Re: tendon release surgery? Im SCARED!

[Guest guest]

Hurray - you are getting great advice from the Group - good on you for

canceling tenotomy - also, don't worry about losing progress - I have

heard of Ponseti working miracles with babies that have come to him

really late, like almost a year, a year and a half old, and he still

works miracles. At just over a month old, Lilee will be just fine -

just make sure you get to the other recommended Docs ASAP - good luck -

Pete

>

> I was able to get ahold of and actually talk to Dr. Ponseti himself.

> He was wonderful! He awnsered al my questions, and you could tell he

> was really concerned and cared. )

>

> Lilee has has 6 casts. Her foot is at about a 45degree? angle. Dr.

> Ponseti said it shouls be between 60-70 BEFORE the tendontomy. He also

> said she should be in a cast, NO breaks! He said her DBB should be set

> at 70degrees, no if, ands , or buts. He asked is her heel is flat, and

> it is. He said this was due to poor molded casts. He asked if her foot

> is short, stubby, and fat. It is. He said this was called an A-typical

> CF. Anyone else have this? Whats the difference? Anyhow, Dr. Ponseti

> said that I need to see a different Dr. and get a second opinion cause

> this Dr. was not following the Ponseti method 100%, and it has to be!

> He referred me to Dr. Suffman at Shriners in Portland,Or. He also

> meantioned another in Seattle, Wash. He said if neither followed the

> method 100% to come and see him, himself. I would love for him to just

> do it, but we dont have the $$ to do that! Anyhow, I think we are

> going to cancell the tendonotomy for now,and wait to get into Shriners

> and see what they say?

> I am concerned of her losing alot/all th eprogress we've already

> made. Any suggestions on what I can do to keep it as it is?

>

> Thanks

>

> Christee

>

> Lilee-5weeks-R CF

>

>

> __________________________________________________

>

[Guest guest]

Hurray - you are getting great advice from the Group - good on you for

canceling tenotomy - also, don't worry about losing progress - I have

heard of Ponseti working miracles with babies that have come to him

really late, like almost a year, a year and a half old, and he still

works miracles. At just over a month old, Lilee will be just fine -

just make sure you get to the other recommended Docs ASAP - good luck -

Pete

>

> I was able to get ahold of and actually talk to Dr. Ponseti himself.

> He was wonderful! He awnsered al my questions, and you could tell he

> was really concerned and cared. )

>

> Lilee has has 6 casts. Her foot is at about a 45degree? angle. Dr.

> Ponseti said it shouls be between 60-70 BEFORE the tendontomy. He also

> said she should be in a cast, NO breaks! He said her DBB should be set

> at 70degrees, no if, ands , or buts. He asked is her heel is flat, and

> it is. He said this was due to poor molded casts. He asked if her foot

> is short, stubby, and fat. It is. He said this was called an A-typical

> CF. Anyone else have this? Whats the difference? Anyhow, Dr. Ponseti

> said that I need to see a different Dr. and get a second opinion cause

> this Dr. was not following the Ponseti method 100%, and it has to be!

> He referred me to Dr. Suffman at Shriners in Portland,Or. He also

> meantioned another in Seattle, Wash. He said if neither followed the

> method 100% to come and see him, himself. I would love for him to just

> do it, but we dont have the $$ to do that! Anyhow, I think we are

> going to cancell the tendonotomy for now,and wait to get into Shriners

> and see what they say?

> I am concerned of her losing alot/all th eprogress we've already

> made. Any suggestions on what I can do to keep it as it is?

>

> Thanks

>

> Christee

>

> Lilee-5weeks-R CF

>

>

> __________________________________________________

>

[Guest guest]

At Lilee's age, any progress lost can be regained so

quickly that I would not worry about it. Enjoy a

little more cast free time with her. Kelsey had been

improperly casted and braced for 9 months when we got

rid of it all and the doctor with it. She began

casting again at 10 months, had 3 casts then the

tenotomy. She did great and her foot is amazing. She

does not have the atypical clubfoot but many other

children from this board do so hopefully their parents

will be able to give you more information about that.

