Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I'd be apprehensive about going from 23 hours down to sleep time so suddenly. I don't understand how an x-ray could determine this becasue the FAB isn't doing any correcting, it is only used to maintain the correction achieved through casting. It always worries me when doctors reduce the FAB time and / or don't support parents to use it full time according to Ponseti Protocol - reason being that there will be a higher than average number of babies relapsing due to a lack of FAB use, and that alone will destroy much of Ponseti's reputation for being 95% effective. s. ----- My little girl also has a moderate left club foot. Her club foot is set to 70 degrees and the the other foot at 45. She's in the shoes 23 hours - this is for 3 months. Next week her foot will be x-rayed, and her doc will determine how long she'll need to be in her shoes. She mentioned at the last appointment a month ago that she might be able to go to nights only at that point. I'm a little apprehensive about going from 23 to nights only immediately. I'll be talking with her about gradually getting to nights only. I'm a little bit surprised that the doctor doesn't want to see your son for 2.5 months. We have monthly check-ups. My daughter just turned 5 months, and the casts and fab do not seem to be interfering with her development. In fact, her legs are incredibly strong! I think it's from lifting those heavy shoes!!! I can stand her up in my lap and she practically does so on her own! I also put her in her exer saucer during part of the " off-time " during dinner. She loves it. I keep up with the tummy time and work with her on sitting up. I think we'll find that our little ones will develop normally - my was 5 weeks early and is even caught up, shoes and all It's been my experience that if we want the best medical care for ourselves and our children, we must be proactive and educate ourselves. It's so important for us to know how the treatment should work and when we have questions for our doctors, to get those questions answered. You should not feel rushed during your visits and your doctor should be answering your questions clearly - maybe even providing some information in writing. Listen to your intuition... Of course the babies aren't going to want to wear the fab! Any baby who is not having " issues " with it at some point will. While is happy in them now, she still kicks out of them sometimes and fusses and kicks occasionally. My #1 tip - prevent blisters! , Judith (3), (5 months, FAB 23hrs) > > > > Geeze, another doctor not prescribing the FAB correctly! > Rrrggg! The whole success of the method depends on your FAB > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!) > > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr. > Ponseti's protocol prescribes the children wear the FAB 23 hours a > day 7 days a week for 3 months. At that point it is reduced to 18 > hours a day - crap I have crazy screaming kids here, hard to > concentrate....um... help me out gang, is it 18 hours until they > bear weight? Then down to 14 hours a day, minimum of 12 till they > graduate from it at around age 4 years old. I know the exact > directions are here somewhere and if someone doesn't pipe up with it > you can probably locate it in the Files. > > > > The FAB does not interfer with normal development when worn > according to Dr. P's prescription for use. Your baby will roll, sit > up, crawl, cruise, everything normally (provided there isn't some > other issue at work besides clubfoot). Some children roll and sit > up earlier than normal due to it's use. > > > > Saying some kids don't tolerate it is a cop out in my opinion. > Who gives them the choice? Oh sure some kids may hate the dang > thing once in a while, but they hate holding hands crossing busy > streets, too, but do we let them run loose in traffic?? If he hated > diaper changes would you let him run around poopy? They don 't > know what's good for them, that's why they have parents. > > > > What aggrivates me is what sounds like your doctor's lack of > support in this area, almost giving the parents permission to not > use the FAB which is going to lead to horrible results later on. I > venture it is the doctor's own ignorance at work here and Cheers to > you for educating yourself as a parent! > > > > The main thing to keep in mind is that the FAB becomes your > child's " Normal " . We were talking about this just recently - they > grow up in it, it's part of them, part of their world, their life, > their everything. Before too long it will really be little moer > than an extension of the child's pajamas. My little son here just > turned 2 years old. Once he gets his FAB on at night he can hardly > keep his eyes open, it's so normal to him that the shoes go on for > bed. And in the morning soon as he eats his breakfast he knows they > come back off. > > > > I'm sorry to rant and rave, I really don't mean to, and I'm so > glad to have you in the group here. It's the doctors who don't > support the parents in their use of the FAB that really aggrivate me > because with out the brace, these corrected children revert back to > being club footed. > > > > Best of luck to you! > > s. > > DBB Question > > > > > > Hello