Re: Help new to P/M's

[Guest guest]

These are great questions. We are about to order the same brace and I would like

to stay posted with whatever answers you receive. My son , who is 11

weeks old, has been in a DBB and then a modified brace that have caused him much

pain so we are moving to the bar.

Thanks,

and (6-11-05 BL CF 24/7)

bearalways03 wrote:

Hi everyone, I took Noah's cast off today it was his last one and now

its time for the Ponseti/ bar. I can get them on ok but he gets

so mad and moves and kicks his legs sepratly and makes the heal come up

so I can't even see it through the holes. I tightened the middle strap

then looked at his foot like a half hour later and it was indented and

a little redish purple. So I loosened it one notch and he gets his heal

up again. Any suggestions? another thing does it mater if the heal

moves in the right (non clubfoot) one? Is the foot suppost to look over

corrected? His foot still points way out as if he still had the cast

on. Did everyone have a problem with their kids when it came time to

sleep? And the most important question, how long does it take untill he

is use to these shoes? thanks so much I dont know what I would do

without you guys

& Noah 03/20/05 LCF P/M's 23/7

[Guest guest]

These are great questions. We are about to order the same brace and I would like

to stay posted with whatever answers you receive. My son , who is 11

weeks old, has been in a DBB and then a modified brace that have caused him much

pain so we are moving to the bar.

Thanks,

and (6-11-05 BL CF 24/7)

bearalways03 wrote:

Hi everyone, I took Noah's cast off today it was his last one and now

its time for the Ponseti/ bar. I can get them on ok but he gets

so mad and moves and kicks his legs sepratly and makes the heal come up

so I can't even see it through the holes. I tightened the middle strap

then looked at his foot like a half hour later and it was indented and

a little redish purple. So I loosened it one notch and he gets his heal

up again. Any suggestions? another thing does it mater if the heal

moves in the right (non clubfoot) one? Is the foot suppost to look over

corrected? His foot still points way out as if he still had the cast

on. Did everyone have a problem with their kids when it came time to

sleep? And the most important question, how long does it take untill he

is use to these shoes? thanks so much I dont know what I would do

without you guys

& Noah 03/20/05 LCF P/M's 23/7

[Guest guest]

Hi, ,

I'll try to answer your questions from my limited perspective

(Lily's been in the P/M's since June) and hopefully others

will chime in and correct me if I mispeak.

It's absolutely imperative that Noah's heel not slip

like you are describing. I really have to tighten

the middle strap down to keep it from slipping and

yes, the top of her foot is somewhat reddish purple

when the shoes come off. That reddish purple color

does go away (although it takes longer than the

half hour that many folks/docs allude to). I think

the important point is that she has not developed a

sore underneath that middle strap, so I think tightening

it to the degree I'm doing is ok. I do apply witch

hazel (in the form of generic Tucks pads) to her

foot once a day. Witch hazel or alcohol is good in

toughening up their sensitive post cast skin and may

help with the reddish/purple mark.

As far as the unaffected foot goes, I think you will

also want to try and keep it from slipping because the

friction caused by the slipping might lead to pressure

sores or blisters. That said, I do tighten the strap

on Lily's unaffected foot by one less hole than her

clubfoot. Her unaffected foot is a little bigger and

I just cannot get to the next hole (without really

making the top of her foot look horrible). The unaffected

foot does slip by a very small amount, but still stays

way down in the shoe. If it slipped more, I'd definitely

add an " in-between " hole to the strap.

Yes, Noah's foot should look overcorrected (the shoe

on his clubfoot should be set at 70 [or at least 60]

degrees to maintain this overcorrection). When he

begins to have time out of the shoes and is bearing

weight on the foot (esp. while walking), the foot

will regress back to a neutral position (the overcorrection

keeps the regression from resulting in a foot that

turns in beyond neutral).

Lily never had trouble sleeping in the FAB, even when

she had sores in the Markells. It was her parents

(ok, Mom) who lost sleep worrying. She seemed to adjust right

away, but is an easygoing kid overall. I'm sure if

her rather high maintenance big sister had to adjust

to an FAB, it would have been a different story.

From what I've heard other parents say, if the foot

is properly corrected and the shoes fit well, most

kids adjust in a week or two.

Hope this helps. Our love & prayers go out to you.

I think the transition from casts to the FAB was the

most difficult part of Lily's treatment (for her parents!).

You and Noah will adjust soon & things will be

smooth sailing.

Hang in there,

Kim

Lily, 3/28/05, lcf, P/M FAB, 20 hours

> Hi everyone, I took Noah's cast off today it was his last one and

now

> its time for the Ponseti/ bar. I can get them on ok but he

gets

> so mad and moves and kicks his legs sepratly and makes the heal

come up

> so I can't even see it through the holes. I tightened the middle

strap

> then looked at his foot like a half hour later and it was indented

and

> a little redish purple. So I loosened it one notch and he gets his

heal

> up again. Any suggestions? another thing does it mater if the heal

> moves in the right (non clubfoot) one? Is the foot suppost to look

over

> corrected? His foot still points way out as if he still had the

cast

> on. Did everyone have a problem with their kids when it came time

to

> sleep? And the most important question, how long does it take

untill he

> is use to these shoes? thanks so much I dont know what I would do

> without you guys

>

>

> & Noah 03/20/05 LCF P/M's 23/7