Re: tendon release surgery? Im SCARED!

[Guest guest]

Unless I totally misunderstand your post, a 1 month old baby should need nothing

but a ten minute stop in the dr.'s office to have her tenontomy.... No IV's, no

starvation.....it's a simple thing. My husband held our son while the dr. did

it in Iowa.

s.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

At Dr. P's clinic in Iowa, these young babies are given the tenotomy in his

little " procedure " room, just a room where they do this thing. Like I said, my

husband went in with our baby, I stayed in the hall with our older child. A

numbing agent ws rubbed on his heel area, then a small knife dh described as

being about teh size of a hyperdermic needle was inserted through the skin. He

said the doc sort of gave the knife a quick little twist and he could see the

tendon " snap " , suddenly the foot could move as the tendon had been released.

The feet were carefull casted in the proper 70 degree / 10 degree position at

that point, and we were sent home. I don't know your situation but I just don't

see knocking a baby out for all this as necessary until they're much older and

then it's a different situation.

s.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

Christee,

My daughter was 7 weeks when she had her tenotomy. I'm not going to

lie, it was probably the most stressful time we ever had with her

whole treatment. But in the end, we realized it was a LOT easier

than we expected. It was mostly just in our heads! She too couldn't

nurse for 4 hrs. before, so I set my alarm (we had to be at the

hospital at 11:00) to make sure I woke up and nursed her nice and

long just before the cut-off. Then we gave her a big bottle of water

right before the 2 hour cut-off. That was her very first bottle

ever, and she took it fine (from my husband). (I did add just a

*touch* of sugar to it, that may have helped) The surgery is VERY

short--we went down to get a cup of coffee and missed the doctor

coming out to say it was all done. Maybe 20,25 mins total. The

hardest part is the waiting. Ava was actually surprisingly calm

about the not eating part. I would suggest maybe seeing if they can

make your surgury a little earlier. At our hospital, they did the

littlest ones earliest, and I think that helped. She did have an IV,

which they do after they're asleep at our hospital, and she was put

to sleep. Both of these things are really scary, but believe me, not

as scary as you think right now. The day will fly by, and at the end

you'll be absolutely amazed when you see how her foot looks. Just

cuddle her lots, and try to stay (relatively) calm, because your

baby can feel your emotions, and will take her cues from you. Try

not to worry too much, and DON'T read all the warnings on all the

forms they make you sign. They'll just make you worry more!! They

HAVE to put everything possible down. Try to relax, it really will

be okay!

<<hugs>>

, mommy of:

Guinevere, on & Ava 8/4/04 RCF ABS FAB 14/7

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or

may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to

sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

[Guest guest]

My daughter, Kelsey, was 12 months old when she had

this surgery but she did far better with it than I

did. They did not insert her IV until she was asleep.

The hardest part for me was handing my baby to these

strangers but she did great. She was pretty upset

when she woke up and we had to ask for more pain

medication for her but the staff in recovery was great

and since she was my child and I knew her signs etc,

they trusted my judgment that she needed more pain

meds. We took her homw afterwards and she slept most

of the day and all night but woke up the next day like

nothing ever happened and didn't even require the

tylenol anymore. They gave us a prescription for

tylenol with codeine but we never had to open the

bottle. In surgery, they also let her take her

pacifier and her special blanket so that she had her

comfort objects there with her.

Like said, I would nurse her like crazy until

your cutoff and then you could give water etc. She

will be OK though. The IV will be put in to prevent

dehydration which is a major concern with infants not

eating. It will go by remarkably fast for everyone.

If they let you nurse her in recovery, that will

probably help a great deal with making her feel better

and to be comforted. If you think she is in pain or

other problems, do not be afraid to speak up. No one

knows your daughter as well as you do so be insistent

that they keep her comfortable.

