Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 We're facing the pretty big reality that will need the ATTT. Can someone tell me what position they cast the feet in and if it is in a 90 degree cast at the knee as well like the initial casting was? We're just trying to plan... Thanks! Chris A waist is a terrible thing to mind. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 We're facing the pretty big reality that will need the ATTT. Can someone tell me what position they cast the feet in and if it is in a 90 degree cast at the knee as well like the initial casting was? We're just trying to plan... Thanks! Chris A waist is a terrible thing to mind. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Yes, the cast will go from toes to about mid to upper thigh. The knee is bent at a 90 degree angle...it's pretty much the same as when they were babies. If you need more info about the ATTT or preparing your child for surgery, just let me know! I've posted several times here about our surgical experience, and I can email you off the boards too if you like. Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Yes, the cast will go from toes to about mid to upper thigh. The knee is bent at a 90 degree angle...it's pretty much the same as when they were babies. If you need more info about the ATTT or preparing your child for surgery, just let me know! I've posted several times here about our surgical experience, and I can email you off the boards too if you like. Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Hi - Pete here - Henry ahd his cast done at 90 degrees, not because it needs it but it means the child supposedly cannot walk on it - however, our surgeon Haemish Crawford said 'they do anyway' and sure enough, after about a fortnight Henry was limping along on his good leg and his bent 90 deg. cast! Is having one or two feet done? We were lucky - Henry had two clubfeet, but only the right foot began to turn back (fingers crossed, so far), so he only had the one ATTT. It was a bit of a nightmare for all of us - the pain took a good four to five days to wear off, and he slept badly for the next week after that. Also, something to watch out for, after the tendon is transferred, apparently the muscles take some time to adjust to the new lengths and can spasm suddenly - this can go on for about a week - a really bright nurse put us onto this - so Henry had a muscle relaxant, as well as morphine and something else. He was in casts for about ten weeks. I hope I haven't given you a fright with this info, but I wish someone had warned US about everything. Feel free to contact us again - is away at the moment - back in two days,. and she has some brilliant tips - all the best, and Henry is now charging around with a perfect foot in great spirits, by the way!!! > We're facing the pretty big reality that will need the ATTT. > Can someone tell me what position they cast the feet in and if it is > in a 90 degree cast at the knee as well like the initial casting was? > We're just trying to plan... Thanks! Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Hi - Pete here - Henry ahd his cast done at 90 degrees, not because it needs it but it means the child supposedly cannot walk on it - however, our surgeon Haemish Crawford said 'they do anyway' and sure enough, after about a fortnight Henry was limping along on his good leg and his bent 90 deg. cast! Is having one or two feet done? We were lucky - Henry had two clubfeet, but only the right foot began to turn back (fingers crossed, so far), so he only had the one ATTT. It was a bit of a nightmare for all of us - the pain took a good four to five days to wear off, and he slept badly for the next week after that. Also, something to watch out for, after the tendon is transferred, apparently the muscles take some time to adjust to the new lengths and can spasm suddenly - this can go on for about a week - a really bright nurse put us onto this - so Henry had a muscle relaxant, as well as morphine and something else. He was in casts for about ten weeks. I hope I haven't given you a fright with this info, but I wish someone had warned US about everything. Feel free to contact us again - is away at the moment - back in two days,. and she has some brilliant tips - all the best, and Henry is now charging around with a perfect foot in great spirits, by the way!!! > We're facing the pretty big reality that will need the ATTT. > Can someone tell me what position they cast the feet in and if it is > in a 90 degree cast at the knee as well like the initial casting was? > We're just trying to plan... Thanks! Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 OH WOW! Thanks for the info Pete. I'd never have thought of the spasms but it does make sense given other surgeries I am intimately knowledgeable about. LOL OIY! 10 weeks??? I was prepared for 6. I was prepared to have to drive to and from Iowa several times for the surgery and follow up in just a few weeks time but 10 weeks in casts??? Nope. Never dreamed that! is bilateral and atypical. Of course. If there's a difficult way to do something, does it that way. We won't go in to the T & A with the less than 1% chance of carotid arterial bleeding or the g-tube that she's pulled out overnight so we had to have the surgery done again or the fundo that was herniating... no... we will forget the past and hope for the best. LOL One of her feet is more difficult to stay corrected than the other but both have very strong interior tendons. Her big toes are sticking up about half the time too so Dr. P says he'd recommend both feet. And then when he saw the overwhelmed look on my face said as he gently lay his hands on her feet " But Momma, she will have perfect feet " . Then he paused and waited. Apparently the overwhelmed look didn't disappear so he added as he waved his hands in the air " and no more brace " . That got a response from me. ROFL!!! However, I'm not so sure that will be the case. I think we may wear it for awhile just to be sure all is well. Oh my - it is going to be a loooooong spring! We go see him again on the 7th. I fear he'll say she's relapsed but he may just tell us when to report for surgery instead. Chris Re: ATTT Question Hi - Pete here - Henry ahd his cast done at 90 degrees, not because it needs it but it means the child supposedly cannot walk on it - however, our surgeon Haemish Crawford said 'they do anyway' and sure enough, after about a fortnight Henry was limping along on his good leg and his bent 90 deg. cast! Is having one or two feet done? We were lucky - Henry had two clubfeet, but only the right foot began to turn back (fingers crossed, so far), so he only had the one ATTT. It was a bit of a nightmare for all of us - the pain took a good four to five days to wear off, and he slept badly for the next week after that. Also, something to watch out for, after the tendon is transferred, apparently the muscles take some time to adjust to the new lengths and can spasm suddenly - this can go on for about a week - a really bright nurse put us onto this - so Henry had a muscle relaxant, as well as morphine and something else. He was in casts for about ten weeks. I hope I haven't given you a fright with this info, but I wish someone had warned US about everything. Feel free to contact us again - is away at the moment - back in two days,. and she has some brilliant tips - all the best, and Henry is now charging around with a perfect foot in great spirits, by the way!!! > We're facing the pretty big reality that will need the ATTT. > Can someone tell me what position they cast the feet in and if it is > in a 90 degree cast at the knee as well like the initial casting was? > We're just trying to plan... Thanks! Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 OH WOW! Thanks for the info Pete. I'd never have thought of the spasms but it does make sense given other surgeries I am intimately knowledgeable about. LOL OIY! 10 weeks??? I was prepared for 6. I was prepared to have to drive to and from Iowa several times for the surgery and follow up in just a few weeks time but 10 weeks in casts??? Nope. Never dreamed that! is bilateral and atypical. Of course. If there's a difficult way to do something, does it that way. We won't go in to the T & A with the less than 1% chance of carotid arterial bleeding or the g-tube that she's pulled out overnight so we had to have the surgery done again or the fundo that was herniating... no... we will forget the past and hope for the best. LOL One of her feet is more difficult to stay corrected than the other but both have very strong interior tendons. Her big toes are sticking up about half the time too so Dr. P says he'd recommend both feet. And then when he saw the overwhelmed look on my face said as he gently lay his hands on her feet " But Momma, she will have perfect feet " . Then he paused and waited. Apparently the overwhelmed look didn't disappear so he added as he waved his hands in the air " and no more brace " . That got a response from me. ROFL!!! However, I'm not so sure that will be the case. I think we may wear it for awhile just to be sure all is well. Oh my - it is going to be a loooooong spring! We go see him again on the 7th. I fear he'll say she's relapsed but he may just tell us when to report for surgery instead. Chris Re: ATTT Question Hi - Pete here - Henry ahd his cast done at 90 degrees, not because it needs it but it means the child supposedly cannot walk on it - however, our surgeon Haemish Crawford said 'they do anyway' and sure enough, after about a fortnight Henry was limping along on his good leg and his bent 90 deg. cast! Is having one or two feet done? We were lucky - Henry had two clubfeet, but only the right foot began to turn back (fingers crossed, so far), so