coming to your

town.

> So I have a question for you. was suppose to get her

> tenetomy this past Monday, but her doctor at Shriners was so

> impressed by her progress that he wanted to put on another set of

> casts--then see her progress next week. He said we could possibly

> avoid the tenetomy altogether--and go into the brace. Has anyone

had

> this experience? I am just worried about a relapse later in life,

bu

> I guess thre are no guarantees. Let me know your thoughts.

> Thanks,

> Krishna

> PS check out her before and after pics--Under -- I didn't

> post her pic from this week--camera ran ou of batteries

[Guest guest]

Krishna-

Congrats on -she is a beautiful baby. With regards to her

colic-I can not personally relate as my son had only 1 true episode.

However, my little niece was a colic baby until she was 4months old.

It ended up she had acid reflux-once they put her on nexium(baby

version) and got her formula straighten out-she was a much happier

baby. I have heard that the potential with the casts weighing their

legs down may affect their ability to pass gas-however, david did

not have that problem. I wanted to pipe in about the no tenetomy-

is almost 13 months old and to this point, he is tenetomy

free. His feet look great(Dr ponseti just concurred via email) and

we are glad that he has not had to have this procedure done. Who is

your doctor at shriner's? Is he an actual ponseti certified doctor?

Her feet looked good and you mentioned you were not able to take a

picture. Are her casts outwardly rotated to 70degrees? Just want to

make sure she is getting fully corrected! Hope this helps-I am sure

more moms will pipe in.

Keep us updated!

kathleen

mom to david bcf fab 10/7

> Hello everyone-

> It has been a while since I have posted. This motherhood role is

> tough to get the hang of. is 6 weeks old and getting

better

> at a routine--however her colic is getting the best of her. BTW,

my

> pediatrician thinks the casts might of added to her colic since

she

> can't raise her legs up to expel gas. Have any of you with a

colic

> baby had a problem with this? Any advice out there for colic

> babies. I do the tummy drops, massage, and gripe water. And just

> recently I changed bottles. It seems to be getting better but she

> goes in bouts.

> Anyway, since I have been out of the loop, I want to let you all

know

> I read most of the emails, but sometimes it is tough when I open

my

> email it says 300 messages or so to read. Yikes!! In any case, I

> want to say how wonderful I think the three wishes project went--I

am

> bummed because I did not have the opportnity to add our names to

the

> list. And Naomi--how wonderful that they are coming to your

town.

> So I have a question for you. was suppose to get her

> tenetomy this past Monday, but her doctor at Shriners was so

> impressed by her progress that he wanted to put on another set of

> casts--then see her progress next week. He said we could possibly

> avoid the tenetomy altogether--and go into the brace. Has anyone

had

> this experience? I am just worried about a relapse later in life,

bu

> I guess thre are no guarantees. Let me know your thoughts.

> Thanks,

> Krishna

> PS check out her before and after pics--Under -- I didn't

> post her pic from this week--camera ran ou of batteries

[Guest guest]

Krishna,

There are certainly babies who do not need the tenotomy. Whether or

not she needs it can be judged by her dorsiflexion. It is difficult

to tell from the photos you put up, as her feet are relaxed and

pointing down. If her cast is rotated out to 70 degrees and her foot

(when out of the cast) has 10 or more degrees of dorsiflexion then it

may be okay to not do the tenotomy. I'm not a doctor of course so

ultimately if you want that second opinion, it is always okay to do

that. We would be able to tell more if you could send some pictures

of her bearing weight (i.e. holding her up w/ feet flat on floor), and

some showing you pushing up on her foot showing the dorsiflexion.

Also, you can send these types of pictures to Dr. Ponseti and he can

give you his opinion. Are you a member of CFPics? That group allows

photos as attachments, just let us know if you are not already a

member, and we can tell you how. I know you can't take photos right

now, due to the cast but this would be very helpful for us to see when

she gets out of the cast as she is going into the shoes.

HTH,

> Hello everyone-

> It has been a while since I have posted. This motherhood role is

> tough to get the hang of. is 6 weeks old and getting better

> at a routine--however her colic is getting the best of her. BTW, my

> pediatrician thinks the casts might of added to her colic since she

> can't raise her legs up to expel gas. Have any of you with a colic

> baby had a problem with this? Any advice out there for colic

> babies. I do the tummy drops, massage, and gripe water. And just

> recently I changed bottles. It seems to be getting better but she

> goes in bouts.

