Jump to content
RemedySpot.com

Just info from another email

Rate this topic


Guest guest

Recommended Posts

Just wanted to let everyone in this group read this. We just started to see Dr.

Ponseti and when I read this I started to get worried. I can tell the

difference in treatment and after only 3 weeks of treatment his foot for the

first time in his life looks normal and moves with ease. Is this lady

suggesting that Ponseti is not qualified? Please don't take to harshly, for us

that see Ponseti know he is the best for our children

Tabitha

mom to Karter 7-30-04

below is e-mail from clubfoot group

" Google searches on the subject reflect that a specific cause and

treatment are not known. Treatments vary as the severity varies.

I am an assistant to a General Magistrate who also happens to be a

registered nurse (who used to deal in cancer treatment) and who also

serves in an executive position in the state nurse/attorney group

dealing with malpractice and areas of medical ethics. Not to mention

that our area of law, juvenile dependency (child abuse/neglect)

contains many medical instances of all types. The General Magistrate

is very skeptical of the claims of 80% to 90% " cures " . The fact

that Dr. Ponseti is not published speaks volumnes. The extraordinary

claims of Dr. Ponseti are subject to disagreement. Such high rates of

success based on anedotal evidence are questionable to say the

least. That standard of proof is not accepted in my legal world, I

promise.

The fact that doctors are " certified " (read, does Dr. Ponseti charge

for this certification?) in Ponseti treatment and that the website

states " that if the Ponseti treatment provided by the physician

fails, it is an error in the treatment " makes me alternately want to

scream and/or throw up.

Make sure the treatment you obtain for your child is decided upon by

someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

---------------------------------

Yahoo! for Good

Click here to donate to the Hurricane Katrina relief effort.

Link to comment
Share on other sites

Just wanted to let everyone in this group read this. We just started to see Dr.

Ponseti and when I read this I started to get worried. I can tell the

difference in treatment and after only 3 weeks of treatment his foot for the

first time in his life looks normal and moves with ease. Is this lady

suggesting that Ponseti is not qualified? Please don't take to harshly, for us

that see Ponseti know he is the best for our children

Tabitha

mom to Karter 7-30-04

below is e-mail from clubfoot group

" Google searches on the subject reflect that a specific cause and

treatment are not known. Treatments vary as the severity varies.

I am an assistant to a General Magistrate who also happens to be a

registered nurse (who used to deal in cancer treatment) and who also

serves in an executive position in the state nurse/attorney group

dealing with malpractice and areas of medical ethics. Not to mention

that our area of law, juvenile dependency (child abuse/neglect)

contains many medical instances of all types. The General Magistrate

is very skeptical of the claims of 80% to 90% " cures " . The fact

that Dr. Ponseti is not published speaks volumnes. The extraordinary

claims of Dr. Ponseti are subject to disagreement. Such high rates of

success based on anedotal evidence are questionable to say the

least. That standard of proof is not accepted in my legal world, I

promise.

The fact that doctors are " certified " (read, does Dr. Ponseti charge

for this certification?) in Ponseti treatment and that the website

states " that if the Ponseti treatment provided by the physician

fails, it is an error in the treatment " makes me alternately want to

scream and/or throw up.

Make sure the treatment you obtain for your child is decided upon by

someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

---------------------------------

Yahoo! for Good

Click here to donate to the Hurricane Katrina relief effort.

Link to comment
Share on other sites

I just sent a post questioning who she/he is. I wouldn't worry about the opinion

of one person who has never met him or seen his work vs. the tons of pictures,

videos and personal testimonies over the past 50 years proving he knows what he

is doing. Besides, let's assume she's right and he's clueless, what have we

lost? So our babies end up with surgery later in life, they would've gotten that

without his treatment anyway! I don't think she really knows what she is talking

about and I am not worried about one negative opinion, that is meaningless.

