Jump to content
RemedySpot.com

need advice after meeting with ped ortho

Rate this topic


Guest guest

Recommended Posts

Guest guest

Kelsey's casts were unwrapped or snipped with scissors

for removal. The only time they used the saw was for

the fiberglass. I much preferred the soaking and

removal in this manner in the office as compared to

the saw even though we did have a wet trip (we live 1

hour from Doctor's office).

Jenni

--- and Jen wrote:

> Actually, they are not unwrapped, they are cut with

> a knife.

>

> How the casts are removed is something that you need

> to question your doctor about. Having had both

> methods done, we actually prefer the saw. Livie had

> her casts sawn off with her first ortho. She hated

> the sound of the saw, but it was over relatively

> quickly. She does have one scar from a saw burn,

> but it is not so apparent 3.5 years later.

>

> Dr. Ponseti had us soak her casts before each

> appointment. Doesn't sound so bad, but Livie

> absolutely hated it. She screamed uncontrollably

> through all 20-30 minutes of soaking. Then we had

> to wrap them in plastic bags and/or wet towels for

> transport to the hospital. She would quiet down on

> the way there, but invariably ended up with a

> soaking wet outfit, diaper, car seat, etc., no

> matter how well we kept them covered. We took extra

> clothes to change into and padded her car seat to

> try to keep it from getting wet, but we usually had

> to change her again when we got back as the moisture

> in the seat soaked into her dry clothes. She also

> hated the cutting with a knife. No loud noise, but

> the nurse would stick her fingers down into the top

> of the cast and feel while she was cutting so that

> she didn't cut Livie's leg. Livie hated that too.

> She would work herself all up again and it got

> difficult to keep her still the older she got. And

> it took longer to get it off than just sawing did.

>

> Both methods have advantages and disadvantages. I

> understand Dr. Ponseti's preference for soaking

> because presumably it is less stressful for the baby

> without the loud noise of the cast saw, but some

> babies are going to have problems no matter how you

> take that cast off. Some babies just don't like to

> be messed with.

>

> Jen & Livie (10-18-01 severe left clubfoot)

> Re: Re: need advice

> after meeting with ped ortho

>

>

> Oh, one thing about plaster casts and that

> wretched saw: Gabe HATED the saw! You really have to

> make sure that the tech who does the cutting is

> Super careful. They can burn their

> little-over-sensetive legs with it or even cut them.

> Gabe has 4 scars on his legs from a tech being

> careless.. he wwent right past buring and on to

> cutting... That was a year ago and the scars from it

> are still very apparent. The way Ponseti does it,

> you soak the casts till they are soft, them wrap

> them in plastic bags. Then the casts are unwrapped

> right there in the office.

> faith slattery wrote:Hi

> Krishna! You have an awesome name by the way...I

> have to agree with Daiga on all aspects. Ponseti

> doesnt like the soft fiberglass cast because he

> feels like he loses some ability to mold them

> just-so, but several docs have switched to them and

> seem quite plese withthe results.Gabe had both. He

> HATED the plaster cast Ponseti used beause they were

> so heavy and bulky... the fiberglass he was fine

> with wearing. I haven't really formulated about

> either... Ponseti like plaster, so in the end that's

> what we went with... On the other hand, Gabe's feet

> never looked better than they did after Ponseti's

> plaster casting... So,... As for the short casts: If

> your child needs a tenotomy, which he/she probably

> will, without the long casts, they will never stay

> on... especially before the tenotomy is done. You be

> in the office nearly constanly because of slipped

> casts, although the fiberglass casts did seem to

> stay on better, due , I think, in part to the

> sheer weight of the plaster casts (pulling

> on them during diaper changes...the yanking motion

> of your child kicking). As for athletics, stay on

> the board for a while and you'll notice several

> adult clubfooters who not only lead athletic lives,

> but were treated with surgical methods, although

> must write in during their mid-twenties to complain

> of chronic foot pain now.

>

> Daiga Grady wrote:Hi

> Krishna,

>

> Thank goodness that you have the opportunity to

> consult with ped.

> orthos before you use them! Yes, you are right,

> this doctor's

> answers certainly sent up some red flags:

>

> 1. This answer in and of itself is, in my opinion

> not indicative of

> a necessarily 'bad' doctor. Many doctors who are

> using the method

> successfully today are not 'Ponseti certified' but

> this is because

> they have not yet met Dr. Ponseti's requirements

> for certification.

> From what I understand they need to submit a

> number of their patient

> cases (with correction results) to Dr. Ponseti for

> review before he

> will list them on his website. We have however

> learned that there

> are in fact some doctors who are listed on Dr.

> Ponseti's website who

> are not using the method as it was written but are

> reinventing

> certain aspects of the treatment. Certainly this

> makes it more

> difficult for parents to find a doctor who truely

> uses the method

> unmodified. Again, it's important to stress that

> parents need to

> educated themselves about all components of the

> method so that they

> can ensure that their child is receiving the

> proper care and

> treatment.

>

> 2. Some doctors in fact are using fiberglass

> casts and achieving the

> same 95% success rate. I think it depends upon

> the doctors ability

> to mold the cast correctly. What I find upsetting

> is the fact that

> this doctor stops using long leg casts and

> switches to (I'm assuming)

> short leg casts. This is problematic and is one

> of doctors " common

> errors " that Dr. Ponseti sites on his webpage.

> Short leg casts allow

> for too much mobility within the cast which can

> lead to the

> child 'undoing' the manipulation and possibly

> doing more harm than

> good.

>

> 3. Yes, Dr. Ponseti overcorrects the foot in the

> last cast. He

> explains why this is necessary on his website. It

> is because the

> foot has a tendency to return to it's original

> position and the

> overcorrection allows for the foot to return to

> 'neutral' rather than

> turned back in once treatment is completed (after

> the follow-up

> bracing period is over - 3-4 years).

>

> 4. Again, I refer to Dr. Ponseti's website and

> his quote: Parents

> of infants born with clubfeet may be reassured

> that their baby, if

> otherwise normal, when treated by expert hands

> will have normal

> looking feet with normal function for all

> practical purposes. The

> well-treated clubfoot is no handicap and is fully

> compatible with a

> normal, active life. " This doctor is just

> covering his tracks in

> case his method (which does not seem to be

> Ponseti) fails.

>

> Meet with another doctor and don't settle until

> you feel comfortable

> with the doctor who will be treating your child.

> Go with your gut

> and peace of mind will follow!

