Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Oh Terry, I am so sorry to hear this. I was up North here, with everything crossed, that could be crossed = :-o for your final Tap. Back to the drawing board as they say. But at least you now have the three doses a day thing finalized. That is a big step. Perhaps it is only a matter of more time ? And... you are still FEELING much better I hope. Do you know how far back YOUR TSH lags ? Keep searching for other factors that play into this. I found MANY. -Pam L - off to the Farmers Market.... today shall be ALL fun ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hey Terry: I had a period (4-5 months) of fluctuations in my TSH as I was getting ready to go into remission. My T3 and T4 would stay in normal but on the high side. I actually thought (and was told)I was in remission a couple of times when it was false alarms. However, for me, the path was laid out, and I maintained very low dosage of PTU and finally didn't need them anymore. Hopefully you are also on that road. Regards, > Hi folks, > > Well, I just got back from the endo. Had hoped to find myself completely in > remission, so am a bit disappointed. My TSH is back to <.01, although my FT4 > of 1.7 (reference range is .75-2.0) makes me quite happy. My FT3 was 3.6 > (2.4-4.5), also normal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hey Terry: I had a period (4-5 months) of fluctuations in my TSH as I was getting ready to go into remission. My T3 and T4 would stay in normal but on the high side. I actually thought (and was told)I was in remission a couple of times when it was false alarms. However, for me, the path was laid out, and I maintained very low dosage of PTU and finally didn't need them anymore. Hopefully you are also on that road. Regards, > Hi folks, > > Well, I just got back from the endo. Had hoped to find myself completely in > remission, so am a bit disappointed. My TSH is back to <.01, although my FT4 > of 1.7 (reference range is .75-2.0) makes me quite happy. My FT3 was 3.6 > (2.4-4.5), also normal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi Terry - It seems like good news overall! Sorry about the TSH drop. Wish I had some terrific answer for you, but afraid I don't. I can only speculate that since your TSI's are 97, that means you still have some so they are still interfering with the TSH receptors. That, or I'm really beginning to develop a theory that some of these TSH changes are seasonal. Seems like an awful lot of people have all of a sudden had a drop in TSH without corresponding changes in other labs. Yours hasn't dropped much, so I wonder if there is something to a slight change due to weather changes? Wish I knew and wish I was more help test results > Hi folks, > > Well, I just got back from the endo. Had hoped to find myself completely in > remission, so am a bit disappointed. My TSH is back to <.01, although my FT4 > of 1.7 (reference range is .75-2.0) makes me quite happy. My FT3 was 3.6 > (2.4-4.5), also normal. My TSI result is also in the normal range--97, with > normal being <125. > > So, why am I not happy? It scares me that the TSH went back down, it was ..25 > last time. I had hoped that the TSI would be <2 again as well, which is > where I was last time I got down to such a low dose of Tap, a year or so > ago. I had wanted to stop the Tap, and I know I simply can't do that or I'll > spring back to hyper again. > > Ah, well! > > Terry > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi , I like your theory better than my worry that I'm going in the " wrong direction " so to speak. I ended up worrying my self into a headache last night, but by this morning, I've accepted that this is just the way it is, and all I really can do is keep on taking my crumbs of Tap and remain aware of how I feel, day to day. The TSI interfering with TSH receptors I have to do some studying up on. another thing my endo said that sort of just registered is that he wants to test FT3 again in a few months because 'people with normal labs but low TSH can develop T3 toxicosis'. Make any sense to you? Terry > > Reply-To: graves_support > Date: Thu, 29 May 2003 12:39:28 -0400 > To: <graves_support > > Subject: Re: test results > > Hi Terry - > > It seems like good news overall! Sorry about the TSH drop. Wish I had some > terrific answer for you, but afraid I don't. I can only speculate that since > your TSI's are 97, that means you still have some so they are still > interfering with the TSH receptors. That, or I'm really beginning to develop > a theory that some of these TSH changes are seasonal. Seems like an awful > lot of people have all of a sudden had a drop in TSH without corresponding > changes in other labs. Yours hasn't dropped much, so I wonder if there is > something to a slight change due to weather changes? Wish I knew and wish I > was more help > > > > test results > > >> Hi folks, >> >> Well, I just got back from the endo. Had hoped to find myself completely > in >> remission, so am a bit disappointed. My TSH is back to <.01, although my > FT4 >> of 1.7 (reference range is .75-2.0) makes me quite happy. My FT3 was 3.6 >> (2.4-4.5), also normal. My TSI result is also in the normal range--97, > with >> normal being <125. >> >> So, why am I not happy? It scares me that the TSH went back down, it was > .25 >> last time. I had hoped that the TSI would be <2 again