Re: Need Info For Doctor

October 3, 2005

Thanks , I'll look up that file and print it off for him. I think I just

want cf infor in general right now. This guy is a family practice OB type. He

struck me as the type who doesn't appreciate a patient knowing anything he

doesn't know himself.

I believe i " ll be gtting a level 2 later on in a few weeks.

s.

Re: Need Info For Doctor

ee-

What kind of info are you looking for specifically? If you're

looking for " ultrasound diagnosis " info- then I'm afraid that we

don't have much on that. If you're looking for " general " Ponseti

method info just to bring the guy up to speed, then I'd recommend

printing off that booklet from Global HELP and also giving him the

link to Dr. P's virtual hospital site and the

http://members.tripod.com/ponseti_links-ivil site.

Is this guy a regular OB-GYN or is he a perinatologist? You might

be able to get your level 2 ultrasound conducted by a perinatologist

or high-risk OB doctor who specializes in pre-natal diagnosis and

counseling. For both of my subsequent pregnancies after I had

(my first born with clubfoot), I saw a regular OB-GYN, but at my 20

wk ultrasound, the perinatologist conducted a pointed u/s (level 2

u/s) and then forwarded the results to my regular doctor.

I hope you have this option at your hospital. Maybe your mid-wife

can help you find someone who has dealt with clubfoot before.

I hope you were just " seeing things " on both accounts at your

ultrasound......it would be so wonderful if you wouldn't have to

deal with crooked tootsies this time around- boy or girl! Fingers

are crossed here for you.

> GlacierHi All,

>

> You probably know I'm preggers with baby #3, and two previous 2

had cf. Well I'm seeing a mid wife but saw a dr. today for an

ultrasound. He argued cf cannot be picked up on u/s and

stuff...anyway, he caved in to my wish to do a diagnostic u/s at 22

weeks along instead of really trying to do anything today. It'll be

done at a hospital instead of with his little office-model machine.

>

> What we did see briefly today was it looks like another boy, and I

saw one foot shot that looked very suspicious to me....ugh on both

counts. Sorry, I sure would like a daughter here.

>

> OK - here's what I'm asking you for... do we have in our files a

fairly straight forward yet informative package of info I can print

off and give to this guy? My midwife is very supportive but this

dr. guy was a jerk. If so, can you tell me what file to look for?

>

> thanks,

> s.

>

October 3, 2005

The cf didn't show up on 's u/s early on. No body was looking for it, and

it was earlier in the pregnancy. With Everett though we looked for it because

already had and it showed up on a level 1 and a level 2 quite plainly.

When the dr. today said it wouldn't show up the midwife and I both said, " Well

it showed up before on her other! " and I tried to explain that cf often

doesn't even occur till 20 weeks so the feet could be OK early on and clubbed

later, thus I wanted a later scan.

s.

Need Info For Doctor

GlacierHi All,

You probably know I'm preggers with baby #3, and two previous 2 had cf.

Well I'm seeing a mid wife but saw a dr. today for an ultrasound. He argued

cf cannot be picked up on u/s and stuff...anyway, he caved in to my wish to

do a diagnostic u/s at 22 weeks along instead of really trying to do

anything today. It'll be done at a hospital instead of with his little

office-model machine.

What we did see briefly today was it looks like another boy, and I saw one

foot shot that looked very suspicious to me....ugh on both counts. Sorry, I

sure would like a daughter here.

OK - here's what I'm asking you for... do we have in our files a fairly

straight forward yet informative package of info I can print off and give

to this guy? My midwife is very supportive but this dr. guy was a jerk. If

so, can you tell me what file to look for?

thanks,

s.

October 3, 2005

LOL! That actually crossed my mind although I doubt insurance would go for it.

s.

Re: Need Info For Doctor

ee,

If your insurance will cover it, have you considered the possibility

of getting an ultrasound at the U of Iowa when you're there for your

boys' check ups? I'm guessing there are a few people there who know

how to spot clubfoot via ultrasound!