>

> Hope this helps,

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/7

>

>

> > Hi Everyone-

> > I am a new to the group and I want your thoughts

> about my

> experience

> > with a pediatric ortho today. Just some

> background on myself, I am

> > currently 33 weeks pregnant with our first

> child. We found out at

> > our 26 week ultrasound that our baby has bcf

> (this was a second

> > opinion ultrasound referred by doc). Met with

> ortho this morning.

> I

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions – no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

Wow, didn't mean to cause a hubbub! Upon re-reading my earlier message I

realize that I sounded a trifle snotty. I sincerely apologize as that was not

my intent.

I guess the point that I was trying to make is that there are many ways to

remove a cast and not all babies are going to do the same with each method.

We happen to prefer the sawing based on our experiences, but it's perfectly okay

for others to prefer soaking and cutting or soaking and unwrapping. Of the four

casts that Livie had as an infant in Iowa none of them were unwrapped, they were

all cut with a knife. But that was over three years ago, maybe things have

changed. Her most recent cast last year for a relapse had to be sawed because

it was reinforced with fiberglass over the plaster.

I'm glad that we have this place where we can all share our experiences and

allow others to make informed decisions about the treatment of their chlidren!

Sorry if I offended.

Jen & Livie (10-18-01 severe left clubfoot)

Re: Re: need advice

> after meeting with ped ortho

>

>

> Oh, one thing about plaster casts and that

> wretched saw: Gabe HATED the saw! You really have to

> make sure that the tech who does the cutting is

> Super careful. They can burn their

> little-over-sensetive legs with it or even cut them.

> Gabe has 4 scars on his legs from a tech being

> careless.. he wwent right past buring and on to

> cutting... That was a year ago and the scars from it

> are still very apparent. The way Ponseti does it,

> you soak the casts till they are soft, them wrap

> them in plastic bags. Then the casts are unwrapped

> right there in the office.

> faith slattery wrote:Hi

> Krishna! You have an awesome name by the way...I

> have to agree with Daiga on all aspects. Ponseti

> doesnt like the soft fiberglass cast because he

> feels like he loses some ability to mold them

> just-so, but several docs have switched to them and

> seem quite plese withthe results.Gabe had both. He

> HATED the plaster cast Ponseti used beause they were

> so heavy and bulky... the fiberglass he was fine

> with wearing. I haven't really formulated about

> either... Ponseti like plaster, so in the end that's

> what we went with... On the other hand, Gabe's feet

> never looked better than they did after Ponseti's

> plaster casting... So,... As for the short casts: If

> your child needs a tenotomy, which he/she probably

> will, without the long casts, they will never stay

> on... especially before the tenotomy is done. You be

> in the office nearly constanly because of slipped

> casts, although the fiberglass casts did seem to

> stay on better, due , I think, in part to the

> sheer weight of the plaster casts (pulling

> on them during diaper changes...the yanking motion

> of your child kicking). As for athletics, stay on

> the board for a while and you'll notice several

> adult clubfooters who not only lead athletic lives,

> but were treated with surgical methods, although

> must write in during their mid-twenties to complain

> of chronic foot pain now.

>

> Daiga Grady wrote:Hi

> Krishna,

>

> Thank goodness that you have the opportunity to

> consult with ped.

> orthos before you use them! Yes, you are right,

> this doctor's

> answers certainly sent up some red flags:

>

> 1. This answer in and of itself is, in my opinion

> not indicative of

> a necessarily 'bad' doctor. Many doctors who are

> using the method

> successfully today are not 'Ponseti certified' but

> this is because

> they have not yet met Dr. Ponseti's requirements

> for certification.

> From what I understand they need to submit a

> number of their patient

> cases (with correction results) to Dr. Ponseti for

> review before he

> will list them on his website. We have however

> learned that there

> are in fact some doctors who are listed on Dr.

> Ponseti's website who

> are not using the method as it was written but are

> reinventing

> certain aspects of the treatment. Certainly this

> makes it more

> difficult for parents to find a doctor who truely

> uses the method

> unmodified. Again, it's important to stress that

> parents need to

> educated themselves about all components of the

> method so that they

> can ensure that their child is receiving the

> proper care and

> treatment.

>

> 2. Some doctors in fact are using fiberglass

> casts and achieving the

> same 95% success rate. I think it depends upon

> the doctors ability

> to mold the cast correctly. What I find upsetting

> is the fact that

> this doctor stops using long leg casts and

> switches to (I'm assuming)

> short leg casts. This is problematic and is one

> of doctors " common

> errors " that Dr. Ponseti sites on his webpage.

> Short leg casts allow

> for too much mobility within the cast which can

> lead to the

> child 'undoing' the manipulation and possibly

> doing more harm than

> good.

>

> 3. Yes, Dr. Ponseti overcorrects the foot in the

> last cast. He

> explains why this is necessary on his website. It

> is because the

> foot has a tendency to return to it's original

> position and the

> overcorrection allows for the foot to return to

> 'neutral' rather than

> turned back in once treatment is completed (after

> the follow-up

> bracing period is over - 3-4 years).

>

> 4. Again, I refer to Dr. Ponseti's website and

> his quote: Parents

> of infants born with clubfeet may be reassured

> that their baby, if

> otherwise normal, when treated by expert hands

> will have normal

> looking feet with normal function for all

> practical purposes. The

> well-treated clubfoot is no handicap and is fully

> compatible with a

> normal, active life. " This doctor is just

> covering his tracks in

> case his method (which does not seem to be

> Ponseti) fails.

>

> Meet with another doctor and don't settle until

> you feel comfortable

> with the doctor who will be treating your child.

> Go with your gut

> and peace of mind will follow!

>

> Hope this helps,

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/7

>

>

> > Hi Everyone-

> > I am a new to the group and I want your thoughts

> about my

> experience

> > with a pediatric ortho today. Just some

> background on myself, I am

> > currently 33 weeks pregnant with our first

> child. We found out at

> > our 26 week ultrasound that our baby has bcf

> (this was a second

> > opinion ultrasound referred by doc). Met with

> ortho this morning.

> I

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions - no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

Wow, didn't mean to cause a hubbub! Upon re-reading my earlier message I

realize that I sounded a trifle snotty. I sincerely apologize as that was not

my intent.

I guess the point that I was trying to make is that there are many ways to

remove a cast and not all babies are going to do the same with each method.

We happen to prefer the sawing based on our experiences, but it's perfectly okay

for others to prefer soaking and cutting or soaking and unwrapping. Of the four

casts that Livie had as an infant in Iowa none of them were unwrapped, they were

all cut with a knife. But that was over three years ago, maybe things have

changed. Her most recent cast last year for a relapse had to be sawed because

it was reinforced with fiberglass over the plaster.

