Re: Kris- Leigh's and regular toddler issues...!!

[Guest guest]

I have wanted to respond to this message for a while but have been

putting it off for a better time. I want to let you know that there

definitely are many of us dealing with the same issues and we too also

struggle with the " how to's " and the " should I " of punishing our kids who

display the autistic/OCD disorders. Asenath can drive us nuts at times

especially the couple months following a cognitive stroke. She becomes

hyperactive, obsessive with things being " just so, " with losing something

and screaming because she thinks it's gone forever, of the repetitiveness of

her words and actions, etc. I definitely feel guilt at times when needing

to sit her down and wonder if she needs punished as it seems to be out of

her control at times, but then if you ignore the situation and don't do

anything then will it cause her to get worse when she can control it? The

questions are endless in that area.

I think there are really no clear cut answers for us to known when to

punish and when not to. We have to have some control but yet be

understanding as well. This is an area I have struggled with many times and

I know when dealing with the bad days you just wish there was something we

could DO to change them, to fix them, but we do the best we can as parents.

I just wanted to let you know you weren't alone in this one.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

[Guest guest]

I have wanted to respond to this message for a while but have been

putting it off for a better time. I want to let you know that there

definitely are many of us dealing with the same issues and we too also

struggle with the " how to's " and the " should I " of punishing our kids who

display the autistic/OCD disorders. Asenath can drive us nuts at times

especially the couple months following a cognitive stroke. She becomes

hyperactive, obsessive with things being " just so, " with losing something

and screaming because she thinks it's gone forever, of the repetitiveness of

her words and actions, etc. I definitely feel guilt at times when needing

to sit her down and wonder if she needs punished as it seems to be out of

her control at times, but then if you ignore the situation and don't do

anything then will it cause her to get worse when she can control it? The

questions are endless in that area.

I think there are really no clear cut answers for us to known when to

punish and when not to. We have to have some control but yet be

understanding as well. This is an area I have struggled with many times and

I know when dealing with the bad days you just wish there was something we

could DO to change them, to fix them, but we do the best we can as parents.

I just wanted to let you know you weren't alone in this one.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)