Re: Problems with Markells: Swollen Lower Legs

[Guest guest]

No I've never heard of anything like this and I'm sorry you have to be dealing

with it. Have you considered 's sandals instead of the markell's?

Just a thought...

Chris

Problems with Markells: Swollen Lower Legs

Hi

My son Jonathon was born on the 12/4/05 with a club foot (left) and

a deformed left arm (75% size of right with severe contractures at

the wrist in particuliar).

His club foot has been manipulated by the Ponseti method. Things

were going well until the last cast was removed

After being fitted with his new boots (first pair given were too

big) he developed a blister after one day. We persisted for several

days until he managed to keep the boots on for a full day. As is

our routine, we gave him a bath that night. He normally loves the

bath but after a couple of minutes he started screaming. We noticed

that the soles of both feet were not just red in colour but

scarlet. After a period of time, the colour subdued but both calves

(doesn't look the correct spelling) began to swell. We contacted

the Emergency GP Service and was told to go to our local hospital.

Jonathon was diagnosed as having a blockage to the venus blood

drainage in his feet., and too sleep without the splint and

contact the consultant in the morning, this we did. In the morning

I contacted the Consultant (Surgical Appliance) who fitted the

splint and was told to re-apply the boots. After approximately one

hour, his calves began to swell again. I was able to arrange an

appointment with the Consultant who had reset Jonathon's foot and he

checked the legs for Thrombosis and other conditions but could not

find any indications. His opinion may be that Jonathon has a nickel

allergy to the leather boots. We were then told to stop using the

boots and arrange an appointment with the Surgical Appliances

Consultant to discuss options. An appointment is scheduled for this

Thursday (14/7/05)

Has anyone heard of any similar problems?

[Guest guest]

No I've never heard of anything like this and I'm sorry you have to be dealing

with it. Have you considered 's sandals instead of the markell's?

Just a thought...

Chris

Problems with Markells: Swollen Lower Legs

Hi

My son Jonathon was born on the 12/4/05 with a club foot (left) and

a deformed left arm (75% size of right with severe contractures at

the wrist in particuliar).

His club foot has been manipulated by the Ponseti method. Things

were going well until the last cast was removed

After being fitted with his new boots (first pair given were too

big) he developed a blister after one day. We persisted for several

days until he managed to keep the boots on for a full day. As is

our routine, we gave him a bath that night. He normally loves the

bath but after a couple of minutes he started screaming. We noticed

that the soles of both feet were not just red in colour but

scarlet. After a period of time, the colour subdued but both calves

(doesn't look the correct spelling) began to swell. We contacted

the Emergency GP Service and was told to go to our local hospital.

Jonathon was diagnosed as having a blockage to the venus blood

drainage in his feet., and too sleep without the splint and

contact the consultant in the morning, this we did. In the morning

I contacted the Consultant (Surgical Appliance) who fitted the

splint and was told to re-apply the boots. After approximately one

hour, his calves began to swell again. I was able to arrange an

appointment with the Consultant who had reset Jonathon's foot and he

checked the legs for Thrombosis and other conditions but could not

find any indications. His opinion may be that Jonathon has a nickel

allergy to the leather boots. We were then told to stop using the

boots and arrange an appointment with the Surgical Appliances

Consultant to discuss options. An appointment is scheduled for this

Thursday (14/7/05)

Has anyone heard of any similar problems?

[Guest guest]

Welcome!

Sorry to hear about Jonathon's problems. That's really odd. I

assume you're in the UK- what consultant is treating your son? I

would suggest that you email/call both Naomi and Dr. Ponseti

for their input regarding your son's feet/legs. I think Naomi's

email address is on Dr. Ponseti's website.

I also agree that the custom-made sandals might be the best

option for Jonathon if he does have a Nickel allergy.

has sent shoes to the UK before (he is in Iowa, USA, near Dr.

Ponseti).

There are some children who have vascular issues in their legs and

perhaps this is what your son has also. There is one mom who just

recently posted on the yahoo clubfoot board

(http://groups.yahoo.com/group/clubfoot) about her daughter who has

vascular differences in her clubfoot leg. I think they would just

have to do an ultrasound on your son's leg to diagnose this. Is he

back in plaster casts right now?