Jenni

--- Christee wrote:

> My daughter was born with her R foot, Club Foot. She

> is going in mext

> Tuesday for the tendon release (tendomy?). They told

> she may or may not

> have an IV. She could NOT eat breastmilk (or

> formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A

> MONTH OLD! HOW DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said

> the surgery itself

> would take about 20 minutes to 45 minutes. She will

> be put to sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY

> USE SOME SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how

> their child did. How

> many of you had a child that had this done? Did they

> have an IV? Where

> did they put the IV? How do you keep them from

> screaming when they are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

>

>

>

>

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Christee,

Tenny had his tenotomy when he was seven months. They told us no food or

liquid after midnight, we had to be at the hospital at 6:00 and the procedure

was at 7:00. It took longer to do the paperwork and wait for the doctor to be

ready than it took for the tenotomy. I thought I would have a screaming baby,

but he was really very calm.... Until it was over and the nurse tried to give

him a bottle of sugar water. I think that was the worst part. He woke up

scared and disoriented and they tried to give him a bottle (you have to

understand that this child has never taken a bottle, he just won't). That made

him really mad. They got him really worked up before they came and got me.

All in all, the worrying was the worst part. We were done and in the car to

drive home by 10:30. I did spent quite a bit of time in recovery calming him

and getting him to sleep so he would sleep at least part of the drive.

If you have other children, make sure you have a good babysitter with no other

plans; just so you don't have to worry about them or hurry back. And take a big

breath, it will be over before you know it.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

Christee-

First of all, about the tenotomy, if you don't want to concede to

having it done under general anesthesia, many doctors do it under

local anesthesia so there are no feeding restrictions. This is an

option, though you may have to seek out another doctor to do it this

way. Dr. Ponseti oversaw my daughter's tenotomy in the office at

the U of Iowa, she was 5 months old at the time.

Secondly, however, I do want to ask about the doctor that your

daughter is seeing now. If I recall correctly from your post on the

clubfoot board, you're seeing some doctor in Oregon. Are you

confident that they're following the method correctly and that the

foot is indeed corrected and ready for the tenotomy? I don't want

to put any additional anxiety in your heart- but not knowing much

about your doctor, I just want to make sure that you're confident

that she's actually ready for the tenotomy and that the method has

been followed properly thus far. Have you read the parents'

checklist and the Global HELP booklet to see if you find any " red

flags " about what you've been told about her treatment and the

expectations for post-tenotomy bracing?

Too many kids have had the tenotomy under the care of a doctor who

wasn't doing the method right- and then they ended up having to have

more castings and sometimes another tenotomy after switching to

another doctor who knew what they were doing. I hope this isn't the

case for you- but I just wanted to ask since I'm not familiar with

Lilee's case other than what you've posted on the clubfoot board.

Wishing you the best-

& (3-16-00, lcf)

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or

may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to

sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

[Guest guest]

, or whomever can give me advice..

Please call me or I can call you. Its easier for me to talk than email...lol

My # is or give me your # and I can call you. Thanks

jennyandkelly wrote:

Christee-

First of all, about the tenotomy, if you don't want to concede to

having it done under general anesthesia, many doctors do it under

local anesthesia so there are no feeding restrictions. This is an

option, though you may have to seek out another doctor to do it this

way. Dr. Ponseti oversaw my daughter's tenotomy in the office at

the U of Iowa, she was 5 months old at the time.

Secondly, however, I do want to ask about the doctor that your

daughter is seeing now. If I recall correctly from your post on the

clubfoot board, you're seeing some doctor in Oregon. Are you

confident that they're following the method correctly and that the

foot is indeed corrected and ready for the tenotomy? I don't want

to put any additional anxiety in your heart- but not knowing much

about your doctor, I just want to make sure that you're confident

that she's actually ready for the tenotomy and that the method has

been followed properly thus far. Have you read the parents'

checklist and the Global HELP booklet to see if you find any " red

flags " about what you've been told about her treatment and the

expectations for post-tenotomy bracing?

Too many kids have had the tenotomy under the care of a doctor who

wasn't doing the method right- and then they ended up having to have

more castings and sometimes another tenotomy after switching to

another doctor who knew what they were doing. I hope this isn't the

case for you- but I just wanted to ask since I'm not familiar with

Lilee's case other than what you've posted on the clubfoot board.

