RE: Pulmonary hypertension

[Guest guest]

Becky, I was told when I first got sick that I had PH..but no one has paid attention to it since..Go figure..

Pulmonary hypertension

Hi All,I talked with my cardiologist today who confirmed that I do have pulmonary hypertension. My echo (April) that I was told was "OK" by his nurse was not ok at all. My RVSP (right ventricle systolic pressure) is 45 which is not a good thing. Had I not requested my echo report to take with me to my upcoming s Hopkins visit I would never had known about this. I had taken it to my pulmo who saw the high number and asked what I had been told. Right now I am in a state of shock about this since I know this is really a BAD thing with sarcoidosis. Anyone else with PH? I hope not but if you do have it please let me know what you're doing to help.Blessings,Becky

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.25/1018 - Release Date: 9/19/2007 3:59 PM

[Guest guest]

Becky, I was told when I first got sick that I had PH..but no one has paid attention to it since..Go figure..

Pulmonary hypertension

Hi All,I talked with my cardiologist today who confirmed that I do have pulmonary hypertension. My echo (April) that I was told was "OK" by his nurse was not ok at all. My RVSP (right ventricle systolic pressure) is 45 which is not a good thing. Had I not requested my echo report to take with me to my upcoming s Hopkins visit I would never had known about this. I had taken it to my pulmo who saw the high number and asked what I had been told. Right now I am in a state of shock about this since I know this is really a BAD thing with sarcoidosis. Anyone else with PH? I hope not but if you do have it please let me know what you're doing to help.Blessings,Becky

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.487 / Virus Database: 269.13.25/1018 - Release Date: 9/19/2007 3:59 PM

[Guest guest]

My problem is that my PH is not in the early stages...

Becky, I am going to have to do some more research into this-- and see what the options are. I know that in severe cases they will consider heart/lung transplants. Personally, I don't want to go there- (mine would be lung transplant) but they actually have greater success doing both heart/lung at the same time. I know when I was in pulmonary rehab, we had a couple of men both get new lungs. One of the guys is doing great, and the other (older) one didn't make it.

They can do excellent things now, so it is an idea worth looking into if you get to that point.

Still more for us to learn...

Hugs,

TracieSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Becky, I just got back online this afternoon. I guess you have been to the doctor's about your heart. I hope the news was encouraging.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 Discover the new Windows Vista Learn more!

[Guest guest]

Becky, I just got back online this afternoon. I guess you have been to the doctor's about your heart. I hope the news was encouraging.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 Discover the new Windows Vista Learn more!