Marcia

Just info from another email

Just wanted to let everyone in this group read this. We just started to see

Dr. Ponseti and when I read this I started to get worried. I can tell the

difference in treatment and after only 3 weeks of treatment his foot for the

first time in his life looks normal and moves with ease. Is this lady

suggesting that Ponseti is not qualified? Please don't take to harshly, for us

that see Ponseti know he is the best for our children

Tabitha

mom to Karter 7-30-04

below is e-mail from clubfoot group

" Google searches on the subject reflect that a specific cause and

treatment are not known. Treatments vary as the severity varies.

I am an assistant to a General Magistrate who also happens to be a

registered nurse (who used to deal in cancer treatment) and who also

serves in an executive position in the state nurse/attorney group

dealing with malpractice and areas of medical ethics. Not to mention

that our area of law, juvenile dependency (child abuse/neglect)

contains many medical instances of all types. The General Magistrate

is very skeptical of the claims of 80% to 90% " cures " . The fact

that Dr. Ponseti is not published speaks volumnes. The extraordinary

claims of Dr. Ponseti are subject to disagreement. Such high rates of

success based on anedotal evidence are questionable to say the

least. That standard of proof is not accepted in my legal world, I

promise.

The fact that doctors are " certified " (read, does Dr. Ponseti charge

for this certification?) in Ponseti treatment and that the website

states " that if the Ponseti treatment provided by the physician

fails, it is an error in the treatment " makes me alternately want to

scream and/or throw up.

Make sure the treatment you obtain for your child is decided upon by

someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

---------------------------------

Yahoo! for Good

Click here to donate to the Hurricane Katrina relief effort.

Link to comment
Share on other sites

AS IF... Google is the be all and end all to information. Google

away... I'm still looking at a child with a perfect foot as are the

rest of us here (or are on their way). She's gone over the top with

this and I will not hold my tongue any more.

Kori

At 06:03 PM 10/1/2005, you wrote:

>I just sent a post questioning who she/he is. I wouldn't worry about

>the opinion of one person who has never met him or seen his work vs.

>the tons of pictures, videos and personal testimonies over the past

>50 years proving he knows what he is doing. Besides, let's assume

>she's right and he's clueless, what have we lost? So our babies end

>up with surgery later in life, they would've gotten that without his

>treatment anyway! I don't think she really knows what she is talking

>about and I am not worried about one negative opinion, that is meaningless.

>

>Marcia

> Just info from another email

>

>

> Just wanted to let everyone in this group read this. We just

> started to see Dr. Ponseti and when I read this I started to get

> worried. I can tell the difference in treatment and after only 3

> weeks of treatment his foot for the first time in his life looks

> normal and moves with ease. Is this lady suggesting that Ponseti

> is not qualified? Please don't take to harshly, for us that see

> Ponseti know he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a specific cause and

> treatment are not known. Treatments vary as the severity varies.

>

> I am an assistant to a General Magistrate who also happens to be a

> registered nurse (who used to deal in cancer treatment) and who also

> serves in an executive position in the state nurse/attorney group

> dealing with malpractice and areas of medical ethics. Not to mention

> that our area of law, juvenile dependency (child abuse/neglect)

> contains many medical instances of all types. The General Magistrate

> is very skeptical of the claims of 80% to 90% " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes. The extraordinary

> claims of Dr. Ponseti are subject to disagreement. Such high rates of

> success based on anedotal evidence are questionable to say the

> least. That standard of proof is not accepted in my legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does Dr. Ponseti charge

> for this certification?) in Ponseti treatment and that the website

> states " that if the Ponseti treatment provided by the physician

> fails, it is an error in the treatment " makes me alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is decided upon by

> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina relief effort.

>

>

Link to comment
Share on other sites

Kori,

your email was fantastic! Thank you!

frogabog wrote:

AS IF... Google is the be all and end all to information. Google

away... I'm still looking at a child with a perfect foot as are the

rest of us here (or are on their way). She's gone over the top with

this and I will not hold my tongue any more.

Kori

At 06:03 PM 10/1/2005, you wrote:

>I just sent a post questioning who she/he is. I wouldn't worry about

>the opinion of one person who has never met him or seen his work vs.

