Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 My 5 yo son got more energetic, I never noticed any change with the youngest. Perhaps she's coming down with something? Lolita >We are 3 days into this diet and my daughter has been so tired today. >She slept until 10 am and has gone back to sleep twice. Usually she's >up at 8 and doesn't nap all day. In fact, she's usually on fast- >forward all day, constantly moving. Is this fatigue related to the >diet or probably something else? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 Sounds like hypo to me. did you get regular follow-up for your blood work? Liang > Hi, > I was diagnosed with Graves disease in July with symptoms of tremor, > heart palpitations and weight loss. > > After medication of Neo Mercazole 20 mg daily I became extremely > fatigued and depressed/angry. My medication has been reduced to 10 mg > two weeks ago but feel no better. I am constantly tired. Do you ever > start to feel normal again? > > Also, my eyesight has deteriorated over the last couple of months and > the skin on the palms of my hands is peeling. What is happening? > Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 Welcome. Pardon the third degree but we ask a lot of questions to get a clear picture of things. > I was diagnosed with Graves disease in July with symptoms of tremor, > heart palpitations and weight loss. > After medication of Neo Mercazole 20 mg daily Where do you live? Other members of this group may be able to help you navigate your country's health scheme. When did you start, and how long were you on it? Neo mercazole is chemically similiar to Tapazole (the brand name for methimazole, commonly used in the US). I became extremely > fatigued and depressed/angry. My medication has been reduced to 10 > mg > two weeks ago but feel no better. How long did you stay at 20 mg.? How many times a day do you take it? It's common for adults with active Graves to start at 30 mg. That you had such a strong reaction at a lower dose indicates a few possibilities: - that you are very sensitive to medications. If you are then you should be decreasing your dose very gradually, no more than 5 mg. at a time, probably 2.5 (cut a 5 mg. in half) would be better. - and/or that you were kept at 20 mg. for far too long. > Also, my eyesight has deteriorated over the last couple of months > and > the skin on the palms of my hands is peeling. The skin peeling could be because you're hypo. You may have noticed while hyper that your skin was soft and moist. Skin dries out with hypo. A good moisturizer would help, possibly vitamin E. Not the oral vitamin E but E to rub onto your skin. About your eyes: being hypo can exacerbate eye problems. Once your levels are stable and normal, which should come with proper care, you may see an improvement. You should also consider taking the supplement Omega 3, which has been shown to ease symptoms of TED. Please share specifics of your eye problems and discomfort so members who have TED can help. Here are some suggestions: Get copies of all your medical records. Familiarize yourself with your TSH and Free T4, and Free T3 if your doctor chose to run it. Please share your lab reports along with the ranges your lab gives for normal with the group. From what you've briefly shared with us, there is reason to suspect that while you are on a good medication, you are not being monitored well or dosed properly. It is people who have been in your position who are vulnerable for opting for more drastic, irreversible treatments when all it might take for relief is to get educated and insist on the proper testing, at a schedule appropriate for YOU, not arbitrarily set up by the health program, and proper dosing. Take care, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 Lana, Yes, you will almost certainly feel better with your thyroid levels (Free T4 and Free T3) in the normal range (mid-range or a bit higher). Best to get labs every 4 weeks, so as to prevent levels from getting/staying low. At 01:53 AM 10/23/2003, you wrote: >Hi, >I was diagnosed with Graves disease in July with symptoms of tremor, >heart palpitations and weight loss. > >After medication of Neo Mercazole 20 mg daily I became extremely >fatigued and depressed/angry. My medication has been reduced to 10 mg >two weeks ago but feel no better. I am constantly tired. Do you ever >start to feel normal again? > >Also, my eyesight has deteriorated over the last couple of months and >the skin on the palms of my hands is peeling. What is happening? >Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 Lana, Yes, you will almost certainly feel better with your thyroid levels (Free T4 and Free T3) in the normal range (mid-range or a bit higher). Best to get labs every 4 weeks, so as to prevent levels from getting/staying low. At 01:53 AM 10/23/2003, you wrote: >Hi, >I was diagnosed with Graves disease in July with symptoms of tremor, >heart palpitations and weight loss. > >After medication of Neo Mercazole 20 mg daily I became extremely >fatigued and depressed/angry. My medication has been reduced to 10 mg >two weeks ago but feel no better. I am constantly tired. Do you ever >start to feel normal again? > >Also, my eyesight has deteriorated over the last couple of months and >the skin on the palms of my hands is peeling. What is happening? >Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2003 Report Share Posted October 23, 2003 Hi Fay, Thank you for your information. I live on the Central Coast NSW Australia. I was on Neo Mercazole for 8 weeks and then it was reduced. I am quite surprised how I have reacted to the medication. Everything (!) has changed. I'm not a person to crave sleep and have always been able to stay up 'til all hours but I'm constantly tired. My specialist is prone to shrug his shoulders and say it's all part of the process.... a little depressing in itself. I have 4 weekly blood tests. My last one indicated that levels were returning to normal but I was on the 'lower end' of the scale. Normal ....I don't feel! Thanks again, Lana -- In graves_support , cf young <cfyoung4@j...