Re: Cavus and/or Plantaris Q?

[Guest guest]

Exactly how did he word that Christee? To my knowledge, they refer to the

same thing. Plantaris causes cavus ... there is a ligament on the bottom of

the foot called the plantar ligament. That ligament can be very tight and

resistant, causing cavus, which is a fancy term for very high arch.

Did he send you an e-mail that you could copy and paste, or did you talk to

him on the phone?

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 03:00:07 -0000

Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

Exactly how did he word that Christee? To my knowledge, they refer to the

same thing. Plantaris causes cavus ... there is a ligament on the bottom of

the foot called the plantar ligament. That ligament can be very tight and

resistant, causing cavus, which is a fancy term for very high arch.

Did he send you an e-mail that you could copy and paste, or did you talk to

him on the phone?

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 03:00:07 -0000

Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

Check out this site. http://adifferentfoot.freeservers.com/

Christee wrote:Dr. P. said Lilee has both Cavus and

Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

Check out this site. http://adifferentfoot.freeservers.com/

Christee wrote:Dr. P. said Lilee has both Cavus and

Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

He emailed me, and then I called him. When I called him he said " cavus " and I

said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a copy of

the email...

The pictures show that this foot has developed into a complex deformity with

folds on the back of the foot above the heel and on the sole of the foot. Your

doctor may not be familiar with the proper treatment of this complex deformity

which occurs in only about 5% of all clubfeet. These feet can be treated

without major surgery but it is important when applying the cast to correct the

plantarflexion of the metatarsals by pushing the foot up and correcting both the

cavus and the equinus. I don't see that the equinus was completely corrected.

Angel Gray wrote:

Exactly how did he word that Christee? To my knowledge, they refer to the

same thing. Plantaris causes cavus ... there is a ligament on the bottom of

the foot called the plantar ligament. That ligament can be very tight and

resistant, causing cavus, which is a fancy term for very high arch.

Did he send you an e-mail that you could copy and paste, or did you talk to

him on the phone?

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 03:00:07 -0000

Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

He emailed me, and then I called him. When I called him he said " cavus " and I

said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a copy of

the email...

The pictures show that this foot has developed into a complex deformity with

folds on the back of the foot above the heel and on the sole of the foot. Your

doctor may not be familiar with the proper treatment of this complex deformity

which occurs in only about 5% of all clubfeet. These feet can be treated

without major surgery but it is important when applying the cast to correct the

plantarflexion of the metatarsals by pushing the foot up and correcting both the

cavus and the equinus. I don't see that the equinus was completely corrected.

Angel Gray wrote:

Exactly how did he word that Christee? To my knowledge, they refer to the

same thing. Plantaris causes cavus ... there is a ligament on the bottom of

the foot called the plantar ligament. That ligament can be very tight and

resistant, causing cavus, which is a fancy term for very high arch.

Did he send you an e-mail that you could copy and paste, or did you talk to

him on the phone?

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 03:00:07 -0000

Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

Ok, yes, when he said cavus and then agreed with you about the plantaris it

was still referring to the same thing.

Some quick definitions for you:

metatarsals = long bones in the foot; if you feel your own foot you will

find that the long bones start at your arch and extend to the beginning of

your toes.

plantarflexion = a downward pull; in this case, the metatarsals angle

sharply downward from the midfoot joint (where the metatarsals and the bones

before them - the tarsals - come together).

cavus = very high arch, caused by the plantarflexion of the metatarsals.

The arch of the foot makes an upside down V.

equinus = overall downward pointing of the foot, caused by the very short

achilles tendon.

Dr Ponseti has a very hard time explaining this - as he refers to it -

complex deformity in layman's terms. That is because it involves parts of

the foot that really do not have " common " names. Him and I have talked

about this, and burried somewhere on my old hard drive is a document that

translates the whole description ... but I cant find it right now

You will recognize the term atypical clubfoot - that is the 5% he is talking

about. He is saying that Lilee has atypical clubfoot, like some of the

other children you have heard about here. It has to be manipulated a bit

different than usual. It is excellent that you are going to Iowa - you

could put your daughter in no better hands than his.

