Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hi all, I have a thought that has niggled me for a while now. My daughter Connie has just had a second tenotomy, she is 1 year old next Thursday and is back in boots 23/7 for the next 3 months. It really breaks my heart to see her standing and trying to walk in these as I am sure she would be almost walking now if it was not for them. I coped better when she was tiny as she wasn't trying to get around. I also have an older daughter,she is 3.1/2 and my niggle is that when she is that age how is she going to cope with wearing boots at the evening when all the other kids are playing out and running around etc. Does anybody have any older kids with boots that they wear around 12/13 hours per day and how do they get on with walking/playing in the evenings?? I can't imagine Connie in boots and bar when she is 4 years old!!! Adele xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 Hi all, I have a thought that has niggled me for a while now. My daughter Connie has just had a second tenotomy, she is 1 year old next Thursday and is back in boots 23/7 for the next 3 months. It really breaks my heart to see her standing and trying to walk in these as I am sure she would be almost walking now if it was not for them. I coped better when she was tiny as she wasn't trying to get around. I also have an older daughter,she is 3.1/2 and my niggle is that when she is that age how is she going to cope with wearing boots at the evening when all the other kids are playing out and running around etc. Does anybody have any older kids with boots that they wear around 12/13 hours per day and how do they get on with walking/playing in the evenings?? I can't imagine Connie in boots and bar when she is 4 years old!!! Adele xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 I have similar concerns and am still at a loss at what we will do for our 18 month old daughter. She started walking two days before her first casting. She was never dx with club foot but we've ended up with the treatment and I'm not sure how she will cope with 23/7 wear- especially as her twin is running these days. Liz > Hi all, > > I have a thought that has niggled me for a while now. My daughter > Connie has just had a second tenotomy, she is 1 year old next Thursday > and is back in boots 23/7 for the next 3 months. It really breaks my > heart to see her standing and trying to walk in these as I am sure she > would be almost walking now if it was not for them. I coped better > when she was tiny as she wasn't trying to get around. > > I also have an older daughter,she is 3.1/2 and my niggle is that when > she is that age how is she going to cope with wearing boots at the > evening when all the other kids are playing out and running around etc. > > Does anybody have any older kids with boots that they wear around > 12/13 hours per day and how do they get on with walking/playing in the > evenings?? > > I can't imagine Connie in boots and bar when she is 4 years old!!! > > Adele xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2005 Report Share Posted July 29, 2005 I have similar concerns and am still at a loss at what we will do for our 18 month old daughter. She started walking two days before her first casting. She was never dx with club foot but we've ended up with the treatment and I'm not sure how she will cope with 23/7 wear- especially as her twin is running these days. Liz > Hi all, > > I have a thought that has niggled me for a while now. My daughter > Connie has just had a second tenotomy, she is 1 year old next Thursday > and is back in boots 23/7 for the next 3 months. It really breaks my > heart to see her standing and trying to walk in these as I am sure she > would be almost walking now if it was not for them. I coped better > when she was tiny as she wasn't trying to get around. > > I also have an older daughter,she is 3.1/2 and my niggle is that when > she is that age how is she going to cope with wearing boots at the > evening when all the other kids are playing out and running around etc. > > Does anybody have any older kids with boots that they wear around > 12/13 hours per day and how do they get on with walking/playing in the > evenings?? > > I can't imagine Connie in boots and bar when she is 4 years old!!! > > Adele xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 > Hi, > Our babe is 15 months, he wears his boots for 14 hours, mostly while sleeping, > but he crawls and stands up in them and will walk holding my hands with the > boots on in evenings and mornings. He doesn¹t yet walk alone with or without > boots but walks pushing a trolley. The only real downside is when he moves > around his cot at night and gets stuck  cant flip over the way he