Hi from Marla, this is long

[Guest guest]

Hey ya

all, (was around my sister a couple weeks ago and she’s from Florida the ya all was

catchy!

I’m

sorry I’ve been MIA, I just lost a friend to Melanoma at age 36 with two

young boys, I have been helping her out through the summer and trying to run my

business, family home, etc.. I could go on, and I just about got to

Directorship with MK, then I started to fade, I think I was just slowing

rolling down hill since spring, but didn’t really notice until the other

day my husband made a harmless statement all in teasing, but he said if he knew

I was going to fill the halls up with so much clutter he would of built wider

halls, I looked around and he was right, the house is full of junk, not like

me, I have someone who cleans, and I always tell her just clean around things, I

will get to them later, then my friend, this has been a difficult week with her

funeral being on Thursday and just leading up to it, I’ve dropped back a

couple levels on my MK path too, then woke up one day and the pain was

terrible, I realized I have been just getting by, not so much fatigue as just

plain no energy, I would look at something and just hope it would go away! It didn’t

and neither did my Sarc, I think you all know my metho, and plaquanil were all

increased a few months ago when I found out that I am losing the use of my left

side especially leg, but still I thought I could just keep on going, ha, it

gets you in the end. The reason I have the energy to write this, as I read

many posts but say I will come back later and respond, and just don’t. Well

I am in the middle of a 3 day IV steroid boost, so I feel much better, even

yesterday got things done I had put off for way too long. I need to repeat

neruopsych testing too, and a consideration of changing medications, of course

the Insurance Company denied Remicade for me! So push on we do, at least for a

few days here I have some energy, you know I am so tired at the end of the day

that I am sleeping despite the drugs, thank goodness.

Know that

I read and pray for all of you, you are all special in my heart and pray for a

cure some day, but for now we have this wonderful group of people, blessings

from heaven, thank you for listening! Marla

" Faith

sees the invisible, believes the incredible and receives the impossible "

[Guest guest]

Hey ya

all, (was around my sister a couple weeks ago and she’s from Florida the ya all was

catchy!

I’m

sorry I’ve been MIA, I just lost a friend to Melanoma at age 36 with two

young boys, I have been helping her out through the summer and trying to run my

business, family home, etc.. I could go on, and I just about got to

Directorship with MK, then I started to fade, I think I was just slowing

rolling down hill since spring, but didn’t really notice until the other

day my husband made a harmless statement all in teasing, but he said if he knew

I was going to fill the halls up with so much clutter he would of built wider

halls, I looked around and he was right, the house is full of junk, not like

me, I have someone who cleans, and I always tell her just clean around things, I

will get to them later, then my friend, this has been a difficult week with her

funeral being on Thursday and just leading up to it, I’ve dropped back a

couple levels on my MK path too, then woke up one day and the pain was

terrible, I realized I have been just getting by, not so much fatigue as just

plain no energy, I would look at something and just hope it would go away! It didn’t

and neither did my Sarc, I think you all know my metho, and plaquanil were all

increased a few months ago when I found out that I am losing the use of my left

side especially leg, but still I thought I could just keep on going, ha, it

gets you in the end. The reason I have the energy to write this, as I read

many posts but say I will come back later and respond, and just don’t. Well

I am in the middle of a 3 day IV steroid boost, so I feel much better, even

yesterday got things done I had put off for way too long. I need to repeat

neruopsych testing too, and a consideration of changing medications, of course

the Insurance Company denied Remicade for me! So push on we do, at least for a

few days here I have some energy, you know I am so tired at the end of the day

that I am sleeping despite the drugs, thank goodness.

Know that

I read and pray for all of you, you are all special in my heart and pray for a

cure some day, but for now we have this wonderful group of people, blessings

from heaven, thank you for listening! Marla

" Faith

sees the invisible, believes the incredible and receives the impossible "