> Anyway, since I have been out of the loop, I want to let you all know

> I read most of the emails, but sometimes it is tough when I open my

> email it says 300 messages or so to read. Yikes!! In any case, I

> want to say how wonderful I think the three wishes project went--I am

> bummed because I did not have the opportnity to add our names to the

> list. And Naomi--how wonderful that they are coming to your town.

> So I have a question for you. was suppose to get her

> tenetomy this past Monday, but her doctor at Shriners was so

> impressed by her progress that he wanted to put on another set of

> casts--then see her progress next week. He said we could possibly

> avoid the tenetomy altogether--and go into the brace. Has anyone had

> this experience? I am just worried about a relapse later in life, bu

> I guess thre are no guarantees. Let me know your thoughts.

> Thanks,

> Krishna

> PS check out her before and after pics--Under -- I didn't

> post her pic from this week--camera ran ou of batteries

[Guest guest]

Krishna,

There are certainly babies who do not need the tenotomy. Whether or

not she needs it can be judged by her dorsiflexion. It is difficult

to tell from the photos you put up, as her feet are relaxed and

pointing down. If her cast is rotated out to 70 degrees and her foot

(when out of the cast) has 10 or more degrees of dorsiflexion then it

may be okay to not do the tenotomy. I'm not a doctor of course so

ultimately if you want that second opinion, it is always okay to do

that. We would be able to tell more if you could send some pictures

of her bearing weight (i.e. holding her up w/ feet flat on floor), and

some showing you pushing up on her foot showing the dorsiflexion.

Also, you can send these types of pictures to Dr. Ponseti and he can

give you his opinion. Are you a member of CFPics? That group allows

photos as attachments, just let us know if you are not already a

member, and we can tell you how. I know you can't take photos right

now, due to the cast but this would be very helpful for us to see when

she gets out of the cast as she is going into the shoes.

HTH,

> Hello everyone-

> It has been a while since I have posted. This motherhood role is

> tough to get the hang of. is 6 weeks old and getting better

> at a routine--however her colic is getting the best of her. BTW, my

> pediatrician thinks the casts might of added to her colic since she

> can't raise her legs up to expel gas. Have any of you with a colic

> baby had a problem with this? Any advice out there for colic

> babies. I do the tummy drops, massage, and gripe water. And just

> recently I changed bottles. It seems to be getting better but she

> goes in bouts.

> Anyway, since I have been out of the loop, I want to let you all know

> I read most of the emails, but sometimes it is tough when I open my

> email it says 300 messages or so to read. Yikes!! In any case, I

> want to say how wonderful I think the three wishes project went--I am

> bummed because I did not have the opportnity to add our names to the

> list. And Naomi--how wonderful that they are coming to your town.

> So I have a question for you. was suppose to get her

> tenetomy this past Monday, but her doctor at Shriners was so

> impressed by her progress that he wanted to put on another set of

> casts--then see her progress next week. He said we could possibly

> avoid the tenetomy altogether--and go into the brace. Has anyone had

> this experience? I am just worried about a relapse later in life, bu

> I guess thre are no guarantees. Let me know your thoughts.

> Thanks,

> Krishna

> PS check out her before and after pics--Under -- I didn't

> post her pic from this week--camera ran ou of batteries

[Guest guest]

Krishna,

Glad to hear that you guys are hanging in there! And I hope things

clear up with the colic right quick. I know a couple of families

that have dealt with colicky kids... didn't sound like fun!

As far as the tenotomy goes, it all depends on how good her

dorsiflexion is now. Did Dr Lerman do any kind of measurement to see

how much dorsiflexion she has? With Jonah they used a fluoroscan

( " live xray " ) that they do right there in the cast room.

Are these casts she's in now ones that abduct her feet out to 70

degrees? They should look like her feet are nearly pointing

backwards. If they aren't, she might have a very hard time adjusting

to the FAB.

I'll send you the FAB tips.

Please let us know how things turn out next week.

