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Neurofipromatosis

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Dear All,

I have a friend whose baby has Neurofipromatosis in my country.

I contacted Dr. Calburn who is the Doctor of my daughter as she has

RCL But he told me it is not his profession.

Does anyone know any site, group or even a contact doctor for this.

I know it is not the right place to ask about

but i thought that i could find any light for him

Thanks again

karen Mum RCF 1/5/2004

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Guest guest

Dear All,

I have a friend whose baby has Neurofipromatosis in my country.

I contacted Dr. Calburn who is the Doctor of my daughter as she has

RCL But he told me it is not his profession.

Does anyone know any site, group or even a contact doctor for this.

I know it is not the right place to ask about

but i thought that i could find any light for him

Thanks again

karen Mum RCF 1/5/2004

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