When you go, make sure to take pen and paper and take notes of what he says

..... if there is anything that you do not understand, I will be very happy

to tell you what it means. It took me alot of research to learn all the

words and how they relate to what Dr Ponseti was talking about ... but now I

know them and can save you all that time

Best of luck! You are headed to one of the most loving places on this

earth, and Lilee's foot will turn out perfect!

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: RE: Cavus and/or Plantaris Q?

Date: Sat, 1 Oct 2005 08:41:20 -0700 (PDT)

He emailed me, and then I called him. When I called him he said " cavus " and

I said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a

copy of the email...

The pictures show that this foot has developed into a complex deformity with

folds on the back of the foot above the heel and on the sole of the foot.

Your doctor may not be familiar with the proper treatment of this complex

deformity which occurs in only about 5% of all clubfeet. These feet can be

treated without major surgery but it is important when applying the cast to

correct the plantarflexion of the metatarsals by pushing the foot up and

correcting both the cavus and the equinus. I don't see that the equinus was

completely corrected.

Angel Gray wrote:

Exactly how did he word that Christee? To my knowledge, they refer to the

same thing. Plantaris causes cavus ... there is a ligament on the bottom of

the foot called the plantar ligament. That ligament can be very tight and

resistant, causing cavus, which is a fancy term for very high arch.

Did he send you an e-mail that you could copy and paste, or did you talk to

him on the phone?

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 03:00:07 -0000

Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

Ok, yes, when he said cavus and then agreed with you about the plantaris it

was still referring to the same thing.

Some quick definitions for you:

metatarsals = long bones in the foot; if you feel your own foot you will

find that the long bones start at your arch and extend to the beginning of

your toes.

plantarflexion = a downward pull; in this case, the metatarsals angle

sharply downward from the midfoot joint (where the metatarsals and the bones

before them - the tarsals - come together).

cavus = very high arch, caused by the plantarflexion of the metatarsals.

The arch of the foot makes an upside down V.

equinus = overall downward pointing of the foot, caused by the very short

achilles tendon.

Dr Ponseti has a very hard time explaining this - as he refers to it -

complex deformity in layman's terms. That is because it involves parts of

the foot that really do not have " common " names. Him and I have talked

about this, and burried somewhere on my old hard drive is a document that

translates the whole description ... but I cant find it right now

You will recognize the term atypical clubfoot - that is the 5% he is talking

about. He is saying that Lilee has atypical clubfoot, like some of the

other children you have heard about here. It has to be manipulated a bit

different than usual. It is excellent that you are going to Iowa - you

could put your daughter in no better hands than his.

When you go, make sure to take pen and paper and take notes of what he says

..... if there is anything that you do not understand, I will be very happy

to tell you what it means. It took me alot of research to learn all the

words and how they relate to what Dr Ponseti was talking about ... but now I

know them and can save you all that time

Best of luck! You are headed to one of the most loving places on this

earth, and Lilee's foot will turn out perfect!

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: RE: Cavus and/or Plantaris Q?

Date: Sat, 1 Oct 2005 08:41:20 -0700 (PDT)

He emailed me, and then I called him. When I called him he said " cavus " and

I said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a

copy of the email...

The pictures show that this foot has developed into a complex deformity with

folds on the back of the foot above the heel and on the sole of the foot.

Your doctor may not be familiar with the proper treatment of this complex

deformity which occurs in only about 5% of all clubfeet. These feet can be

treated without major surgery but it is important when applying the cast to

correct the plantarflexion of the metatarsals by pushing the foot up and

correcting both the cavus and the equinus. I don't see that the equinus was

completely corrected.

Angel Gray wrote:

Exactly how did he word that Christee? To my knowledge, they refer to the

same thing. Plantaris causes cavus ... there is a ligament on the bottom of

the foot called the plantar ligament. That ligament can be very tight and

resistant, causing cavus, which is a fancy term for very high arch.

Did he send you an e-mail that you could copy and paste, or did you talk to

him on the phone?

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 03:00:07 -0000

Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

this? He said about 5% of all CF have it. Can anyone tell me a little

more about those? Thanks

[Guest guest]

Angel,

I got to see first hand (well kind of... I saw before pics) of how

this develops *after* the tenotomy. I kept thinking it looked

plantarisy (is that a word? well, now is it lol!) but I wasn't sure

and couldn't say not being a doc and all... but yup... when you

stand her on her feet you can see it.