>the tons of pictures, videos and personal testimonies over the past

>50 years proving he knows what he is doing. Besides, let's assume

>she's right and he's clueless, what have we lost? So our babies end

>up with surgery later in life, they would've gotten that without his

>treatment anyway! I don't think she really knows what she is talking

>about and I am not worried about one negative opinion, that is meaningless.

>

>Marcia

> Just info from another email

>

>

> Just wanted to let everyone in this group read this. We just

> started to see Dr. Ponseti and when I read this I started to get

> worried. I can tell the difference in treatment and after only 3

> weeks of treatment his foot for the first time in his life looks

> normal and moves with ease. Is this lady suggesting that Ponseti

> is not qualified? Please don't take to harshly, for us that see

> Ponseti know he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a specific cause and

> treatment are not known. Treatments vary as the severity varies.

>

> I am an assistant to a General Magistrate who also happens to be a

> registered nurse (who used to deal in cancer treatment) and who also

> serves in an executive position in the state nurse/attorney group

> dealing with malpractice and areas of medical ethics. Not to mention

> that our area of law, juvenile dependency (child abuse/neglect)

> contains many medical instances of all types. The General Magistrate

> is very skeptical of the claims of 80% to 90% " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes. The extraordinary

> claims of Dr. Ponseti are subject to disagreement. Such high rates of

> success based on anedotal evidence are questionable to say the

> least. That standard of proof is not accepted in my legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does Dr. Ponseti charge

> for this certification?) in Ponseti treatment and that the website

> states " that if the Ponseti treatment provided by the physician

> fails, it is an error in the treatment " makes me alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is decided upon by

> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina relief effort.

>

>

Link to comment
Share on other sites

Kori,

your email was fantastic! Thank you!

frogabog wrote:

AS IF... Google is the be all and end all to information. Google

away... I'm still looking at a child with a perfect foot as are the

rest of us here (or are on their way). She's gone over the top with

this and I will not hold my tongue any more.

Kori

At 06:03 PM 10/1/2005, you wrote:

>I just sent a post questioning who she/he is. I wouldn't worry about

>the opinion of one person who has never met him or seen his work vs.

>the tons of pictures, videos and personal testimonies over the past

>50 years proving he knows what he is doing. Besides, let's assume

>she's right and he's clueless, what have we lost? So our babies end

>up with surgery later in life, they would've gotten that without his

>treatment anyway! I don't think she really knows what she is talking

>about and I am not worried about one negative opinion, that is meaningless.

>

>Marcia

> Just info from another email

>

>

> Just wanted to let everyone in this group read this. We just

> started to see Dr. Ponseti and when I read this I started to get

> worried. I can tell the difference in treatment and after only 3

> weeks of treatment his foot for the first time in his life looks

> normal and moves with ease. Is this lady suggesting that Ponseti

> is not qualified? Please don't take to harshly, for us that see

> Ponseti know he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a specific cause and

> treatment are not known. Treatments vary as the severity varies.

>

> I am an assistant to a General Magistrate who also happens to be a

> registered nurse (who used to deal in cancer treatment) and who also

> serves in an executive position in the state nurse/attorney group

> dealing with malpractice and areas of medical ethics. Not to mention

> that our area of law, juvenile dependency (child abuse/neglect)

> contains many medical instances of all types. The General Magistrate

> is very skeptical of the claims of 80% to 90% " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes. The extraordinary

> claims of Dr. Ponseti are subject to disagreement. Such high rates of

> success based on anedotal evidence are questionable to say the

> least. That standard of proof is not accepted in my legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does Dr. Ponseti charge

> for this certification?) in Ponseti treatment and that the website

> states " that if the Ponseti treatment provided by the physician

> fails, it is an error in the treatment " makes me alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is decided upon by

> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina relief effort.

