Re: Graces update w/Dr Frick!

[Guest guest]

-

Congratulations!!!!!!!!! What a great post! I'm glad Grace is

doing so well. Happy belated 4th birthday, Grace!

Jen, I'm sorry you're having more issues with your feet. Doesn't

your brother have cf too? How is he holding up?

I spoke with Dr. P briefly about those braces that you mentioned

(for night-time wear) and he mentioned that there was a slight

concern in having children wear them because some doctors thought

that they put pressure on the growth plates and could cause issues

with stunting leg growth- but I'm guessing that it's just a theory

and that there probably isn't any studies done on it. He just

mentioned this- but he didn't say one way or the other if he himself

had experience with this with his own patients (I'm guessing not).

Maybe you can talk to Dr. Frick about it.

I'm so happy to read your post! I hope you're enjoying your new

home.

Best wishes-

&

> Grace had a checkup w/Dr Frick Aug. 16th and everything was

Great.

> It was such a relief to hear!! She is running and doing things she

> couldn't do before because she was in pain........and stiff etc.

> Since surgery and being in the s her dorsiflexion has

> improved not only on the foot that had the release done but also

on

> her left foot. The rockerbottom seems to be improving although I

> can still feel a slight bump area. As long as she is not

> complaining of the pain like before I can deal with it! She just

> turned 4 Aug 23rd and there was no mention of taking her out of

the

> s........she doesn't complain or ever ask. She doesn't go

> back for 8 months and Dr Frick will do Xrays then in hopes that

her

> bones are moved. He seemed excited and took alot of pictures of

her

> feet to send Dr Ponseti.

> For anyone that is wondering Grace had a very complicated case

that

> could have been aggravated by mild cerebral palsy issues. I still

> strongly support the Ponseti method and did everything in my power

> to avoid surgery! Just wanted to clear that up because I had

gotten

> a few emails back when I was trying to decide what to do.

> I am 28 now and live in pain that has gotten much worse within the

> last 6 months from clubfoot surgery. I worry so much that Grace

> will go through the same thing.

> I do have a question too if anyone has read this far. Has anyone

> ever looked into special braces for bedtime that are not attatched

> to a bar but ONLY dorsiflex the feet?? They make them for adults

> too that have achilles problems. I looked at them a few years ago

> for myself but remember they were expensive and I didn't feel like

> dealing with insur. at the time. I am considering something for

> Grace as she gets older but wonder if they could possibly do

damage.

> Anyone else ever seen them or know anything about them? I will

look

> them up later and post the link. Boothe

> By the way we are officially OUT OF THE ARMY!!!!! We moved 15

mins

> from Raleigh Nc if anyone is near let me know!

[Guest guest]

> > Grace had a checkup w/Dr Frick Aug. 16th and everything was

> Great.

> > It was such a relief to hear!! She is running and doing things

she

> > couldn't do before because she was in pain........and stiff

etc.

> > Since surgery and being in the s her dorsiflexion has

> > improved not only on the foot that had the release done but also

> on

> > her left foot. The rockerbottom seems to be improving although

I

> > can still feel a slight bump area. As long as she is not

> > complaining of the pain like before I can deal with it! She

just

> > turned 4 Aug 23rd and there was no mention of taking her out of

> the

> > s........she doesn't complain or ever ask. She doesn't

go

> > back for 8 months and Dr Frick will do Xrays then in hopes that

> her

> > bones are moved. He seemed excited and took alot of pictures of

> her

> > feet to send Dr Ponseti.

> > For anyone that is wondering Grace had a very complicated case

> that

> > could have been aggravated by mild cerebral palsy issues. I

still

> > strongly support the Ponseti method and did everything in my

power

> > to avoid surgery! Just wanted to clear that up because I had

> gotten

> > a few emails back when I was trying to decide what to do.

> > I am 28 now and live in pain that has gotten much worse within

the

> > last 6 months from clubfoot surgery. I worry so much that Grace

> > will go through the same thing.