I believe that Kori has had some problems with the

Shriners in Portland not following the protocol but I

have read excellent things about Dr. Mosca in Seattle.

jenni

--- christee dawson wrote:

>

> I was able to get ahold of and actually talk to Dr.

> Ponseti himself. He was wonderful! He awnsered al my

> questions, and you could tell he was really

> concerned and cared. )

>

> Lilee has has 6 casts. Her foot is at about a

> 45degree? angle. Dr. Ponseti said it shouls be

> between 60-70 BEFORE the tendontomy. He also said

> she should be in a cast, NO breaks! He said her DBB

> should be set at 70degrees, no if, ands , or buts.

> He asked is her heel is flat, and it is. He said

> this was due to poor molded casts. He asked if her

> foot is short, stubby, and fat. It is. He said this

> was called an A-typical CF. Anyone else have this?

> Whats the difference? Anyhow, Dr. Ponseti said that

> I need to see a different Dr. and get a second

> opinion cause this Dr. was not following the Ponseti

> method 100%, and it has to be! He referred me to Dr.

> Suffman at Shriners in Portland,Or. He also

> meantioned another in Seattle, Wash. He said if

> neither followed the method 100% to come and see

> him, himself. I would love for him to just do it,

> but we dont have the $$ to do that! Anyhow, I think

> we are going to cancell the tendonotomy for now,and

> wait to get into Shriners and see what they say?

> I am concerned of her losing alot/all th eprogress

> we've already made. Any suggestions on what I can do

> to keep it as it is?

>

> Thanks

>

> Christee

>

> Lilee-5weeks-R CF

>

>

> __________________________________________________

>

[Guest guest]

At Lilee's age, any progress lost can be regained so

quickly that I would not worry about it. Enjoy a

little more cast free time with her. Kelsey had been

improperly casted and braced for 9 months when we got

rid of it all and the doctor with it. She began

casting again at 10 months, had 3 casts then the

tenotomy. She did great and her foot is amazing. She

does not have the atypical clubfoot but many other

children from this board do so hopefully their parents

will be able to give you more information about that.

I believe that Kori has had some problems with the

Shriners in Portland not following the protocol but I

have read excellent things about Dr. Mosca in Seattle.

jenni

--- christee dawson wrote:

>

> I was able to get ahold of and actually talk to Dr.

> Ponseti himself. He was wonderful! He awnsered al my

> questions, and you could tell he was really

> concerned and cared. )

>

> Lilee has has 6 casts. Her foot is at about a

> 45degree? angle. Dr. Ponseti said it shouls be

> between 60-70 BEFORE the tendontomy. He also said

> she should be in a cast, NO breaks! He said her DBB

> should be set at 70degrees, no if, ands , or buts.

> He asked is her heel is flat, and it is. He said

> this was due to poor molded casts. He asked if her

> foot is short, stubby, and fat. It is. He said this

> was called an A-typical CF. Anyone else have this?

> Whats the difference? Anyhow, Dr. Ponseti said that

> I need to see a different Dr. and get a second

> opinion cause this Dr. was not following the Ponseti

> method 100%, and it has to be! He referred me to Dr.

> Suffman at Shriners in Portland,Or. He also

> meantioned another in Seattle, Wash. He said if

> neither followed the method 100% to come and see

> him, himself. I would love for him to just do it,

> but we dont have the $$ to do that! Anyhow, I think

> we are going to cancell the tendonotomy for now,and

> wait to get into Shriners and see what they say?

> I am concerned of her losing alot/all th eprogress

> we've already made. Any suggestions on what I can do

> to keep it as it is?