Best,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral

clubfoot, FAB 14/7)

> Hello everyone-

> It has been a while since I have posted. This motherhood role is

> tough to get the hang of. is 6 weeks old and getting

better

> at a routine--however her colic is getting the best of her. BTW,

my

> pediatrician thinks the casts might of added to her colic since she

> can't raise her legs up to expel gas. Have any of you with a colic

> baby had a problem with this? Any advice out there for colic

> babies. I do the tummy drops, massage, and gripe water. And just

> recently I changed bottles. It seems to be getting better but she

> goes in bouts.

> Anyway, since I have been out of the loop, I want to let you all

know

> I read most of the emails, but sometimes it is tough when I open my

> email it says 300 messages or so to read. Yikes!! In any case, I

> want to say how wonderful I think the three wishes project went--I

am

> bummed because I did not have the opportnity to add our names to

the

> list. And Naomi--how wonderful that they are coming to your town.

> So I have a question for you. was suppose to get her

> tenetomy this past Monday, but her doctor at Shriners was so

> impressed by her progress that he wanted to put on another set of

> casts--then see her progress next week. He said we could possibly

> avoid the tenetomy altogether--and go into the brace. Has anyone

had

> this experience? I am just worried about a relapse later in life,

bu

> I guess thre are no guarantees. Let me know your thoughts.

> Thanks,

> Krishna

> PS check out her before and after pics--Under -- I didn't

> post her pic from this week--camera ran ou of batteries

[Guest guest]

Krishna,

Glad to hear that you guys are hanging in there! And I hope things

clear up with the colic right quick. I know a couple of families

that have dealt with colicky kids... didn't sound like fun!

As far as the tenotomy goes, it all depends on how good her

dorsiflexion is now. Did Dr Lerman do any kind of measurement to see

how much dorsiflexion she has? With Jonah they used a fluoroscan

( " live xray " ) that they do right there in the cast room.

Are these casts she's in now ones that abduct her feet out to 70

degrees? They should look like her feet are nearly pointing

backwards. If they aren't, she might have a very hard time adjusting

to the FAB.

I'll send you the FAB tips.

Please let us know how things turn out next week.

Best,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral

clubfoot, FAB 14/7)

> Hello everyone-

> It has been a while since I have posted. This motherhood role is

> tough to get the hang of. is 6 weeks old and getting

better

> at a routine--however her colic is getting the best of her. BTW,

my

> pediatrician thinks the casts might of added to her colic since she

> can't raise her legs up to expel gas. Have any of you with a colic

> baby had a problem with this? Any advice out there for colic

> babies. I do the tummy drops, massage, and gripe water. And just

> recently I changed bottles. It seems to be getting better but she

> goes in bouts.

> Anyway, since I have been out of the loop, I want to let you all

know

> I read most of the emails, but sometimes it is tough when I open my

> email it says 300 messages or so to read. Yikes!! In any case, I

> want to say how wonderful I think the three wishes project went--I

am

> bummed because I did not have the opportnity to add our names to

the

> list. And Naomi--how wonderful that they are coming to your town.

> So I have a question for you. was suppose to get her

> tenetomy this past Monday, but her doctor at Shriners was so

> impressed by her progress that he wanted to put on another set of

> casts--then see her progress next week. He said we could possibly

> avoid the tenetomy altogether--and go into the brace. Has anyone

had

> this experience? I am just worried about a relapse later in life,

bu

> I guess thre are no guarantees. Let me know your thoughts.

> Thanks,

> Krishna

> PS check out her before and after pics--Under -- I didn't

> post her pic from this week--camera ran ou of batteries

[Guest guest]

Krishna,

You have gotten a couple of good replies, just wanted to say that our

daughter did not need a tenotomy either but her doctor (Dr. Pirani,

Ponseti certified and highly recommended by Ponseti) said that she

was one of very very few babies that he did not preform the tenotomy

on. He was training a doctor from London at the time and told him

that he would almost always preform a tenotomy and that Grace was one

of the few - about 3% of his patients that didn't need it.

If it were me, unless my daughters doctor was Ponseti certified and

recommended, I would send some pics in to Dr. Ponseti just to be

sure, especially if I had any question in my mind. He likes to see

pics with babies feet flat on the floor, bearing some weight if

possible - front, back and side view. Also a pic of her

dorsiflection, bend the foot up toward her shin as far as it will

comfortably go (I think this is correct, we have never had to send

pics in, someone please correct me if I don't have that right thx).

