Anyone with experience with Remicade??

[Guest guest]

Hello,

I have had neursarcoidosis sinced 1999 but was not diagnosed unitl

2003. Any way on with my question. I have been getting IV remicade

since may. It seems to hold the symptoms at bay, but i can't seem to

get off of the steroids completely. I have a couple of questions

about the side effects of remicade. I am starting to lose my hair and

i can't seem to lose any weight. Does any one know if either one of

those might be a side effect of the remicade? I was on methotrexate

but, now i am not and i was just beging to grow some hair back on my

head. But then this morning i had that dredful hand full of hair fall

out as i was washing my hair. I need to get some of this steroid

weight off but it just wont go. I watch what i eat and i go to water

arobics twice a week. I know i will feel better if i can get some of

the weight off but it just wont budge. I am down to 15mg's of

predisone and that's a cake walk compared to the higher doeses. Any

coments or advise will be greatly appreciated.

Huggs and best wishes to all of you

karen

[Guest guest]

Hello,

I have had neursarcoidosis sinced 1999 but was not diagnosed unitl

2003. Any way on with my question. I have been getting IV remicade

since may. It seems to hold the symptoms at bay, but i can't seem to

get off of the steroids completely. I have a couple of questions

about the side effects of remicade. I am starting to lose my hair and

i can't seem to lose any weight. Does any one know if either one of

those might be a side effect of the remicade? I was on methotrexate

but, now i am not and i was just beging to grow some hair back on my

head. But then this morning i had that dredful hand full of hair fall

out as i was washing my hair. I need to get some of this steroid

weight off but it just wont go. I watch what i eat and i go to water

arobics twice a week. I know i will feel better if i can get some of

the weight off but it just wont budge. I am down to 15mg's of

predisone and that's a cake walk compared to the higher doeses. Any

coments or advise will be greatly appreciated.

Huggs and best wishes to all of you

karen