Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Our son Diego (4months BC) sleeps with his legs in the air and the bar touching his forehead. I try to get him to get his legs down but they go right back up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 , I just want to reassure you that contorted sleeping positions are quite the norm! It's great that your daughter is sleeping well and not having a problem with the brace. I certainly wouldn't feel it necessary to reposition her or worry about how she ends up. I can understand your concern, though.. it's only natural looking at the positions they end up in.. many parents wonder the same.. I asked Dr. Ponseti about it long ago, because I wondered too.. and he told me they have never seen any problems to hips, knees, etc. caused by the brace. (The worse problem is when the brace is stopped too early, because of worries such as this, and the foot invariably relapses..) My daughter is 5, having worn the brace all this time, and never has had any problems. (Do you belong to CFPics? I have a pic of her taken recently in a very contorted position that I could send if it would help to see!) About the other foot pointing out .. this happened to my daughter too at one time, when she was a toddler. Dr. POnseti had us move the rotation on the normal foot in a few degrees. I think the Global Health booklet recommends a range of 45 to 30 degrees for the normal foot .. and I've seen even less. (The more critical measure is how the clubfoot is set, and that is, as you say, 70-75.) I'd suggest talking to your doctor about decreasing the roation on thae normal foot.. once a change like that is made, the foot responds very quickly.. so don't worry about permanent harm. I'm writing this in a hurry.. I know others will pipe up with more advice.. hope it helps reassure you. and Claire > Hello, > > I have a little girl, Molly (17months), who has unilateral clubfoot > and is only wearing her boots and bar for sleeping. My concern is > that when she sleeps, she gets into the most uncomfortable looking > positions. While she sleeps well and doesn't seem bothered by it, I > am concerned that she may be damaging her knees or hips. We try to > re-position her, but we cannot be there all night! > > Anyone have a child that does this too or knows if this can cause > damage? Suggestions for sleeping positions are also welcome. Outside > of strapping the poor girl on her back (joking) I am at a loss. > > On another note, now that Molly has been walking for five months, we > are noticing that her unaffected left foot turns out quite far when > she walks. Her clubfoot is perfectly straight. Her boots are set at > 40-45 degrees (left)and the other at 70-75 (right). As per Ponseti's > instructions. Is this normal? > > I do have a Dr that says he uses the Ponseti Metod, and I am happy > with the correction so far, I am just worried that because he is so > new to it, and sometimes not fully informed, that I am better coming > here for questions and advice! > > Thanks in advance, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 - Yeah, that's normal- they all find funky ways to sleep. There was a picture of 's son, Jakob, sleeping with half of his body up and half down, twisted almost 180° at the waist. (face up and toes toward the mattress) I would suggest just making sure you get that bar padded to prevent him from getting a big goose egg on his forehead! There's been lots of discussion about padding the bar- just ask if you don't know how! & (3-16-00, lcf) > Our son Diego (4months BC) sleeps with his legs in the air and the bar > touching his forehead. I try to get him to get his legs down but they go right back > up! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 , I agree with . The shoe for the normal foot can be rotated inward if you think it's taking too much to the outward angle. Just talk to your doctor about adjusting it. I'm glad Molly is doing so well! Regards, & (3-16-00, left clubfoot) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Kelsey sleeps pretty much like this but her body is like she is laying face down but is twisted at the waist like she is on her side with one foot on the bed and the other one straight up in the air. I can't see how it could possibly be comfortable but she seems to do well with it. Jenni --- jennyandkelly wrote: > - > Yeah, that's normal- they all find funky ways to > sleep. There was a > picture of 's son, Jakob, sleeping with half > of his body up > and half down, twisted almost 180° at the waist. > (face up and toes > toward the mattress) > I would suggest just making sure you get that bar > padded to prevent > him from getting a big goose egg on his forehead! > There's been lots of discussion about padding the > bar- just ask if > you don't know how! > & (3-16-00, lcf) > > > > Our son Diego (4months BC) sleeps with his legs in > the air and the > bar > > touching his forehead. I try to get him to get his > legs down but > they go right back > > up! > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > Jenni- Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for left clubfoot. ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Our son does the same thing. It always looks so funny because he's in a sleep sack so when you go in to get him in the morning, you can't see his face! He also moves in a lot of interesting ways when he's awake. When he's out of the shoes, he is constantly doing the hurdler stretch, and now that he's starting to figure out how to crawl, he likes to push himself up so only his shoes and hands are on the floor and his little tush is pointing straight up in the air. I can't imagine how he gets in some of these positions, but he's happy so we don't worry. > Our son Diego (4months BC) sleeps with his legs in the air and the bar > touching his forehead. I try to get him to get his legs down but they go right back > up! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2005 Report Share Posted July 23, 2005 Hello , Welcome to the group! My son Dinos (Konstantinos) was born with bilateral clubfeet June 2000, and was treated by both Dr. Feldman in NY and Dr. Ponseti. The first thing I wanted to mention to you is, because you mentioned that your doctor says he uses the Ponseti Method, you might want to check with Dr. Ponseti's office to be sure. (See the message of a day or so ago about the doctor at CHOP, and Dr. Ponseti's reply.) About Molly's sleeping, I want to tell you that Dinos got into the most incredible sleeping positions, including sleeping on his side with one foot down and the other held straight up in the air with the bar. I was also worried about his ankles and knees and hips, but now he is five years old and has absolutely no problems, and he's been out of the boots and bar since he was 2 1/2 years old. A couple of things to try...to keep Molly more comfortable and maybe prevent her from turning over, put a rolled up towel or blanket under her knees when she's sleeping on her back. If she prefers to sleep on her side, you can slip a small pillow in between her knees to help support the knee that is up in the air, and you can also put a pillow behind her back to keep her from flopping over. If she sleeps with one shoe up against the crib side, you can hang a blanket over the side of the crib (tie it in place on the sides so it doesn't fall in on top of her) and that will keep the shoe from getting stuck between the crib bars and will also cut down on the noise of the bar and shoe hitting the crib. Good luck! Pamela Karydas > Hello, > > I have a little girl, Molly (17months), who has unilateral clubfoot > and is only wearing her boots and bar for sleeping. My concern is > that when she sleeps, she gets into the most uncomfortable looking > positions. While she sleeps well and doesn't seem bothered by it, I > am concerned that she may be damaging her knees or hips. We try to > re-position her, but we cannot be there all night! > > Anyone have a child that does this too or knows if this can cause > damage? Suggestions for sleeping positions are also welcome. Outside > of strapping the poor girl on her back (joking) I am at a loss. > > On another note, now that Molly has been walking for five months, we > are noticing that her unaffected left foot turns out quite far when > she walks. Her clubfoot is perfectly straight. Her boots are set at > 40-45 degrees (left)and the other at 70-75 (right). As per Ponseti's > instructions. Is this normal? > > I do have a Dr that says he uses the Ponseti Metod, and I am happy > with the correction so far, I am just worried that because he is so > new to it, and sometimes not fully informed, that I am better coming > here for questions and advice! > > Thanks in advance, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Yes...the weird sleeping positions are normal for the children with the DBB and are harmless. My son is unilateral left and we had to make adjustments several times regarding his good foot. Sometimes is was out too much so we would rotate it in 5 or so degrees. Then after a year it would go inward so we would rotate it back out 5 degrees. Within a week of these adjustments his foot always looked fine. > Hello, > > I have a little girl, Molly (17months), who has unilateral clubfoot > and is only wearing her boots and bar for sleeping. My concern is > that when she sleeps, she gets into the most uncomfortable looking > positions. While she sleeps well and doesn't seem bothered by it, I > am concerned that she may be damaging her knees or hips. We try to > re-position her, but we cannot be there all night! > > Anyone have a child that does this too or knows if this can cause > damage? Suggestions for sleeping positions are also welcome. Outside > of strapping the poor girl on her back (joking) I am at a loss. > > On another note, now that Molly has been walking for five months, we > are noticing that her unaffected left foot turns out quite far when > she walks. Her clubfoot is perfectly straight. Her boots are set at > 40-45 degrees (left)and the other at 70-75 (right). As per Ponseti's > instructions. Is this normal? > > I do have a Dr that says he uses the Ponseti Metod, and I am happy > with the correction so far, I am just worried that because he is so > new to it, and sometimes not fully informed, that I am better coming > here for questions and advice! > > Thanks in advance, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Yes...the weird sleeping positions are normal for the children with the DBB and are harmless. My son is unilateral left and we had to make adjustments several times regarding his good foot. Sometimes is was out too much so we would rotate it in 5 or so degrees. Then after a year it would go inward so we would rotate it back out 5 degrees. Within a week of these adjustments his foot always looked fine. > Hello, > > I have a little girl, Molly (17months), who has unilateral clubfoot > and is only wearing her boots and bar for sleeping. My concern is > that when she sleeps, she gets into the most uncomfortable looking > positions. While she sleeps well and doesn't seem bothered by it, I > am concerned that she may be damaging her knees or hips. We try to > re-position her, but we cannot be there all night! > > Anyone have a child that does this too or knows if this can cause > damage? Suggestions for sleeping positions are also welcome. Outside > of strapping the poor girl on her back (joking) I am at a loss. > > On another note, now that Molly has been walking for five months, we > are noticing that her unaffected left foot turns out quite far when > she walks. Her clubfoot is perfectly straight. Her boots are set at > 40-45 degrees (left)and the other at 70-75 (right). As per Ponseti's > instructions. Is this normal? > > I do have a Dr that says he uses the Ponseti Metod, and I am happy > with the correction so far, I am just worried that because he is so > new to it, and sometimes not fully informed, that I am better coming > here for questions and advice! > > Thanks in advance, > Quote Link to comment Share on other sites More sharing options...
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