Grace also did have mild (although I didn't think it was at the time

lol) colic. It went away by 3.5 mos, hang in there!!! It's almost

over!

& Grace 07-21-04

right unilateral cf FAB 12-14 hrs

> > Hello everyone-

> > It has been a while since I have posted. This motherhood role is

> > tough to get the hang of. is 6 weeks old and getting

> better

> > at a routine--however her colic is getting the best of her. BTW,

> my

> > pediatrician thinks the casts might of added to her colic since

> she

> > can't raise her legs up to expel gas. Have any of you with a

> colic

> > baby had a problem with this? Any advice out there for colic

> > babies. I do the tummy drops, massage, and gripe water. And

just

> > recently I changed bottles. It seems to be getting better but

she

> > goes in bouts.

> > Anyway, since I have been out of the loop, I want to let you all

> know

> > I read most of the emails, but sometimes it is tough when I open

> my

> > email it says 300 messages or so to read. Yikes!! In any case,

I

> > want to say how wonderful I think the three wishes project went--

I

> am

> > bummed because I did not have the opportnity to add our names to

> the

> > list. And Naomi--how wonderful that they are coming to your

> town.

> > So I have a question for you. was suppose to get her

> > tenetomy this past Monday, but her doctor at Shriners was so

> > impressed by her progress that he wanted to put on another set of

> > casts--then see her progress next week. He said we could

possibly

> > avoid the tenetomy altogether--and go into the brace. Has anyone

> had

> > this experience? I am just worried about a relapse later in

life,

> bu

> > I guess thre are no guarantees. Let me know your thoughts.

> > Thanks,

> > Krishna

> > PS check out her before and after pics--Under -- I didn't

> > post her pic from this week--camera ran ou of batteries

[Guest guest]

Hi Krishna,

So good to hear it's all going so well! Except for the

colic... sorry! I don't have a lot of experience with that. I have

heard Dr. Brown bottles work well if baby gets gas. IS she drinking

formula or breast milk? If it's formula, have you tried switching or

using those special ones they make now? Sorry I'm not more help.

As for the tenotomy... well Darbi was in the same boat as your

and in the end she did not have one done. Her foot is great

now! I can't complain at all. However, I have braced her a lot. I

always braced her more than her doc said to, following instead Dr.

Ponseti's gradual reduction protocol. I wouldn't have done it any

other way. I feel very comfortable that her foot is just fine having

that under our belt so to speak. There is always the possibility of

relapse, but I am sure it's considerably less after doing those long

hours in the first year rather than the chances are with the recent

trend amongst some docs (ours included) to reduce to nights and naps

too early. Yes, part of me doing that was because she didn't have

the tenotomy plus it's what Dr. Ponseti says and I tend to err on the

side of the Ponseti Gospel as opposed to the stuff many other docs

are saying. I don't think she needed it at all but who knows what

would have happened with that tendon if I'd not braced her

properly? Also, her bar has always been bent so that's something to

be aware of... make sure they dorsiflex the bar when she gets it

(seems to be somewhat common for orthotists not knowing to do

this). I don't think you need to be extra specially cautious or

conscious of her not having the tenotomy just keep your eye on it

watching for problems. Like you wouldn't do that anyway lol. Oh,

one thing Dr. Ponseti told me when I was questioning this is that

even without the tenotomy, the last cast says on for 3w. Darbi only

ended up with 2.5w but still, it was more than a 1w cast.

Can't wait to hear she comes out of it not needing it at all!

Kori

At 12:13 PM 9/21/2005, you wrote:

>Hello everyone-

>It has been a while since I have posted. This motherhood role is

>tough to get the hang of. is 6 weeks old and getting better

>at a routine--however her colic is getting the best of her. BTW, my

>pediatrician thinks the casts might of added to her colic since she

>can't raise her legs up to expel gas. Have any of you with a colic

>baby had a problem with this? Any advice out there for colic

>babies. I do the tummy drops, massage, and gripe water. And just

>recently I changed bottles. It seems to be getting better but she

>goes in bouts.

>Anyway, since I have been out of the loop, I want to let you all know

>I read most of the emails, but sometimes it is tough when I open my

>email it says 300 messages or so to read. Yikes!! In any case, I

>want to say how wonderful I think the three wishes project went--I am

>bummed because I did not have the opportnity to add our names to the

>list. And Naomi--how wonderful that they are coming to your town.