Wishing you the best-

& (3-16-00, lcf)

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or

may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to

sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

[Guest guest]

No misunderstandings, she is only 1 month old!

number23 wrote:Unless I totally misunderstand your post,

a 1 month old baby should need nothing but a ten minute stop in the dr.'s office

to have her tenontomy.... No IV's, no starvation.....it's a simple thing. My

husband held our son while the dr. did it in Iowa.

s.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

Is she being treated with the Ponseti Method even??? How many casts has she

had?? They can have up to 8 casts before they perform the tenotomy. My son

only had 5 casts but he really should have had another couple of weeks as he

didn't tolerate the shoes so well until he had to have another week of casts

then the shoes were ok.... where are you being treated? They really shouldn

t be left without casts at this stage of the treatment. Is she having full

length leg casts?? My son never kicked his casts off, I don't think he could

have. Is the leg bent when in casts??

Rach, Steve & Connor.

-- Re: tendon release surgery? Im SCARED!

No misunderstandings, she is only 1 month old!

number23 wrote:Unless I totally misunderstand your

post, a 1 month old baby should need nothing but a ten minute stop in the dr

's office to have her tenontomy.... No IV's, no starvation.....it's a

simple thing. My husband held our son while the dr. did it in Iowa.

s.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

Our experience was very similar. We were in the same room that my

son was casted in. It was just like any other visit, except they put

the numbing agent on, left us with him for a bit for it to take

effect, came back and within minutes it was over. The longest part

of the entire process was waiting for the numbing stuff to take

effect, and then maybe putting on the casts.

And as I mentioned in my post on the other board, Aleksander didn't

utter one peep during the tenotomy, and only cried when they put the

casts back on. He's 9 months now, is crawling and pulling himself

up, and has beautiful, perfect little feet.

If you can, ask about using the topical numbing stuff instead of

having your child put under. Especially at such a young age? Why do

that when it isn't medically necessary?

Unless I totally misunderstand your

post, a 1 month old baby should need nothing but a ten minute stop in

the dr.'s office to have her tenontomy.... No IV's, no

starvation.....it's a simple thing. My husband held our son while

the dr. did it in Iowa.

> s.

>

> tendon release surgery? Im SCARED!

>

>

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or may

not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to sleep

by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child did.

How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

>

>

>

>

>

>

>

[Guest guest]

Christee-

Please hold off! If your daughter is only a month that means she has had only 3

or 4 casts? It does not sound like enough. Go with your gut. Call Dr. Ponesti

about this Dr. and their methods.

My son is 14 months. He was casted at 3 days old. He had 5 casts beore the

tenotamy which his Dr. felt was a quick progression but was on track. We were

told not to feed him before as to avoid him spitting up if he cried. They are

woried about them choking. However, we were given the first appointment of the

day, so he did not have to wait. We were told no liquids four hours before.

The procedure was done in a casting room. He was numbed with a shot, we were

then asked to stand outside of the room. There were two nurses tending to him

and holding him while the procedure was done by Dr. King and his assistant. It

took less than 15 minutes when we were called back in (only right clubfoot). He

then had a full-leg thick cast for almost three weeks. His was then put in the

DBB shoes, 23 hours a day. He started pulling himself up to a stand at 9 months

and was put in the shoes only at night. He began walking 1 week after his first

birthday. His foot looks great and he's starting to run in little spirts.

Please contact someone to help you with this, i.e. Dr. Ponseti or his assistant

Joyce. You can always reschedule if you decide to go with this Dr. but it

doesn't sound right to me or anyone elses replies I have read.

Good Luck, we will be thinking of you.

Stacie

Christee wrote:

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

Don't despair - this can be done by local, not general aenesthetic (so

no need for no eating or drinking) - our boy Henry had his done by a

local - admittedly the surgeon was reluctant - but it all went just

fine. Some surgeons hate operating on a crying baby, which is why they

prefer the general. If your surgeon won't do it, then find one who

will - I thought Ponseti did his by local..