I do have pics from last week of Lilee's foot. Sorry Christee! I

will try to get them to you tonight and I'll also post them at CFPics

for everyone else to see.

Kori

At 02:50 PM 10/1/2005, you wrote:

>Ok, yes, when he said cavus and then agreed with you about the plantaris it

>was still referring to the same thing.

>

>Some quick definitions for you:

>

>metatarsals = long bones in the foot; if you feel your own foot you will

>find that the long bones start at your arch and extend to the beginning of

>your toes.

>

>plantarflexion = a downward pull; in this case, the metatarsals angle

>sharply downward from the midfoot joint (where the metatarsals and the bones

>before them - the tarsals - come together).

>

>cavus = very high arch, caused by the plantarflexion of the metatarsals.

>The arch of the foot makes an upside down V.

>

>equinus = overall downward pointing of the foot, caused by the very short

>achilles tendon.

>

>Dr Ponseti has a very hard time explaining this - as he refers to it -

>complex deformity in layman's terms. That is because it involves parts of

>the foot that really do not have " common " names. Him and I have talked

>about this, and burried somewhere on my old hard drive is a document that

>translates the whole description ... but I cant find it right now

>

>You will recognize the term atypical clubfoot - that is the 5% he is talking

>about. He is saying that Lilee has atypical clubfoot, like some of the

>other children you have heard about here. It has to be manipulated a bit

>different than usual. It is excellent that you are going to Iowa - you

>could put your daughter in no better hands than his.

>

>When you go, make sure to take pen and paper and take notes of what he says

>.... if there is anything that you do not understand, I will be very happy

>to tell you what it means. It took me alot of research to learn all the

>words and how they relate to what Dr Ponseti was talking about ... but now I

>know them and can save you all that time

>

>Best of luck! You are headed to one of the most loving places on this

>earth, and Lilee's foot will turn out perfect!

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: RE: Cavus and/or Plantaris Q?

>Date: Sat, 1 Oct 2005 08:41:20 -0700 (PDT)

>

>He emailed me, and then I called him. When I called him he said " cavus " and

>I said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a

>copy of the email...

>

>The pictures show that this foot has developed into a complex deformity with

>folds on the back of the foot above the heel and on the sole of the foot.

>Your doctor may not be familiar with the proper treatment of this complex

>deformity which occurs in only about 5% of all clubfeet. These feet can be

>treated without major surgery but it is important when applying the cast to

>correct the plantarflexion of the metatarsals by pushing the foot up and

>correcting both the cavus and the equinus. I don't see that the equinus was

>completely corrected.

>

>

>

>Angel Gray wrote:

>Exactly how did he word that Christee? To my knowledge, they refer to the

>same thing. Plantaris causes cavus ... there is a ligament on the bottom of

>the foot called the plantar ligament. That ligament can be very tight and

>resistant, causing cavus, which is a fancy term for very high arch.

>

>Did he send you an e-mail that you could copy and paste, or did you talk to

>him on the phone?

>

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Cavus and/or Plantaris Q?

>Date: Sat, 01 Oct 2005 03:00:07 -0000

>

>Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

>this? He said about 5% of all CF have it. Can anyone tell me a little

>more about those? Thanks

>

>

>

>

>

[Guest guest]

Angel,

I got to see first hand (well kind of... I saw before pics) of how

this develops *after* the tenotomy. I kept thinking it looked

plantarisy (is that a word? well, now is it lol!) but I wasn't sure

and couldn't say not being a doc and all... but yup... when you

stand her on her feet you can see it.

I do have pics from last week of Lilee's foot. Sorry Christee! I

will try to get them to you tonight and I'll also post them at CFPics

for everyone else to see.

Kori

At 02:50 PM 10/1/2005, you wrote:

>Ok, yes, when he said cavus and then agreed with you about the plantaris it

>was still referring to the same thing.

>

>Some quick definitions for you:

>

>metatarsals = long bones in the foot; if you feel your own foot you will

>find that the long bones start at your arch and extend to the beginning of

>your toes.

>

>plantarflexion = a downward pull; in this case, the metatarsals angle

>sharply downward from the midfoot joint (where the metatarsals and the bones

>before them - the tarsals - come together).

>

>cavus = very high arch, caused by the plantarflexion of the metatarsals.

