Muscle biopsy

[Guest guest]

Can anyone tell me if they have had a muscle biopsy, and if so, what

part of the body was biopsied.

I am supposed to have one and want to make sure it is done in the right

place. The surgeon in planning on doing the biopsy in my left upper

thigh.

Thanks

Bonnie

[Guest guest]

Can anyone tell me if they have had a muscle biopsy, and if so, what

part of the body was biopsied.

I am supposed to have one and want to make sure it is done in the right

place. The surgeon in planning on doing the biopsy in my left upper

thigh.

Thanks

Bonnie

[Guest guest]

I had one and they took a peice of the tissue from my thigh, was a little tug, but otherwise painless.. Good luck!

Muscle biopsy

Can anyone tell me if they have had a muscle biopsy, and if so, what part of the body was biopsied. I am supposed to have one and want to make sure it is done in the right place. The surgeon in planning on doing the biopsy in my left upper thigh.ThanksBonnie

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[Guest guest]

I had one and they took a peice of the tissue from my thigh, was a little tug, but otherwise painless.. Good luck!

Muscle biopsy

Can anyone tell me if they have had a muscle biopsy, and if so, what part of the body was biopsied. I am supposed to have one and want to make sure it is done in the right place. The surgeon in planning on doing the biopsy in my left upper thigh.ThanksBonnie

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.13/1169 - Release Date: 12/3/2007 10:56 PM

[Guest guest]

I had a biopsy of the upper left arm back in 1994- It was abnormal but "inconclusive". I wish they had done my leg- the scar on my arm makes wearing short sleeves and sleeveless tops uncomfortable. With my biopsy they did a 4" incision.

[Guest guest]

Bonnie,

The problem with muscle biopsies is that they will hopefully get a spot that has sarcoidosis. I suspect that they try to find the knot or hard spot (like a trigger point with fibromylagia) that he will take the biospy from.

Muscles are the second most likely place to find sarc-- the lungs being the first. Do you have pulm sarc?

Take care,

Tracie

NS Co-owner/moderatorCheck out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

>

> Bonnie,

> The problem with muscle biopsies is that they will hopefully get a

spot that

> has sarcoidosis. I suspect that they try to find the knot or hard

spot

> (like a trigger point with fibromylagia) that he will take the

biospy from.

> Muscles are the second most likely place to find sarc-- the lungs

being the

> first. Do you have pulm sarc?

>

> Take care,

> Tracie

> NS Co-owner/moderator

>

> Dr. Baughman told me 2 years ago he is sure that I have

neurosarcoidosis. I had a lot of trouble finding someone to do the

biopsy and then I lost my insurance.

I have asthma and restrictive airway disease, but my chest x-rays

were always normal. I haven't had a chest x-ray for about 3 years. I

had a electrophysiological study on my heart in July and had quite a

few heart problems. I also have pulmonary hypertension. I am taking

meds for my heart and lungs. I also shake really bad when I first

get up in the morning and sometimes fall. My right hand has a tremor

that is getting worse. I have muscle spasms and Charlie horses in my

legs so I take Valium to help with those. I have gastroparesis and

cannot digest very much food. I basically eat a restricted diet,

easy to digest food. My eye sight is worse. I have trouble

swallowing, get choked easily, and have a dry mouth. My memory is

shot and I have to be really careful (put food on to cook and

forget). My legs are really weak, hurt all the time, and are sore. I

have lymph nodes that swell in my groin, underarms, and neck. I have

numbness in different parts of my body from my feet to the back of my

neck, the spots vary. I am so tired that at times I sleep 12-14

hours straight. Just cleaning my small apartment is a big job for

me. I was in the hospital for 3 days in 2006 because my legs were

paralyzed. In 2006, I used a wheelchair and now use a walker and cane

when I need it.

I am going the 13th to have the biopsy in my left upper thigh. He

told me it will be about a 4 inch scar and he will go in pretty deep

so I have to be put to sleep. After I get this done, if it shows

anything, I will then see Dr. Baughman again.