I'm glad that we have this place where we can all share our experiences and

allow others to make informed decisions about the treatment of their chlidren!

Sorry if I offended.

Jen & Livie (10-18-01 severe left clubfoot)

Re: Re: need advice

> after meeting with ped ortho

>

>

> Oh, one thing about plaster casts and that

> wretched saw: Gabe HATED the saw! You really have to

> make sure that the tech who does the cutting is

> Super careful. They can burn their

> little-over-sensetive legs with it or even cut them.

> Gabe has 4 scars on his legs from a tech being

> careless.. he wwent right past buring and on to

> cutting... That was a year ago and the scars from it

> are still very apparent. The way Ponseti does it,

> you soak the casts till they are soft, them wrap

> them in plastic bags. Then the casts are unwrapped

> right there in the office.

> faith slattery wrote:Hi

> Krishna! You have an awesome name by the way...I

> have to agree with Daiga on all aspects. Ponseti

> doesnt like the soft fiberglass cast because he

> feels like he loses some ability to mold them

> just-so, but several docs have switched to them and

> seem quite plese withthe results.Gabe had both. He

> HATED the plaster cast Ponseti used beause they were

> so heavy and bulky... the fiberglass he was fine

> with wearing. I haven't really formulated about

> either... Ponseti like plaster, so in the end that's

> what we went with... On the other hand, Gabe's feet

> never looked better than they did after Ponseti's

> plaster casting... So,... As for the short casts: If

> your child needs a tenotomy, which he/she probably

> will, without the long casts, they will never stay

> on... especially before the tenotomy is done. You be

> in the office nearly constanly because of slipped

> casts, although the fiberglass casts did seem to

> stay on better, due , I think, in part to the

> sheer weight of the plaster casts (pulling

> on them during diaper changes...the yanking motion

> of your child kicking). As for athletics, stay on

> the board for a while and you'll notice several

> adult clubfooters who not only lead athletic lives,

> but were treated with surgical methods, although

> must write in during their mid-twenties to complain

> of chronic foot pain now.

>

> Daiga Grady wrote:Hi

> Krishna,

>

> Thank goodness that you have the opportunity to

> consult with ped.

> orthos before you use them! Yes, you are right,

> this doctor's

> answers certainly sent up some red flags:

>

> 1. This answer in and of itself is, in my opinion

> not indicative of

> a necessarily 'bad' doctor. Many doctors who are

> using the method

> successfully today are not 'Ponseti certified' but

> this is because

> they have not yet met Dr. Ponseti's requirements

> for certification.

> From what I understand they need to submit a

> number of their patient

> cases (with correction results) to Dr. Ponseti for

> review before he

> will list them on his website. We have however

> learned that there

> are in fact some doctors who are listed on Dr.

> Ponseti's website who

> are not using the method as it was written but are

> reinventing

> certain aspects of the treatment. Certainly this

> makes it more

> difficult for parents to find a doctor who truely

> uses the method

> unmodified. Again, it's important to stress that

> parents need to

> educated themselves about all components of the

> method so that they

> can ensure that their child is receiving the

> proper care and

> treatment.

>

> 2. Some doctors in fact are using fiberglass

> casts and achieving the

> same 95% success rate. I think it depends upon

> the doctors ability

> to mold the cast correctly. What I find upsetting

> is the fact that

> this doctor stops using long leg casts and

> switches to (I'm assuming)

> short leg casts. This is problematic and is one

> of doctors " common

> errors " that Dr. Ponseti sites on his webpage.

> Short leg casts allow

> for too much mobility within the cast which can

> lead to the

> child 'undoing' the manipulation and possibly

> doing more harm than

> good.

>

> 3. Yes, Dr. Ponseti overcorrects the foot in the

> last cast. He

> explains why this is necessary on his website. It

> is because the

> foot has a tendency to return to it's original

> position and the

> overcorrection allows for the foot to return to

> 'neutral' rather than

> turned back in once treatment is completed (after

> the follow-up

> bracing period is over - 3-4 years).

>

> 4. Again, I refer to Dr. Ponseti's website and

> his quote: Parents

> of infants born with clubfeet may be reassured

> that their baby, if

> otherwise normal, when treated by expert hands

> will have normal

> looking feet with normal function for all

> practical purposes. The

> well-treated clubfoot is no handicap and is fully

> compatible with a

> normal, active life. " This doctor is just

> covering his tracks in

> case his method (which does not seem to be

> Ponseti) fails.

>

> Meet with another doctor and don't settle until

> you feel comfortable

> with the doctor who will be treating your child.

> Go with your gut

> and peace of mind will follow!

>

> Hope this helps,

>

> Daiga and Owen, 02/04/03

> Unilateral LCF, FAB 14/7

>

>

> > Hi Everyone-

> > I am a new to the group and I want your thoughts

> about my

> experience

> > with a pediatric ortho today. Just some

> background on myself, I am

> > currently 33 weeks pregnant with our first

> child. We found out at

> > our 26 week ultrasound that our baby has bcf

> (this was a second

> > opinion ultrasound referred by doc). Met with

> ortho this morning.

> I

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions - no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

Right ...( two mistakes in one night; sorry) ... they are cut with a knife, but

Gabe didn't mind it nearly as much as he minded the saw. Depends on your childs

temperment I suppose... The noise and vibration of the saw terrified him. I

mentioned the scars only to indicate how badly they cut him... not the aethetics

of it...

and Jen wrote:Actually, they are not unwrapped, they

are cut with a knife.

How the casts are removed is something that you need to question your doctor

about. Having had both methods done, we actually prefer the saw. Livie had her

casts sawn off with her first ortho. She hated the sound of the saw, but it was

over relatively quickly. She does have one scar from a saw burn, but it is not

so apparent 3.5 years later.

Dr. Ponseti had us soak her casts before each appointment. Doesn't sound so

bad, but Livie absolutely hated it. She screamed uncontrollably through all

20-30 minutes of soaking. Then we had to wrap them in plastic bags and/or wet

towels for transport to the hospital. She would quiet down on the way there,

but invariably ended up with a soaking wet outfit, diaper, car seat, etc., no

matter how well we kept them covered. We took extra clothes to change into and

padded her car seat to try to keep it from getting wet, but we usually had to

change her again when we got back as the moisture in the seat soaked into her

dry clothes. She also hated the cutting with a knife. No loud noise, but the

nurse would stick her fingers down into the top of the cast and feel while she

was cutting so that she didn't cut Livie's leg. Livie hated that too. She

would work herself all up again and it got difficult to keep her still the older

she got. And it took longer to get it off than just

sawing did.

