Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 First, welcome to the list.....we are glad you found us but sorry it had to be with neuro! There are a lot of knowledgeable people here who are willing to help and support and we have lots of links you can check out as well as the Archives...... lots of great info there.......... As for telling the children, mine were all grown when I was diagnosed, but it was hard to explain to them, even then.... I would gently explain that you have a disease that will not go away but sometimes does go into remission........and that at times, you will be really ill and other times you are not as ill........I would tell them that there are things you might not be able to do and explain that your energy level will be low and you have to use what you have very carefully. For instance, if we have to go to Walmart, I can do NOTHING else for the whole day............. I would explain that Mom needs lots of rest and is not able to play and run around with them..... as they get older, you can tell them more, but for right now, I would not get toooo technical as they ARE children and you don't want them to worry about losing you or anything...............you want them to be children........ Hope this helps a little bit.......again, welcome......... and don't be afraid to ask questions.......the only dumb question is the one not asked! :-) Hugs, Darlene NS Co-Owner/Moderator telling my children Hello everyone,I was recently diagnosed with neurosarc and I'm not sure how to tell my children--ages 10, 12 and 13. They all want to know what to expect and will be able to tell if I'm hiding any possible prognosis from them. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2007 Report Share Posted August 17, 2007 First, welcome to the list.....we are glad you found us but sorry it had to be with neuro! There are a lot of knowledgeable people here who are willing to help and support and we have lots of links you can check out as well as the Archives...... lots of great info there.......... As for telling the children, mine were all grown when I was diagnosed, but it was hard to explain to them, even then.... I would gently explain that you have a disease that will not go away but sometimes does go into remission........and that at times, you will be really ill and other times you are not as ill........I would tell them that there are things you might not be able to do and explain that your energy level will be low and you have to use what you have very carefully. For instance, if we have to go to Walmart, I can do NOTHING else for the whole day............. I would explain that Mom needs lots of rest and is not able to play and run around with them..... as they get older, you can tell them more, but for right now, I would not get toooo technical as they ARE children and you don't want them to worry about losing you or anything...............you want them to be children........ Hope this helps a little bit.......again, welcome......... and don't be afraid to ask questions.......the only dumb question is the one not asked! :-) Hugs, Darlene NS Co-Owner/Moderator telling my children Hello everyone,I was recently diagnosed with neurosarc and I'm not sure how to tell my children--ages 10, 12 and 13. They all want to know what to expect and will be able to tell if I'm hiding any possible prognosis from them. .. Quote Link to comment Share on other sites More sharing options...
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