> > I do have a question too if anyone has read this far. Has

anyone

> > ever looked into special braces for bedtime that are not

attatched

> > to a bar but ONLY dorsiflex the feet?? They make them for

adults

> > too that have achilles problems. I looked at them a few years

ago

> > for myself but remember they were expensive and I didn't feel

like

> > dealing with insur. at the time. I am considering something for

> > Grace as she gets older but wonder if they could possibly do

> damage.

> > Anyone else ever seen them or know anything about them? I will

> look

> > them up later and post the link. Boothe

> > By the way we are officially OUT OF THE ARMY!!!!! We moved 15

> mins

> > from Raleigh Nc if anyone is near let me know!

[Guest guest]

Hi Jen

This is , Pablo´s mum

Pablo is 3, and unfortunately , we also had to cop with a mild case

of Artrhogryposis, lukily only afecting him his legs..

I also tried to avoid surgery, even we flew from Spain to visit Dr.

Ponseti 1 month before the surgery trying our last chance to avoid

it..when he saw Pablo´s feet his answer was: He should have surgery,

you are in good hands ( he is treated by one of the 2 certificated

doctors in our country) He had a posteomedial release last march.

Because Pablo was older after the surgery I contact to Dr. Dobbs and

ordered his bar, to make him easier the nights...

During the day we use a DAFO here is the web http://www.dafo.com/

I have notice that it holds pretty much better his feet than the

normal AFO.

His orthotist mentioned that if Pablo did not tolerate the bar he

could sleep with it aswell...

I don´t know for other children but his lower legs has not to much

muscle so he won´t lose them by using this...

Hope this help

> Grace had a checkup w/Dr Frick Aug. 16th and everything was Great.

> It was such a relief to hear!! She is running and doing things she

> couldn't do before because she was in pain........and stiff etc.

> Since surgery and being in the s her dorsiflexion has

> improved not only on the foot that had the release done but also on

> her left foot. The rockerbottom seems to be improving although I

> can still feel a slight bump area. As long as she is not

> complaining of the pain like before I can deal with it! She just

> turned 4 Aug 23rd and there was no mention of taking her out of the

> s........she doesn't complain or ever ask. She doesn't go

> back for 8 months and Dr Frick will do Xrays then in hopes that her

> bones are moved. He seemed excited and took alot of pictures of

her

> feet to send Dr Ponseti.

> For anyone that is wondering Grace had a very complicated case that

> could have been aggravated by mild cerebral palsy issues. I still

> strongly support the Ponseti method and did everything in my power

> to avoid surgery! Just wanted to clear that up because I had

gotten

> a few emails back when I was trying to decide what to do.

> I am 28 now and live in pain that has gotten much worse within the

> last 6 months from clubfoot surgery. I worry so much that Grace

> will go through the same thing.

> I do have a question too if anyone has read this far. Has anyone

> ever looked into special braces for bedtime that are not attatched

> to a bar but ONLY dorsiflex the feet?? They make them for adults

> too that have achilles problems. I looked at them a few years ago

> for myself but remember they were expensive and I didn't feel like

> dealing with insur. at the time. I am considering something for

> Grace as she gets older but wonder if they could possibly do

damage.

> Anyone else ever seen them or know anything about them? I will

look

> them up later and post the link. Boothe

> By the way we are officially OUT OF THE ARMY!!!!! We moved 15 mins

> from Raleigh Nc if anyone is near let me know!

[Guest guest]

,

First of all I'm so glad to hear that Grace is doing so much better.

I'm so glad!

Second, I don't know much about those braces but have been looking at

one for myself, the ones I saw were in the $50-85 range. They stretch

the achilles and the plantar tendon I think. I'll let you know if I

end up getting one.

Thanks,

> Grace had a checkup w/Dr Frick Aug. 16th and everything was Great.

> It was such a relief to hear!! She is running and doing things she

> couldn't do before because she was in pain........and stiff etc.