Both methods have advantages and disadvantages. I understand Dr. Ponseti's

preference for soaking because presumably it is less stressful for the baby

without the loud noise of the cast saw, but some babies are going to have

problems no matter how you take that cast off. Some babies just don't like to

be messed with.

Jen & Livie (10-18-01 severe left clubfoot)

Re: Re: need advice after meeting with ped ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to

the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking). As

for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

Right ...( two mistakes in one night; sorry) ... they are cut with a knife, but

Gabe didn't mind it nearly as much as he minded the saw. Depends on your childs

temperment I suppose... The noise and vibration of the saw terrified him. I

mentioned the scars only to indicate how badly they cut him... not the aethetics

of it...

and Jen wrote:Actually, they are not unwrapped, they

are cut with a knife.

How the casts are removed is something that you need to question your doctor

about. Having had both methods done, we actually prefer the saw. Livie had her

casts sawn off with her first ortho. She hated the sound of the saw, but it was

over relatively quickly. She does have one scar from a saw burn, but it is not

so apparent 3.5 years later.

Dr. Ponseti had us soak her casts before each appointment. Doesn't sound so

bad, but Livie absolutely hated it. She screamed uncontrollably through all

20-30 minutes of soaking. Then we had to wrap them in plastic bags and/or wet

towels for transport to the hospital. She would quiet down on the way there,

but invariably ended up with a soaking wet outfit, diaper, car seat, etc., no

matter how well we kept them covered. We took extra clothes to change into and

padded her car seat to try to keep it from getting wet, but we usually had to

change her again when we got back as the moisture in the seat soaked into her

dry clothes. She also hated the cutting with a knife. No loud noise, but the

nurse would stick her fingers down into the top of the cast and feel while she

was cutting so that she didn't cut Livie's leg. Livie hated that too. She

would work herself all up again and it got difficult to keep her still the older

she got. And it took longer to get it off than just

sawing did.

Both methods have advantages and disadvantages. I understand Dr. Ponseti's

preference for soaking because presumably it is less stressful for the baby

without the loud noise of the cast saw, but some babies are going to have

problems no matter how you take that cast off. Some babies just don't like to

be messed with.

Jen & Livie (10-18-01 severe left clubfoot)

Re: Re: need advice after meeting with ped ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to

the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking). As

for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

I didn't mean to sound huffy about the saw either... We just had all around bad

experiences with it.... which is why I called it wretched.

faith slattery wrote:Right ...( two mistakes in one night;

sorry) ... they are cut with a knife, but Gabe didn't mind it nearly as much as

he minded the saw. Depends on your childs temperment I suppose... The noise and

vibration of the saw terrified him. I mentioned the scars only to indicate how

badly they cut him... not the aethetics of it...

and Jen wrote:Actually, they are not unwrapped, they

are cut with a knife.

How the casts are removed is something that you need to question your doctor

about. Having had both methods done, we actually prefer the saw. Livie had her

casts sawn off with her first ortho. She hated the sound of the saw, but it was

over relatively quickly. She does have one scar from a saw burn, but it is not

so apparent 3.5 years later.

Dr. Ponseti had us soak her casts before each appointment. Doesn't sound so

bad, but Livie absolutely hated it. She screamed uncontrollably through all

20-30 minutes of soaking. Then we had to wrap them in plastic bags and/or wet

towels for transport to the hospital. She would quiet down on the way there,

but invariably ended up with a soaking wet outfit, diaper, car seat, etc., no

matter how well we kept them covered. We took extra clothes to change into and

padded her car seat to try to keep it from getting wet, but we usually had to

change her again when we got back as the moisture in the seat soaked into her

dry clothes. She also hated the cutting with a knife. No loud noise, but the

nurse would stick her fingers down into the top of the cast and feel while she

was cutting so that she didn't cut Livie's leg. Livie hated that too. She

would work herself all up again and it got difficult to keep her still the older

she got. And it took longer to get it off than just

sawing did.

Both methods have advantages and disadvantages. I understand Dr. Ponseti's

preference for soaking because presumably it is less stressful for the baby

without the loud noise of the cast saw, but some babies are going to have

problems no matter how you take that cast off. Some babies just don't like to

be messed with.

Jen & Livie (10-18-01 severe left clubfoot)

Re: Re: need advice after meeting with ped ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to

the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking). As

for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

I didn't mean to sound huffy about the saw either... We just had all around bad

experiences with it.... which is why I called it wretched.

faith slattery wrote:Right ...( two mistakes in one night;

sorry) ... they are cut with a knife, but Gabe didn't mind it nearly as much as

he minded the saw. Depends on your childs temperment I suppose... The noise and

vibration of the saw terrified him. I mentioned the scars only to indicate how

badly they cut him... not the aethetics of it...

and Jen wrote:Actually, they are not unwrapped, they

are cut with a knife.

How the casts are removed is something that you need to question your doctor

about. Having had both methods done, we actually prefer the saw. Livie had her

casts sawn off with her first ortho. She hated the sound of the saw, but it was

over relatively quickly. She does have one scar from a saw burn, but it is not

so apparent 3.5 years later.

Dr. Ponseti had us soak her casts before each appointment. Doesn't sound so

bad, but Livie absolutely hated it. She screamed uncontrollably through all

20-30 minutes of soaking. Then we had to wrap them in plastic bags and/or wet

towels for transport to the hospital. She would quiet down on the way there,

but invariably ended up with a soaking wet outfit, diaper, car seat, etc., no

matter how well we kept them covered. We took extra clothes to change into and

padded her car seat to try to keep it from getting wet, but we usually had to

change her again when we got back as the moisture in the seat soaked into her

dry clothes. She also hated the cutting with a knife. No loud noise, but the

nurse would stick her fingers down into the top of the cast and feel while she

was cutting so that she didn't cut Livie's leg. Livie hated that too. She

would work herself all up again and it got difficult to keep her still the older

she got. And it took longer to get it off than just

sawing did.

Both methods have advantages and disadvantages. I understand Dr. Ponseti's

preference for soaking because presumably it is less stressful for the baby

without the loud noise of the cast saw, but some babies are going to have

problems no matter how you take that cast off. Some babies just don't like to

be messed with.

Jen & Livie (10-18-01 severe left clubfoot)

Re: Re: need advice after meeting with ped ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to

the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking). As

for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

You didn't offend at all. I just wanted to share our

experience with the unwrapping as opposed to the

saw/knife technique. Believe me, for my purposes, I

would have much preferred not to drag an 11 month old

with garbage bags tied on her leg carrying the nice

aroma of vinegar in the car for an hour long trip and

then lugging her into the hospital. It provided many

comical moments let me tell you. I still can't smell

vinegar without cringing. I'll never be able to eat

vinaigrette salad dressing without thinking of our

cast experience.