>The arch of the foot makes an upside down V.

>

>equinus = overall downward pointing of the foot, caused by the very short

>achilles tendon.

>

>Dr Ponseti has a very hard time explaining this - as he refers to it -

>complex deformity in layman's terms. That is because it involves parts of

>the foot that really do not have " common " names. Him and I have talked

>about this, and burried somewhere on my old hard drive is a document that

>translates the whole description ... but I cant find it right now

>

>You will recognize the term atypical clubfoot - that is the 5% he is talking

>about. He is saying that Lilee has atypical clubfoot, like some of the

>other children you have heard about here. It has to be manipulated a bit

>different than usual. It is excellent that you are going to Iowa - you

>could put your daughter in no better hands than his.

>

>When you go, make sure to take pen and paper and take notes of what he says

>.... if there is anything that you do not understand, I will be very happy

>to tell you what it means. It took me alot of research to learn all the

>words and how they relate to what Dr Ponseti was talking about ... but now I

>know them and can save you all that time

>

>Best of luck! You are headed to one of the most loving places on this

>earth, and Lilee's foot will turn out perfect!

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: RE: Cavus and/or Plantaris Q?

>Date: Sat, 1 Oct 2005 08:41:20 -0700 (PDT)

>

>He emailed me, and then I called him. When I called him he said " cavus " and

>I said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a

>copy of the email...

>

>The pictures show that this foot has developed into a complex deformity with

>folds on the back of the foot above the heel and on the sole of the foot.

>Your doctor may not be familiar with the proper treatment of this complex

>deformity which occurs in only about 5% of all clubfeet. These feet can be

>treated without major surgery but it is important when applying the cast to

>correct the plantarflexion of the metatarsals by pushing the foot up and

>correcting both the cavus and the equinus. I don't see that the equinus was

>completely corrected.

>

>

>

>Angel Gray wrote:

>Exactly how did he word that Christee? To my knowledge, they refer to the

>same thing. Plantaris causes cavus ... there is a ligament on the bottom of

>the foot called the plantar ligament. That ligament can be very tight and

>resistant, causing cavus, which is a fancy term for very high arch.

>

>Did he send you an e-mail that you could copy and paste, or did you talk to

>him on the phone?

>

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Cavus and/or Plantaris Q?

>Date: Sat, 01 Oct 2005 03:00:07 -0000

>

>Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

>this? He said about 5% of all CF have it. Can anyone tell me a little

>more about those? Thanks

>

>

>

>

>

[Guest guest]

It is insane what that tenotomy does to a foot with plantaris! Kai's

achilles was super,super short - when Dr M cut it, it literally went " snap " !

- but even so, you could still see the rest of his foot looked really good.

I cant even begin to tell you the gut-sick feeling I had when the tenotomy

cast came off, tho. I was never, never upset about the clubfoot when we

learned of it (at birth) because I already had some knowledge of it from

researching MTA (for Arica) when I was pregnant, but when I saw what came

out of that tenotomy cast, I almost cried. I have the most vivid memory in

my head of thinking of all the pictures I had seen here of perfect little

feet and thinking " Why does his foot look like THIS?! "

You are right ... you could see it somewhat in the early pics of Lilee's

foot, but it still looked pretty good. This is why I stress to parents

whose kids may have this particular form of clubfoot to see a doctor

qualified in treating - preferably Dr Ponseti himself, but we know there are

several others, too - BEFORE having the tenotomy done.

In retrospect, I wish we had done a better job of taking pictures, or that

we had had a digital camera, when Kai was in early treatment. All the pics

I have are so blurry and you can hardly tell what it looked like before

treatment began or between the casts. I am so glad that (Sadie's

mom) had such an extensive set of photos so that Dr P could pin down what

happened when!

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: RE: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 19:45:57 -0700

Angel,

I got to see first hand (well kind of... I saw before pics) of how

this develops *after* the tenotomy. I kept thinking it looked

plantarisy (is that a word? well, now is it lol!) but I wasn't sure

and couldn't say not being a doc and all... but yup... when you

stand her on her feet you can see it.

I do have pics from last week of Lilee's foot. Sorry Christee! I

will try to get them to you tonight and I'll also post them at CFPics

for everyone else to see.