Good luck - Pete

> My daughter was born with her R foot, Club Foot. She is going in mext

> Tuesday for the tendon release (tendomy?). They told she may or may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

> would take about 20 minutes to 45 minutes. She will be put to sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child did. How

> many of you had a child that had this done? Did they have an IV? Where

> did they put the IV? How do you keep them from screaming when they are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

>

>

>

>

>

>

>

>

[Guest guest]

PS Henry had two tenotomies - just local, not general..

> Christee,

> My daughter was 7 weeks when she had her tenotomy. I'm not going to

> lie, it was probably the most stressful time we ever had with her

> whole treatment. But in the end, we realized it was a LOT easier

> than we expected. It was mostly just in our heads! She too couldn't

> nurse for 4 hrs. before, so I set my alarm (we had to be at the

> hospital at 11:00) to make sure I woke up and nursed her nice and

> long just before the cut-off. Then we gave her a big bottle of water

> right before the 2 hour cut-off. That was her very first bottle

> ever, and she took it fine (from my husband). (I did add just a

> *touch* of sugar to it, that may have helped) The surgery is VERY

> short--we went down to get a cup of coffee and missed the doctor

> coming out to say it was all done. Maybe 20,25 mins total. The

> hardest part is the waiting. Ava was actually surprisingly calm

> about the not eating part. I would suggest maybe seeing if they can

> make your surgury a little earlier. At our hospital, they did the

> littlest ones earliest, and I think that helped. She did have an IV,

> which they do after they're asleep at our hospital, and she was put

> to sleep. Both of these things are really scary, but believe me, not

> as scary as you think right now. The day will fly by, and at the end

> you'll be absolutely amazed when you see how her foot looks. Just

> cuddle her lots, and try to stay (relatively) calm, because your

> baby can feel your emotions, and will take her cues from you. Try

> not to worry too much, and DON'T read all the warnings on all the

> forms they make you sign. They'll just make you worry more!! They

> HAVE to put everything possible down. Try to relax, it really will

> be okay!

> <<hugs>>

> , mommy of:

> Guinevere, on & Ava 8/4/04 RCF ABS FAB 14/7

>

>

>> My daughter was born with her R foot, Club Foot. She is going in

> mext

>> Tuesday for the tendon release (tendomy?). They told she may or

> may not

>> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

>> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

> DO

>> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

> itself

>> would take about 20 minutes to 45 minutes. She will be put to

> sleep by

>> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

> SERIOUS

>> ADVICE, SUPPORT, and others peoples stories of how their child

> did. How

>> many of you had a child that had this done? Did they have an IV?

> Where

>> did they put the IV? How do you keep them from screaming when they

> are

>> hungry and you cant feed them? How long did it take?

>> PLEASE, any advise is wonderful! Thanks

>> Christee

>> Mother of Lilee - 1 month old

>> R Club Foot / L Metatarsus Aductus

>

>

>

>

>

>

[Guest guest]

For what it's worth, we had the tenotomy done on dd when she was 8 weeks old and

it was done with a local anesthetic. They used a numbing cream on the area and

we gave tylenol. She tolerated it about the same as casting.

Marcia

Re: Re: tendon release surgery? Im SCARED!

, or whomever can give me advice..

Please call me or I can call you. Its easier for me to talk than email...lol

My # is or give me your # and I can call you. Thanks

jennyandkelly wrote:

Christee-

First of all, about the tenotomy, if you don't want to concede to

having it done under general anesthesia, many doctors do it under

local anesthesia so there are no feeding restrictions. This is an

option, though you may have to seek out another doctor to do it this

way. Dr. Ponseti oversaw my daughter's tenotomy in the office at

the U of Iowa, she was 5 months old at the time.