Everyone, > > > > I have a three month old son named with moderate left > > clubfoot who is currently wearing the DBB. He had 5 weeks of > casts > > (starting on day 4 of life) and then on week 6 starting wearing > the > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > for > > 23 hours a day. We went for his checkup today and the doctor said > > that his foot looks good so far and to come back in 2 1/2 months. > > He said that we should try to keep wearing the DBB for the > 23 > > hours as long as possible but can start to cutdown on the hours > once > > it beings to interfere with his development. How do I know when > > this is? How many hours should he wear the bar once it is not 23 > > hours anymore? I asked the questions but did not really get a > good > > answer on what we should be doing. Or maybe I just did not > > understand. My doctor said a lot of times the babies just do not > > want to wear the bars anymore or have issues with them. So far > > is doing pretty well so I want to keep him wearing them as > > much as possible since I am afraid of relapse but I do not want to > > interfere with his normal development. > > > > Thank you, > > Stacey > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I'd be apprehensive about going from 23 hours down to sleep time so suddenly. I don't understand how an x-ray could determine this becasue the FAB isn't doing any correcting, it is only used to maintain the correction achieved through casting. It always worries me when doctors reduce the FAB time and / or don't support parents to use it full time according to Ponseti Protocol - reason being that there will be a higher than average number of babies relapsing due to a lack of FAB use, and that alone will destroy much of Ponseti's reputation for being 95% effective. s. ----- My little girl also has a moderate left club foot. Her club foot is set to 70 degrees and the the other foot at 45. She's in the shoes 23 hours - this is for 3 months. Next week her foot will be x-rayed, and her doc will determine how long she'll need to be in her shoes. She mentioned at the last appointment a month ago that she might be able to go to nights only at that point. I'm a little apprehensive about going from 23 to nights only immediately. I'll be talking with her about gradually getting to nights only. I'm a little bit surprised that the doctor doesn't want to see your son for 2.5 months. We have monthly check-ups. My daughter just turned 5 months, and the casts and fab do not seem to be interfering with her development. In fact, her legs are incredibly strong! I think it's from lifting those heavy shoes!!! I can stand her up in my lap and she practically does so on her own! I also put her in her exer saucer during part of the " off-time " during dinner. She loves it. I keep up with the tummy time and work with her on sitting up. I think we'll find that our little ones will develop normally - my was 5 weeks early and is even caught up, shoes and all It's been my experience that if we want the best medical care for ourselves and our children, we must be proactive and educate ourselves. It's so important for us to know how the treatment should work and when we have questions for our doctors, to get those questions answered. You should not feel rushed during your visits and your doctor should be answering your questions clearly - maybe even providing some information in writing. Listen to your intuition... Of course the babies aren't going to want to wear the fab! Any baby who is not having " issues " with it at some point will. While is happy in them now, she still kicks out of them sometimes and fusses and kicks occasionally. My #1 tip - prevent blisters! , Judith (3), (5 months, FAB 23hrs) > > > > Geeze, another doctor not prescribing the FAB correctly! > Rrrggg! The whole success of the method depends on your FAB > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!) > > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr. > Ponseti's protocol prescribes the children wear the FAB 23 hours a > day 7 days a week for 3 months. At that point it is reduced to 18 > hours a day - crap I have crazy screaming kids here, hard to > concentrate....um... help me out gang, is it 18 hours until they > bear weight? Then down to 14 hours a day, minimum of 12 till they > graduate from it at around age 4 years old. I know the exact > directions are here somewhere and if someone doesn't pipe up with it > you can probably locate it in the Files. > > > > The FAB does not interfer with normal development when worn > according to Dr. P's prescription for use. Your baby will roll, sit > up, crawl, cruise, everything normally (provided there isn't some > other issue at work besides clubfoot). Some children roll and sit > up earlier than normal due to it's use. > > > > Saying some kids don't tolerate it is a cop out in my opinion. > Who gives them the choice? Oh sure some kids may hate the dang > thing once in a while, but they hate holding hands crossing busy > streets, too, but do we let them run loose in traffic?? If he hated > diaper changes would you let him run around poopy? They don 't > know what's good for them, that's why they have parents. > > > > What aggrivates me is what sounds like your doctor's lack of > support in this area, almost giving the parents permission to not > use the FAB which is going to lead to horrible results later on. I > venture it is the doctor's own ignorance at work here and Cheers to > you for educating yourself as a parent! > > > > The main thing to keep in mind is that the FAB becomes your > child's " Normal " . We were talking about this just recently - they > grow up in it, it's part of them, part of their world, their life, > their everything. Before too long it will really be little moer > than an extension of the child's pajamas. My little son here just > turned 2 years old. Once he gets his FAB on at night he can hardly > keep his eyes open, it's so normal to him that the shoes go on for > bed. And in the morning soon as he eats his breakfast he knows they > come back off. > > > > I'm sorry to rant and rave, I really don't mean to, and I'm so > glad to have you in the group here. It's the doctors who don't > support the parents in their use of the FAB that really aggrivate me > because with out the brace, these corrected children revert back to > being club footed. > > > > Best of luck to you! > > s. > > DBB Question > > > > > > Hello Everyone, > > > > I have a three month old son named with moderate left > > clubfoot who is currently wearing the DBB. He had 5 weeks of > casts > > (starting on day 4 of life) and then on week 6 starting wearing > the > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > for > > 23 hours a day. We went for his checkup today and the doctor said > > that his foot looks good so far and to come back in 2 1/2 months. > > He said that we should try to keep wearing the DBB for the > 23 > > hours as long as possible but can start to cutdown on the hours > once > > it beings to interfere with his development. How do I know when > > this is? How many hours should he wear the bar once it is not 23 > > hours anymore? I asked the questions but did not really get a > good > > answer on what we should be doing. Or maybe I just did not > > understand. My doctor said a lot of times the babies just do not > > want to wear the bars anymore or have issues with them. So far > > is doing pretty well so I want to keep him wearing them as > > much as possible since I am afraid of relapse but I do not want to > > interfere with his normal development. > > > > Thank you, > > Stacey > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 My little girl also has a moderate left club foot. Her club foot is set to 70 degrees and the the other foot at 45. She's in the shoes 23 hours - this is for 3 months. Next week her foot will be x-rayed, and her doc will determine how long she'll need to be in her shoes. She mentioned at the last appointment a month ago that she might be able to go to nights only at that point. I'm a little apprehensive about going from 23 to nights only immediately. I'll be talking with her about gradually getting to nights only. I'm a little bit surprised that the doctor doesn't want to see your son for 2.5 months. We have monthly check-ups. My daughter just turned 5 months, and the casts and fab do not seem to be interfering with her development. In fact, her legs are incredibly strong! I think it's from lifting those heavy shoes!!! I can stand her up in my lap and she practically does so on her own! I also put her in her exer saucer during part of the " off-time " during dinner. She loves it. I keep up with the tummy time and work with her on sitting up. I think we'll find that our little ones will develop normally - my was 5 weeks early and is even caught up, shoes and all It's been my experience that if we want the best medical care for ourselves and our children, we must be proactive and educate ourselves. It's so important for us to know how the treatment should work and when we have questions for our doctors, to get those questions answered. You should not feel rushed during your visits and your doctor should be answering your questions clearly - maybe even providing some information in writing. Listen to your intuition... Of course the babies aren't going to want to wear the fab! Any baby who is not having " issues " with it at some point will. While is happy in them now, she still kicks out of them sometimes and fusses and kicks occasionally. My #1 tip - prevent blisters! , Judith (3), (5 months, FAB 23hrs) > > > > Geeze, another doctor not prescribing the FAB correctly! > Rrrggg! The whole success of the method depends on your FAB > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!) > > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr. > Ponseti's protocol prescribes the children wear the FAB 23 hours a > day 7 days a week for 3 months. At that point it is reduced to 18 > hours a day - crap I have crazy screaming kids here, hard to > concentrate....um... help me out gang, is it 18 hours until they > bear weight? Then down to 14 hours a day, minimum of 12 till they > graduate from it at around age 4 years old. I know the exact > directions are here somewhere and if someone doesn't pipe up with it > you can probably locate it in the Files. > > > > The FAB does not interfer with normal development when worn > according to Dr. P's prescription for use. Your baby will roll, sit > up, crawl, cruise, everything normally (provided there isn't some > other issue at work besides clubfoot). Some children roll and sit > up earlier than normal due to it's use. > > > > Saying some kids don't tolerate it is a cop out in my opinion. > Who gives them the choice? Oh sure some kids may hate the dang > thing once in a while, but they hate holding hands crossing busy > streets, too, but do we let them run loose in traffic?? If he hated > diaper changes would you let him run around poopy? They don 't > know what's good for them, that's why they have parents. > > > > What aggrivates me is what sounds like your doctor's lack of > support in this area, almost giving the parents permission to not > use the FAB which is going to lead to horrible results later on. I > venture it is the doctor's own ignorance at work here and Cheers to > you for educating yourself as a parent! > > > > The main thing to keep in mind is that the FAB becomes your > child's " Normal " . We were talking about this just recently - they > grow up in it, it's part of them, part of their world, their life, > their everything. Before too long it will really be little moer > than an extension of the child's pajamas. My little son here just > turned 2 years old. Once he gets his FAB on at night he can hardly > keep his eyes open, it's so normal to him that the shoes go on for > bed. And in the morning soon as he eats his breakfast he knows they > come back off. > > > > I'm sorry to rant and rave, I really don't mean to, and I'm so > glad to have you in the group here. It's the doctors who don't > support the parents in their use of the FAB that really aggrivate me > because with out the brace, these corrected children revert back to > being club footed. > > > > Best of luck to you! > > s. > > DBB Question > > > > > > Hello Everyone, > > > > I have a three month old son named with moderate left > > clubfoot who is currently wearing the DBB. He had 5 weeks of > casts > > (starting on day 4 of life) and then on week 6 starting wearing > the > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > for > > 23 hours a day. We went for his checkup today and the doctor said > > that his foot looks good so far and to come back in 2 1/2 months. > > He said that we should try to keep wearing the DBB for the > 23 > > hours as long as possible but can start to cutdown on the hours > once > > it beings to interfere with his development. How do I know when > > this is? How many hours should he wear the bar once it is not 23 > > hours anymore? I asked the questions but did not really get a > good > > answer on what we should be doing. Or maybe I just did not > > understand. My doctor said a lot of times the babies just do not > > want to wear the bars anymore or have issues with them. So far > > is doing pretty well so I want to keep him wearing them as > > much as possible since I am afraid of relapse but I do not want to > > interfere with his normal development. > > > > Thank you, > > Stacey > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 My little girl also has a moderate left club foot. Her club foot is set to 70 degrees and the the other foot at 45. She's in the shoes 23 hours - this is for 3 months. Next week her foot will be x-rayed, and her doc will determine how long she'll need to be in her shoes. She mentioned at the last appointment a month ago that she might be able to go to nights only at that point. I'm a little apprehensive about going from 23 to nights only immediately. I'll be talking with her about gradually getting to nights only. I'm a little bit surprised that the doctor doesn't want to see your son for 2.5 months. We have monthly check-ups. My daughter just turned 5 months, and the casts and fab do not seem to be interfering with her development. In fact, her legs are incredibly strong! I think it's from lifting those heavy shoes!!! I can stand her up in my lap and she practically does so on her own! I also put her in her exer saucer during part of the " off-time " during dinner. She loves it. I keep up with the tummy time and work with her on sitting up. I think we'll find that our little ones will develop normally - my was 5 weeks early and is even caught up, shoes and all It's been my experience that if we want the best medical care for ourselves and our children, we must be proactive and educate ourselves. It's so important for us to know how the treatment should work and when we have questions for our doctors, to get those questions answered. You should not feel rushed during your visits and your doctor should be answering your questions clearly - maybe even providing some information in writing. Listen to your intuition... Of course the babies aren't going to want to wear the fab! Any baby who is not having " issues " with it at some point will. While is happy in them now, she still kicks out of them sometimes and fusses and kicks occasionally. My #1 tip - prevent blisters! , Judith (3), (5 months, FAB 23hrs) > > > > Geeze, another doctor not prescribing the FAB correctly! > Rrrggg! The whole success of the method depends on your FAB > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!) > > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr. > Ponseti's protocol prescribes the children wear the FAB 23 hours a > day 7 days a