Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 I think I would be talking to the docter about increasing your dosage back up so you don't end up on Pred. if the symptoms are coming back, then the dose you are on is not holding it, so call your doctor right away, as with me and many others I know when symptoms come back then can be worse then before, so call today, I will keep positive thoughts for you today, Marla I would like to throw this out to see any comments. I have been off Prednisone since January 1, 2008, and have halved my Immuran dosage per doctor's instructions since the first part of February, 2008. The lesions on my elbow that diagnosed my sarcoidosis in the first place have swelled back up, I am having trouble catching my breath and the stinging, burning pain in my back, which diagnosed the neurosarcoidosis per spinal tap is coming back. I can't believe I am already having these symptoms again. If anyone has any suggestions, comments or diagnosis, I would appreciate it. I am so afraid of having to go back on Prednisone. Cornflowerbluebarb of Arkansas -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 I think I would be talking to the docter about increasing your dosage back up so you don't end up on Pred. if the symptoms are coming back, then the dose you are on is not holding it, so call your doctor right away, as with me and many others I know when symptoms come back then can be worse then before, so call today, I will keep positive thoughts for you today, Marla I would like to throw this out to see any comments. I have been off Prednisone since January 1, 2008, and have halved my Immuran dosage per doctor's instructions since the first part of February, 2008. The lesions on my elbow that diagnosed my sarcoidosis in the first place have swelled back up, I am having trouble catching my breath and the stinging, burning pain in my back, which diagnosed the neurosarcoidosis per spinal tap is coming back. I can't believe I am already having these symptoms again. If anyone has any suggestions, comments or diagnosis, I would appreciate it. I am so afraid of having to go back on Prednisone. Cornflowerbluebarb of Arkansas -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Honey, I'm with Marla...CALL THE MAN!!! Is it coming back? I would like to throw this out to see any comments. I have been off Prednisone since January 1, 2008, and have halved my Immuran dosage per doctor's instructions since the first part of February, 2008. The lesions on my elbow that diagnosed my sarcoidosis in the first place have swelled back up, I am having trouble catching my breath and the stinging, burning pain in my back, which diagnosed the neurosarcoidosis per spinal tap is coming back. I can't believe I am already having these symptoms again. If anyone has any suggestions, comments or diagnosis, I would appreciate it. I am so afraid of having to go back on Prednisone. Cornflowerbluebarb of Arkansas No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.5/1314 - Release Date: 3/5/2008 6:38 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Honey, I'm with Marla...CALL THE MAN!!! Is it coming back? I would like to throw this out to see any comments. I have been off Prednisone since January 1, 2008, and have halved my Immuran dosage per doctor's instructions since the first part of February, 2008. The lesions on my elbow that diagnosed my sarcoidosis in the first place have swelled back up, I am having trouble catching my breath and the stinging, burning pain in my back, which diagnosed the neurosarcoidosis per spinal tap is coming back. I can't believe I am already having these symptoms again. If anyone has any suggestions, comments or diagnosis, I would appreciate it. I am so afraid of having to go back on Prednisone. Cornflowerbluebarb of Arkansas No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.5/1314 - Release Date: 3/5/2008 6:38 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 I'm with Marla too. Sounds like a flare-up. You may need to go on Prednisone for a few days then a quick taper-off. If the Prednisone works then a flare-up is confirmed. Hopefully you will only need to be on the steroids for a week or so, then a quick taper. I've heard quick tapers normally work, although I haven't been able to. Good luck. Don't wait too long to see the doc. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 I'm with Marla too. Sounds like a flare-up. You may need to go on Prednisone for a few days then a quick taper-off. If the Prednisone works then a flare-up is confirmed. Hopefully you will only need to be on the steroids for a week or so, then a quick taper. I've heard quick tapers normally work, although I haven't been able to. Good luck. Don't wait too long to see the doc. - Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.