>

> Thanks

>

> Christee

>

> Lilee-5weeks-R CF

>

>

> __________________________________________________

>

[Guest guest]

Please hold off Dr. Jay at Dupont told me he was doing this and

putting my son under at 8 weeks old, my son had a scar that grows with

him and looks yucky! It has also left his foot stiff, which is why we

are having so many problems now. He turned 4 this week and because of

the decision at 8 weeks old, we are making our poor baby pay for it

now. I think Dr. Jay did much more in there then snap something. He

told us he was splitting the calf muscle in half to double it in lenth

then lenghting the achiles tendon with it, etc. He tried telling me

this was all normal, etc. It deffiatnly isn't we didn't need to put

an 8 week old under anestesia and put him through days in the hospital

if we could of just known then about the in office procedure and

ponseti method then. Are you home today, I will call you if you are

please let me know if you want me too.

Michele

[Guest guest]

Please hold off Dr. Jay at Dupont told me he was doing this and

putting my son under at 8 weeks old, my son had a scar that grows with

him and looks yucky! It has also left his foot stiff, which is why we

are having so many problems now. He turned 4 this week and because of

the decision at 8 weeks old, we are making our poor baby pay for it

now. I think Dr. Jay did much more in there then snap something. He

told us he was splitting the calf muscle in half to double it in lenth

then lenghting the achiles tendon with it, etc. He tried telling me

this was all normal, etc. It deffiatnly isn't we didn't need to put

an 8 week old under anestesia and put him through days in the hospital

if we could of just known then about the in office procedure and

ponseti method then. Are you home today, I will call you if you are

please let me know if you want me too.

Michele

[Guest guest]

Christee if you want I could give you the info. for angel Flights it

is free airfare. We don't have the money either trust me. But they

are a great wonderful wonderful organization. We are flying out on

them and then staying in the ronald mcdonald house. The great thing

is if you can find a Shriners that would be free too.

Michele

[Guest guest]

Christee if you want I could give you the info. for angel Flights it

is free airfare. We don't have the money either trust me. But they

are a great wonderful wonderful organization. We are flying out on

them and then staying in the ronald mcdonald house. The great thing

is if you can find a Shriners that would be free too.

Michele

[Guest guest]

Christee-

I'm glad you got to talk to Dr. Ponseti. Isn't he wonderful?!

Please don't bother going to the Shriners in Portland if you think

that Lilee might have a-typical clubfoot.

You need to get to Dr. Mosca in Seattle. Kai's mom, Angel, has put

together a website on his a-typical foot at

http://adifferentfoot.freeservers.com/

Kai was treated by Dr. Mosca and also Dr. Ponseti.

Don't worry about her losing progress. For all you know at this

point, the foot was casted incorrectly anyway. She's so young, that

a fresh start won't put you back at all at this point. I was

wondering how they were going to keep her tiny little feet in the

shoes anyway!

Also, if you *really* want to go to Iowa, there are ways to get

there- Angel Flights will fly you there (you can confer with Angel,

Kai's mom, about how she flew to Iowa from the northwest), and you

can stay at the Mc House while in Iowa City.

Please keep us posted!

>

> I was able to get ahold of and actually talk to Dr. Ponseti

himself. He was wonderful! He awnsered al my questions, and you

could tell he was really concerned and cared. )

>

> Lilee has has 6 casts. Her foot is at about a 45degree? angle. Dr.

Ponseti said it shouls be between 60-70 BEFORE the tendontomy. He

also said she should be in a cast, NO breaks! He said her DBB should

be set at 70degrees, no if, ands , or buts. He asked is her heel is

flat, and it is. He said this was due to poor molded casts. He asked

if her foot is short, stubby, and fat. It is. He said this was

called an A-typical CF. Anyone else have this? Whats the difference?

Anyhow, Dr. Ponseti said that I need to see a different Dr. and get

a second opinion cause this Dr. was not following the Ponseti method

100%, and it has to be! He referred me to Dr. Suffman at Shriners in

Portland,Or. He also meantioned another in Seattle, Wash. He said if

neither followed the method 100% to come and see him, himself. I

would love for him to just do it, but we dont have the $$ to do

that! Anyhow, I think we are going to cancell the tendonotomy for

now,and wait to get into Shriners and see what they say?