wants or > jams himself up in the corner of the cot  which wakes him up and it takes > forever to get him back to sleep. He seems fairly happy to pay with the boots > and bar on. We¹ll see how things go as he gets older, as there are probably 3 > more years. > Tamsin > Jasper¹s mum (13 may 04, bilateral cf) > > >> > Hi all, >> > >> > I have a thought that has niggled me for a while now. My daughter >> > Connie has just had a second tenotomy, she is 1 year old next > Thursday >> > and is back in boots 23/7 for the next 3 months. It really breaks > my >> > heart to see her standing and trying to walk in these as I am sure > she >> > would be almost walking now if it was not for them. I coped > better >> > when she was tiny as she wasn't trying to get around. >> > >> > I also have an older daughter,she is 3.1/2 and my niggle is that > when >> > she is that age how is she going to cope with wearing boots at the >> > evening when all the other kids are playing out and running around > etc. >> > >> > Does anybody have any older kids with boots that they wear around >> > 12/13 hours per day and how do they get on with walking/playing in > the >> > evenings?? >> > >> > I can't imagine Connie in boots and bar when she is 4 years old!!! >> > >> > Adele xx > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2005 Report Share Posted July 31, 2005 Adele- My boys are 23 months apart. The youngest has CF. The DBB really doesn't stop them from anything. My son first started taking step with one of the toys walkers you push around. He did that no problem with his DBB on. In fact his first steps were with his DBB on. By 10 months my was in his DBB 16 hours a day and walked no problem when the DBB wasn't on. When it was on he would just crawl. By 12 months he could walk with or without his DBB on. At 21 months he climbed out of his crib with his DBB on. He did everything his older brother at the same time frame his older brother did. We played alot outside and still had plenty of time for him to wear his brace when inside to get the hours in. By the time they are really running around they are down to 12-14hrs in the DBB anyway. > Hi all, > > I have a thought that has niggled me for a while now. My daughter > Connie has just had a second tenotomy, she is 1 year old next Thursday > and is back in boots 23/7 for the next 3 months. It really breaks my > heart to see her standing and trying to walk in these as I am sure she > would be almost walking now if it was not for them. I coped better > when she was tiny as she wasn't trying to get around. > > I also have an older daughter,she is 3.1/2 and my niggle is that when > she is that age how is she going to cope with wearing boots at the > evening when all the other kids are playing out and running around etc. > > Does anybody have any older kids with boots that they wear around > 12/13 hours per day and how do they get on with walking/playing in the > evenings?? > > I can't imagine Connie in boots and bar when she is 4 years old!!! > > Adele xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2005 Report Share Posted July 31, 2005 Hi, I have a question do the boots stay on and the bar off when the kids begin walking? Our ortho said that our son had to have the boots on to learn how to walk? Is that true in your case? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2005 Report Share Posted July 31, 2005 Adele, i can understand you being disappointed that Connie has to be in the brace full time for 3 months at an age when she'd likely be learning to walk. I'm sorry I don't recall your full story, but her having to have a second tenotomy recently must mean that she had some sort of setback .. I'm sorry for that, but it also must mean that she's getting back on track, and having to wear the brace full time again might not be fun, but necessary .. Don't let it break your heart. You are doing what is needed so that she can have straight feet and walk normally the rest of her life! The three months will be over before you know it. I'm sure she'll cruise and stand with the brace on.. I'd just make the most of her short time out of the brace during this time. I predict that when you get to cut down on the hours at the end of the three months, she'll take off walking right away! Many kids even without clubfoot sometimes don't walk till 14-18 months anyway. I want to tell you, also, that you won't be having a 3 or 4 year old wearing the brace during waking hours.. way before then it'll be sleep only. I used to put it on my daughter during naps, when she still took naps. But once they give naps up, kids about that age tend to sleep about 12 hours at night, and that's all you'll need. you won't be needing to bother with it at other times, unless maybe you keep it