>So I have a question for you. was suppose to get her

>tenetomy this past Monday, but her doctor at Shriners was so

>impressed by her progress that he wanted to put on another set of

>casts--then see her progress next week. He said we could possibly

>avoid the tenetomy altogether--and go into the brace. Has anyone had

>this experience? I am just worried about a relapse later in life, bu

>I guess thre are no guarantees. Let me know your thoughts.

>Thanks,

>Krishna

>PS check out her before and after pics--Under -- I didn't

>post her pic from this week--camera ran ou of batteries

>

>

>

>

>

>

[Guest guest]

At 06:32 PM 9/21/2005, you wrote:

>You could also try letting her sleep in a bouncy seat or car seat,

>so her legs are bent more closely to her body.

or put a pillow under his feet when he sleeps. Be easier for him to

pull in that way.

Kori

[Guest guest]

Krishna-

didn't have a tenotomy, and while I am a little concerned with his right

foot, his left is perfect. None of the doctors seemed concerned with the right

one either because when he puts weight on it, it looks fine

As for colic, we didn't have this problem, but has always been gassy. He

also has reflux, and we found that sleeping on his tummy helps. He is 10

months, so I know you may not want to put your little one on her tummy yet, but

if you are near her during naps or she naps close to you, you may try this

during nap time. You could also try letting her sleep in a bouncy seat or car

seat, so her legs are bent more closely to her body.

HTH,

Advice of avoiding tenetomy

Hello everyone-

It has been a while since I have posted. This motherhood role is

tough to get the hang of. is 6 weeks old and getting better

at a routine--however her colic is getting the best of her. BTW, my

pediatrician thinks the casts might of added to her colic since she

can't raise her legs up to expel gas. Have any of you with a colic

baby had a problem with this? Any advice out there for colic

babies. I do the tummy drops, massage, and gripe water. And just

recently I changed bottles. It seems to be getting better but she

goes in bouts.

Anyway, since I have been out of the loop, I want to let you all know

I read most of the emails, but sometimes it is tough when I open my

email it says 300 messages or so to read. Yikes!! In any case, I

want to say how wonderful I think the three wishes project went--I am

bummed because I did not have the opportnity to add our names to the

list. And Naomi--how wonderful that they are coming to your town.

So I have a question for you. was suppose to get her

tenetomy this past Monday, but her doctor at Shriners was so

impressed by her progress that he wanted to put on another set of

casts--then see her progress next week. He said we could possibly

avoid the tenetomy altogether--and go into the brace. Has anyone had

this experience? I am just worried about a relapse later in life, bu

I guess thre are no guarantees. Let me know your thoughts.

Thanks,

Krishna

PS check out her before and after pics--Under -- I didn't

post her pic from this week--camera ran ou of batteries

[Guest guest]

Kori,

I have been reading everyone's comments about the length of time to

wear the brace and it has really got me concerned about . She

began wearing her FAB at 5.5 months and wore it 24/7 for six weeks.

After six weeks we went to 12 hours (which for her is overnight), and

sometimes as few as 9 hours. 's doctor did not tell us a number

of hours, just simply, at night. So if she wakes up especially fussy

at 3am we remove the shoes. Now I'm concerned and confused and don't

know what to do. My husband says is fine and just to keep them

on as we have been doing. I have been putting them on her at 6 pm and

then removing them at 6:30am at the latest. I have considered since

reading all of the chatter about it, switching the time I put them on

her to 4pm or earlier. What do you think? Is it too late to go back to

longer times without another cast? How do I know if she has had some

relapse that maybe isn't obvious? Also wondering about the

dorsiflexion. How far should she be able to flex? Her feet don't go

much past a 90 degree angle, but then neither do mine, so I'm not sure

if that is a bad thing. I'm going to ask her doc about it when I see

him next week, but since you seem to know so much, thought maybe it

would be helpful if I had some specific information when I go to her

doctor. Thanks!

Donna

[Guest guest]

Kori,

I have been reading everyone's comments about the length of time to

wear the brace and it has really got me concerned about . She

began wearing her FAB at 5.5 months and wore it 24/7 for six weeks.