> I am concerned of her losing alot/all th eprogress we've already

made. Any suggestions on what I can do to keep it as it is?

>

> Thanks

>

> Christee

>

> Lilee-5weeks-R CF

>

>

> __________________________________________________

>

[Guest guest]

Christee-

I'm glad you got to talk to Dr. Ponseti. Isn't he wonderful?!

Please don't bother going to the Shriners in Portland if you think

that Lilee might have a-typical clubfoot.

You need to get to Dr. Mosca in Seattle. Kai's mom, Angel, has put

together a website on his a-typical foot at

http://adifferentfoot.freeservers.com/

Kai was treated by Dr. Mosca and also Dr. Ponseti.

Don't worry about her losing progress. For all you know at this

point, the foot was casted incorrectly anyway. She's so young, that

a fresh start won't put you back at all at this point. I was

wondering how they were going to keep her tiny little feet in the

shoes anyway!

Also, if you *really* want to go to Iowa, there are ways to get

there- Angel Flights will fly you there (you can confer with Angel,

Kai's mom, about how she flew to Iowa from the northwest), and you

can stay at the Mc House while in Iowa City.

Please keep us posted!

>

> I was able to get ahold of and actually talk to Dr. Ponseti

himself. He was wonderful! He awnsered al my questions, and you

could tell he was really concerned and cared. )

>

> Lilee has has 6 casts. Her foot is at about a 45degree? angle. Dr.

Ponseti said it shouls be between 60-70 BEFORE the tendontomy. He

also said she should be in a cast, NO breaks! He said her DBB should

be set at 70degrees, no if, ands , or buts. He asked is her heel is

flat, and it is. He said this was due to poor molded casts. He asked

if her foot is short, stubby, and fat. It is. He said this was

called an A-typical CF. Anyone else have this? Whats the difference?

Anyhow, Dr. Ponseti said that I need to see a different Dr. and get

a second opinion cause this Dr. was not following the Ponseti method

100%, and it has to be! He referred me to Dr. Suffman at Shriners in

Portland,Or. He also meantioned another in Seattle, Wash. He said if

neither followed the method 100% to come and see him, himself. I

would love for him to just do it, but we dont have the $$ to do

that! Anyhow, I think we are going to cancell the tendonotomy for

now,and wait to get into Shriners and see what they say?

> I am concerned of her losing alot/all th eprogress we've already

made. Any suggestions on what I can do to keep it as it is?

>

> Thanks

>

> Christee

>

> Lilee-5weeks-R CF

>

>

> __________________________________________________

>

[Guest guest]

Yes Marci, that's right, I should have clarified, he usually does do

them under local at Shriner's -- it's my understanding that he does

them under general at Children's Hospital because of their policy.

Although I think he still is allowed at either hospital to use his

discretion if he wants to or if the parents request one way or the other.

You will be done with the casting before you know it! That was such a

great time - the day we got that last cast off, I couldn't wait to

give him that bath!

Unless I totally misunderstand your

> > post, a 1 month old baby should need nothing but a ten minute stop

> in

> > the dr.'s office to have her tenontomy.... No IV's, no

> > starvation.....it's a simple thing. My husband held our son while

> the

> > dr. did it in Iowa.

> > > s.

> > >

> > > tendon release surgery? Im SCARED!

> > >

> > >

> > > My daughter was born with her R foot, Club Foot. She is going in

> mext

> > > Tuesday for the tendon release (tendomy?). They told she may or

> may not

> > > have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> > > surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD!

> HOW DO

> > > THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

> itself

> > > would take about 20 minutes to 45 minutes. She will be put to

> sleep by

> > > gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

> SERIOUS

> > > ADVICE, SUPPORT, and others peoples stories of how their child

> did. How

> > > many of you had a child that had this done? Did they have an IV?