Please keep us posted!

& (3-16-00, left clubfoot)

> Hi

>

> My son Jonathon was born on the 12/4/05 with a club foot (left)

and

> a deformed left arm (75% size of right with severe contractures at

> the wrist in particuliar).

>

> His club foot has been manipulated by the Ponseti method. Things

> were going well until the last cast was removed

>

> After being fitted with his new boots (first pair given were too

> big) he developed a blister after one day. We persisted for

several

> days until he managed to keep the boots on for a full day. As is

> our routine, we gave him a bath that night. He normally loves the

> bath but after a couple of minutes he started screaming. We

noticed

> that the soles of both feet were not just red in colour but

> scarlet. After a period of time, the colour subdued but both

calves

> (doesn't look the correct spelling) began to swell. We contacted

> the Emergency GP Service and was told to go to our local

hospital.

> Jonathon was diagnosed as having a blockage to the venus blood

> drainage in his feet., and too sleep without the splint and

> contact the consultant in the morning, this we did. In the

morning

> I contacted the Consultant (Surgical Appliance) who fitted the

> splint and was told to re-apply the boots. After approximately

one

> hour, his calves began to swell again. I was able to arrange an

> appointment with the Consultant who had reset Jonathon's foot and

he

> checked the legs for Thrombosis and other conditions but could not

> find any indications. His opinion may be that Jonathon has a

nickel

> allergy to the leather boots. We were then told to stop using the

> boots and arrange an appointment with the Surgical Appliances

> Consultant to discuss options. An appointment is scheduled for

this

> Thursday (14/7/05)

>

> Has anyone heard of any similar problems?

[Guest guest]

Welcome!

Sorry to hear about Jonathon's problems. That's really odd. I

assume you're in the UK- what consultant is treating your son? I

would suggest that you email/call both Naomi and Dr. Ponseti

for their input regarding your son's feet/legs. I think Naomi's

email address is on Dr. Ponseti's website.

I also agree that the custom-made sandals might be the best

option for Jonathon if he does have a Nickel allergy.

has sent shoes to the UK before (he is in Iowa, USA, near Dr.

Ponseti).

There are some children who have vascular issues in their legs and

perhaps this is what your son has also. There is one mom who just

recently posted on the yahoo clubfoot board

(http://groups.yahoo.com/group/clubfoot) about her daughter who has

vascular differences in her clubfoot leg. I think they would just

have to do an ultrasound on your son's leg to diagnose this. Is he

back in plaster casts right now?

Please keep us posted!

& (3-16-00, left clubfoot)

> Hi

>

> My son Jonathon was born on the 12/4/05 with a club foot (left)

and

> a deformed left arm (75% size of right with severe contractures at

> the wrist in particuliar).

>

> His club foot has been manipulated by the Ponseti method. Things

> were going well until the last cast was removed

>

> After being fitted with his new boots (first pair given were too

> big) he developed a blister after one day. We persisted for

several

> days until he managed to keep the boots on for a full day. As is

> our routine, we gave him a bath that night. He normally loves the

> bath but after a couple of minutes he started screaming. We

noticed

> that the soles of both feet were not just red in colour but

> scarlet. After a period of time, the colour subdued but both

calves

> (doesn't look the correct spelling) began to swell. We contacted

> the Emergency GP Service and was told to go to our local

hospital.

> Jonathon was diagnosed as having a blockage to the venus blood

> drainage in his feet., and too sleep without the splint and

> contact the consultant in the morning, this we did. In the

morning

> I contacted the Consultant (Surgical Appliance) who fitted the

> splint and was told to re-apply the boots. After approximately

one

> hour, his calves began to swell again. I was able to arrange an

> appointment with the Consultant who had reset Jonathon's foot and

he

> checked the legs for Thrombosis and other conditions but could not

> find any indications. His opinion may be that Jonathon has a

nickel

> allergy to the leather boots. We were then told to stop using the

> boots and arrange an appointment with the Surgical Appliances

> Consultant to discuss options. An appointment is scheduled for

this

> Thursday (14/7/05)

>

> Has anyone heard of any similar problems?