>

>

Link to comment
Share on other sites

I think the email questioning Ponseti treatment below is indicative of a

level of ignorance in the treatment and of Talipes in general. Ponseti

treatment is no longer the domain of one man in Iowa with expert orthopaedic

surgeons (many of whom are published) from all over the world now using it

as a standard treatment for the correction of talipes. My son is 3.5 yrs

old, has been treated in England and is walking and running normally

following successful ponseti treatment. We can only voice our experiences

and these are worth far more than speculative google searches or ‘anecdotal

evidence’. We are also not trying to prove the treatment in a legal

scenario so the purpose and direction of this email confuses me – what was

the intention of the author when writing it?? The email questions not only

the Ponseti method of treatment but also the ability and intelligence of

those parents who have opted for the treatment for their children – be under

no illusions my wife and I made no decisions until we had researched,

questioned and questioned again – we are happy we decided upon the route

that we did.

Tabitha - I wouldn’t worry about replying harshly, the person who wrote this

didn’t care to think about its impact upon the readers for whom it was

intended (and forgot to run a spell check)!

Philip

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of Yarolim

Sent: 02 October 2005 01:35

To: nosurgery4clubfoot

Subject: Just info from another email

Just wanted to let everyone in this group read this. We just started to see

Dr. Ponseti and when I read this I started to get worried. I can tell the

difference in treatment and after only 3 weeks of treatment his foot for the

first time in his life looks normal and moves with ease. Is this lady

suggesting that Ponseti is not qualified? Please don't take to harshly, for

us that see Ponseti know he is the best for our children

Tabitha

mom to Karter 7-30-04

below is e-mail from clubfoot group

" Google searches on the subject reflect that a specific cause and

treatment are not known. Treatments vary as the severity varies.

I am an assistant to a General Magistrate who also happens to be a

registered nurse (who used to deal in cancer treatment) and who also

serves in an executive position in the state nurse/attorney group

dealing with malpractice and areas of medical ethics. Not to mention

that our area of law, juvenile dependency (child abuse/neglect)

contains many medical instances of all types. The General Magistrate

is very skeptical of the claims of 80% to 90% " cures " . The fact

that Dr. Ponseti is not published speaks volumnes. The extraordinary

claims of Dr. Ponseti are subject to disagreement. Such high rates of

success based on anedotal evidence are questionable to say the

least. That standard of proof is not accepted in my legal world, I

promise.

The fact that doctors are " certified " (read, does Dr. Ponseti charge

for this certification?) in Ponseti treatment and that the website

states " that if the Ponseti treatment provided by the physician

fails, it is an error in the treatment " makes me alternately want to

scream and/or throw up.

Make sure the treatment you obtain for your child is decided upon by

someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

---------------------------------

Yahoo! for Good

Click here to donate to the Hurricane Katrina relief effort.

Link to comment
Share on other sites

Hi Tabitha,

I would not worry, I have not heard a single bad word

about Dr Ponseti from anyone that has been treated by

him or whose child has been treated by him, quite the

opposite in fact.

Also, must not have 'googled' right since Dr

Ponseti is both qualified and published and his claims

of 95% success are well documented. In fact, more and

more doctors convert to his method but I have yet to

hear of a doctor that 'converted back' to doing

surgery. :)

All the best,

with (*9/02)

and Alister (*9/02, RCF, Ponseti method, UK)

--- Yarolim wrote:

> Just wanted to let everyone in this group read this.

> We just started to see Dr. Ponseti and when I read

> this I started to get worried. I can tell the

> difference in treatment and after only 3 weeks of

> treatment his foot for the first time in his life

> looks normal and moves with ease. Is this lady

> suggesting that Ponseti is not qualified? Please

> don't take to harshly, for us that see Ponseti know

> he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a

> specific cause and

> treatment are not known. Treatments vary as the

> severity varies.

>

> I am an assistant to a General Magistrate who also

> happens to be a

> registered nurse (who used to deal in cancer

> treatment) and who also

> serves in an executive position in the state

> nurse/attorney group

> dealing with malpractice and areas of medical

> ethics. Not to mention

> that our area of law, juvenile dependency (child

> abuse/neglect)

> contains many medical instances of all types. The

> General Magistrate

> is very skeptical of the claims of 80% to 90%

> " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes.