> Since surgery and being in the s her dorsiflexion has

> improved not only on the foot that had the release done but also on

> her left foot. The rockerbottom seems to be improving although I

> can still feel a slight bump area. As long as she is not

> complaining of the pain like before I can deal with it! She just

> turned 4 Aug 23rd and there was no mention of taking her out of the

> s........she doesn't complain or ever ask. She doesn't go

> back for 8 months and Dr Frick will do Xrays then in hopes that her

> bones are moved. He seemed excited and took alot of pictures of her

> feet to send Dr Ponseti.

> For anyone that is wondering Grace had a very complicated case that

> could have been aggravated by mild cerebral palsy issues. I still

> strongly support the Ponseti method and did everything in my power

> to avoid surgery! Just wanted to clear that up because I had gotten

> a few emails back when I was trying to decide what to do.

> I am 28 now and live in pain that has gotten much worse within the

> last 6 months from clubfoot surgery. I worry so much that Grace

> will go through the same thing.

> I do have a question too if anyone has read this far. Has anyone

> ever looked into special braces for bedtime that are not attatched

> to a bar but ONLY dorsiflex the feet?? They make them for adults

> too that have achilles problems. I looked at them a few years ago

> for myself but remember they were expensive and I didn't feel like

> dealing with insur. at the time. I am considering something for

> Grace as she gets older but wonder if they could possibly do damage.

> Anyone else ever seen them or know anything about them? I will look

> them up later and post the link. Boothe

> By the way we are officially OUT OF THE ARMY!!!!! We moved 15 mins

> from Raleigh Nc if anyone is near let me know!

[Guest guest]

,

First of all I'm so glad to hear that Grace is doing so much better.

I'm so glad!

Second, I don't know much about those braces but have been looking at

one for myself, the ones I saw were in the $50-85 range. They stretch

the achilles and the plantar tendon I think. I'll let you know if I

end up getting one.

Thanks,

> Grace had a checkup w/Dr Frick Aug. 16th and everything was Great.

> It was such a relief to hear!! She is running and doing things she

> couldn't do before because she was in pain........and stiff etc.

> Since surgery and being in the s her dorsiflexion has

> improved not only on the foot that had the release done but also on

> her left foot. The rockerbottom seems to be improving although I

> can still feel a slight bump area. As long as she is not

> complaining of the pain like before I can deal with it! She just

> turned 4 Aug 23rd and there was no mention of taking her out of the

> s........she doesn't complain or ever ask. She doesn't go

> back for 8 months and Dr Frick will do Xrays then in hopes that her

> bones are moved. He seemed excited and took alot of pictures of her

> feet to send Dr Ponseti.

> For anyone that is wondering Grace had a very complicated case that

> could have been aggravated by mild cerebral palsy issues. I still

> strongly support the Ponseti method and did everything in my power

> to avoid surgery! Just wanted to clear that up because I had gotten

> a few emails back when I was trying to decide what to do.

> I am 28 now and live in pain that has gotten much worse within the

> last 6 months from clubfoot surgery. I worry so much that Grace

> will go through the same thing.

> I do have a question too if anyone has read this far. Has anyone

> ever looked into special braces for bedtime that are not attatched

> to a bar but ONLY dorsiflex the feet?? They make them for adults

> too that have achilles problems. I looked at them a few years ago

> for myself but remember they were expensive and I didn't feel like

> dealing with insur. at the time. I am considering something for

> Grace as she gets older but wonder if they could possibly do damage.

> Anyone else ever seen them or know anything about them? I will look

> them up later and post the link. Boothe

> By the way we are officially OUT OF THE ARMY!!!!! We moved 15 mins

> from Raleigh Nc if anyone is near let me know!

[Guest guest]

Hey ,

Happy Birthday to Grace! I'm so glad she is doing well and the move

went smoothly!

Michele

[Guest guest]

Hey ,

Happy Birthday to Grace! I'm so glad she is doing well and the move

went smoothly!

Michele