Re: new to all of this

[Guest guest]

The bad news is your ultrasounds are most likely correct. The good news is that

all in all, it's not that big of a deal in the scheme of things. Don't let it

frighten you, and don't beat yourself up over....it's really not your fault, OK?

Others here might disagree with me but I didn't find it to be any real

challenge to find cloths to fit over the casts or FAB. My 1st son wore casts

for 6 solid months (non-ponseti) and I had to dress him over those, then he wore

casts again (per-ponseti) when he was 2 years old and I had to dress him over

those.....

I'd cut the feet out of the fuzzy blanket pajamas (or any suit with feet) and

put the baby in those (and with casts I didnt' cut the feet out, they fit over

the cast). It's sort of a hit n miss process finding the car seat, chairs,

whatever, but even that hasn't been all that challenging, not as much as you

might fear. I think the process will be what ever you want it to be - no

sweat or major ordeal. I always chose the no-sweat approach, it just is what

it is and that's OK. One note I will add here about cribs - the FAB can beat a

crib half to death and the baby can get his feet stuck between the slats, or hit

them in his sleep and wake up. We changed from a crib to a play pen as a bed

for these reasons.

Just enjoy your remaining pregnancy! And when the baby is born, take lots

of pictures and just enjoy your new born. YOu can wait a couple weeks before

you start casting with no harm done if you want time to bond, recover, enjoy

before the correction phase of life begins. I recommend doing that.

I agree with the others, you are extremely lucky you found out early and found

Dr. Dobbs, I hear only excellent things about him! Stick around, we love to

have you here!

s.

new to all of this

im new to all of this and have a lot of questions.my husband and i

went to see dr dobbs yesturday to discuss what they do for club foot.i

am 30 weeks pregnant and have had 3 altra sounds confirming that our

un born child had club feet. was wondering could they be wrong ? i

know it just hope but in the other hand have to prepaare for that he

does and to get all the info on it i can and what to expect . about

the casting and the braces they put on them. what kind of clothes to

buy and etc.

[Guest guest]

No, if you have had 3 ultrasounds and they tell you the same thing then the odds

of them being wrong are slim to none. I found out at 28 weeks that my son,

would have Bilateral Club Feet. There are pics posted under photos,

folder . I think there is one a birth in there. You will need to stay

away from clothes that are footed. Get socks that are thick and have the gripper

stuff on the bottom. My son came early so I did not get to do research until

after he was born. We went through one doctor and I was not happy with how

was progressing so we came to Dr. Ponseti himself and we are in Iowa

now while is getting treatment. He had relapsed, which can happen, if

they are rush through the process. Many people in the group use Dr. Dobbs and

seem to have nice things to say. We live in Arkansas, have trained physicians

but they rushed my son and his shoes and brace would not stay on his feet which

led to me asking questions, research, finding this

support group and now we are working with Dr. Ponseti. It will be a long road.

Hang in there. This group will help you a lot. Please email me directly should

you need more information.

mom to Nichoals BL CF 6-11-2005

0 wrote:

im new to all of this and have a lot of questions.my husband and i

went to see dr dobbs yesturday to discuss what they do for club foot.i

am 30 weeks pregnant and have had 3 altra sounds confirming that our

un born child had club feet. was wondering could they be wrong ? i

know it just hope but in the other hand have to prepaare for that he

does and to get all the info on it i can and what to expect . about

the casting and the braces they put on them. what kind of clothes to

buy and etc.

[Guest guest]

Hi and welcome to the group. You have definitely come to the right

place for lots of advice. I'm sure you will get lots of other replies

with more info so I will make this short. Unfortunately it is

unlikely that they are wrong about the baby's clubfeet if they were

seen on 3 ultrasounds. Fortunately, you met yesterday with one of the

best clubfoot doctors in the country. Please be assured that Dr.

Dobbs will have your baby's feet beautifully corrected in no time. My

son was treated by Dr. Dobbs and to look at his feet (he was born with

one right clubfoot) you cannot tell the difference between them and no

one would know that he had a clubfoot. I'm sorry we missed you, my

son was in for his check up with Dr. Dobbs yesterday morning. If you

would like to talk more, please feel free to email me at

jagrindon@...

HTH,

Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 16/7)

> im new to all of this and have a lot of questions.my husband and i

> went to see dr dobbs yesturday to discuss what they do for club foot.i

> am 30 weeks pregnant and have had 3 altra sounds confirming that our

> un born child had club feet. was wondering could they be wrong ? i

> know it just hope but in the other hand have to prepaare for that he

> does and to get all the info on it i can and what to expect . about

> the casting and the braces they put on them. what kind of clothes to

> buy and etc.