on a bit longer in the mornings, say while she eats breakfast. At ages 3 and 4, my daughter would get the brace on with her pjs and it would come off in the morning. I'd put it away with her pajamas, and we wouldn't deal with it again till nighttime. Honestly, it won't be a part of your day or her waking hours. My is a patient of Dr. Ponseti and is now 5. hope this helps, and Claire > Hi all, > > I have a thought that has niggled me for a while now. My daughter > Connie has just had a second tenotomy, she is 1 year old next Thursday > and is back in boots 23/7 for the next 3 months. It really breaks my > heart to see her standing and trying to walk in these as I am sure she > would be almost walking now if it was not for them. I coped better > when she was tiny as she wasn't trying to get around. > > I also have an older daughter,she is 3.1/2 and my niggle is that when > she is that age how is she going to cope with wearing boots at the > evening when all the other kids are playing out and running around etc. > > Does anybody have any older kids with boots that they wear around > 12/13 hours per day and how do they get on with walking/playing in the > evenings?? > > I can't imagine Connie in boots and bar when she is 4 years old!!! > > Adele xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2005 Report Share Posted July 31, 2005 > Hi, > > I have a question do the boots stay on and the bar off when the kids begin > walking? Our ortho said that our son had to have the boots on to learn how to > walk? Is that true in your case? > > Thanks > , No that is not part of the Ponseti protocol. The boots do not need to stay on. In fact, with the brace provided in Iowa by Dr. Ponseti, the shoes don't even come off the bar. (Well, they 'could' be unscrewed and removed, but not easily; they are not meant to come off.) When out of the brace, the children can go barefoot or wear flexible-soled shoes, just like any kid, not anything special. After coming out the casts, the feet are corrected. The brace does not do any further correcting. It just maintains correction, and keeps the feet from relapsing. The feet are fully functional. Shoes are not needed to support them in order for the baby to learn to walk. Hope I understood what you were asking and that this helps. and Claire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 , The shoes and bar are always on together. So whatever your bracing protocol is at the time, the shoes and bar should be on during your entire prescribed hours. Without the bar, the shoes are useless in maintaining the correction. After your prescribed hours, barefoot is best unless you are outside and need shoes. Then, any beginner walking shoes are fine. If your doctor said you don't need the bar during your prescribed hours of brace wear, I would seek another doctor. He isn't following correct Ponseti protocol. HTH, Shook Retail Operations Manager/Baking Instructor Vie de France Yamazaki, Inc. 2070 Chain Bridge Rd. Suite 500 Vienna, VA 22182 x374 x374 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Adele, My child started his 23 hour time when he was 10 weeks old. So I can see how you would be discouraged when she's doing 23 hours and one year old when she's up trying to be mobile, but you are doing the best thing for her just try to remember that. In a few short months she'll be up and mobile!! My son gets to stop wearing the shoes in 12 days--he will be four!! He gets his shoes on about 8:00-8:30 and has his snack and is settling down. He sleeps and keeps the shoes on until about 8 or 8:30. Since he started preschool at age 3, he wears the shoes only 10 hours on occasional nights. They are just a part of nightime routine, just like brushing his teeth. Good luck! Pam and (8-12-01) > Hi all, > > I have a thought that has niggled me for a while now. My daughter > Connie has just had a second tenotomy, she is 1 year old next Thursday > and is back in boots 23/7 for the next 3 months. It really breaks my > heart to see her standing and trying to walk in these as I am sure she > would be almost walking now if it was not for them. I coped better > when she was tiny as she wasn't trying to get around. > > I also have an older daughter,she is 3.1/2 and my niggle is that when > she is that age how is she going to cope with wearing boots at the > evening when all the other kids are playing out and running around etc. > > Does anybody have any older kids with boots that they wear around > 12/13 hours per day and how do they get on with walking/playing in the > evenings?? > > I can't imagine Connie in boots and bar when she is 4 years old!!! > > Adele xx Quote Link to comment Share on other sites More sharing options...
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