Kori

At 02:50 PM 10/1/2005, you wrote:

>Ok, yes, when he said cavus and then agreed with you about the plantaris

it

>was still referring to the same thing.

>

>Some quick definitions for you:

>

>metatarsals = long bones in the foot; if you feel your own foot you will

>find that the long bones start at your arch and extend to the beginning of

>your toes.

>

>plantarflexion = a downward pull; in this case, the metatarsals angle

>sharply downward from the midfoot joint (where the metatarsals and the

bones

>before them - the tarsals - come together).

>

>cavus = very high arch, caused by the plantarflexion of the metatarsals.

>The arch of the foot makes an upside down V.

>

>equinus = overall downward pointing of the foot, caused by the very short

>achilles tendon.

>

>Dr Ponseti has a very hard time explaining this - as he refers to it -

>complex deformity in layman's terms. That is because it involves parts of

>the foot that really do not have " common " names. Him and I have talked

>about this, and burried somewhere on my old hard drive is a document that

>translates the whole description ... but I cant find it right now

>

>You will recognize the term atypical clubfoot - that is the 5% he is

talking

>about. He is saying that Lilee has atypical clubfoot, like some of the

>other children you have heard about here. It has to be manipulated a bit

>different than usual. It is excellent that you are going to Iowa - you

>could put your daughter in no better hands than his.

>

>When you go, make sure to take pen and paper and take notes of what he

says

>.... if there is anything that you do not understand, I will be very happy

>to tell you what it means. It took me alot of research to learn all the

>words and how they relate to what Dr Ponseti was talking about ... but now

I

>know them and can save you all that time

>

>Best of luck! You are headed to one of the most loving places on this

>earth, and Lilee's foot will turn out perfect!

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: RE: Cavus and/or Plantaris Q?

>Date: Sat, 1 Oct 2005 08:41:20 -0700 (PDT)

>

>He emailed me, and then I called him. When I called him he said " cavus "

and

>I said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a

>copy of the email...

>

>The pictures show that this foot has developed into a complex deformity

with

>folds on the back of the foot above the heel and on the sole of the foot.

>Your doctor may not be familiar with the proper treatment of this complex

>deformity which occurs in only about 5% of all clubfeet. These feet can

be

>treated without major surgery but it is important when applying the cast

to

>correct the plantarflexion of the metatarsals by pushing the foot up and

>correcting both the cavus and the equinus. I don't see that the equinus

was

>completely corrected.

>

>

>

>Angel Gray wrote:

>Exactly how did he word that Christee? To my knowledge, they refer to the

>same thing. Plantaris causes cavus ... there is a ligament on the bottom

of

>the foot called the plantar ligament. That ligament can be very tight and

>resistant, causing cavus, which is a fancy term for very high arch.

>

>Did he send you an e-mail that you could copy and paste, or did you talk

to

>him on the phone?

>

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Cavus and/or Plantaris Q?

>Date: Sat, 01 Oct 2005 03:00:07 -0000

>

>Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

>this? He said about 5% of all CF have it. Can anyone tell me a little

>more about those? Thanks

>

>

>

>

>

[Guest guest]

It is insane what that tenotomy does to a foot with plantaris! Kai's

achilles was super,super short - when Dr M cut it, it literally went " snap " !

- but even so, you could still see the rest of his foot looked really good.

I cant even begin to tell you the gut-sick feeling I had when the tenotomy

cast came off, tho. I was never, never upset about the clubfoot when we

learned of it (at birth) because I already had some knowledge of it from

researching MTA (for Arica) when I was pregnant, but when I saw what came

out of that tenotomy cast, I almost cried. I have the most vivid memory in

my head of thinking of all the pictures I had seen here of perfect little

feet and thinking " Why does his foot look like THIS?! "

You are right ... you could see it somewhat in the early pics of Lilee's

foot, but it still looked pretty good. This is why I stress to parents

whose kids may have this particular form of clubfoot to see a doctor

qualified in treating - preferably Dr Ponseti himself, but we know there are

several others, too - BEFORE having the tenotomy done.

In retrospect, I wish we had done a better job of taking pictures, or that

we had had a digital camera, when Kai was in early treatment. All the pics

I have are so blurry and you can hardly tell what it looked like before

treatment began or between the casts. I am so glad that (Sadie's

mom) had such an extensive set of photos so that Dr P could pin down what

happened when!