he only had the one ATTT. It was a bit of a nightmare for all of us - the pain took a good four to five days to wear off, and he slept badly for the next week after that. Also, something to watch out for, after the tendon is transferred, apparently the muscles take some time to adjust to the new lengths and can spasm suddenly - this can go on for about a week - a really bright nurse put us onto this - so Henry had a muscle relaxant, as well as morphine and something else. He was in casts for about ten weeks. I hope I haven't given you a fright with this info, but I wish someone had warned US about everything. Feel free to contact us again - is away at the moment - back in two days,. and she has some brilliant tips - all the best, and Henry is now charging around with a perfect foot in great spirits, by the way!!! > We're facing the pretty big reality that will need the ATTT. > Can someone tell me what position they cast the feet in and if it is > in a 90 degree cast at the knee as well like the initial casting was? > We're just trying to plan... Thanks! Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2005 Report Share Posted October 26, 2005 Who is doing 's surgery? Jake's was done by Dr Dietz at the U of IA. Jake will have the full leg cast for 6 wks, and then a walking cast for an additional 3 wks. The normal length of time (at the University anyways) is just the 6 wk cast. Jake is a special case...the tendon pulled out a little after his 1st surgery, so Jake had to have it redone. Because of that he's having the extra walking cast, as a precaution to help aid his healing. We were told tho, contrary to what said, to keep Jake *completely* nonweightbearing on his cast leg (ie, no walking!!) because it's putting weight on the foot that causes the tendon to pull out. That said, I don't remember Jake ever walking on his foot the first time, but my husband said he did catch Jake standing on his cast leg several times. Needless to say we won't be letting him do that this time around!! Good luck & let me know if you need more info. Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 - it sounds like is a real character - takes after her mother, I'm sure! :-) - Kassia and Seth are absolutely right about not walking on the cast - its just that we were not able to stop Henry doing it! Maybe thats why our surgeon insisted on such a long time in the casts - three sets in all - first heavy plaster for a week, then check the healing, then the fibreglass bent cast for 4 weeks, then the walking knee-to-foot cast for another 4 weeks, so all in all, about 9 weeks, not 10. Two general aneasthetics (sp?) altogether. Dr P is right also (of course!) despite all the drama and " Spots " as Henry called it whenever he had pain, his feet are now just brilliant, all thanks to Dr P - even the ATTT is nothing compared to what other non Dr P children have gone through. All the very best - and I send our love (By the way, I now know what it is to be a personal butler, to Henry aged 3 and a half - " Da-a-ad - I need to go the toilet! D-a-a-a-d! I've got spots inside my leg. D-a-a-a-d! I need an ice cream! D-a-a-d - I need to go on my bike (that was always a good one..) D-a-a-d! I need you to push me up the hill, D-a-a-d! - I need to watch TV. Straightaway Dad! D-a-a-d - pushed me over and I can't get up! Dad - we're not going back to hospital, are we? etc etc etc It was a long 9 weeks Chris! LOL > OH WOW! Thanks for the info Pete. I'd never have thought of the > spasms but it does make sense given other surgeries I am intimately > knowledgeable about. LOL OIY! 10 weeks??? I was prepared for 6. I > was prepared to have to drive to and from Iowa several times for the > surgery and follow up in just a few weeks time but 10 weeks in > casts??? Nope. Never dreamed that! > > is bilateral and atypical. Of course. If there's a difficult > way to do something, does it that way. We won't go in to the > T & A with the less than 1% chance of carotid arterial bleeding or the > g-tube that she's pulled out overnight so we had to have the surgery > done again or the fundo that was herniating... no... we will forget > the past and hope for the best. LOL One of her feet is more > difficult to stay corrected than the other but both have very strong > interior tendons. Her big toes are sticking up about half the time > too so Dr. P says he'd recommend both feet. And then when he saw the > overwhelmed look on my face said as he gently lay his hands on her > feet " But Momma, she will have perfect feet " . Then he paused and > waited. Apparently the overwhelmed look didn't disappear so he added > as he waved his hands in the air " and no more brace " . That got a > response from me. ROFL!!! However, I'm not so sure that will be the > case. I think we may wear it for aw > hile just to be sure all is well. Oh my - it is going to be a > loooooong spring! We go see him