week for 3 months. At that point it is reduced to 18 > hours a day - crap I have crazy screaming kids here, hard to > concentrate....um... help me out gang, is it 18 hours until they > bear weight? Then down to 14 hours a day, minimum of 12 till they > graduate from it at around age 4 years old. I know the exact > directions are here somewhere and if someone doesn't pipe up with it > you can probably locate it in the Files. > > > > The FAB does not interfer with normal development when worn > according to Dr. P's prescription for use. Your baby will roll, sit > up, crawl, cruise, everything normally (provided there isn't some > other issue at work besides clubfoot). Some children roll and sit > up earlier than normal due to it's use. > > > > Saying some kids don't tolerate it is a cop out in my opinion. > Who gives them the choice? Oh sure some kids may hate the dang > thing once in a while, but they hate holding hands crossing busy > streets, too, but do we let them run loose in traffic?? If he hated > diaper changes would you let him run around poopy? They don 't > know what's good for them, that's why they have parents. > > > > What aggrivates me is what sounds like your doctor's lack of > support in this area, almost giving the parents permission to not > use the FAB which is going to lead to horrible results later on. I > venture it is the doctor's own ignorance at work here and Cheers to > you for educating yourself as a parent! > > > > The main thing to keep in mind is that the FAB becomes your > child's " Normal " . We were talking about this just recently - they > grow up in it, it's part of them, part of their world, their life, > their everything. Before too long it will really be little moer > than an extension of the child's pajamas. My little son here just > turned 2 years old. Once he gets his FAB on at night he can hardly > keep his eyes open, it's so normal to him that the shoes go on for > bed. And in the morning soon as he eats his breakfast he knows they > come back off. > > > > I'm sorry to rant and rave, I really don't mean to, and I'm so > glad to have you in the group here. It's the doctors who don't > support the parents in their use of the FAB that really aggrivate me > because with out the brace, these corrected children revert back to > being club footed. > > > > Best of luck to you! > > s. > > DBB Question > > > > > > Hello Everyone, > > > > I have a three month old son named with moderate left > > clubfoot who is currently wearing the DBB. He had 5 weeks of > casts > > (starting on day 4 of life) and then on week 6 starting wearing > the > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > for > > 23 hours a day. We went for his checkup today and the doctor said > > that his foot looks good so far and to come back in 2 1/2 months. > > He said that we should try to keep wearing the DBB for the > 23 > > hours as long as possible but can start to cutdown on the hours > once > > it beings to interfere with his development. How do I know when > > this is? How many hours should he wear the bar once it is not 23 > > hours anymore? I asked the questions but did not really get a > good > > answer on what we should be doing. Or maybe I just did not > > understand. My doctor said a lot of times the babies just do not > > want to wear the bars anymore or have issues with them. So far > > is doing pretty well so I want to keep him wearing them as > > much as possible since I am afraid of relapse but I do not want to > > interfere with his normal development. > > > > Thank you, > > Stacey > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2005 Report Share Posted October 8, 2005 Well as long as the gold bar is fitting....but maybe when he out grows it you can get the red adjustable style. You can pad the bar, getting as creative or simple as you want. A lot of us have wrapped pipe insulation foam around it and taped it in place; others have sewn beautiful washable covers. s. DBB Question > > > > > > Hello Everyone, > > > > I have a three month old son named with moderate left > > clubfoot who is currently wearing the DBB. He had 5 weeks of > casts > > (starting on day 4 of life) and then on week 6 starting wearing > the > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > for > > 23 hours a day. We went for his checkup today and the doctor said > > that his foot looks good so far and to come back in 2 1/2 months. > > He said that we should try to keep wearing the DBB for the > 23 > > hours as long as possible but can start to cutdown on the hours > once > > it beings to interfere with his development. How do I know when > > this is? How many hours should he wear the bar once it is not 23 > > hours anymore? I asked the questions but did not really get a > good > > answer on what we should be doing. Or maybe I just did not > > understand. My doctor said a lot of times the babies just do not > > want to wear the bars anymore or have issues with them. So far > > is doing pretty well so I want to keep him wearing them as > > much as possible since I am afraid of relapse but I do not want to > > interfere with his normal development. > > > > Thank you, > > Stacey > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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