Jenni

--- and Jen wrote:

> Wow, didn't mean to cause a hubbub! Upon re-reading

> my earlier message I realize that I sounded a trifle

> snotty. I sincerely apologize as that was not my

> intent.

>

> I guess the point that I was trying to make is that

> there are many ways to remove a cast and not all

> babies are going to do the same with each method.

>

> We happen to prefer the sawing based on our

> experiences, but it's perfectly okay for others to

> prefer soaking and cutting or soaking and

> unwrapping. Of the four casts that Livie had as an

> infant in Iowa none of them were unwrapped, they

> were all cut with a knife. But that was over three

> years ago, maybe things have changed. Her most

> recent cast last year for a relapse had to be sawed

> because it was reinforced with fiberglass over the

> plaster.

>

> I'm glad that we have this place where we can all

> share our experiences and allow others to make

> informed decisions about the treatment of their

> chlidren! Sorry if I offended.

>

> Jen & Livie (10-18-01 severe left clubfoot)

> Re: Re: need

> advice

> > after meeting with ped ortho

> >

> >

> > Oh, one thing about plaster casts and that

> > wretched saw: Gabe HATED the saw! You really

> have to

> > make sure that the tech who does the cutting is

> > Super careful. They can burn their

> > little-over-sensetive legs with it or even cut

> them.

> > Gabe has 4 scars on his legs from a tech being

> > careless.. he wwent right past buring and on to

> > cutting... That was a year ago and the scars

> from it

> > are still very apparent. The way Ponseti does

> it,

> > you soak the casts till they are soft, them wrap

> > them in plastic bags. Then the casts are

> unwrapped

> > right there in the office.

> > faith slattery wrote:Hi

> > Krishna! You have an awesome name by the way...I

> > have to agree with Daiga on all aspects. Ponseti

> > doesnt like the soft fiberglass cast because he

> > feels like he loses some ability to mold them

> > just-so, but several docs have switched to them

> and

> > seem quite plese withthe results.Gabe had both.

> He

> > HATED the plaster cast Ponseti used beause they

> were

> > so heavy and bulky... the fiberglass he was fine

> > with wearing. I haven't really formulated about

> > either... Ponseti like plaster, so in the end

> that's

> > what we went with... On the other hand, Gabe's

> feet

> > never looked better than they did after

> Ponseti's

> > plaster casting... So,... As for the short

> casts: If

> > your child needs a tenotomy, which he/she

> probably

> > will, without the long casts, they will never

> stay

> > on... especially before the tenotomy is done.

> You be

> > in the office nearly constanly because of

> slipped

> > casts, although the fiberglass casts did seem to

> > stay on better, due , I think, in part to the

> > sheer weight of the plaster casts (pulling

> > on them during diaper changes...the yanking

> motion

> > of your child kicking). As for athletics, stay

> on

> > the board for a while and you'll notice several

> > adult clubfooters who not only lead athletic

> lives,

> > but were treated with surgical methods, although

> > must write in during their mid-twenties to

> complain

> > of chronic foot pain now.

> >

> > Daiga Grady

> wrote:Hi

> > Krishna,

> >

> > Thank goodness that you have the opportunity

> to

> > consult with ped.

> > orthos before you use them! Yes, you are

> right,

> > this doctor's

> > answers certainly sent up some red flags:

> >

> > 1. This answer in and of itself is, in my

> opinion

> > not indicative of

> > a necessarily 'bad' doctor. Many doctors who

> are

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions – no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

You didn't offend at all. I just wanted to share our

experience with the unwrapping as opposed to the

saw/knife technique. Believe me, for my purposes, I

would have much preferred not to drag an 11 month old

with garbage bags tied on her leg carrying the nice

aroma of vinegar in the car for an hour long trip and

then lugging her into the hospital. It provided many

comical moments let me tell you. I still can't smell

vinegar without cringing. I'll never be able to eat

vinaigrette salad dressing without thinking of our

cast experience.

Jenni

--- and Jen wrote:

> Wow, didn't mean to cause a hubbub! Upon re-reading

> my earlier message I realize that I sounded a trifle

> snotty. I sincerely apologize as that was not my

> intent.

>

> I guess the point that I was trying to make is that

> there are many ways to remove a cast and not all

> babies are going to do the same with each method.

>

> We happen to prefer the sawing based on our

> experiences, but it's perfectly okay for others to

> prefer soaking and cutting or soaking and

> unwrapping. Of the four casts that Livie had as an

> infant in Iowa none of them were unwrapped, they

> were all cut with a knife. But that was over three

> years ago, maybe things have changed. Her most

> recent cast last year for a relapse had to be sawed

> because it was reinforced with fiberglass over the

> plaster.

>

> I'm glad that we have this place where we can all

> share our experiences and allow others to make

> informed decisions about the treatment of their

> chlidren! Sorry if I offended.

>

> Jen & Livie (10-18-01 severe left clubfoot)

> Re: Re: need

> advice

> > after meeting with ped ortho

> >

> >

> > Oh, one thing about plaster casts and that

> > wretched saw: Gabe HATED the saw! You really

> have to

> > make sure that the tech who does the cutting is

> > Super careful. They can burn their

> > little-over-sensetive legs with it or even cut

> them.

> > Gabe has 4 scars on his legs from a tech being

> > careless.. he wwent right past buring and on to

> > cutting... That was a year ago and the scars

> from it

> > are still very apparent. The way Ponseti does

> it,

> > you soak the casts till they are soft, them wrap

> > them in plastic bags. Then the casts are

> unwrapped

> > right there in the office.

> > faith slattery wrote:Hi

> > Krishna! You have an awesome name by the way...I

> > have to agree with Daiga on all aspects. Ponseti

> > doesnt like the soft fiberglass cast because he

> > feels like he loses some ability to mold them

> > just-so, but several docs have switched to them

> and

> > seem quite plese withthe results.Gabe had both.

> He

> > HATED the plaster cast Ponseti used beause they

> were

> > so heavy and bulky... the fiberglass he was fine

> > with wearing. I haven't really formulated about

> > either... Ponseti like plaster, so in the end

> that's

> > what we went with... On the other hand, Gabe's

> feet

> > never looked better than they did after

> Ponseti's

> > plaster casting... So,... As for the short

> casts: If

> > your child needs a tenotomy, which he/she

> probably

> > will, without the long casts, they will never

> stay

> > on... especially before the tenotomy is done.

