I need to find a doctor in Tampa

[Guest guest]

Hey guys, I'm new to this online communication so please be gentle

if I mess up the protocol. My daughter Rachael was diagnosed at

Emory with Complex I mitochondrial myopathy when she was 16.

Despite being in pain most of the time she graduated from UF with

her masters degree last spring and is now working for an accounting

firm in Tampa. For most of this period she just took her Q-10,

gritted her teeth and lived with the pain. She just moved to Tampa,

her job is extremely stressful and this has had a serious effect on

her health. She is in extreme pain, having muscle spasms and is

seriously fatigued. It is taking all of her energy to just complete

her work day and her condition is rapidly deteriorating. Last

evening walking was even a problem. Because she just moved, she has

no specialist and no primary care physician in the area. Does

anyone know of a doctor in the Tampa area that might be able to

facilitate her receiving some evaluation and treatment on near-term

basis. She needs to have her Q-10 blood levels checked and she

needs to see someone quickly, not make an appoinment for 2-3 months

down the road. Any suggestions. We'd be very grateful.

[Guest guest]

Hey guys, I'm new to this online communication so please be gentle

if I mess up the protocol. My daughter Rachael was diagnosed at

Emory with Complex I mitochondrial myopathy when she was 16.

Despite being in pain most of the time she graduated from UF with

her masters degree last spring and is now working for an accounting

firm in Tampa. For most of this period she just took her Q-10,

gritted her teeth and lived with the pain. She just moved to Tampa,

her job is extremely stressful and this has had a serious effect on

her health. She is in extreme pain, having muscle spasms and is

seriously fatigued. It is taking all of her energy to just complete

her work day and her condition is rapidly deteriorating. Last

evening walking was even a problem. Because she just moved, she has

no specialist and no primary care physician in the area. Does

anyone know of a doctor in the Tampa area that might be able to

facilitate her receiving some evaluation and treatment on near-term

basis. She needs to have her Q-10 blood levels checked and she

needs to see someone quickly, not make an appoinment for 2-3 months

down the road. Any suggestions. We'd be very grateful.

[Guest guest]

Hi ,

I live in Bradenton which is south of your daughter by about 35-45 minutes. I'm 35 and have Complex 1,3,4 and 5 and what appears to be a Kearns-Sayre variant. I see Dr J. Terry Petrella in Sarasota and would highly recommend her. She does the MDA clinic appointments down here but also has a private practice. The MDA office is in St. Pete and can schedule a clinic appointment but I'm not sure how far away. Their # is . The clinic is free if you have no insurance but she might have to wait. If she has insurance, Dr Petrella can probably get her in much sooner. Her # is . She would be worth the drive. I have also seen Dr. Esparza (a neuro) in Bradenton. His # is . He isn't a mito specialist but does know of the disease and is pretty good. I haven't had good luck with the docs in Tampa but there may be some I haven't heard of. The MDA office may be able to refer her to someone else. I have a friend who is a family doc in the St Pete/Largo area. He is in his 30s, is smart and has a good bedside manner. He knows about mito. I would highly recommend him as a PCP. His name is Dr Bruno and his # is . He is with Feather Sound Medical Assoc. All of these docs can set up scheduled blood draws so that she can have her levels checked on a regular basis. I have them set up for myself. If she would like someone to talk to down here, have her e-mail or call me-- . I have unlimited long distance and can call her back so it isn't long distance. I've been thinking of setting up a support group on the west coast here for awhile. There is one on the east coast but its quite a drive. Let me know if she is interested. I'm not sure if you know this but there is another yahoo mito group like the one you posted to called that is for the over 21 crowd. I belong to both. We also have online chats on Monday evenings at 9 at http://www.mdausa.org/chat/index.html . We actually have a lot of fun and learn a lot from each other. I hope this helps. If you want more info, please feel free to ask.