> The extraordinary

> claims of Dr. Ponseti are subject to disagreement.

> Such high rates of

> success based on anedotal evidence are questionable

> to say the

> least. That standard of proof is not accepted in my

> legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does

> Dr. Ponseti charge

> for this certification?) in Ponseti treatment and

> that the website

> states " that if the Ponseti treatment provided by

> the physician

> fails, it is an error in the treatment " makes me

> alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is

> decided upon by

> someone who has seen your child's foot, NOT A

> WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT

> KNOW THE END RESULT

> OF WHAT THEY ARE

> DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina

> relief effort.

>

> [Non-text portions of this message have been

> removed]

>

>

___________________________________________________________

To help you stay safe and secure online, we've developed the all new Yahoo!

Security Centre. http://uk.security.yahoo.com

Link to comment
Share on other sites

Hi Tabitha,

I would not worry, I have not heard a single bad word

about Dr Ponseti from anyone that has been treated by

him or whose child has been treated by him, quite the

opposite in fact.

Also, must not have 'googled' right since Dr

Ponseti is both qualified and published and his claims

of 95% success are well documented. In fact, more and

more doctors convert to his method but I have yet to

hear of a doctor that 'converted back' to doing

surgery. :)

All the best,

with (*9/02)

and Alister (*9/02, RCF, Ponseti method, UK)

--- Yarolim wrote:

> Just wanted to let everyone in this group read this.

> We just started to see Dr. Ponseti and when I read

> this I started to get worried. I can tell the

> difference in treatment and after only 3 weeks of

> treatment his foot for the first time in his life

> looks normal and moves with ease. Is this lady

> suggesting that Ponseti is not qualified? Please

> don't take to harshly, for us that see Ponseti know

> he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a

> specific cause and

> treatment are not known. Treatments vary as the

> severity varies.

>

> I am an assistant to a General Magistrate who also

> happens to be a

> registered nurse (who used to deal in cancer

> treatment) and who also

> serves in an executive position in the state

> nurse/attorney group

> dealing with malpractice and areas of medical

> ethics. Not to mention

> that our area of law, juvenile dependency (child

> abuse/neglect)

> contains many medical instances of all types. The

> General Magistrate

> is very skeptical of the claims of 80% to 90%

> " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes.

> The extraordinary

> claims of Dr. Ponseti are subject to disagreement.

> Such high rates of

> success based on anedotal evidence are questionable

> to say the

> least. That standard of proof is not accepted in my

> legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does

> Dr. Ponseti charge

> for this certification?) in Ponseti treatment and

> that the website

> states " that if the Ponseti treatment provided by

> the physician

> fails, it is an error in the treatment " makes me

> alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is

> decided upon by

> someone who has seen your child's foot, NOT A

> WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT

> KNOW THE END RESULT

> OF WHAT THEY ARE

> DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina

> relief effort.

>

> [Non-text portions of this message have been

> removed]

>

>

___________________________________________________________

To help you stay safe and secure online, we've developed the all new Yahoo!

Security Centre. http://uk.security.yahoo.com

Link to comment
Share on other sites

I agree whole heartedly with your sentiments. We too live in England.

Our three and half year old boy was treated in New Zealand by a doctor

who had studied with Ponseti for two years and is also a consultant

ortho surgeon who has a wonderful reputation in all areas of his

subject. I hardly think that a man of his standing and intelligence and

success rate would take on a technique such as Ponseti's if it was not

any good. We think it is of course wonderful as our boy is running

around with no pain. We researched high and low when we found out at my

scan that he had bilateral club feet to find the best option for him

and have never regretted that decision. The reason we went to New

Zealand is that my husband comes form there and the doctor was on his

family's door step. We believe so much in the technique that we attend

the first clubfoot Ponseti conference in Manchester and our son was

able to show just what can be achieved with this technique. Ironically

the doctors who examined him now run their on clinic in London as

result and we attend that clinic for check ups!