> Where

> > > did they put the IV? How do you keep them from screaming when

> they are

> > > hungry and you cant feed them? How long did it take?

> > > PLEASE, any advise is wonderful! Thanks

> > > Christee

> > > Mother of Lilee - 1 month old

> > > R Club Foot / L Metatarsus Aductus

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Yes Marci, that's right, I should have clarified, he usually does do

them under local at Shriner's -- it's my understanding that he does

them under general at Children's Hospital because of their policy.

Although I think he still is allowed at either hospital to use his

discretion if he wants to or if the parents request one way or the other.

You will be done with the casting before you know it! That was such a

great time - the day we got that last cast off, I couldn't wait to

give him that bath!

Unless I totally misunderstand your

> > post, a 1 month old baby should need nothing but a ten minute stop

> in

> > the dr.'s office to have her tenontomy.... No IV's, no

> > starvation.....it's a simple thing. My husband held our son while

> the

> > dr. did it in Iowa.

> > > s.

> > >

> > > tendon release surgery? Im SCARED!

> > >

> > >

> > > My daughter was born with her R foot, Club Foot. She is going in

> mext

> > > Tuesday for the tendon release (tendomy?). They told she may or

> may not

> > > have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> > > surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD!

> HOW DO

> > > THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

> itself

> > > would take about 20 minutes to 45 minutes. She will be put to

> sleep by

> > > gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

> SERIOUS

> > > ADVICE, SUPPORT, and others peoples stories of how their child

> did. How

> > > many of you had a child that had this done? Did they have an IV?

> Where

> > > did they put the IV? How do you keep them from screaming when

> they are

> > > hungry and you cant feed them? How long did it take?

> > > PLEASE, any advise is wonderful! Thanks

> > > Christee

> > > Mother of Lilee - 1 month old

> > > R Club Foot / L Metatarsus Aductus

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

The other thing I forgot to mention is that you may want to bring

your pump or try to borrow one if you don't have one. It will be

quite a few hours before you nurse and I was FULL of milk. Plus the

nurses wanted her to have a bottle first with something (I can't

remember--Pedialyte maybe??) after she woke from surgery. Which

makes me angry now that I think about it because they said it would

be gentler on her stomach and what's gentler on a baby's stomach

than the milk it's mommy make for it??? Why did I say yes?

Grrr....anyway, that's off topic. Just think about your boobies--you

may need to pump! :-)

>

> > My daughter was born with her R foot, Club Foot. She

> > is going in mext

> > Tuesday for the tendon release (tendomy?). They told

> > she may or may not

> > have an IV. She could NOT eat breastmilk (or

> > formula) 4hrs before

> > surgery, and no clear liquids 2hrs before. SHE IS A

> > MONTH OLD! HOW DO

> > THEY EXPECT ME TO STARVE HER LIKE THAT!? They said

> > the surgery itself

> > would take about 20 minutes to 45 minutes. She will

> > be put to sleep by

> > gas. Her surgery isnt until 2:30pm. I COULD REALLY

> > USE SOME SERIOUS

> > ADVICE, SUPPORT, and others peoples stories of how

> > their child did. How

> > many of you had a child that had this done? Did they

> > have an IV? Where

> > did they put the IV? How do you keep them from

> > screaming when they are

> > hungry and you cant feed them? How long did it take?

> > PLEASE, any advise is wonderful! Thanks

> > Christee

> > Mother of Lilee - 1 month old

> > R Club Foot / L Metatarsus Aductus

> >

> >

> >

> >

> >

>

>

> Jenni-

> Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB

nights only for left clubfoot.

>

>

>

> ____________________________________________________

> Start your day with Yahoo! - make it your home page

> http://www.yahoo.com/r/hs

[Guest guest]

Yes, please call me any time.

michele_and_collin wrote:Christee if you want I could

give you the info. for angel Flights it

is free airfare. We don't have the money either trust me. But they

are a great wonderful wonderful organization. We are flying out on

them and then staying in the ronald mcdonald house. The great thing

is if you can find a Shriners that would be free too.