as well, which is >> where I was last time I got down to such a low dose of Tap, a year or so >> ago. I had wanted to stop the Tap, and I know I simply can't do that or > I'll >> spring back to hyper again. >> >> Ah, well! >> >> Terry >> >> >> >> ------------------------------------- >> The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. >> Please consult your doctor before changing or trying new treatments. >> ---------------------------------------- >> DISCLAIMER >> >> Advertisments placed on this yahoo groups list do not have the endorsement > of >> the listowner. I have no input as to what ads are attached to emails. >> -------------------------------------------------------------------------- > ------------ >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Terry - Yes, I did remember something about that T3 toxicosis. So I went back to the Graves' Bible and on p. 70-71 it talks about the T3/T4 ratio. Interesting stuff, I don't know if it specifically applies to what your doc was talking about, but it's nonetheless thought-provoking. " In Graves' disease, the proportion of unbound hormone (freeT3/free T4) is increased due to a slight decrease in binding proteins and an increased level of circulating T4. Therefore, in GD, the ratio of T3 to T4 found in thyroglobulin is usually twice the normal ratio. Total daily production of T3 is disproportionally increased due to increased secretion of T3 from the thyroid gland and increased peripheral conversion of T4 to T3. Consequently, blood levels may reflect an increased level of T3 while T4 remains in the normal range. This is known as T3 thyrotoxicosis and it may have a benevolent effect. Dr. P. Larsen, et al., write, Experience suggests that patients with T3 toxicosis are more likely to have a long-term remission after withdrawl of antithyroid therapy than patients with the usual form of thyrotoxicosis. " " Remember also that most T3 is formed from T4, but some T3 is also made from peripheral sites, including the pituitary (I wonder if the AB's also screw up the T3 production in the pituitary as well - perhaps Elaine knows this), liver, kidneys, and skeletal muscle, as well as others. I didn't see anything in particular with regard to TSH and T3 toxicosis, so I wonder what specifically your doc was thinking about. Maybe it goes along with impairment of the pituitary due to antibodies. Don't know. Really need to get that medical degree now! Try not to worry too much. Believe me, I know, easier said than done. I worry every time mine shifts direction (and it does so frequently!) It's just going to do what it's going to do and we're along for the ride. The more doctors I go to (and that's getting to be quite a number now), the more I begin to suspect that they _really_ don't know exactly how all these mechanisms work and why we seem to experience odd ups and downs. Not one doctor has yet been able to give me an explanation for why this occurs or even attempted a reasonable explanation. I think I'm starting to get why. test results > > > > > >> Hi folks, > >> > >> Well, I just got back from the endo. Had hoped to find myself completely > > in > >> remission, so am a bit disappointed. My TSH is back to <.01, although my > > FT4 > >> of 1.7 (reference range is .75-2.0) makes me quite happy. My FT3 was 3.6 > >> (2.4-4.5), also normal. My TSI result is also in the normal range--97, > > with > >> normal being <125. > >> > >> So, why am I not happy? It scares me that the TSH went back down, it was > > .25 > >> last time. I had hoped that the TSI would be <2 again as well, which is > >> where I was last time I got down to such a low dose of Tap, a year or so > >> ago. I had wanted to stop the Tap, and I know I simply can't do that or > > I'll > >> spring back to hyper again. > >> > >> Ah, well! > >> > >> Terry > >> > >> > >> > >> ------------------------------------- > >> The Graves' list is intended for informational purposes only and is not > > intended to replace expert medical care. > >> Please consult your doctor before changing or trying new treatments. > >> ---------------------------------------- > >> DISCLAIMER > >> > >> Advertisments placed on this yahoo groups list do not have the endorsement > > of > >> the listowner. I have no input as to what ads are attached to emails. > >> ------------------------------------------------------------------------- - > > ------------ > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 , thanks for doing the research. I'm not real good with the technical stuff but will read this post about 20 times and see whether I understand. Medicine is not my strong point, I like to keep things simple! However I am encouraged that the T3thyrotoxicosis may have a benevolent effect. Rather than something to fear, maybe it's something to hope for! Terry > > Reply-To: graves_support > Date: Thu, 29 May 2003 16:53:03 -0400 > To: <graves_support > > Subject: Re: test results > > Terry - > > Yes, I did remember something about that T3 toxicosis. So I went back to the > Graves' Bible and on p. 70-71 it talks about the T3/T4 ratio. Interesting > stuff, I don't know if it specifically applies to what your doc was talking > about, but it's nonetheless thought-provoking. > > " In Graves' disease, the proportion of unbound hormone (freeT3/free T4) is > increased due to a slight decrease in binding proteins and an increased > level of circulating