[Guest guest]

Hi,

I want to chime in about dealing with the diagnosis during pregnancy.

I believe that you are very lucky. Lucky to know about your baby

having clubfeet prior to birth. You are so fortunate to have the

chance to research and get your head wrapped around the idea. I have

three children, two perfectly healthy boys and my daughter with

bilateral club feet. When she was born 10 months ago I was asleep for

the c-section and had no idea that there was anything wrong with her.

We had 2 ultrasounds, but the club feet were not diagnosed. It was a

total shock, I knew nothing about it, and had a hard time getting

information in the hospital. I didn't know there were different

methods of treatment, and when the hospital's orthopedic surgeon came

in to cast her, I didn't know any better. Luckily, although I had to

switch doctors at 4 months because the first doctor didn't really know

what he was doing, there was no permanent damage done by her improper

casting. I do believe, however, that the best thing the first doctor

did for her was to cast her immediately (within 24 hours of birth). I

have heard that the mother's hormones are still in the baby for 72

hours after birth. Just as these hormones relax our ligaments and

tendons for the birth, they relax the babies, making it a prime time

to begin treatment. In my experience, I have basically been told that

my daughter's progress is a miracle, given the severity of her

deformities at birth. She has not had the tenotomy and her doctor does

not think she needs it. Also, it was very difficult for me to look at

her deformed feet. I was not emotionally prepared for it and it upset

me very much. When she was in her casts, I could almost forget that

her poor little feet were damaged! Every time I took off the casts, I

would go through the emotions related to those poor little feet. I

hope that makes sense. What I am trying to say is that I would not

have wanted to take her home from the hospital without casts and have

to deal with her little feet just out there, without any sort of

treatment. Maybe I am more emotional than most, but as you all know,

it can be heartbreaking. Good luck to you. God bless you and your

little baby. There are so many things that can go wrong with a baby's

development that I actually feel lucky that my child (one of three)

got off easy when it comes to medical complications. I am grateful

that for my children, club feet is as bad as it got.

Donna

[Guest guest]

Hi,

I want to chime in about dealing with the diagnosis during pregnancy.

I believe that you are very lucky. Lucky to know about your baby

having clubfeet prior to birth. You are so fortunate to have the

chance to research and get your head wrapped around the idea. I have

three children, two perfectly healthy boys and my daughter with

bilateral club feet. When she was born 10 months ago I was asleep for

the c-section and had no idea that there was anything wrong with her.

We had 2 ultrasounds, but the club feet were not diagnosed. It was a

total shock, I knew nothing about it, and had a hard time getting

information in the hospital. I didn't know there were different

methods of treatment, and when the hospital's orthopedic surgeon came

in to cast her, I didn't know any better. Luckily, although I had to

switch doctors at 4 months because the first doctor didn't really know

what he was doing, there was no permanent damage done by her improper

casting. I do believe, however, that the best thing the first doctor

did for her was to cast her immediately (within 24 hours of birth). I

have heard that the mother's hormones are still in the baby for 72

hours after birth. Just as these hormones relax our ligaments and

tendons for the birth, they relax the babies, making it a prime time

to begin treatment. In my experience, I have basically been told that

my daughter's progress is a miracle, given the severity of her

deformities at birth. She has not had the tenotomy and her doctor does

not think she needs it. Also, it was very difficult for me to look at

her deformed feet. I was not emotionally prepared for it and it upset

me very much. When she was in her casts, I could almost forget that

her poor little feet were damaged! Every time I took off the casts, I

would go through the emotions related to those poor little feet. I

hope that makes sense. What I am trying to say is that I would not

have wanted to take her home from the hospital without casts and have

to deal with her little feet just out there, without any sort of

treatment. Maybe I am more emotional than most, but as you all know,

it can be heartbreaking. Good luck to you. God bless you and your

little baby. There are so many things that can go wrong with a baby's

development that I actually feel lucky that my child (one of three)

got off easy when it comes to medical complications. I am grateful

that for my children, club feet is as bad as it got.

Donna

[Guest guest]

I'm so dang anxious to get my ultra sound. At first I didn't really care but as

time goes on I'm chomping the bit. I want to KNOW, and God I know if it's cf'd

I'm going to cry this time. I'm not sure I have it in me to be brave a third

time.

s.