[Guest guest]

Hi Chris

Sorry I haven't got back to you sooner but life has been even more chaotic that

normal.

After several appointments with Consultants / Doctors, we are no closer to

diagnosing the reason for this problem. It may be a reaction to leather or the

Markels being fitted too tight. Either way, the Consultants have agreed to try

s. They were unaware of them but I downloaded information and took it

with me. They sized Jonathon's feet and I believe, an order has been placed.

Hopefully these will be more comfortable for my baby.

Thanks for being there and taking the time to offer me support and advice. It

is good to know that someone is out there when you need them.

How is your child getting on?

Regards

wrote:

No I've never heard of anything like this and I'm sorry you have to be dealing

with it. Have you considered 's sandals instead of the markell's?

Just a thought...

Chris

Problems with Markells: Swollen Lower Legs

Hi

My son Jonathon was born on the 12/4/05 with a club foot (left) and

a deformed left arm (75% size of right with severe contractures at

the wrist in particuliar).

His club foot has been manipulated by the Ponseti method. Things

were going well until the last cast was removed

After being fitted with his new boots (first pair given were too

big) he developed a blister after one day. We persisted for several

days until he managed to keep the boots on for a full day. As is

our routine, we gave him a bath that night. He normally loves the

bath but after a couple of minutes he started screaming. We noticed

that the soles of both feet were not just red in colour but

scarlet. After a period of time, the colour subdued but both calves

(doesn't look the correct spelling) began to swell. We contacted

the Emergency GP Service and was told to go to our local hospital.

Jonathon was diagnosed as having a blockage to the venus blood

drainage in his feet., and too sleep without the splint and

contact the consultant in the morning, this we did. In the morning

I contacted the Consultant (Surgical Appliance) who fitted the

splint and was told to re-apply the boots. After approximately one

hour, his calves began to swell again. I was able to arrange an

appointment with the Consultant who had reset Jonathon's foot and he

checked the legs for Thrombosis and other conditions but could not

find any indications. His opinion may be that Jonathon has a nickel

allergy to the leather boots. We were then told to stop using the

boots and arrange an appointment with the Surgical Appliances

Consultant to discuss options. An appointment is scheduled for this

Thursday (14/7/05)

Has anyone heard of any similar problems?

[Guest guest]

,

I'm glad you are getting some help. It takes a few weeks as he makes every

shoe by hand but when you get them you'll see that they are much easier to use

and more comfy for the child. Our daughter has used them from the get go and

she's doing just great!

Chris

Problems with Markells: Swollen Lower Legs

Hi

My son Jonathon was born on the 12/4/05 with a club foot (left) and

a deformed left arm (75% size of right with severe contractures at

the wrist in particuliar).

His club foot has been manipulated by the Ponseti method. Things

were going well until the last cast was removed

After being fitted with his new boots (first pair given were too

big) he developed a blister after one day. We persisted for several

days until he managed to keep the boots on for a full day. As is

our routine, we gave him a bath that night. He normally loves the

bath but after a couple of minutes he started screaming. We noticed

that the soles of both feet were not just red in colour but

scarlet. After a period of time, the colour subdued but both calves

(doesn't look the correct spelling) began to swell. We contacted

the Emergency GP Service and was told to go to our local hospital.

Jonathon was diagnosed as having a blockage to the venus blood

drainage in his feet., and too sleep without the splint and

contact the consultant in the morning, this we did. In the morning

I contacted the Consultant (Surgical Appliance) who fitted the

splint and was told to re-apply the boots. After approximately one

hour, his calves began to swell again. I was able to arrange an

appointment with the Consultant who had reset Jonathon's foot and he

checked the legs for Thrombosis and other conditions but could not

find any indications. His opinion may be that Jonathon has a nickel

allergy to the leather boots. We were then told to stop using the

boots and arrange an appointment with the Surgical Appliances

Consultant to discuss options. An appointment is scheduled for this

Thursday (14/7/05)

Has anyone heard of any similar problems?