I am doing this mainly to get a diagnosis on paper. My cardiologist

and rheumatologist-friend all think that I have NS.

To be very truthful, (I know some of you know exactly what I mean),

some days I feel like I am dying, other days I feel better.

I agree with Dr. Baughman and the other doctors, I just want it on

paper to be able to prove what I have.

Thanks for listening.

Bonnie

>

> **************************************Check out AOL's list of

2007's hottest

> products.

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[Guest guest]

i finally had my muscle and nerve biopsy astusc two weeks ago monday and got results from pathaology, all were abnormal with moderate disease, it can't state what the actual disease is yet as my neurologist needs to correlate all the info, i had two muslces on my left thigh (my good leg) and the sural nerve on my left ankle. they put me under general anethesia due to the invasiveness of the procedure. so we will see soon what the actual diagnosis is soon. I also have learned that sarcoidosis systemic effects not need to be found in the actual granuloma itself, but as being systemic, the muscle involved will show throughout that that particular muscle is diseased. hope all are fine, and keep the faith, keep going kentiodaat@... wrote: Bonnie, The problem with muscle biopsies is that they will hopefully get a spot that has sarcoidosis. I suspect that they try to find the knot or hard spot (like a trigger point with fibromylagia) that he will take the biospy from. Muscles are the second most likely place to find sarc-- the lungs being the first. Do you have pulm sarc? Take care, Tracie NS Co-owner/moderator Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.

[Guest guest]

Ken, Did you have a meeting with the doc and he agreed to have you get a biopsy and then you went to a surgeon? They think I have fibromyalgia and arthritis but I wonder if the pains aren't sarc and thus be treated differently. I have sarc everywhere so why wouldn't it be in my muscles. My left upper arm has very large bumps inside the muscle and is sometimes very painful Will your treatment be any different? .S.ken stetson wrote: i finally had my muscle and nerve biopsy astusc

two weeks ago monday and got results from pathaology, all were abnormal with moderate disease, it can't state what the actual disease is yet as my neurologist needs to correlate all the info, i had two muslces on my left thigh (my good leg) and the sural nerve on my left ankle. they put me under general anethesia due to the invasiveness of the procedure. so we will see soon what the actual diagnosis is soon. I also have learned that sarcoidosis systemic effects not need to be found in the actual granuloma itself, but as being systemic, the muscle involved will show throughout that that particular muscle is diseased. hope all are fine, and keep the faith, keep going kentiodaat (AT) aol (DOT) com wrote: Bonnie, The problem with muscle biopsies is that they will hopefully get a spot that has sarcoidosis. I suspect that they try to find the knot or hard spot (like a trigger point with fibromylagia) that he will take the biospy from. Muscles are the second most likely place to find sarc-- the lungs being the first. Do you have pulm sarc? Take care, Tracie NS Co-owner/moderator Check out AOL Money Finance's list of the hottest products and top money wasters of 2007.

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Hi mary, its been almost 4 years being sick and ofcourse no one knew what was wrong with me except psycho. A friend MD sent me to one of his friends a neurologist, he did a emg with a needle, not shock or on the skin, there is a difference, you need the needle emg that goes right into the muscle, that way the md can move it to each specific muscle to see which one is the diseased muscle. if abnormal on the emg, then the next step through sarcoid history is muscle biopsy of that muscle to determine the actual pathology (name of the disease) some do it as surgery under general anesthesia(best) and some locals. they can't just biopsy any muscle where they THINK the disease is, thats a waste and uncomfortable for you. Don't let them tell you, "they think its", thats no good, try to find a neurologist with movement disorder experience that will take you in and work on you real good and ask for a needle emg, and if positive, then a

muscle biopsy if necessary ask for general anesthesia, its better for you if your body can handle it. hope all goes well, let me know how you make out, wish you the best. keep going and don't stop!!! ken Solberg wrote: Ken, Did you have a meeting with the doc and he agreed to have you get a biopsy and then you went to a surgeon? They think I have fibromyalgia and arthritis but I wonder if the pains aren't sarc and thus be treated differently. I have sarc everywhere so why