What I would say to this woman who seems to have nothing better to do

than upset and worry all ready worried parents, is that she should take

more care in throwing around her opinions and do her research properly

like a responsible person. I think that the many testimonies speak for

themselves about how good Ponseti's technique is. If he were in England

he should get an OBE or something great from the Queen for his amazing

and tireless work.

> I think the email questioning Ponseti treatment below is indicative of

> a

> level of ignorance in the treatment and of Talipes in general. Ponseti

> treatment is no longer the domain of one man in Iowa with expert

> orthopaedic

> surgeons (many of whom are published) from all over the world now

> using it

> as a standard treatment for the correction of talipes. My son is 3.5

> yrs

> old, has been treated in England and is walking and running normally

> following successful ponseti treatment. We can only voice our

> experiences

> and these are worth far more than speculative google searches or

> ‘anecdotal

> evidence’. We are also not trying to prove the treatment in a legal

> scenario so the purpose and direction of this email confuses me – what

> was

> the intention of the author when writing it?? The email questions not

> only

> the Ponseti method of treatment but also the ability and intelligence

> of

> those parents who have opted for the treatment for their children – be

> under

> no illusions my wife and I made no decisions until we had researched,

> questioned and questioned again – we are happy we decided upon the

> route

> that we did.

>

>

>

> Tabitha - I wouldn’t worry about replying harshly, the person who

> wrote this

> didn’t care to think about its impact upon the readers for whom it was

> intended (and forgot to run a spell check)!

>

>

>

> Philip

>

>

>

> _____

>

> From: nosurgery4clubfoot

> [mailto:nosurgery4clubfoot ] On Behalf Of Yarolim

> Sent: 02 October 2005 01:35

> To: nosurgery4clubfoot

> Subject: Just info from another email

>

>

>

> Just wanted to let everyone in this group read this. We just started

> to see

> Dr. Ponseti and when I read this I started to get worried. I can tell

> the

> difference in treatment and after only 3 weeks of treatment his foot

> for the

> first time in his life looks normal and moves with ease. Is this

> lady

> suggesting that Ponseti is not qualified? Please don't take to

> harshly, for

> us that see Ponseti know he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a specific cause and

> treatment are not known. Treatments vary as the severity varies.

>

> I am an assistant to a General Magistrate who also happens to be a

> registered nurse (who used to deal in cancer treatment) and who also

> serves in an executive position in the state nurse/attorney group

> dealing with malpractice and areas of medical ethics. Not to mention

> that our area of law, juvenile dependency (child abuse/neglect)

> contains many medical instances of all types. The General Magistrate

> is very skeptical of the claims of 80% to 90% " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes. The extraordinary

> claims of Dr. Ponseti are subject to disagreement. Such high rates of

> success based on anedotal evidence are questionable to say the

> least. That standard of proof is not accepted in my legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does Dr. Ponseti charge

> for this certification?) in Ponseti treatment and that the website

> states " that if the Ponseti treatment provided by the physician

> fails, it is an error in the treatment " makes me alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is decided upon by

> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina relief effort.

>

>

Link to comment
Share on other sites

We had our son at the 3rd Ponseti conference in Manchetser last week and he

was examined by Dr Dietz from Iowa - great experience and good to meet up

with other parents again - we always seem to have so much in common with

other parents with Ponseti treated kids, they understand what we go through

better than friends or family.

Good to hear from you.

Philip

Just info from another email

>

>

>

> Just wanted to let everyone in this group read this. We just started

> to see

> Dr. Ponseti and when I read this I started to get worried. I can tell

> the

> difference in treatment and after only 3 weeks of treatment his foot

> for the

> first time in his life looks normal and moves with ease. Is this

> lady

> suggesting that Ponseti is not qualified? Please don't take to

> harshly, for

> us that see Ponseti know he is the best for our children

>

> Tabitha

> mom to Karter 7-30-04

>

> below is e-mail from clubfoot group

>

>

>

>

> " Google searches on the subject reflect that a specific cause and

> treatment are not known. Treatments vary as the severity varies.