After six weeks we went to 12 hours (which for her is overnight), and

sometimes as few as 9 hours. 's doctor did not tell us a number

of hours, just simply, at night. So if she wakes up especially fussy

at 3am we remove the shoes. Now I'm concerned and confused and don't

know what to do. My husband says is fine and just to keep them

on as we have been doing. I have been putting them on her at 6 pm and

then removing them at 6:30am at the latest. I have considered since

reading all of the chatter about it, switching the time I put them on

her to 4pm or earlier. What do you think? Is it too late to go back to

longer times without another cast? How do I know if she has had some

relapse that maybe isn't obvious? Also wondering about the

dorsiflexion. How far should she be able to flex? Her feet don't go

much past a 90 degree angle, but then neither do mine, so I'm not sure

if that is a bad thing. I'm going to ask her doc about it when I see

him next week, but since you seem to know so much, thought maybe it

would be helpful if I had some specific information when I go to her

doctor. Thanks!

Donna

[Guest guest]

Just a side note, recently we put a pice of memory foam about 2 or 3 inches

thick in Everett's bed and he's been sleeping better.

s.

Re: Advice of avoiding tenetomy

At 06:32 PM 9/21/2005, you wrote:

>You could also try letting her sleep in a bouncy seat or car seat,

>so her legs are bent more closely to her body.

or put a pillow under his feet when he sleeps. Be easier for him to

pull in that way.

Kori

[Guest guest]

Well long story short....my MIL knows a guy who works in a factory....she ended

up getting us a king-size piece for our double-size bed so we had the extra we

trimmed off.

s

Re: Advice of avoiding tenetomy

Where did you pick yours up?

& Grace

> >You could also try letting her sleep in a bouncy seat or car seat,

> >so her legs are bent more closely to her body.

>

> or put a pillow under his feet when he sleeps. Be easier for him

to

> pull in that way.

>

> Kori

>

>

>

>

>

>

[Guest guest]

Where did you pick yours up?

& Grace

> >You could also try letting her sleep in a bouncy seat or car seat,

> >so her legs are bent more closely to her body.

>

> or put a pillow under his feet when he sleeps. Be easier for him

to

> pull in that way.

>

> Kori

>

>

>

>

>

>

[Guest guest]

Where did you pick yours up?

& Grace

> >You could also try letting her sleep in a bouncy seat or car seat,

> >so her legs are bent more closely to her body.

>

> or put a pillow under his feet when he sleeps. Be easier for him

to

> pull in that way.

>

> Kori

>

>

>

>

>

>

[Guest guest]

-

Thank for the colic advice and I am doing many of those things--it seems like it

is getting better--and I know it is only temporary...

Krishna

Goodin wrote:

Krishna-

didn't have a tenotomy, and while I am a little concerned with his right

foot, his left is perfect. None of the doctors seemed concerned with the right

one either because when he puts weight on it, it looks fine

As for colic, we didn't have this problem, but has always been gassy. He

also has reflux, and we found that sleeping on his tummy helps. He is 10

months, so I know you may not want to put your little one on her tummy yet, but

if you are near her during naps or she naps close to you, you may try this

during nap time. You could also try letting her sleep in a bouncy seat or car

seat, so her legs are bent more closely to her body.

HTH,

Advice of avoiding tenetomy

Hello everyone-

It has been a while since I have posted. This motherhood role is

tough to get the hang of. is 6 weeks old and getting better

at a routine--however her colic is getting the best of her. BTW, my

pediatrician thinks the casts might of added to her colic since she

can't raise her legs up to expel gas. Have any of you with a colic

baby had a problem with this? Any advice out there for colic

babies. I do the tummy drops, massage, and gripe water. And just

recently I changed bottles. It seems to be getting better but she

goes in bouts.

Anyway, since I have been out of the loop, I want to let you all know

I read most of the emails, but sometimes it is tough when I open my

email it says 300 messages or so to read. Yikes!! In any case, I

want to say how wonderful I think the three wishes project went--I am

bummed because I did not have the opportnity to add our names to the

list. And Naomi--how wonderful that they are coming to your town.

So I have a question for you. was suppose to get her

tenetomy this past Monday, but her doctor at Shriners was so

impressed by her progress that he wanted to put on another set of

casts--then see her progress next week. He said we could possibly

avoid the tenetomy altogether--and go into the brace. Has anyone had

this experience? I am just worried about a relapse later in life, bu

I guess thre are no guarantees. Let me know your thoughts.