Re: new to all of this

No, if you have had 3 ultrasounds and they tell you the same thing then the odds

of them being wrong are slim to none. I found out at 28 weeks that my son,

would have Bilateral Club Feet. There are pics posted under photos,

folder . I think there is one a birth in there. You will need to stay

away from clothes that are footed. Get socks that are thick and have the gripper

stuff on the bottom. My son came early so I did not get to do research until

after he was born. We went through one doctor and I was not happy with how

was progressing so we came to Dr. Ponseti himself and we are in Iowa

now while is getting treatment. He had relapsed, which can happen, if

they are rush through the process. Many people in the group use Dr. Dobbs and

seem to have nice things to say. We live in Arkansas, have trained physicians

but they rushed my son and his shoes and brace would not stay on his feet which

led to me asking questions, research, finding this

support group and now we are working with Dr. Ponseti. It will be a long road.

Hang in there. This group will help you a lot. Please email me directly should

you need more information.

mom to Nichoals BL CF 6-11-2005

0 wrote:

im new to all of this and have a lot of questions.my husband and i

went to see dr dobbs yesturday to discuss what they do for club foot.i

am 30 weeks pregnant and have had 3 altra sounds confirming that our

un born child had club feet. was wondering could they be wrong ? i

know it just hope but in the other hand have to prepaare for that he

does and to get all the info on it i can and what to expect . about

the casting and the braces they put on them. what kind of clothes to

buy and etc.

[Guest guest]

Oh thanks for the happy thoughts, I realize I am starting to stress over this

more than I should. I have no date set for an US yet, but I told the midwife to

wait till I'm at least 20 weeks along, so another month or so?. Very early on

this board I heard a woman had 4 cf kids and thought NO WAY! But I guess it

does happen.

s.

ee,

With the statistics being what they are, your chances are great to

have straight tootsies this time!!! After having 2 with cf, you're

due for them!!!! We are all hoping you get good news! When do you go

for your US?

& Grace

> im new to all of this and have a lot of questions.my husband and i

> went to see dr dobbs yesturday to discuss what they do for club

foot.i

> am 30 weeks pregnant and have had 3 altra sounds confirming that

our

> un born child had club feet. was wondering could they be wrong ? i

> know it just hope but in the other hand have to prepaare for that

he

> does and to get all the info on it i can and what to expect . about

> the casting and the braces they put on them. what kind of clothes

to

> buy and etc.

>

>

>

>

>

>

>

[Guest guest]

I know it's very shocking/disappointing to find out that your child

has clubfeet, but I have to agree - it's very fortunate that it was

caught in ultrasound and that you have time to prepare and inform

yourself. I, too, was caught completely off guard when during my

ultrasound at 18 weeks they told me my son will be born with a

clubfoot. No one in our families has had clubfoot so it was a

complete shock and disappointment. I had these hopes that maybe,

just maybe, they misdiagnosed the clubfoot (after 3 ultrasounds

there was no doubt about the clubfoot). I found this group

(thankfully!!!)and it was so comforting to know that there were so

many parents who have gone through the same thing - many more

unfortunate because they didn't know about the clubfoot until their

babies were born. I guess I agree with the saying " misery loves

company " . I felt reassured knowing that I was not alone - that the

condition was completely treatable. I read all the positive

experiences of the Ponseti method and felt better instantly. Now, at

32 weeks pregnant, I have a game plan. I know that it may not be

easy, but at least with all the advice and information I've been

able to obtain beforehand, I am prepared for just about anything.

Best of luck to you and just know that you'll get through it.

> Hi,

>

> I want to chime in about dealing with the diagnosis during

pregnancy.

> I believe that you are very lucky. Lucky to know about your baby

> having clubfeet prior to birth. You are so fortunate to have the

> chance to research and get your head wrapped around the idea. I

have

> three children, two perfectly healthy boys and my daughter with

> bilateral club feet. When she was born 10 months ago I was asleep

for

> the c-section and had no idea that there was anything wrong with

her.

> We had 2 ultrasounds, but the club feet were not diagnosed. It was

a

> total shock, I knew nothing about it, and had a hard time getting

> information in the hospital. I didn't know there were different

> methods of treatment, and when the hospital's orthopedic surgeon

came

> in to cast her, I didn't know any better. Luckily, although I had

to

> switch doctors at 4 months because the first doctor didn't really

know

> what he was doing, there was no permanent damage done by her

improper

> casting. I do believe, however, that the best thing the first

doctor

> did for her was to cast her immediately (within 24 hours of

birth). I

> have heard that the mother's hormones are still in the baby for

72

> hours after birth. Just as these hormones relax our ligaments and

> tendons for the birth, they relax the babies, making it a prime

time

> to begin treatment. In my experience, I have basically been told

that

> my daughter's progress is a miracle, given the severity of her

> deformities at birth. She has not had the tenotomy and her doctor

does

> not think she needs it. Also, it was very difficult for me to look

at

> her deformed feet. I was not emotionally prepared for it and it

upset

> me very much. When she was in her casts, I could almost forget

that

> her poor little feet were damaged! Every time I took off the

casts, I

> would go through the emotions related to those poor little feet. I

> hope that makes sense. What I am trying to say is that I would not

> have wanted to take her home from the hospital without casts and

have

> to deal with her little feet just out there, without any sort of

> treatment. Maybe I am more emotional than most, but as you all

know,

> it can be heartbreaking. Good luck to you. God bless you and your

> little baby. There are so many things that can go wrong with a

baby's

> development that I actually feel lucky that my child (one of

three)

> got off easy when it comes to medical complications. I am grateful

> that for my children, club feet is as bad as it got.