Secondly, however, I do want to ask about the doctor that your

daughter is seeing now. If I recall correctly from your post on the

clubfoot board, you're seeing some doctor in Oregon. Are you

confident that they're following the method correctly and that the

foot is indeed corrected and ready for the tenotomy? I don't want

to put any additional anxiety in your heart- but not knowing much

about your doctor, I just want to make sure that you're confident

that she's actually ready for the tenotomy and that the method has

been followed properly thus far. Have you read the parents'

checklist and the Global HELP booklet to see if you find any " red

flags " about what you've been told about her treatment and the

expectations for post-tenotomy bracing?

Too many kids have had the tenotomy under the care of a doctor who

wasn't doing the method right- and then they ended up having to have

more castings and sometimes another tenotomy after switching to

another doctor who knew what they were doing. I hope this isn't the

case for you- but I just wanted to ask since I'm not familiar with

Lilee's case other than what you've posted on the clubfoot board.

Wishing you the best-

& (3-16-00, lcf)

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or

may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to

sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

[Guest guest]

Dr. Dobbs does most of his patients tenotomies under general

anesthesia because he works at Children's Hospital. I think it is a

policy of the hospital that pretty much any procedure be done this

way; the philosophy is that part of their reputation is about

providing superior service and no pain for children. It was a little

scary when I let myself think about my baby (6 weeks old) being put to

sleep w/ Anesthesia. But that's what these people do - it's their

specialty, Pediatric Anesthesiologists have LOTS of specialized

training so they know how much anesthesia to give to a baby and when

to stop giving them anesthesia so they wake up at just the right time

and feel as little pain as possible (preferrably none). Sammy was a

real champ though, he did not complain about the not eating thing --

he was really just paying attention to what was going on around him,

and the whole thing was over so quickly, maybe 25 minutes from the

time they took him to the time they came to get me. They let me nurse

him in recovery and then he fell asleep. He dozed off and on for

about an hour and nursed again and they sent us home. It was really

much more of a big deal in my own mind before hand than what it turned

out to be. Hope this helps!

Thanks,

Unless I totally misunderstand your

post, a 1 month old baby should need nothing but a ten minute stop in

the dr.'s office to have her tenontomy.... No IV's, no

starvation.....it's a simple thing. My husband held our son while the

dr. did it in Iowa.

> s.

>

> tendon release surgery? Im SCARED!

>

>

> My daughter was born with her R foot, Club Foot. She is going in mext

> Tuesday for the tendon release (tendomy?). They told she may or may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

> would take about 20 minutes to 45 minutes. She will be put to sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child did. How

> many of you had a child that had this done? Did they have an IV? Where

> did they put the IV? How do you keep them from screaming when they are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

>

>

>

>

>

>

>

[Guest guest]

Christee, As somebody else mentioned, ARE YOU ABSOLUTELY POSITIVE

YOUR DOC IS FOLLOWING THE PONSETI METHOD EXACTLY? Most children

have several castings before the tenotomy and it sounds like this is

not the case with your daughter. If it's too early for the

tenotomy, you'll be putting her through the ordeal needlessly and

may have to do it again later! If I were you, I would call Dr.

Ponseti directly. He will be able to tell you if your doc is

actually trained in his method. More importantly, he will be able

to give you guidance as to what you should do at this point. If you

can, e-mail him photos of the baby's feet. As for the tenotomy, our

son had his when he was about two months old, after (if I remember

correctly) five sets of casts. The tenotomy was quick, with local

anesthetic and no IV, and no starvation, in Dr. Feldman's office,

and my husband and I were allowed in to help hold the baby down and

try to calm him. Of course he screamed his head off, but mainly I

think because he doesn't like to be restrained in any way. As soon

as it was over he stopped screaming. He had Tylenol for the pain

for a couple of days, but I think it bothered us more than it

bothered him. I know this is very hard for you but you are doing

the right thing; as a parent, you have every right to question any

treatment before your child receives it. If you aren't there for

her, who will be! Stay with the group; we have all been in your

shoes and we are here to help. Best wishes to you, Pamela Karydas

(mom to Dinos, bilateral clubfoot, 5 June 2000, treated by Drs.