Thanks,

Krishna

PS check out her before and after pics--Under -- I didn't

post her pic from this week--camera ran ou of batteries

[Guest guest]

HI Kori-

Thanks for the reply and those tips I am currently using and they seem to be

helping!! Yah

Krishna

frogabog wrote:

At 06:32 PM 9/21/2005, you wrote:

>You could also try letting her sleep in a bouncy seat or car seat,

>so her legs are bent more closely to her body.

or put a pillow under his feet when he sleeps. Be easier for him to

pull in that way.

Kori

[Guest guest]

Hi Kori-

Thanks for the words of encouragement. I am breastfeeding and

supplementing--and I did switch bottles recently on advice from a girlfriend, it

seems to be helping the gas.

I do have a question about the tenetomy. is in her 7th pair of casts,

but we see the Dr. next week--should this last pair be on for another 2 weeks

according to Dr. Ponseti himself? I was under the impression the threee week

cast was only for the tenetomy procedure. Please clarify. And we see the Dr.

next week, any questions or concerns to address?

Thanks,

Krishna

frogabog wrote:

Hi Krishna,

So good to hear it's all going so well! Except for the

colic... sorry! I don't have a lot of experience with that. I have

heard Dr. Brown bottles work well if baby gets gas. IS she drinking

formula or breast milk? If it's formula, have you tried switching or

using those special ones they make now? Sorry I'm not more help.

As for the tenotomy... well Darbi was in the same boat as your

and in the end she did not have one done. Her foot is great

now! I can't complain at all. However, I have braced her a lot. I

always braced her more than her doc said to, following instead Dr.

Ponseti's gradual reduction protocol. I wouldn't have done it any

other way. I feel very comfortable that her foot is just fine having

that under our belt so to speak. There is always the possibility of

relapse, but I am sure it's considerably less after doing those long

hours in the first year rather than the chances are with the recent

trend amongst some docs (ours included) to reduce to nights and naps

too early. Yes, part of me doing that was because she didn't have

the tenotomy plus it's what Dr. Ponseti says and I tend to err on the

side of the Ponseti Gospel as opposed to the stuff many other docs

are saying. I don't think she needed it at all but who knows what

would have happened with that tendon if I'd not braced her

properly? Also, her bar has always been bent so that's something to

be aware of... make sure they dorsiflex the bar when she gets it

(seems to be somewhat common for orthotists not knowing to do

this). I don't think you need to be extra specially cautious or

conscious of her not having the tenotomy just keep your eye on it

watching for problems. Like you wouldn't do that anyway lol. Oh,

one thing Dr. Ponseti told me when I was questioning this is that

even without the tenotomy, the last cast says on for 3w. Darbi only

ended up with 2.5w but still, it was more than a 1w cast.

Can't wait to hear she comes out of it not needing it at all!

Kori

At 12:13 PM 9/21/2005, you wrote:

>Hello everyone-

>It has been a while since I have posted. This motherhood role is

>tough to get the hang of. is 6 weeks old and getting better

>at a routine--however her colic is getting the best of her. BTW, my

>pediatrician thinks the casts might of added to her colic since she

>can't raise her legs up to expel gas. Have any of you with a colic

>baby had a problem with this? Any advice out there for colic

>babies. I do the tummy drops, massage, and gripe water. And just

>recently I changed bottles. It seems to be getting better but she

>goes in bouts.

>Anyway, since I have been out of the loop, I want to let you all know

>I read most of the emails, but sometimes it is tough when I open my

>email it says 300 messages or so to read. Yikes!! In any case, I

>want to say how wonderful I think the three wishes project went--I am

>bummed because I did not have the opportnity to add our names to the

>list. And Naomi--how wonderful that they are coming to your town.

>So I have a question for you. was suppose to get her

>tenetomy this past Monday, but her doctor at Shriners was so

>impressed by her progress that he wanted to put on another set of

>casts--then see her progress next week. He said we could possibly

>avoid the tenetomy altogether--and go into the brace. Has anyone had

>this experience? I am just worried about a relapse later in life, bu

>I guess thre are no guarantees. Let me know your thoughts.