>

> I am an assistant to a General Magistrate who also happens to be a

> registered nurse (who used to deal in cancer treatment) and who also

> serves in an executive position in the state nurse/attorney group

> dealing with malpractice and areas of medical ethics. Not to mention

> that our area of law, juvenile dependency (child abuse/neglect)

> contains many medical instances of all types. The General Magistrate

> is very skeptical of the claims of 80% to 90% " cures " . The fact

> that Dr. Ponseti is not published speaks volumnes. The extraordinary

> claims of Dr. Ponseti are subject to disagreement. Such high rates of

> success based on anedotal evidence are questionable to say the

> least. That standard of proof is not accepted in my legal world, I

> promise.

>

> The fact that doctors are " certified " (read, does Dr. Ponseti charge

> for this certification?) in Ponseti treatment and that the website

> states " that if the Ponseti treatment provided by the physician

> fails, it is an error in the treatment " makes me alternately want to

> scream and/or throw up.

>

> Make sure the treatment you obtain for your child is decided upon by

> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>

>

>

>

>

> ---------------------------------

> Yahoo! for Good

> Click here to donate to the Hurricane Katrina relief effort.

>

>

Link to comment
Share on other sites

Philip,

Dr Dietz is great isn't he? we are still under Haemish Crawford in New

Zealand who was over for the 2nd conference last year and may be back

this year. Henry just had to have further surgery due to a relapse in

his right foot. The left is still fine. He had a tendon transfer and

had to have his heel cord done again - that was the most painful part

for him. But now only a few weeks after his cast was taken off he is

running around as though nothing had happened! Children are amazing.

This web site has been a huge support for us as a family and yes

everyone understands better than your closest friends and family just

how you feel. It is also nice to offer help and hope to other parents.

I hope your son continues to do well. How old is he? Is he still in

boots? Henry had his taken off early as he is termed " loose limbed " and

at the time Ponseti was doing this to avoid over correction. However

sadly he had the relapse in one foot, but as we discovered what suits

one child is not always right for another. After some studies of

clinics Ponseti is now keeping the boots on much longer, even if the

child is loose limbed. We still feel lucky though as he did not relapse

in both feet.

>

>

> We had our son at the 3rd Ponseti conference in Manchetser last week

> and he

> was examined by Dr Dietz from Iowa - great experience and good to meet

> up

> with other parents again - we always seem to have so much in common

> with

> other parents with Ponseti treated kids, they understand what we go

> through

> better than friends or family.

>

> Good to hear from you.

>

> Philip

>

> Just info from another email

>>

>>

>>

>> Just wanted to let everyone in this group read this. We just started

>> to see

>> Dr. Ponseti and when I read this I started to get worried. I can tell

>> the

>> difference in treatment and after only 3 weeks of treatment his foot

>> for the

>> first time in his life looks normal and moves with ease. Is this

>> lady

>> suggesting that Ponseti is not qualified? Please don't take to

>> harshly, for

>> us that see Ponseti know he is the best for our children

>>

>> Tabitha

>> mom to Karter 7-30-04

>>

>> below is e-mail from clubfoot group

>>

>>

>>

>>

>> " Google searches on the subject reflect that a specific cause and

>> treatment are not known. Treatments vary as the severity varies.

>>

>> I am an assistant to a General Magistrate who also happens to be a

>> registered nurse (who used to deal in cancer treatment) and who also

>> serves in an executive position in the state nurse/attorney group

>> dealing with malpractice and areas of medical ethics. Not to mention

>> that our area of law, juvenile dependency (child abuse/neglect)

>> contains many medical instances of all types. The General Magistrate

>> is very skeptical of the claims of 80% to 90% " cures " . The fact

>> that Dr. Ponseti is not published speaks volumnes. The extraordinary

>> claims of Dr. Ponseti are subject to disagreement. Such high rates of

>> success based on anedotal evidence are questionable to say the

>> least. That standard of proof is not accepted in my legal world, I

>> promise.