Feldman and Ponseti)

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or

may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to

sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

[Guest guest]

Christee, As somebody else mentioned, ARE YOU ABSOLUTELY POSITIVE

YOUR DOC IS FOLLOWING THE PONSETI METHOD EXACTLY? Most children

have several castings before the tenotomy and it sounds like this is

not the case with your daughter. If it's too early for the

tenotomy, you'll be putting her through the ordeal needlessly and

may have to do it again later! If I were you, I would call Dr.

Ponseti directly. He will be able to tell you if your doc is

actually trained in his method. More importantly, he will be able

to give you guidance as to what you should do at this point. If you

can, e-mail him photos of the baby's feet. As for the tenotomy, our

son had his when he was about two months old, after (if I remember

correctly) five sets of casts. The tenotomy was quick, with local

anesthetic and no IV, and no starvation, in Dr. Feldman's office,

and my husband and I were allowed in to help hold the baby down and

try to calm him. Of course he screamed his head off, but mainly I

think because he doesn't like to be restrained in any way. As soon

as it was over he stopped screaming. He had Tylenol for the pain

for a couple of days, but I think it bothered us more than it

bothered him. I know this is very hard for you but you are doing

the right thing; as a parent, you have every right to question any

treatment before your child receives it. If you aren't there for

her, who will be! Stay with the group; we have all been in your

shoes and we are here to help. Best wishes to you, Pamela Karydas

(mom to Dinos, bilateral clubfoot, 5 June 2000, treated by Drs.

Feldman and Ponseti)

> My daughter was born with her R foot, Club Foot. She is going in

mext

> Tuesday for the tendon release (tendomy?). They told she may or

may not

> have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW

DO

> THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> would take about 20 minutes to 45 minutes. She will be put to

sleep by

> gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> many of you had a child that had this done? Did they have an IV?

Where

> did they put the IV? How do you keep them from screaming when they

are

> hungry and you cant feed them? How long did it take?

> PLEASE, any advise is wonderful! Thanks

> Christee

> Mother of Lilee - 1 month old

> R Club Foot / L Metatarsus Aductus

[Guest guest]

We see Dr.Dobbs at the Shriner's Hospital and were told that he does

the tenotomies under local anesthesia. Mollie is three months old

today and is in her second set of casts from Dr.Dobbs (3rd week

though because he wasn't in this week). I'm not looking forward to

it, but I can't wait to get done with all these casts so Mollie can

have a real bath again!!

Marci

Mollie 5-25-05

bcf

Unless I totally misunderstand your

> post, a 1 month old baby should need nothing but a ten minute stop

in

> the dr.'s office to have her tenontomy.... No IV's, no

> starvation.....it's a simple thing. My husband held our son while

the

> dr. did it in Iowa.

> > s.

> >

> > tendon release surgery? Im SCARED!

> >

> >

> > My daughter was born with her R foot, Club Foot. She is going in

mext

> > Tuesday for the tendon release (tendomy?). They told she may or

may not

> > have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> > surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD!

HOW DO

> > THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> > would take about 20 minutes to 45 minutes. She will be put to

sleep by

> > gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> > ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> > many of you had a child that had this done? Did they have an IV?

Where

> > did they put the IV? How do you keep them from screaming when

they are

> > hungry and you cant feed them? How long did it take?

> > PLEASE, any advise is wonderful! Thanks

> > Christee

> > Mother of Lilee - 1 month old

> > R Club Foot / L Metatarsus Aductus

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

We see Dr.Dobbs at the Shriner's Hospital and were told that he does

the tenotomies under local anesthesia. Mollie is three months old

today and is in her second set of casts from Dr.Dobbs (3rd week

though because he wasn't in this week). I'm not looking forward to

it, but I can't wait to get done with all these casts so Mollie can

have a real bath again!!