> You be

> > in the office nearly constanly because of

> slipped

> > casts, although the fiberglass casts did seem to

> > stay on better, due , I think, in part to the

> > sheer weight of the plaster casts (pulling

> > on them during diaper changes...the yanking

> motion

> > of your child kicking). As for athletics, stay

> on

> > the board for a while and you'll notice several

> > adult clubfooters who not only lead athletic

> lives,

> > but were treated with surgical methods, although

> > must write in during their mid-twenties to

> complain

> > of chronic foot pain now.

> >

> > Daiga Grady

> wrote:Hi

> > Krishna,

> >

> > Thank goodness that you have the opportunity

> to

> > consult with ped.

> > orthos before you use them! Yes, you are

> right,

> > this doctor's

> > answers certainly sent up some red flags:

> >

> > 1. This answer in and of itself is, in my

> opinion

> > not indicative of

> > a necessarily 'bad' doctor. Many doctors who

> are

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions – no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

LOL! Oh yes, the fond memories of vinegar smell! I remember it well!

Thanks for sharing your experiences! And thanks for the laugh first thing in

the morning!

Jen & Livie (10-18-01 sever left clubfoot)

Re: Re: need

> advice

> > after meeting with ped ortho

> >

> >

> > Oh, one thing about plaster casts and that

> > wretched saw: Gabe HATED the saw! You really

> have to

> > make sure that the tech who does the cutting is

> > Super careful. They can burn their

> > little-over-sensetive legs with it or even cut

> them.

> > Gabe has 4 scars on his legs from a tech being

> > careless.. he wwent right past buring and on to

> > cutting... That was a year ago and the scars

> from it

> > are still very apparent. The way Ponseti does

> it,

> > you soak the casts till they are soft, them wrap

> > them in plastic bags. Then the casts are

> unwrapped

> > right there in the office.

> > faith slattery wrote:Hi

> > Krishna! You have an awesome name by the way...I

> > have to agree with Daiga on all aspects. Ponseti

> > doesnt like the soft fiberglass cast because he

> > feels like he loses some ability to mold them

> > just-so, but several docs have switched to them

> and

> > seem quite plese withthe results.Gabe had both.

> He

> > HATED the plaster cast Ponseti used beause they

> were

> > so heavy and bulky... the fiberglass he was fine

> > with wearing. I haven't really formulated about

> > either... Ponseti like plaster, so in the end

> that's

> > what we went with... On the other hand, Gabe's

> feet

> > never looked better than they did after

> Ponseti's

> > plaster casting... So,... As for the short

> casts: If

> > your child needs a tenotomy, which he/she

> probably

> > will, without the long casts, they will never

> stay

> > on... especially before the tenotomy is done.

> You be

> > in the office nearly constanly because of

> slipped

> > casts, although the fiberglass casts did seem to

> > stay on better, due , I think, in part to the

> > sheer weight of the plaster casts (pulling

> > on them during diaper changes...the yanking

> motion

> > of your child kicking). As for athletics, stay

> on

> > the board for a while and you'll notice several

> > adult clubfooters who not only lead athletic

> lives,

> > but were treated with surgical methods, although

> > must write in during their mid-twenties to

> complain

> > of chronic foot pain now.

> >

> > Daiga Grady

> wrote:Hi

> > Krishna,

> >

> > Thank goodness that you have the opportunity

> to

> > consult with ped.

> > orthos before you use them! Yes, you are

> right,

> > this doctor's

> > answers certainly sent up some red flags:

> >

> > 1. This answer in and of itself is, in my

> opinion

> > not indicative of

> > a necessarily 'bad' doctor. Many doctors who

> are

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions - no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

LOL! Oh yes, the fond memories of vinegar smell! I remember it well!

Thanks for sharing your experiences! And thanks for the laugh first thing in

the morning!

Jen & Livie (10-18-01 sever left clubfoot)

Re: Re: need

> advice

> > after meeting with ped ortho

> >

> >

> > Oh, one thing about plaster casts and that

> > wretched saw: Gabe HATED the saw! You really

> have to

> > make sure that the tech who does the cutting is

> > Super careful. They can burn their

> > little-over-sensetive legs with it or even cut

> them.

> > Gabe has 4 scars on his legs from a tech being

> > careless.. he wwent right past buring and on to

> > cutting... That was a year ago and the scars

> from it

> > are still very apparent. The way Ponseti does

> it,

> > you soak the casts till they are soft, them wrap

> > them in plastic bags. Then the casts are

> unwrapped

> > right there in the office.

> > faith slattery wrote:Hi

> > Krishna! You have an awesome name by the way...I

> > have to agree with Daiga on all aspects. Ponseti

> > doesnt like the soft fiberglass cast because he

> > feels like he loses some ability to mold them

> > just-so, but several docs have switched to them

> and

> > seem quite plese withthe results.Gabe had both.

> He

> > HATED the plaster cast Ponseti used beause they

> were

> > so heavy and bulky... the fiberglass he was fine

> > with wearing. I haven't really formulated about

> > either... Ponseti like plaster, so in the end

> that's

> > what we went with... On the other hand, Gabe's

> feet

> > never looked better than they did after

> Ponseti's

> > plaster casting... So,... As for the short

> casts: If

> > your child needs a tenotomy, which he/she

> probably

> > will, without the long casts, they will never

> stay

> > on... especially before the tenotomy is done.

> You be

> > in the office nearly constanly because of

> slipped

> > casts, although the fiberglass casts did seem to

> > stay on better, due , I think, in part to the

> > sheer weight of the plaster casts (pulling

> > on them during diaper changes...the yanking

> motion

> > of your child kicking). As for athletics, stay

> on

> > the board for a while and you'll notice several

> > adult clubfooters who not only lead athletic

> lives,

> > but were treated with surgical methods, although

> > must write in during their mid-twenties to

> complain

> > of chronic foot pain now.

> >

> > Daiga Grady

> wrote:Hi

> > Krishna,

> >

> > Thank goodness that you have the opportunity

> to

> > consult with ped.

> > orthos before you use them! Yes, you are

> right,

> > this doctor's

> > answers certainly sent up some red flags:

> >

> > 1. This answer in and of itself is, in my

> opinion

> > not indicative of

> > a necessarily 'bad' doctor. Many doctors who

> are

>

=== message truncated ===

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

____________________________________________________

Sell on Yahoo! Auctions - no fees. Bid on great items.

http://auctions.yahoo.com/

Link to comment
Share on other sites

Guest guest

Burning and/or cutting with the saw are definitely disadvantages of the saw

method. I'm so sorry that Gabe had bad experiences with the saw. When Livie

got her burn, I remember being upset and worried that it would scar. Her scar

is on her calf in the back, but like I said not so apparent at 3.5 years old.