Angel

Caitlen 8/29/97

Arica 8/22/01

Kai 12/31/02

----Original Message Follows----

Reply-To: nosurgery4clubfoot

To: nosurgery4clubfoot

Subject: RE: Cavus and/or Plantaris Q?

Date: Sat, 01 Oct 2005 19:45:57 -0700

Angel,

I got to see first hand (well kind of... I saw before pics) of how

this develops *after* the tenotomy. I kept thinking it looked

plantarisy (is that a word? well, now is it lol!) but I wasn't sure

and couldn't say not being a doc and all... but yup... when you

stand her on her feet you can see it.

I do have pics from last week of Lilee's foot. Sorry Christee! I

will try to get them to you tonight and I'll also post them at CFPics

for everyone else to see.

Kori

At 02:50 PM 10/1/2005, you wrote:

>Ok, yes, when he said cavus and then agreed with you about the plantaris

it

>was still referring to the same thing.

>

>Some quick definitions for you:

>

>metatarsals = long bones in the foot; if you feel your own foot you will

>find that the long bones start at your arch and extend to the beginning of

>your toes.

>

>plantarflexion = a downward pull; in this case, the metatarsals angle

>sharply downward from the midfoot joint (where the metatarsals and the

bones

>before them - the tarsals - come together).

>

>cavus = very high arch, caused by the plantarflexion of the metatarsals.

>The arch of the foot makes an upside down V.

>

>equinus = overall downward pointing of the foot, caused by the very short

>achilles tendon.

>

>Dr Ponseti has a very hard time explaining this - as he refers to it -

>complex deformity in layman's terms. That is because it involves parts of

>the foot that really do not have " common " names. Him and I have talked

>about this, and burried somewhere on my old hard drive is a document that

>translates the whole description ... but I cant find it right now

>

>You will recognize the term atypical clubfoot - that is the 5% he is

talking

>about. He is saying that Lilee has atypical clubfoot, like some of the

>other children you have heard about here. It has to be manipulated a bit

>different than usual. It is excellent that you are going to Iowa - you

>could put your daughter in no better hands than his.

>

>When you go, make sure to take pen and paper and take notes of what he

says

>.... if there is anything that you do not understand, I will be very happy

>to tell you what it means. It took me alot of research to learn all the

>words and how they relate to what Dr Ponseti was talking about ... but now

I

>know them and can save you all that time

>

>Best of luck! You are headed to one of the most loving places on this

>earth, and Lilee's foot will turn out perfect!

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: RE: Cavus and/or Plantaris Q?

>Date: Sat, 1 Oct 2005 08:41:20 -0700 (PDT)

>

>He emailed me, and then I called him. When I called him he said " cavus "

and

>I said " Plantaris " ? and his exact words were, " Plantaris, yes " . Here is a

>copy of the email...

>

>The pictures show that this foot has developed into a complex deformity

with

>folds on the back of the foot above the heel and on the sole of the foot.

>Your doctor may not be familiar with the proper treatment of this complex

>deformity which occurs in only about 5% of all clubfeet. These feet can

be

>treated without major surgery but it is important when applying the cast

to

>correct the plantarflexion of the metatarsals by pushing the foot up and

>correcting both the cavus and the equinus. I don't see that the equinus

was

>completely corrected.

>

>

>

>Angel Gray wrote:

>Exactly how did he word that Christee? To my knowledge, they refer to the

>same thing. Plantaris causes cavus ... there is a ligament on the bottom

of

>the foot called the plantar ligament. That ligament can be very tight and

>resistant, causing cavus, which is a fancy term for very high arch.

>

>Did he send you an e-mail that you could copy and paste, or did you talk

to

>him on the phone?

>

>

>Angel

>Caitlen 8/29/97

>Arica 8/22/01

>Kai 12/31/02

>

>

>

>

>----Original Message Follows----

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Cavus and/or Plantaris Q?

>Date: Sat, 01 Oct 2005 03:00:07 -0000

>

>Dr. P. said Lilee has both Cavus and Plantaris. Anyone elses child have

>this? He said about 5% of all CF have it. Can anyone tell me a little

>more about those? Thanks

>

>

>

>

>