again on the 7th. I fear he'll say > she's relapsed but he may just tell us when to report for surgery > instead. > Chris > Re: ATTT Question > > > Hi - Pete here - Henry ahd his cast done at 90 degrees, not > because it needs it but it means the child supposedly cannot walk on > it > - however, our surgeon Haemish Crawford said 'they do anyway' and > sure > enough, after about a fortnight Henry was limping along on his good > leg > and his bent 90 deg. cast! > > Is having one or two feet done? We were lucky - Henry had two > clubfeet, but only the right foot began to turn back (fingers > crossed, > so far), so he only had the one ATTT. It was a bit of a nightmare > for > all of us - the pain took a good four to five days to wear off, and > he > slept badly for the next week after that. Also, something to watch > out > for, after the tendon is transferred, apparently the muscles take > some > time to adjust to the new lengths and can spasm suddenly - this can > go > on for about a week - a really bright nurse put us onto this - so > Henry > had a muscle relaxant, as well as morphine and something else. He > was > in casts for about ten weeks. I hope I haven't given you a fright > with > this info, but I wish someone had warned US about everything. Feel > free to contact us again - is away at the moment - back in > two > days,. and she has some brilliant tips - all the best, and Henry is > now > charging around with a perfect foot in great spirits, by the way!!! > > >> We're facing the pretty big reality that will need the ATTT. >> Can someone tell me what position they cast the feet in and if it is >> in a 90 degree cast at the knee as well like the initial casting was? >> We're just trying to plan... Thanks! Chris >> >> A waist is a terrible thing to mind. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Kassia, They will be doing it in Iowa. We have a good surgeon here locally but we trust them more so we'll go there. hasn't managed to pull up on any of the casts Dr. P has done but then he really did some interesting casts. LOL Dr. P is concerned that the surgery is done correctly because of her atypical feet so I'm sure we'll get thorough instructions from him as usual. Love that man! Chris Re: ATTT Question Who is doing 's surgery? Jake's was done by Dr Dietz at the U of IA. Jake will have the full leg cast for 6 wks, and then a walking cast for an additional 3 wks. The normal length of time (at the University anyways) is just the 6 wk cast. Jake is a special case...the tendon pulled out a little after his 1st surgery, so Jake had to have it redone. Because of that he's having the extra walking cast, as a precaution to help aid his healing. We were told tho, contrary to what said, to keep Jake *completely* nonweightbearing on his cast leg (ie, no walking!!) because it's putting weight on the foot that causes the tendon to pull out. That said, I don't remember Jake ever walking on his foot the first time, but my husband said he did catch Jake standing on his cast leg several times. Needless to say we won't be letting him do that this time around!! Good luck & let me know if you need more info. Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 ROFLOL!!! OH my - sounds a bit like Henry and are two peas on a pod! LOL LOL Re: ATTT Question > > > Hi - Pete here - Henry ahd his cast done at 90 degrees, not > because it needs it but it means the child supposedly cannot walk on > it > - however, our surgeon Haemish Crawford said 'they do anyway' and > sure > enough, after about a fortnight Henry was limping along on his good > leg > and his bent 90 deg. cast! > > Is having one or two feet done? We were lucky - Henry had two > clubfeet, but only the right foot began to turn back (fingers > crossed, > so far), so he only had the one ATTT. It was a bit of a nightmare > for > all of us - the pain took a good four to five days to wear off, and > he > slept badly for the next week after that. Also, something to watch > out > for, after the tendon is transferred, apparently the muscles take > some > time to adjust to the new lengths and can spasm suddenly - this can > go > on for about a week - a really bright nurse put us onto this - so > Henry > had a muscle relaxant, as well as morphine and something else. He > was > in casts for about ten weeks. I hope I haven't given you a fright > with > this info, but I wish someone had warned US about everything. Feel > free to contact us again - is away at the moment - back in > two > days,. and she has some brilliant tips - all the best, and Henry is > now > charging around with a perfect foot in great spirits, by the way!!! > > >> We're facing the pretty big reality that will need the ATTT. >> Can someone tell me what position they cast the feet in and if it is >> in a 90 degree cast at the knee as well like the initial casting was? >> We're just trying to plan... Thanks! Chris >> >> A waist is a terrible thing to mind. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 OMG you had me laughing so hard!! Jake is the same way...Mommy, I need to go potty. (2 minutes after getting back from the BR) Mommy, I need to go potty agaaaaiin (he says it all stretched out). Mommy, pushed me. Mommy, I want to be leader! No, Mommy, can't be leader! Mommy I want to play kart. Too funny!! Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 So Dr P will be doing her surgery? Great! Dr Dietz works with him. When do you go for your preop appointments? Jake goes back on Nov 30 to have his cast removed & replaced with a walking cast. Maybe we will see you there. Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 Kassia, I am not sure Dr. P still does surgery. But he said he'd kabbitz. We don't have a date yet. He's still deciding if it is what needs. We are going on November 7th for our next check up and I wanted some info so I knew what questions to intelligently ask. Chris Re: ATTT Question So Dr P will be doing her surgery? Great! Dr Dietz works with him. When do you go for your preop appointments? Jake goes back on Nov 30 to have his cast removed & replaced with a walking cast. Maybe we will see you there. Kassia 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) and 11/22/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2005 Report Share Posted October 27, 2005 I have been following along this thread and was just curious when you said he is still deciding if this is what she needs. Sorry I don't remember all the details of 's situation, how old is she again? I am just wondering because when we were in Iowa for the symposium they were talking about doing even fewer ATTT's and just putting kids back in braces who had been out of them, even beyond age 5-6, doing more castings, etc. for relapsing feet or others that they might have previously done the ATTT for. I don't mean to get your hopes up but I found it very interesting. I thought it was really neat that Dr. P had consulted w/ Naomi from the UK on one of HIS patients, and together they decided not to do the ATTT. Of course each case is totally unique, and I don't know the case history of this patient either, but if I remember right, he was about 4 and they decided to re-cast him even at that age. Gosh, I wish I could remember the details - I bet if was there during that part he would remember. Anyway, I just wanted to share that with you for whatever it is worth. Either way, we know you are in the best of hands, you and Dr. P will ultimately make the right decision for and I know you guys will make it through whatever happens. I also wanted to say that although you don't talk here as much as some of us do (big ol' windbags that we are, lol), whenever you post you always either have very positive, helpful things to say or something really funny. I really like that about you and I'm glad you're here. Wish you all the best! Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 16hrs/day) > > Kassia, > I am not sure Dr. P still does surgery. But he said he'd kabbitz. We don't have a date yet. He's still deciding if it is what needs. We are going on November 7th for our next check up and I wanted some info so I knew what questions to intelligently ask. > Chris > Re: ATTT Question > > > So Dr P will be doing her surgery? Great! Dr Dietz works with him. When do you go for your preop appointments? Jake goes back on Nov 30 to have his cast removed & replaced with a walking cast. Maybe we will see you there. > > Kassia > 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) > and 11/22/02 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 , She's just 20 mos and has been late walking largely because of her very loose ligaments and her atypical feet being turned out at a 90 degree angle for months. She's also relapsed twice because of her very strong tendon so he seems to think it will be inevitable but he wanted to wait until she'd been walking for 6 mos. Since she's just starting to go without help from person to person or furniture to furniture I don't think he'll wait that long. Her feet turn immediately after removing the shoes. And of course due to her loose ligaments he doesn't want the shoes on except for overnight. I hope the news is better than I expect and he's said through email that he doesn't think she's relapsing again but I'm preparing myself for those darn casts anyway. LOL I'll let you know how it goes. Chris Re: ATTT Question > > > So Dr P will be doing her surgery? Great! Dr Dietz works with him. When do you go for your preop appointments? Jake goes back on Nov 30 to have his cast removed & replaced with a walking cast. Maybe we will see you there. > > Kassia > 3/22/01 (Lt clubfoot, 2nd ATTT Oct 2005) > and 11/22/02 > > > Quote Link to comment Share on other sites More sharing options...
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