Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 I really want everyone to understand that when you post to the group, the benefit is that all the members of the group have the right to read these emails. The gift of having a " open " forum group where all our posts are shared-- is that we can send alot of information in a single post to now 500+ members! It is perfectly acceptable (and expected) that you will get several (sometimes many) replies to your posts. I don't want anyone to think that if they answer an email that has someone elses name at the top, that it is only for that person to read. Since we share a common journey, we also share our challenges and grief and joy-- for all to see. So- as far as any of us " butting in " -- you're not!!! Post away, and know that we are here to help each other-- all 500 of us.!! Love to all, Tracie NS Co-owner/moderator --- Cathy Borden wrote: > Hi Terri, > Please feel free to jump in any of my > conversations. I am a sponge at this point trying to > soak up all the info I can. Thanks so much! > Cathy > > mosaicgirl1 wrote: > > Cathy, > > Sorry to butt in but I have a friend with MS who > used to use 2, 3 prong > canes. > > Just an FYI. > > Terri G. > > > > > > > > > Marla, > > I know I've talked about this-- but one thing I > learned from the dc is > that when we exercise (for us walk to the mailbox) > or even try the > grocery store or the mall-- that the lactic acid > that builds up in our > muscles isn't cleared out like it is in someone > healthy. We store all > those toxins-- in our lymphs and muscles, so the > fatigue to them is so > much more intense. > > Like you, I have had episodes (now more often) of > my legs wanting me > to stop trying to hike the mall-- it's just too > much. I also wonder how > much of this is due to the fact that if we are lung > compromised -- our > bodies are trying to keep the oxygen going to our > vital organs-- so it > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 I really want everyone to understand that when you post to the group, the benefit is that all the members of the group have the right to read these emails. The gift of having a " open " forum group where all our posts are shared-- is that we can send alot of information in a single post to now 500+ members! It is perfectly acceptable (and expected) that you will get several (sometimes many) replies to your posts. I don't want anyone to think that if they answer an email that has someone elses name at the top, that it is only for that person to read. Since we share a common journey, we also share our challenges and grief and joy-- for all to see. So- as far as any of us " butting in " -- you're not!!! Post away, and know that we are here to help each other-- all 500 of us.!! Love to all, Tracie NS Co-owner/moderator --- Cathy Borden wrote: > Hi Terri, > Please feel free to jump in any of my > conversations. I am a sponge at this point trying to > soak up all the info I can. Thanks so much! > Cathy > > mosaicgirl1 wrote: > > Cathy, > > Sorry to butt in but I have a friend with MS who > used to use 2, 3 prong > canes. > > Just an FYI. > > Terri G. > > > > > > > > > Marla, > > I know I've talked about this-- but one thing I > learned from the dc is > that when we exercise (for us walk to the mailbox) > or even try the > grocery store or the mall-- that the lactic acid > that builds up in our > muscles isn't cleared out like it is in someone > healthy. We store all > those toxins-- in our lymphs and muscles, so the > fatigue to them is so > much more intense. > > Like you, I have had episodes (now more often) of > my legs wanting me > to stop trying to hike the mall-- it's just too > much. I also wonder how > much of this is due to the fact that if we are lung > compromised -- our > bodies are trying to keep the oxygen going to our > vital organs-- so it > === message truncated === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Thanks for saying that so clearly Tracie! What you said is so true. I learn something from every one I read. I want to thank everyone for being will to do the group emails. It really helps those of us that are still trying to figure this NS thing out. Thanks to everyone and have a happy day!tracie feldhaus wrote: I really want everyone to understand that when youpost to the group, the benefit is that all the membersof the group have the right to read these emails. The gift of having a "open" forum group where all ourposts are shared-- is that we can send alot ofinformation in a single post to now 500+ members! It is perfectly acceptable (and expected) that youwill get several (sometimes many) replies to yourposts. I don't want anyone to think that if they answer anemail that has someone elses name at the top, that itis only for that person to read. Since we share a common journey, we also share ourchallenges and grief and joy-- for all to see. So- as far as any of us "butting in" -- you're not!!!Post away, and know that we are here to help eachother-- all 500 of us.!!Love to all,TracieNS Co-owner/moderator --- Cathy Borden <csamom3 (AT) yahoo (DOT) com> wrote:> Hi Terri,> Please feel free to jump in any of my> conversations. I am a sponge at this point trying to> soak up all the info I can. Thanks so much!> Cathy> > mosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com> wrote:> > Cathy,> > Sorry to butt in but I have a friend with MS who> used to use 2, 3 prong> canes.> > Just an FYI.> > Terri G.> > >> >> >> > Marla,> > I know I've talked about this-- but one thing I> learned from the dc is> that when we exercise (for us walk to the mailbox)> or even try the> grocery store or the mall-- that the lactic acid> that builds up in our> muscles isn't cleared out like it is in someone> healthy. We store all> those toxins-- in our lymphs and muscles, so the> fatigue to them is so> much more intense.> > Like you, I have had episodes (now more often) of> my legs wanting me> to stop trying to hike the mall-- it's just too> much. I also wonder how> much of this is due to the fact that if we are lung> compromised -- our> bodies are trying to keep the oxygen going to our> vital organs-- so it> === message truncated === Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2008 Report Share Posted March 28, 2008 Thanks for saying that so clearly Tracie! What you said is so true. I learn something from every one I read. I want to thank everyone for being will to do the group emails. It really helps those of us that are still trying to figure this NS thing out. Thanks to everyone and have a happy day!tracie feldhaus wrote: I really want everyone to understand that when youpost to the group, the benefit is that all the membersof the group have the right to read these emails. The gift of having a "open" forum group where all ourposts are shared-- is that we can send alot ofinformation in a single post to now 500+ members! It is perfectly acceptable (and expected) that youwill get several (sometimes many) replies to yourposts. I don't want anyone to think that if they answer anemail that has someone elses name at the top, that itis only for that person to read. Since we share a common journey, we also share ourchallenges and grief and joy-- for all to see. So- as far as any of us "butting in" -- you're not!!!Post away, and know that we are here to help eachother-- all 500 of us.!!Love to all,TracieNS Co-owner/moderator --- Cathy Borden <csamom3 (AT) yahoo (DOT) com> wrote:> Hi Terri,> Please feel free to jump in any of my> conversations. I am a sponge at this point trying to> soak up all the info I can. Thanks so much!> Cathy> > mosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com> wrote:> > Cathy,> > Sorry to butt in but I have a friend with MS who> used to use 2, 3 prong> canes.> > Just an FYI.> > Terri G.> > >> >> >> > Marla,> > I know I've talked about this-- but one thing I> learned from the dc is> that when we exercise (for us walk to the mailbox)> or even try the> grocery store or the mall-- that the lactic acid> that builds up in our> muscles isn't cleared out like it is in someone> healthy. We store all> those toxins-- in our lymphs and muscles, so the> fatigue to them is so> much more intense.> > Like you, I have had episodes (now more often) of> my legs wanting me> to stop trying to hike the mall-- it's just too> much. I also wonder how> much of this is due to the fact that if we are lung> compromised -- our> bodies are trying to keep the oxygen going to our> vital organs-- so it> === message truncated === Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.