You still can see it though.

Like I said, I'm glad we can all share our experiences, good or bad. We all

learn something from that!

Jen & Livie

Re: Re: need advice after meeting with ped

ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to

the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking).

As for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

Burning and/or cutting with the saw are definitely disadvantages of the saw

method. I'm so sorry that Gabe had bad experiences with the saw. When Livie

got her burn, I remember being upset and worried that it would scar. Her scar

is on her calf in the back, but like I said not so apparent at 3.5 years old.

You still can see it though.

Like I said, I'm glad we can all share our experiences, good or bad. We all

learn something from that!

Jen & Livie

Re: Re: need advice after meeting with ped

ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to

the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking).

As for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

We had the plaster casts, but our cast techs didn't remove them with

the saw...I take that back, they did once and Aleksander was

facinated by the noise. But usually they uses some special

scissors. They had a rounded edge so they never even nicked

Aleksander's skin. And he loved it when they shook them out because

they made a clinking noise.

If they use plaster, and you don't like the saw, ask if there is

another way to remove them. There has to be because the saws weren't

always around!

Good luck!

> > Hi Everyone-

> > I am a new to the group and I want your thoughts about my

> experience

> > with a pediatric ortho today. Just some background on myself, I

am

> > currently 33 weeks pregnant with our first child. We found out

at

> > our 26 week ultrasound that our baby has bcf (this was a second

> > opinion ultrasound referred by doc). Met with ortho this

morning.

> I

> > came geared with questions for him (thanks Naomi for the website

of

> > questions to ask). I have done a lot of research on my own and

> > through these wonderful support groups-- I think the ortho was

> > impressed by my knowledge and game plan of methods--but I have a

> few

> > concerns about his answers. Here goes:

> > 1. ortho said he is not certified in Ponsetti, but uses method,

he

> > did internship using Ponsetti--I am not comfortable with this

> > 2. I asked if he uses the long casts and plaster, he said he

stops

> > using the long casts if he sees the feet are correcting--but I

> > thought plaster was the way to go? He says, he will have to use

> saw

> > to take off casts--scary for baby. He says he uses the soft

> > casts/fiberglass, but I feel this will not help correct the feet

at

> a

> > faster rate

> > 3. Is there such a thing as overcorrection? He thinks Ponsetti

> over

> > corrects... He feels once you overcorrect feet, you can't bring

> back

> > to regular position and this may pose problems as the child

becomes

> > older.

> > 4. This one is just my point of venting, but bothered me. He

said

> > my child does not have a disability, but don't expect him/her to

be

> > an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> > husband and I are very athletic and I was bothered when he told

me

> > that. It almost was like he was telling me that my child will

not

> > have healthy feet.

> >

> > *I knew today was just an appt to inform myself about this ortho,

> but

> > I think I am going to go through the Shriner's hospital here in

> town

> > once I speak to husband about the experience I had because we

want

> to

> > use the Ponsetti method. I am really lucky we have the hospital

> > here! Please lend me your thoughts about your experiences of

> meeting

> > orthos for your children and what methods you used and what you

> were

> > happy with.

> > Thanks for support!

> > Krishna

>

>

>

>

>

Link to comment
Share on other sites

Guest guest

We had the plaster casts, but our cast techs didn't remove them with

the saw...I take that back, they did once and Aleksander was

facinated by the noise. But usually they uses some special

scissors. They had a rounded edge so they never even nicked

Aleksander's skin. And he loved it when they shook them out because

they made a clinking noise.

If they use plaster, and you don't like the saw, ask if there is

another way to remove them. There has to be because the saws weren't

always around!

Good luck!

> > Hi Everyone-

> > I am a new to the group and I want your thoughts about my

> experience

> > with a pediatric ortho today. Just some background on myself, I

am

> > currently 33 weeks pregnant with our first child. We found out

at

> > our 26 week ultrasound that our baby has bcf (this was a second

> > opinion ultrasound referred by doc). Met with ortho this

morning.

> I

> > came geared with questions for him (thanks Naomi for the website

of

> > questions to ask). I have done a lot of research on my own and

> > through these wonderful support groups-- I think the ortho was

> > impressed by my knowledge and game plan of methods--but I have a

> few

> > concerns about his answers. Here goes:

> > 1. ortho said he is not certified in Ponsetti, but uses method,

he

> > did internship using Ponsetti--I am not comfortable with this

> > 2. I asked if he uses the long casts and plaster, he said he

stops

> > using the long casts if he sees the feet are correcting--but I

> > thought plaster was the way to go? He says, he will have to use

> saw

> > to take off casts--scary for baby. He says he uses the soft

> > casts/fiberglass, but I feel this will not help correct the feet

at

> a

> > faster rate

> > 3. Is there such a thing as overcorrection? He thinks Ponsetti

> over

> > corrects... He feels once you overcorrect feet, you can't bring

> back

> > to regular position and this may pose problems as the child

becomes

> > older.

> > 4. This one is just my point of venting, but bothered me. He

said

> > my child does not have a disability, but don't expect him/her to

be

> > an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> > husband and I are very athletic and I was bothered when he told

me

> > that. It almost was like he was telling me that my child will

not

> > have healthy feet.

> >

> > *I knew today was just an appt to inform myself about this ortho,

> but

> > I think I am going to go through the Shriner's hospital here in

> town

> > once I speak to husband about the experience I had because we

want

> to

> > use the Ponsetti method. I am really lucky we have the hospital

> > here! Please lend me your thoughts about your experiences of

> meeting

> > orthos for your children and what methods you used and what you

> were

> > happy with.

> > Thanks for support!

> > Krishna

>

>

>

>

>

Link to comment
Share on other sites

Guest guest

Hello Krishna,

If in your shoes I would seek a second opinion. Where are you

located??

Our dr. is on Ponseti's list and used the fiberglass casts. It was

like a big ace bandage that they wet then wrap around the leg. While

still wet he was able to form and mold in the ankle are as others

have mentioned. Then when it was time for a change he just unwrapped

it like you would the ace. I know Dr. P knows best, but this worked

for Zoe.

Look forward to more questions and hearing how you progress.

Louisa

Rachael 6-27-99

Zoe 2-22-04 RCF FAB Nights

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

Wow, reading about these saw burns makes me even more grateful to our dr. He

always used plenty of cotton (several layers) before applying the plaster and we

NEVER had a burn, never went into the cotton. The key is that when they are

cutting the cast off they are supposed to just hold the saw and gently push it

down - not do the " sawing " motion of back and forth, that's when it can cut/burn

them. So just make sure they gently push the saw thru the plaster and they

should be fine.