Marci

Mollie 5-25-05

bcf

Unless I totally misunderstand your

> post, a 1 month old baby should need nothing but a ten minute stop

in

> the dr.'s office to have her tenontomy.... No IV's, no

> starvation.....it's a simple thing. My husband held our son while

the

> dr. did it in Iowa.

> > s.

> >

> > tendon release surgery? Im SCARED!

> >

> >

> > My daughter was born with her R foot, Club Foot. She is going in

mext

> > Tuesday for the tendon release (tendomy?). They told she may or

may not

> > have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> > surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD!

HOW DO

> > THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> > would take about 20 minutes to 45 minutes. She will be put to

sleep by

> > gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> > ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> > many of you had a child that had this done? Did they have an IV?

Where

> > did they put the IV? How do you keep them from screaming when

they are

> > hungry and you cant feed them? How long did it take?

> > PLEASE, any advise is wonderful! Thanks

> > Christee

> > Mother of Lilee - 1 month old

> > R Club Foot / L Metatarsus Aductus

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I was able to get ahold of and actually talk to Dr. Ponseti himself. He was

wonderful! He awnsered al my questions, and you could tell he was really

concerned and cared. )

Lilee has has 6 casts. Her foot is at about a 45degree? angle. Dr. Ponseti said

it shouls be between 60-70 BEFORE the tendontomy. He also said she should be in

a cast, NO breaks! He said her DBB should be set at 70degrees, no if, ands , or

buts. He asked is her heel is flat, and it is. He said this was due to poor

molded casts. He asked if her foot is short, stubby, and fat. It is. He said

this was called an A-typical CF. Anyone else have this? Whats the difference?

Anyhow, Dr. Ponseti said that I need to see a different Dr. and get a second

opinion cause this Dr. was not following the Ponseti method 100%, and it has to

be! He referred me to Dr. Suffman at Shriners in Portland,Or. He also meantioned

another in Seattle, Wash. He said if neither followed the method 100% to come

and see him, himself. I would love for him to just do it, but we dont have the

$$ to do that! Anyhow, I think we are going to cancell the tendonotomy for

now,and wait to get into Shriners and see what they say?

I am concerned of her losing alot/all th eprogress we've already made. Any

suggestions on what I can do to keep it as it is?

Thanks

Christee

Lilee-5weeks-R CF

__________________________________________________

[Guest guest]

I was able to get ahold of and actually talk to Dr. Ponseti himself. He was

wonderful! He awnsered al my questions, and you could tell he was really

concerned and cared. )

Lilee has has 6 casts. Her foot is at about a 45degree? angle. Dr. Ponseti said

it shouls be between 60-70 BEFORE the tendontomy. He also said she should be in

a cast, NO breaks! He said her DBB should be set at 70degrees, no if, ands , or

buts. He asked is her heel is flat, and it is. He said this was due to poor

molded casts. He asked if her foot is short, stubby, and fat. It is. He said

this was called an A-typical CF. Anyone else have this? Whats the difference?

Anyhow, Dr. Ponseti said that I need to see a different Dr. and get a second

opinion cause this Dr. was not following the Ponseti method 100%, and it has to

be! He referred me to Dr. Suffman at Shriners in Portland,Or. He also meantioned

another in Seattle, Wash. He said if neither followed the method 100% to come

and see him, himself. I would love for him to just do it, but we dont have the

$$ to do that! Anyhow, I think we are going to cancell the tendonotomy for

now,and wait to get into Shriners and see what they say?

I am concerned of her losing alot/all th eprogress we've already made. Any

suggestions on what I can do to keep it as it is?

Thanks

Christee

Lilee-5weeks-R CF

__________________________________________________

[Guest guest]

She has had 6 casts. I believe she may have A-typlical CF. How do you tell?

Whats the difference? She had full leg plaster casts with the knee bent at

90degrees. Can anyone show me a picture of a foot set at 70degrees? Thanks

At Dr. P's clinic in Iowa, these young babies are given the tenotomy in his

little " procedure " room, just a room where they do this thing. Like I said, my

husband went in with our baby, I stayed in the hall with our older child. A

numbing agent ws rubbed on his heel area, then a small knife dh described as

being about teh size of a hyperdermic needle was inserted through the skin. He

said the doc sort of gave the knife a quick little twist and he could see the

tendon " snap " , suddenly the foot could move as the tendon had been released.