T4. Therefore, in GD, the ratio of T3 to T4 found in > thyroglobulin is usually twice the normal ratio. Total daily production of > T3 is disproportionally increased due to increased secretion of T3 from the > thyroid gland and increased peripheral conversion of T4 to T3. > Consequently, blood levels may reflect an increased level of T3 while T4 > remains in the normal range. This is known as T3 thyrotoxicosis and it may > have a benevolent effect. Dr. P. Larsen, et al., write, Experience > suggests that patients with T3 toxicosis are more likely to have a long-term > remission after withdrawl of antithyroid therapy than patients with the > usual form of thyrotoxicosis. " " > > Remember also that most T3 is formed from T4, but some T3 is also made from > peripheral sites, including the pituitary (I wonder if the AB's also screw > up the T3 production in the pituitary as well - perhaps Elaine knows this), > liver, kidneys, and skeletal muscle, as well as others. > > I didn't see anything in particular with regard to TSH and T3 toxicosis, so > I wonder what specifically your doc was thinking about. Maybe it goes along > with impairment of the pituitary due to antibodies. Don't know. Really need > to get that medical degree now! > > Try not to worry too much. Believe me, I know, easier said than done. I > worry every time mine shifts direction (and it does so frequently!) It's > just going to do what it's going to do and we're along for the ride. The > more doctors I go to (and that's getting to be quite a number now), the more > I begin to suspect that they _really_ don't know exactly how all these > mechanisms work and why we seem to experience odd ups and downs. Not one > doctor has yet been able to give me an explanation for why this occurs or > even attempted a reasonable explanation. I think I'm starting to get why. > > > > test results >>> >>> >>>> Hi folks, >>>> >>>> Well, I just got back from the endo. Had hoped to find myself > completely >>> in >>>> remission, so am a bit disappointed. My TSH is back to <.01, although > my >>> FT4 >>>> of 1.7 (reference range is .75-2.0) makes me quite happy. My FT3 was > 3.6 >>>> (2.4-4.5), also normal. My TSI result is also in the normal range--97, >>> with >>>> normal being <125. >>>> >>>> So, why am I not happy? It scares me that the TSH went back down, it > was >>> .25 >>>> last time. I had hoped that the TSI would be <2 again as well, which is >>>> where I was last time I got down to such a low dose of Tap, a year or > so >>>> ago. I had wanted to stop the Tap, and I know I simply can't do that or >>> I'll >>>> spring back to hyper again. >>>> >>>> Ah, well! >>>> >>>> Terry >>>> >>>> >>>> >>>> ------------------------------------- >>>> The Graves' list is intended for informational purposes only and is not >>> intended to replace expert medical care. >>>> Please consult your doctor before changing or trying new treatments. >>>> ---------------------------------------- >>>> DISCLAIMER >>>> >>>> Advertisments placed on this yahoo groups list do not have the > endorsement >>> of >>>> the listowner. I have no input as to what ads are attached to emails. >> >>> ------------------------------------------------------------------------- > - >>> ------------ >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Hey Guys, I got my potassium level back today and it is almost back to normal. Also the imuran isn't causing any problems with my blood count or my liver - woohoo. It is nice to have something positive to say. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Hey Guys, I got my potassium level back today and it is almost back to normal. Also the imuran isn't causing any problems with my blood count or my liver - woohoo. It is nice to have something positive to say. Terri G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 That is wonderful Terri!Blessings,Beckymosaicgirl1 wrote: Hey Guys, I got my potassium level back today and it is almost back to normal. Also the imuran isn't causing any problems with my blood count or my liver - woohoo. It is nice to have something positive to say. Terri G. Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 That is wonderful Terri!Blessings,Beckymosaicgirl1 wrote: Hey Guys, I got my potassium level back today and it is almost back to normal. Also the imuran isn't causing any problems with my blood count or my liver - woohoo. It is nice to have something positive to say. Terri G. Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 WOOHOO! Seventy-six trombones in the big parade, a hundred and ten cornets in the band!! Hopefully, most of you can hum the tune to this old marching song. COWABUNGA! We'll take any good news we can get. Ramblin' Rose Moderator A merry heart is good medicine. Proverbs 17:22 Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: test resultsDate: Sat, 11 Aug 2007 00:20:30 -0000 Hey Guys,I got my potassium level back today and it is almost back to normal. Also the imuran isn't causing any problems with my blood count or myliver - woohoo.It is nice to have something positive to say.Terri G. A new home for Mom, no cleanup required. All starts here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 Rose, Man that song is an oldie but a goodie. Brings back many memories.... Terri G. Quote Link to comment Share on other sites More sharing options...
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