[Guest guest]

Hi ,

I live in Bradenton which is south of your daughter by about 35-45 minutes. I'm 35 and have Complex 1,3,4 and 5 and what appears to be a Kearns-Sayre variant. I see Dr J. Terry Petrella in Sarasota and would highly recommend her. She does the MDA clinic appointments down here but also has a private practice. The MDA office is in St. Pete and can schedule a clinic appointment but I'm not sure how far away. Their # is . The clinic is free if you have no insurance but she might have to wait. If she has insurance, Dr Petrella can probably get her in much sooner. Her # is . She would be worth the drive. I have also seen Dr. Esparza (a neuro) in Bradenton. His # is . He isn't a mito specialist but does know of the disease and is pretty good. I haven't had good luck with the docs in Tampa but there may be some I haven't heard of. The MDA office may be able to refer her to someone else. I have a friend who is a family doc in the St Pete/Largo area. He is in his 30s, is smart and has a good bedside manner. He knows about mito. I would highly recommend him as a PCP. His name is Dr Bruno and his # is . He is with Feather Sound Medical Assoc. All of these docs can set up scheduled blood draws so that she can have her levels checked on a regular basis. I have them set up for myself. If she would like someone to talk to down here, have her e-mail or call me-- . I have unlimited long distance and can call her back so it isn't long distance. I've been thinking of setting up a support group on the west coast here for awhile. There is one on the east coast but its quite a drive. Let me know if she is interested. I'm not sure if you know this but there is another yahoo mito group like the one you posted to called that is for the over 21 crowd. I belong to both. We also have online chats on Monday evenings at 9 at http://www.mdausa.org/chat/index.html . We actually have a lot of fun and learn a lot from each other. I hope this helps. If you want more info, please feel free to ask.

[Guest guest]

Dear ,

Thanks so much for the information. I called the MDA yesterday and they are sending me the papers to register Rachael. She has an appointment with a Dr. Casa Duval on Wednesday. I know nothing about him. He is a primary care doc. I hope he is alright because I will not be there and Rachael does not suffer fools well. I have forwarded your email to her and she may want to talk to you directly about finding a Mito doc. The MDA recommended two down in St. Pete--Weiss or lin who are in practice together. Do you know them? Thanks again for your help.

Re: I need to find a doctor in Tampa

Hi ,

I live in Bradenton which is south of your daughter by about 35-45 minutes. I'm 35 and have Complex 1,3,4 and 5 and what appears to be a Kearns-Sayre variant. I see Dr J. Terry Petrella in Sarasota and would highly recommend her. She does the MDA clinic appointments down here but also has a private practice. The MDA office is in St. Pete and can schedule a clinic appointment but I'm not sure how far away. Their # is . The clinic is free if you have no insurance but she might have to wait. If she has insurance, Dr Petrella can probably get her in much sooner. Her # is . She would be worth the drive. I have also seen Dr. Esparza (a neuro) in Bradenton. His # is . He isn't a mito specialist but does know of the disease and is pretty good. I haven't had good luck with the docs in Tampa but there may be some I haven't heard of. The MDA office may be able to refer her to someone else. I have a friend who is a family doc in the St Pete/Largo area. He is in his 30s, is smart and has a good bedside manner. He knows about mito. I would highly recommend him as a PCP. His name is Dr Bruno and his # is . He is with Feather Sound Medical Assoc. All of these docs can set up scheduled blood draws so that she can have her levels checked on a regular basis. I have them set up for myself. If she would like someone to talk to down here, have her e-mail or call me-- . I have unlimited long distance and can call her back so it isn't long distance. I've been thinking of setting up a support group on the west coast here for awhile. There is one on the east coast but its quite a drive. Let me know if she is interested. I'm not sure if you know this but there is another yahoo mito group like the one you posted to called that is for the over 21 crowd. I belong to both. We also have online chats on Monday evenings at 9 at http://www.mdausa.org/chat/index.html . We actually have a lot of fun and learn a lot from each other. I hope this helps. If you want more info, please feel free to ask.

Please contact mito-owner with any problems or questions.