Marcia

Re: Re: need advice after meeting with ped

ortho

Oh, one thing about plaster casts and that wretched saw: Gabe HATED the saw!

You really have to make sure that the tech who does the cutting is Super

careful. They can burn their little-over-sensetive legs with it or even cut

them. Gabe has 4 scars on his legs from a tech being careless.. he wwent right

past buring and on to cutting... That was a year ago and the scars from it are

still very apparent. The way Ponseti does it, you soak the casts till they are

soft, them wrap them in plastic bags. Then the casts are unwrapped right there

in the office.

faith slattery wrote:Hi Krishna! You have an awesome

name by the way...I have to agree with Daiga on all aspects. Ponseti doesnt like

the soft fiberglass cast because he feels like he loses some ability to mold

them just-so, but several docs have switched to them and seem quite plese

withthe results.Gabe had both. He HATED the plaster cast Ponseti used beause

they were so heavy and bulky... the fiberglass he was fine with wearing. I

haven't really formulated about either... Ponseti like plaster, so in the end

that's what we went with... On the other hand, Gabe's feet never looked better

than they did after Ponseti's plaster casting... So,... As for the short casts:

If your child needs a tenotomy, which he/she probably will, without the long

casts, they will never stay on... especially before the tenotomy is done. You be

in the office nearly constanly because of slipped casts, although the fiberglass

casts did seem to stay on better, due , I think, in part to the

sheer weight of the plaster casts (pulling

on them during diaper changes...the yanking motion of your child kicking).

As for athletics, stay on the board for a while and you'll notice several adult

clubfooters who not only lead athletic lives, but were treated with surgical

methods, although must write in during their mid-twenties to complain of chronic

foot pain now.

Daiga Grady wrote:Hi Krishna,

Thank goodness that you have the opportunity to consult with ped.

orthos before you use them! Yes, you are right, this doctor's

answers certainly sent up some red flags:

1. This answer in and of itself is, in my opinion not indicative of

a necessarily 'bad' doctor. Many doctors who are using the method

successfully today are not 'Ponseti certified' but this is because

they have not yet met Dr. Ponseti's requirements for certification.

From what I understand they need to submit a number of their patient

cases (with correction results) to Dr. Ponseti for review before he

will list them on his website. We have however learned that there

are in fact some doctors who are listed on Dr. Ponseti's website who

are not using the method as it was written but are reinventing

certain aspects of the treatment. Certainly this makes it more

difficult for parents to find a doctor who truely uses the method

unmodified. Again, it's important to stress that parents need to

educated themselves about all components of the method so that they

can ensure that their child is receiving the proper care and

treatment.

2. Some doctors in fact are using fiberglass casts and achieving the

same 95% success rate. I think it depends upon the doctors ability

to mold the cast correctly. What I find upsetting is the fact that

this doctor stops using long leg casts and switches to (I'm assuming)

short leg casts. This is problematic and is one of doctors " common

errors " that Dr. Ponseti sites on his webpage. Short leg casts allow

for too much mobility within the cast which can lead to the

child 'undoing' the manipulation and possibly doing more harm than

good.

3. Yes, Dr. Ponseti overcorrects the foot in the last cast. He

explains why this is necessary on his website. It is because the

foot has a tendency to return to it's original position and the

overcorrection allows for the foot to return to 'neutral' rather than

turned back in once treatment is completed (after the follow-up

bracing period is over - 3-4 years).

4. Again, I refer to Dr. Ponseti's website and his quote: Parents

of infants born with clubfeet may be reassured that their baby, if

otherwise normal, when treated by expert hands will have normal

looking feet with normal function for all practical purposes. The

well-treated clubfoot is no handicap and is fully compatible with a

normal, active life. " This doctor is just covering his tracks in

case his method (which does not seem to be Ponseti) fails.

Meet with another doctor and don't settle until you feel comfortable

with the doctor who will be treating your child. Go with your gut

and peace of mind will follow!

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this morning.

I

> came geared with questions for him (thanks Naomi for the website of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method, he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet at

a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child becomes

> older.

> 4. This one is just my point of venting, but bothered me. He said

> my child does not have a disability, but don't expect him/her to be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Guest guest

Hi Krishna-

I don't have time to read through the other emails that replied to

you, so maybe somebody already said this. Don't walk away from that

doctor, run away! Hats off to you for going on a consult with him

and knowing what to look for. He clearly (as many doctors do) thinks

he can better the method. I started out with a doctor like that and

it was a nightmare!

> Hi Everyone-

> I am a new to the group and I want your thoughts about my

experience

> with a pediatric ortho today. Just some background on myself, I

am

> currently 33 weeks pregnant with our first child. We found out at

> our 26 week ultrasound that our baby has bcf (this was a second

> opinion ultrasound referred by doc). Met with ortho this

morning. I

> came geared with questions for him (thanks Naomi for the website

of

> questions to ask). I have done a lot of research on my own and

> through these wonderful support groups-- I think the ortho was

> impressed by my knowledge and game plan of methods--but I have a

few

> concerns about his answers. Here goes:

> 1. ortho said he is not certified in Ponsetti, but uses method,

he

> did internship using Ponsetti--I am not comfortable with this

> 2. I asked if he uses the long casts and plaster, he said he

stops

> using the long casts if he sees the feet are correcting--but I

> thought plaster was the way to go? He says, he will have to use

saw

> to take off casts--scary for baby. He says he uses the soft

> casts/fiberglass, but I feel this will not help correct the feet

at a

> faster rate

> 3. Is there such a thing as overcorrection? He thinks Ponsetti

over

> corrects... He feels once you overcorrect feet, you can't bring

back

> to regular position and this may pose problems as the child

becomes

> older.

> 4. This one is just my point of venting, but bothered me. He

said

> my child does not have a disability, but don't expect him/her to

be

> an athlete. Has he heard of Krisit Yamagouchi & Troy Aikman? My

> husband and I are very athletic and I was bothered when he told me

> that. It almost was like he was telling me that my child will not

> have healthy feet.

>

> *I knew today was just an appt to inform myself about this ortho,

but

> I think I am going to go through the Shriner's hospital here in

town

> once I speak to husband about the experience I had because we want

to

> use the Ponsetti method. I am really lucky we have the hospital

> here! Please lend me your thoughts about your experiences of

meeting

> orthos for your children and what methods you used and what you

were

> happy with.

> Thanks for support!

> Krishna

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...