Michele

[Guest guest]

Hi,

I've seen two doctors. One here locally at home that I chose no longer to be

with when I began taking my daughter, Lhea to Dr. Ponseti.

Here, at home, her doctor did put her under general anesthesia - and she was

only 2 months old! Yes, I was very scared - how much is enough to put a baby

that young under?

However, with Dr. Ponseti, it was local!

Good luck!

marci21175 wrote:

We see Dr.Dobbs at the Shriner's Hospital and were told that he does

the tenotomies under local anesthesia. Mollie is three months old

today and is in her second set of casts from Dr.Dobbs (3rd week

though because he wasn't in this week). I'm not looking forward to

it, but I can't wait to get done with all these casts so Mollie can

have a real bath again!!

Marci

Mollie 5-25-05

bcf

Unless I totally misunderstand your

> post, a 1 month old baby should need nothing but a ten minute stop

in

> the dr.'s office to have her tenontomy.... No IV's, no

> starvation.....it's a simple thing. My husband held our son while

the

> dr. did it in Iowa.

> > s.

> >

> > tendon release surgery? Im SCARED!

> >

> >

> > My daughter was born with her R foot, Club Foot. She is going in

mext

> > Tuesday for the tendon release (tendomy?). They told she may or

may not

> > have an IV. She could NOT eat breastmilk (or formula) 4hrs before

> > surgery, and no clear liquids 2hrs before. SHE IS A MONTH OLD!

HOW DO

> > THEY EXPECT ME TO STARVE HER LIKE THAT!? They said the surgery

itself

> > would take about 20 minutes to 45 minutes. She will be put to

sleep by

> > gas. Her surgery isnt until 2:30pm. I COULD REALLY USE SOME

SERIOUS

> > ADVICE, SUPPORT, and others peoples stories of how their child

did. How

> > many of you had a child that had this done? Did they have an IV?

Where

> > did they put the IV? How do you keep them from screaming when

they are

> > hungry and you cant feed them? How long did it take?

> > PLEASE, any advise is wonderful! Thanks

> > Christee

> > Mother of Lilee - 1 month old

> > R Club Foot / L Metatarsus Aductus

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

--- Raek and Jennipher Assria wrote:

> Hi,

> I've seen two doctors. One here locally at home that I chose no longer to be

> with when I began taking my daughter, Lhea to Dr. Ponseti.

> Here, at home, her doctor did put her under general anesthesia - and she was

> only 2 months old! Yes, I was very scared - how much is enough to put a

> baby that young under?

> However, with Dr. Ponseti, it was local!

> Good luck!

I do think doctors have a different view of general anesthesia for a variety of

reasons. My baby is supposed to be born with spina bifida, and he'll be put

under general at around 12 HOURS of age to close the open lesion.

I certainly think the tenotomy can be performed without general, and prefer it

to be so myself, but I think that doctors often have that different perspective

because of other issues they see. To THEM it isn't a big deal. As a parent,

though, I agree that it is!!

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

I do think doctors have a different view of general anesthesia for a

variety of

> reasons. My baby is supposed to be born with spina bifida, and

he'll be put

> under general at around 12 HOURS of age to close the open lesion.

>

> I certainly think the tenotomy can be performed without general, and

prefer it

> to be so myself, but I think that doctors often have that different

perspective

> because of other issues they see. To THEM it isn't a big deal. As

a parent,

> though, I agree that it is!!