>Thanks,

>Krishna

>PS check out her before and after pics--Under -- I didn't

>post her pic from this week--camera ran ou of batteries

>

>

>

>

>

>

[Guest guest]

I have little time but that's what he emailed to me when Darbi was

little. He said 3w.

Kori

At 03:00 PM 9/23/2005, you wrote:

>Hi Kori-

>Thanks for the words of encouragement. I am breastfeeding and

>supplementing--and I did switch bottles recently on advice from a

>girlfriend, it seems to be helping the gas.

>I do have a question about the tenetomy. is in her 7th pair

>of casts, but we see the Dr. next week--should this last pair be on

>for another 2 weeks according to Dr. Ponseti himself? I was under

>the impression the threee week cast was only for the tenetomy

>procedure. Please clarify. And we see the Dr. next week, any

>questions or concerns to address?

>Thanks,

>Krishna

>

>frogabog wrote:

>Hi Krishna,

>

>So good to hear it's all going so well! Except for the

>colic... sorry! I don't have a lot of experience with that. I have

>heard Dr. Brown bottles work well if baby gets gas. IS she drinking

>formula or breast milk? If it's formula, have you tried switching or

>using those special ones they make now? Sorry I'm not more help.

>

>As for the tenotomy... well Darbi was in the same boat as your

> and in the end she did not have one done. Her foot is great

>now! I can't complain at all. However, I have braced her a lot. I

>always braced her more than her doc said to, following instead Dr.

>Ponseti's gradual reduction protocol. I wouldn't have done it any

>other way. I feel very comfortable that her foot is just fine having

>that under our belt so to speak. There is always the possibility of

>relapse, but I am sure it's considerably less after doing those long

>hours in the first year rather than the chances are with the recent

>trend amongst some docs (ours included) to reduce to nights and naps

>too early. Yes, part of me doing that was because she didn't have

>the tenotomy plus it's what Dr. Ponseti says and I tend to err on the

>side of the Ponseti Gospel as opposed to the stuff many other docs

>are saying. I don't think she needed it at all but who knows what

>would have happened with that tendon if I'd not braced her

>properly? Also, her bar has always been bent so that's something to

>be aware of... make sure they dorsiflex the bar when she gets it

>(seems to be somewhat common for orthotists not knowing to do

>this). I don't think you need to be extra specially cautious or

>conscious of her not having the tenotomy just keep your eye on it

>watching for problems. Like you wouldn't do that anyway lol. Oh,

>one thing Dr. Ponseti told me when I was questioning this is that

>even without the tenotomy, the last cast says on for 3w. Darbi only

>ended up with 2.5w but still, it was more than a 1w cast.

>

>

>Can't wait to hear she comes out of it not needing it at all!

>

>Kori

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>At 12:13 PM 9/21/2005, you wrote:

> >Hello everyone-

> >It has been a while since I have posted. This motherhood role is

> >tough to get the hang of. is 6 weeks old and getting better

> >at a routine--however her colic is getting the best of her. BTW, my

> >pediatrician thinks the casts might of added to her colic since she

> >can't raise her legs up to expel gas. Have any of you with a colic

> >baby had a problem with this? Any advice out there for colic

> >babies. I do the tummy drops, massage, and gripe water. And just

> >recently I changed bottles. It seems to be getting better but she

> >goes in bouts.

> >Anyway, since I have been out of the loop, I want to let you all know

> >I read most of the emails, but sometimes it is tough when I open my

> >email it says 300 messages or so to read. Yikes!! In any case, I

> >want to say how wonderful I think the three wishes project went--I am

> >bummed because I did not have the opportnity to add our names to the

> >list. And Naomi--how wonderful that they are coming to your town.

> >So I have a question for you. was suppose to get her

> >tenetomy this past Monday, but her doctor at Shriners was so

> >impressed by her progress that he wanted to put on another set of

> >casts--then see her progress next week. He said we could possibly

> >avoid the tenetomy altogether--and go into the brace. Has anyone had

> >this experience? I am just worried about a relapse later in life, bu

> >I guess thre are no guarantees. Let me know your thoughts.

> >Thanks,

> >Krishna

> >PS check out her before and after pics--Under -- I didn't

> >post her pic from this week--camera ran ou of batteries

> >

> >

> >

> >

> >

> >