The feet were carefull casted in the proper 70 degree / 10 degree position at

that point, and we were sent home. I don't know your situation but I just don't

see knocking a baby out for all this as necessary until they're much older and

then it's a different situation.

s.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

She has had 6 casts. I believe she may have A-typlical CF. How do you tell?

Whats the difference? She had full leg plaster casts with the knee bent at

90degrees. Can anyone show me a picture of a foot set at 70degrees? Thanks

At Dr. P's clinic in Iowa, these young babies are given the tenotomy in his

little " procedure " room, just a room where they do this thing. Like I said, my

husband went in with our baby, I stayed in the hall with our older child. A

numbing agent ws rubbed on his heel area, then a small knife dh described as

being about teh size of a hyperdermic needle was inserted through the skin. He

said the doc sort of gave the knife a quick little twist and he could see the

tendon " snap " , suddenly the foot could move as the tendon had been released.

The feet were carefull casted in the proper 70 degree / 10 degree position at

that point, and we were sent home. I don't know your situation but I just don't

see knocking a baby out for all this as necessary until they're much older and

then it's a different situation.

s.

tendon release surgery? Im SCARED!

My daughter was born with her R foot, Club Foot. She is going in mext

Tuesday for the tendon release (tendomy?). They told she may or may not

have an IV. She could NOT eat breastmilk (or formula) 4hrs before

surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD! HOW DO

THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery itself

would take about 20 minutes to 45 minutes. She will be put to sleep by

gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME SERIOUS

ADVICE, SUPPORT, and others peoples stories of how their child did. How

many of you had a child that had this done? Did they have an IV? Where

did they put the IV? How do you keep them from screaming when they are

hungry and you cant feed them? How long did it take?

PLEASE, any advise is wonderful! Thanks

Christee

Mother of Lilee - 1 month old

R Club Foot / L Metatarsus Aductus

[Guest guest]

Have a look at this website, it has information put together by a parent

about atypical clubfoot. Her baby Kai was treated by Dr Ponseti and Dr

Mosca.

http://adifferentfoot.freeservers.com/about.html

The Global Help booklet also has some information on it. The atypical

clubfoot can be corrected, but it should be done by a doctor with experience

in dealing with it.

http://www.global-help.org/publications/ponseti-cf.html

I will have a look at my pictures to see if I can find an example for you.

70 degrees looks 'over corrected', but Dr Ponseti says it must be set like

this - in the maximum outward rotation - to avoid relapse.

Steps Charity

www.steps.org.za

Re: tendon release surgery? Im SCARED!

She has had 6 casts. I believe she may have A-typlical CF. How do you tell?

Whats the difference? She had full leg plaster casts with the knee bent at

90degrees. Can anyone show me a picture of a foot set at 70degrees? Thanks

[Guest guest]

Have a look at this website, it has information put together by a parent

about atypical clubfoot. Her baby Kai was treated by Dr Ponseti and Dr

Mosca.

http://adifferentfoot.freeservers.com/about.html

The Global Help booklet also has some information on it. The atypical

clubfoot can be corrected, but it should be done by a doctor with experience

in dealing with it.

http://www.global-help.org/publications/ponseti-cf.html

I will have a look at my pictures to see if I can find an example for you.

70 degrees looks 'over corrected', but Dr Ponseti says it must be set like

this - in the maximum outward rotation - to avoid relapse.

Steps Charity

www.steps.org.za

Re: tendon release surgery? Im SCARED!

She has had 6 casts. I believe she may have A-typlical CF. How do you tell?

Whats the difference? She had full leg plaster casts with the knee bent at

90degrees. Can anyone show me a picture of a foot set at 70degrees? Thanks