> wrote: > Welcome. Pardon the third degree but we ask a lot of questions to get a > clear picture of things. > > > > I was diagnosed with Graves disease in July with symptoms of tremor, > > heart palpitations and weight loss. > > > After medication of Neo Mercazole 20 mg daily > > Where do you live? Other members of this group may be able to help you > navigate your country's health scheme. > When did you start, and how long were you on it? Neo mercazole is > chemically similiar to Tapazole (the brand name for methimazole, commonly > used in the US). > > I became extremely > > fatigued and depressed/angry. My medication has been reduced to 10 > > mg > > two weeks ago but feel no better. > > How long did you stay at 20 mg.? How many times a day do you take it? > It's common for adults with active Graves to start at 30 mg. That you had > such a strong reaction at a lower dose indicates a few possibilities: > - that you are very sensitive to medications. If you are then you should > be decreasing your dose very gradually, no more than 5 mg. at a time, > probably 2.5 (cut a 5 mg. in half) would be better. > - and/or that you were kept at 20 mg. for far too long. > > > Also, my eyesight has deteriorated over the last couple of months > > and > > the skin on the palms of my hands is peeling. > > The skin peeling could be because you're hypo. You may have noticed while > hyper that your skin was soft and moist. Skin dries out with hypo. A good > moisturizer would help, possibly vitamin E. Not the oral vitamin E but E > to rub onto your skin. > > About your eyes: being hypo can exacerbate eye problems. Once your levels > are stable and normal, which should come with proper care, you may see an > improvement. You should also consider taking the supplement Omega 3, > which has been shown to ease symptoms of TED. Please share specifics of > your eye problems and discomfort so members who have TED can help. > > Here are some suggestions: > Get copies of all your medical records. Familiarize yourself with your > TSH and Free T4, and Free T3 if your doctor chose to run it. Please share > your lab reports along with the ranges your lab gives for normal with the > group. From what you've briefly shared with us, there is reason to > suspect that while you are on a good medication, you are not being > monitored well or dosed properly. It is people who have been in your > position who are vulnerable for opting for more drastic, irreversible > treatments when all it might take for relief is to get educated and > insist on the proper testing, at a schedule appropriate for YOU, not > arbitrarily set up by the health program, and proper dosing. > > Take care, Fay > > ________________________________________________________________ > The best thing to hit the internet in years - Juno SpeedBand! > Surf the web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 > My specialist is prone to shrug his shoulders and say it's all part > of the process.... a little depressing in itself. I have 4 weekly > blood tests. My last one indicated that levels were returning to > normal but I was on the 'lower end' of the scale. The question is, lower end of normal for what: - If it's for TSH, that's good that your TSH has become detectable so soon. For many people, TSH stays suppressed well into treatment and shouldn't be used for determining dose reductions. BTW, what is considered a normal range for TSH down under? The ranges in the US have been changed and reflect what many of us have discovered is more accurate. Do you have copies of your labs? Never settle for a report that the numbers are normal, you want cold hard numbers. -If it's for thyroid hormone, preferably tested in the form of FREE (not TOTAL, capitals for emphasis) T4 that means you have become hypo, and rather rapidly, because when you started all this your T4 was above the upper range. Please feel free to share your numbers and what your lab considers normal. Take care, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 Thanks Fay, After joining in this chat line I have learnt that I must be more proactive in my treatment. I can see by the responses here that there is certainly much more to treatment than I imagined. I resent the attitude of some doctors that their patients don't have the mental capacity to process information about illness and treatment. I am relatively new to " Graves " and am coming to terms with the fact that I must now be conversant with levels of hormones, what they all mean and their implication for my well=being. Thank you for your feed back Lana > > My specialist is prone to shrug his shoulders and say it's all part > > of the process.... a little depressing in itself. I have 4 weekly > > blood tests. My last one indicated that levels were returning to > > normal but I was on the 'lower end' of the scale. > > The question is, lower end of normal for what: > - If it's for TSH, that's good that your TSH has become detectable so > soon. For many people, TSH stays suppressed well into treatment and > shouldn't be used for determining dose reductions. BTW, what is > considered a normal range for TSH down under? The ranges in the US have > been changed and reflect what many of us have discovered is more > accurate. Do you have copies of your labs? Never settle for a report that > the numbers are normal, you want cold hard numbers. > -If it's for thyroid hormone, preferably tested in the form of FREE (not > TOTAL, capitals for emphasis) T4 that means you have become hypo, and > rather rapidly, because when you started all this your T4 was above the > upper range. > > Please feel free to share your numbers and what your lab considers > normal. Take care, Fay > > > ________________________________________________________________ > The best thing to hit the internet in years - Juno SpeedBand! > Surf the web up to FIVE TIMES FASTER! > Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
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