>>

>> The fact that doctors are " certified " (read, does Dr. Ponseti charge

>> for this certification?) in Ponseti treatment and that the website

>> states " that if the Ponseti treatment provided by the physician

>> fails, it is an error in the treatment " makes me alternately want to

>> scream and/or throw up.

>>

>> Make sure the treatment you obtain for your child is decided upon by

>> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

>> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

>> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>>

>>

>>

>>

>>

>> ---------------------------------

>> Yahoo! for Good

>> Click here to donate to the Hurricane Katrina relief effort.

>>

>>

Link to comment
Share on other sites

Philip,

Dr Dietz is great isn't he? we are still under Haemish Crawford in New

Zealand who was over for the 2nd conference last year and may be back

this year. Henry just had to have further surgery due to a relapse in

his right foot. The left is still fine. He had a tendon transfer and

had to have his heel cord done again - that was the most painful part

for him. But now only a few weeks after his cast was taken off he is

running around as though nothing had happened! Children are amazing.

This web site has been a huge support for us as a family and yes

everyone understands better than your closest friends and family just

how you feel. It is also nice to offer help and hope to other parents.

I hope your son continues to do well. How old is he? Is he still in

boots? Henry had his taken off early as he is termed " loose limbed " and

at the time Ponseti was doing this to avoid over correction. However

sadly he had the relapse in one foot, but as we discovered what suits

one child is not always right for another. After some studies of

clinics Ponseti is now keeping the boots on much longer, even if the

child is loose limbed. We still feel lucky though as he did not relapse

in both feet.

>

>

> We had our son at the 3rd Ponseti conference in Manchetser last week

> and he

> was examined by Dr Dietz from Iowa - great experience and good to meet

> up

> with other parents again - we always seem to have so much in common

> with

> other parents with Ponseti treated kids, they understand what we go

> through

> better than friends or family.

>

> Good to hear from you.

>

> Philip

>

> Just info from another email

>>

>>

>>

>> Just wanted to let everyone in this group read this. We just started

>> to see

>> Dr. Ponseti and when I read this I started to get worried. I can tell

>> the

>> difference in treatment and after only 3 weeks of treatment his foot

>> for the

>> first time in his life looks normal and moves with ease. Is this

>> lady

>> suggesting that Ponseti is not qualified? Please don't take to

>> harshly, for

>> us that see Ponseti know he is the best for our children

>>

>> Tabitha

>> mom to Karter 7-30-04

>>

>> below is e-mail from clubfoot group

>>

>>

>>

>>

>> " Google searches on the subject reflect that a specific cause and

>> treatment are not known. Treatments vary as the severity varies.

>>

>> I am an assistant to a General Magistrate who also happens to be a

>> registered nurse (who used to deal in cancer treatment) and who also

>> serves in an executive position in the state nurse/attorney group

>> dealing with malpractice and areas of medical ethics. Not to mention

>> that our area of law, juvenile dependency (child abuse/neglect)

>> contains many medical instances of all types. The General Magistrate

>> is very skeptical of the claims of 80% to 90% " cures " . The fact

>> that Dr. Ponseti is not published speaks volumnes. The extraordinary

>> claims of Dr. Ponseti are subject to disagreement. Such high rates of

>> success based on anedotal evidence are questionable to say the

>> least. That standard of proof is not accepted in my legal world, I

>> promise.

>>

>> The fact that doctors are " certified " (read, does Dr. Ponseti charge

>> for this certification?) in Ponseti treatment and that the website

>> states " that if the Ponseti treatment provided by the physician

>> fails, it is an error in the treatment " makes me alternately want to

>> scream and/or throw up.

>>

>> Make sure the treatment you obtain for your child is decided upon by

>> someone who has seen your child's foot, NOT A WEBSITE AND PARENTS OF

>> CHILDREN UNDER THE AGE OF EIGHTEEN. THEY DO NOT KNOW THE END RESULT

>> OF WHAT THEY ARE DOING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! "

>>

>>

>>

>>

>>

>> ---------------------------------

>> Yahoo! for Good

>> Click here to donate to the Hurricane Katrina relief effort.

>>

>>

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...