wouldn't it be in my muscles. My left upper arm has very large bumps inside the muscle and is sometimes very painful Will your treatment be any different? .S.ken stetson <ostrichlegs_2000 (AT) yahoo (DOT) com> wrote: i finally had my muscle and nerve biopsy astusc two weeks ago monday and got results from pathaology, all were abnormal with moderate disease, it can't state what the actual disease is yet as my neurologist needs to correlate all the info, i had two muslces on my left thigh (my good leg) and the sural nerve on my left ankle. they put me under general anethesia due to the invasiveness of the procedure. so we will see soon what the actual diagnosis is soon. I also have learned that sarcoidosis systemic effects not need to be found in the actual granuloma itself, but as being systemic, the

muscle involved will show throughout that that particular muscle is diseased. hope all are fine, and keep the faith, keep going kentiodaat (AT) aol (DOT) com wrote: Bonnie, The problem with muscle biopsies is that they will hopefully get a spot that has sarcoidosis. I suspect that they try to find the knot or hard spot (like a trigger point with fibromylagia) that he will take the biospy from. Muscles are the second most likely place to find sarc-- the lungs being the first. Do you have pulm sarc? Take care, Tracie NS

Co-owner/moderator Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Hi mary, its been almost 4 years being sick and ofcourse no one knew what was wrong with me except psycho. A friend MD sent me to one of his friends a neurologist, he did a emg with a needle, not shock or on the skin, there is a difference, you need the needle emg that goes right into the muscle, that way the md can move it to each specific muscle to see which one is the diseased muscle. if abnormal on the emg, then the next step through sarcoid history is muscle biopsy of that muscle to determine the actual pathology (name of the disease) some do it as surgery under general anesthesia(best) and some locals. they can't just biopsy any muscle where they THINK the disease is, thats a waste and uncomfortable for you. Don't let them tell you, "they think its", thats no good, try to find a neurologist with movement disorder experience that will take you in and work on you real good and ask for a needle emg, and if positive, then a

muscle biopsy if necessary ask for general anesthesia, its better for you if your body can handle it. hope all goes well, let me know how you make out, wish you the best. keep going and don't stop!!! ken Solberg wrote: Ken, Did you have a meeting with the doc and he agreed to have you get a biopsy and then you went to a surgeon? They think I have fibromyalgia and arthritis but I wonder if the pains aren't sarc and thus be treated differently. I have sarc everywhere so why

wouldn't it be in my muscles. My left upper arm has very large bumps inside the muscle and is sometimes very painful Will your treatment be any different? .S.ken stetson <ostrichlegs_2000 (AT) yahoo (DOT) com> wrote: i finally had my muscle and nerve biopsy astusc two weeks ago monday and got results from pathaology, all were abnormal with moderate disease, it can't state what the actual disease is yet as my neurologist needs to correlate all the info, i had two muslces on my left thigh (my good leg) and the sural nerve on my left ankle. they put me under general anethesia due to the invasiveness of the procedure. so we will see soon what the actual diagnosis is soon. I also have learned that sarcoidosis systemic effects not need to be found in the actual granuloma itself, but as being systemic, the

muscle involved will show throughout that that particular muscle is diseased. hope all are fine, and keep the faith, keep going kentiodaat (AT) aol (DOT) com wrote: Bonnie, The problem with muscle biopsies is that they will hopefully get a spot that has sarcoidosis. I suspect that they try to find the knot or hard spot (like a trigger point with fibromylagia) that he will take the biospy from. Muscles are the second most likely place to find sarc-- the lungs being the first. Do you have pulm sarc? Take care, Tracie NS

Co-owner/moderator Check out AOL Money Finance's list of the hottest products and top money wasters of 2007. Looking for last minute shopping deals? Find them fast with Yahoo! Search.