>

> Joy

Joy--I agree with you. I think sometimes doctors don't realize what a

big deal it is for the parents, we're not doctors (most of us,

anyway), we DON'T deal with this sort of thing on a weekly basis--or

even up to that point in our lives! My best friend just had a baby

last week, and they kept him an extra day for jaundice. They wanted

her to go buy a $250 breast pump, pump & leave her milk and then go

home because insurance wouldn't pay for her to stay another night. She

fought the hospital, and finally they not only allowed her to stay,

but gave her a bed and let her nurse him! (They said he couldn't even

come out of the lights to nurse at first and his bili level was only

slightly over 17! AARRRGGHH!!!) Anyway, long story short, the next day

I recommended her asking about the light blanket, and the doctor

said " Oh, sure, you can have that, and you can go home now if you want

then. " They were so mad! Why wasn't this option given to them 24 hours

before?!!???! I think sometimes doctors don't realize what a stress it

is to have a child in the hospital, or they may even think they're

doing you a favor (like you'll be more comfortable) in a case like

this. Well, that was a long story to say I agree! (Can you tell I

still have my panties in a bunch over that whole thing??!!)

And the other thing--Joy, how are you dealing with this whole thing

with the new baby?? It sounds so non-chalant when you read it " Yes, my

baby will have surgury 12 hrs. after birth " but you can't possibly be

that calm about it, can you? My thoughts are with you girl! Peace and

love and all that jazz!

[Guest guest]

--- wrote:

> Joy--I agree with you. I think sometimes doctors don't realize what a

> big deal it is for the parents, we're not doctors (most of us,

> anyway), we DON'T deal with this sort of thing on a weekly basis--or

> even up to that point in our lives! My best friend just had a baby

> last week, and they kept him an extra day for jaundice. They wanted

> her to go buy a $250 breast pump, pump & leave her milk and then go

> home because insurance wouldn't pay for her to stay another night. She

> fought the hospital, and finally they not only allowed her to stay,

> but gave her a bed and let her nurse him! (They said he couldn't even

> come out of the lights to nurse at first and his bili level was only

> slightly over 17! AARRRGGHH!!!) Anyway, long story short, the next day

> I recommended her asking about the light blanket, and the doctor

> said " Oh, sure, you can have that, and you can go home now if you want

> then. " They were so mad! Why wasn't this option given to them 24 hours

> before?!!???! I think sometimes doctors don't realize what a stress it

> is to have a child in the hospital, or they may even think they're

> doing you a favor (like you'll be more comfortable) in a case like

> this. Well, that was a long story to say I agree! (Can you tell I

> still have my panties in a bunch over that whole thing??!!)

Ohhh, that frustrates me sooo much, too! The whole juandice thing has really

seemed to get out of control lately, because I've been seeing a lot of cases

like this myself. My sister had a similar experience, and I just don't get why

they won't let mom FEED the baby.

> And the other thing--Joy, how are you dealing with this whole thing

> with the new baby?? It sounds so non-chalant when you read it " Yes, my

> baby will have surgury 12 hrs. after birth " but you can't possibly be

> that calm about it, can you? My thoughts are with you girl! Peace and

> love and all that jazz!

Well, it's been a rollercoaster ride, that's for sure! At this point, I've had

about 2.5 months to come to terms with the idea of my baby going through

surgery at such an early, early time in his life. I know it's going to be

necessary, so that helps. If I think too long about not being able to hold him

for three days and where he's going to be at, I get a bit emotional. It's

certainly a whole different ballgame than I anticipated, but I've gotten to the

point where I'm taking it one day a time. When we first received the

diagnosis, I didn't think that was possible. I am enjoying the pregnancy

again, though, and I'm really anticipating the arrival of #4.

Thanks for the thoughts, !!

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Joy,

I've been meaning to tell you, when you are up here and if you need a

break or need to get out of the hospital, you can feel free to give

me a call. I live in Minneapolis near Abbott, and would be happy to

meet up with you. I'm sure you'll be very busy, but I thought I'd

let you know.

I'll send you an e-mail with my number if you are interested.