>

> Donna

>

>

>

>

[Guest guest]

I know it's very shocking/disappointing to find out that your child

has clubfeet, but I have to agree - it's very fortunate that it was

caught in ultrasound and that you have time to prepare and inform

yourself. I, too, was caught completely off guard when during my

ultrasound at 18 weeks they told me my son will be born with a

clubfoot. No one in our families has had clubfoot so it was a

complete shock and disappointment. I had these hopes that maybe,

just maybe, they misdiagnosed the clubfoot (after 3 ultrasounds

there was no doubt about the clubfoot). I found this group

(thankfully!!!)and it was so comforting to know that there were so

many parents who have gone through the same thing - many more

unfortunate because they didn't know about the clubfoot until their

babies were born. I guess I agree with the saying " misery loves

company " . I felt reassured knowing that I was not alone - that the

condition was completely treatable. I read all the positive

experiences of the Ponseti method and felt better instantly. Now, at

32 weeks pregnant, I have a game plan. I know that it may not be

easy, but at least with all the advice and information I've been

able to obtain beforehand, I am prepared for just about anything.

Best of luck to you and just know that you'll get through it.

> Hi,

>

> I want to chime in about dealing with the diagnosis during

pregnancy.

> I believe that you are very lucky. Lucky to know about your baby

> having clubfeet prior to birth. You are so fortunate to have the

> chance to research and get your head wrapped around the idea. I

have

> three children, two perfectly healthy boys and my daughter with

> bilateral club feet. When she was born 10 months ago I was asleep

for

> the c-section and had no idea that there was anything wrong with

her.

> We had 2 ultrasounds, but the club feet were not diagnosed. It was

a

> total shock, I knew nothing about it, and had a hard time getting

> information in the hospital. I didn't know there were different

> methods of treatment, and when the hospital's orthopedic surgeon

came

> in to cast her, I didn't know any better. Luckily, although I had

to

> switch doctors at 4 months because the first doctor didn't really

know

> what he was doing, there was no permanent damage done by her

improper

> casting. I do believe, however, that the best thing the first

doctor

> did for her was to cast her immediately (within 24 hours of

birth). I

> have heard that the mother's hormones are still in the baby for

72

> hours after birth. Just as these hormones relax our ligaments and

> tendons for the birth, they relax the babies, making it a prime

time

> to begin treatment. In my experience, I have basically been told

that

> my daughter's progress is a miracle, given the severity of her

> deformities at birth. She has not had the tenotomy and her doctor

does

> not think she needs it. Also, it was very difficult for me to look

at

> her deformed feet. I was not emotionally prepared for it and it

upset

> me very much. When she was in her casts, I could almost forget

that

> her poor little feet were damaged! Every time I took off the

casts, I

> would go through the emotions related to those poor little feet. I

> hope that makes sense. What I am trying to say is that I would not

> have wanted to take her home from the hospital without casts and

have

> to deal with her little feet just out there, without any sort of

> treatment. Maybe I am more emotional than most, but as you all

know,

> it can be heartbreaking. Good luck to you. God bless you and your

> little baby. There are so many things that can go wrong with a

baby's

> development that I actually feel lucky that my child (one of

three)

> got off easy when it comes to medical complications. I am grateful

> that for my children, club feet is as bad as it got.

>

> Donna

>

>

>

>

[Guest guest]

ee,

With the statistics being what they are, your chances are great to

have straight tootsies this time!!! After having 2 with cf, you're

due for them!!!! We are all hoping you get good news! When do you go

for your US?

& Grace

> im new to all of this and have a lot of questions.my husband and i

> went to see dr dobbs yesturday to discuss what they do for club

foot.i

> am 30 weeks pregnant and have had 3 altra sounds confirming that

our

> un born child had club feet. was wondering could they be wrong ? i

> know it just hope but in the other hand have to prepaare for that

he

> does and to get all the info on it i can and what to expect . about

> the casting and the braces they put on them. what kind of clothes

to

> buy and etc.

>

>

>

>

>

>

>