>

>

> > Joy--I agree with you. I think sometimes doctors don't realize

what a

> > big deal it is for the parents, we're not doctors (most of us,

> > anyway), we DON'T deal with this sort of thing on a weekly basis--

or

> > even up to that point in our lives! My best friend just had a

baby

> > last week, and they kept him an extra day for jaundice. They

wanted

> > her to go buy a $250 breast pump, pump & leave her milk and then

go

> > home because insurance wouldn't pay for her to stay another

night. She

> > fought the hospital, and finally they not only allowed her to

stay,

> > but gave her a bed and let her nurse him! (They said he couldn't

even

> > come out of the lights to nurse at first and his bili level was

only

> > slightly over 17! AARRRGGHH!!!) Anyway, long story short, the

next day

> > I recommended her asking about the light blanket, and the doctor

> > said " Oh, sure, you can have that, and you can go home now if you

want

> > then. " They were so mad! Why wasn't this option given to them 24

hours

> > before?!!???! I think sometimes doctors don't realize what a

stress it

> > is to have a child in the hospital, or they may even think

they're

> > doing you a favor (like you'll be more comfortable) in a case

like

> > this. Well, that was a long story to say I agree! (Can you tell I

> > still have my panties in a bunch over that whole thing??!!)

>

> Ohhh, that frustrates me sooo much, too! The whole juandice thing

has really

> seemed to get out of control lately, because I've been seeing a lot

of cases

> like this myself. My sister had a similar experience, and I just

don't get why

> they won't let mom FEED the baby.

>

> > And the other thing--Joy, how are you dealing with this whole

thing

> > with the new baby?? It sounds so non-chalant when you read

it " Yes, my

> > baby will have surgury 12 hrs. after birth " but you can't

possibly be

> > that calm about it, can you? My thoughts are with you girl! Peace

and

> > love and all that jazz!

>

> Well, it's been a rollercoaster ride, that's for sure! At this

point, I've had

> about 2.5 months to come to terms with the idea of my baby going

through

> surgery at such an early, early time in his life. I know it's

going to be

> necessary, so that helps. If I think too long about not being able

to hold him

> for three days and where he's going to be at, I get a bit

emotional. It's

> certainly a whole different ballgame than I anticipated, but I've

gotten to the

> point where I'm taking it one day a time. When we first received

the

> diagnosis, I didn't think that was possible. I am enjoying the

pregnancy

> again, though, and I'm really anticipating the arrival of #4.

>

> Thanks for the thoughts, !!

>

> Joy

>

> http://www.geocities.com/joybelle15/rosesclubfootpage.html

>

>

>

> ____________________________________________________

> Start your day with Yahoo! - make it your home page

> http://www.yahoo.com/r/hs

[Guest guest]

--- kannhoudek wrote:

> Joy,

>

> I've been meaning to tell you, when you are up here and if you need a

> break or need to get out of the hospital, you can feel free to give

> me a call. I live in Minneapolis near Abbott, and would be happy to

> meet up with you. I'm sure you'll be very busy, but I thought I'd

> let you know.

Thank you, ! We will actually be there this Friday. I'm expecting it

to be pretty crazy traffic-wise. So far, things are looking really good with

the baby, and we aren't necessarily having a c-section. That is good, but

now we don't have a date set. Living in limbo.

> I'll send you an e-mail with my number if you are interested.

Please send me your number, and we'll see what we can work out sometime! My

number is if you ever want to call me.

Joy

http://www.geocities.com/joybelle15/rosesclubfootpage.html

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Hi Christee, I just got back from vacation I'm sorry I never saw your

post last Friday saying it was ok to call. I apologize, I should have

said we were leaving for vacation in a few hours, etc. I waited and

just went through most of the posts before responding, but I'm

confused now. It looked like you canceled it, then I saw a post about

bleeding. Did you go through with the procedure or cancel it? Also

about angel flights, different ones will meet up, for example we are

flying out this week on 3 different flights to get to Iowa and another

3 to get back home. Angel Flights NorthEast has arranged to meet up

with Angel Flights Central for us, they were kind enough to work with

each other and coordienate it. Please feel free to e-mail me at

chele323232@... if you need to talk.

Michele

Collin's story

http://www.geocities.com/chele323232