October 3, 2005

What are the odds indeed! (Um, the same as they were the last time?

hahhahahah)

s.

----- I mean, what are the odds????

October 3, 2005

ee-

What kind of info are you looking for specifically? If you're

looking for " ultrasound diagnosis " info- then I'm afraid that we

don't have much on that. If you're looking for " general " Ponseti

method info just to bring the guy up to speed, then I'd recommend

printing off that booklet from Global HELP and also giving him the

link to Dr. P's virtual hospital site and the

http://members.tripod.com/ponseti_links-ivil site.

Is this guy a regular OB-GYN or is he a perinatologist? You might

be able to get your level 2 ultrasound conducted by a perinatologist

or high-risk OB doctor who specializes in pre-natal diagnosis and

counseling. For both of my subsequent pregnancies after I had

(my first born with clubfoot), I saw a regular OB-GYN, but at my 20

wk ultrasound, the perinatologist conducted a pointed u/s (level 2

u/s) and then forwarded the results to my regular doctor.

I hope you have this option at your hospital. Maybe your mid-wife

can help you find someone who has dealt with clubfoot before.

I hope you were just " seeing things " on both accounts at your

ultrasound......it would be so wonderful if you wouldn't have to

deal with crooked tootsies this time around- boy or girl! Fingers

are crossed here for you.

> GlacierHi All,

>

> You probably know I'm preggers with baby #3, and two previous 2

had cf. Well I'm seeing a mid wife but saw a dr. today for an

ultrasound. He argued cf cannot be picked up on u/s and

stuff...anyway, he caved in to my wish to do a diagnostic u/s at 22

weeks along instead of really trying to do anything today. It'll be

done at a hospital instead of with his little office-model machine.

>

> What we did see briefly today was it looks like another boy, and I

saw one foot shot that looked very suspicious to me....ugh on both

counts. Sorry, I sure would like a daughter here.

>

> OK - here's what I'm asking you for... do we have in our files a

fairly straight forward yet informative package of info I can print

off and give to this guy? My midwife is very supportive but this

dr. guy was a jerk. If so, can you tell me what file to look for?

>

> thanks,

> s.

>

October 3, 2005

Did you find out at your scan with the other 2?? I don't know what

information you are looking for but we are in the UK and we have a routine

scan around 18 weeks where they measure bones and look at the heart etc. We

didn't get our scan until 20 weeks and they couldn't get a good piccie of

the baby's feet everything else came up ok and she did tell us she thought

it was a boy but she really did have to have a good look as apparently it is

not that easy to see unless you know what you are looking for...... Anyway

we had to go back a week later - that's when they just took stills of the

feet and I know this because I asked to see them and you really could see

that both feet were clubbed, they took lovely pictures of the angle. They

said they wouldn't know for sure how bad they were but when he came out they

looked just like the pictures!!! oh yes and he is a boy too!!!!!

Rach, Steve & Connor

-- Need Info For Doctor

GlacierHi All,

You probably know I'm preggers with baby #3, and two previous 2 had cf.

Well I'm seeing a mid wife but saw a dr. today for an ultrasound. He argued

cf cannot be picked up on u/s and stuff...anyway, he caved in to my wish to

do a diagnostic u/s at 22 weeks along instead of really trying to do

anything today. It'll be done at a hospital instead of with his little

office-model machine.

What we did see briefly today was it looks like another boy, and I saw one

foot shot that looked very suspicious to me....ugh on both counts. Sorry, I

sure would like a daughter here.

OK - here's what I'm asking you for... do we have in our files a fairly

straight forward yet informative package of info I can print off and give

to this guy? My midwife is very supportive but this dr. guy was a jerk. If

so, can you tell me what file to look for?

thanks,

s.

October 3, 2005

ee,

If your insurance will cover it, have you considered the possibility

of getting an ultrasound at the U of Iowa when you're there for your

boys' check ups? I'm guessing there are a few people there who know

how to spot clubfoot via ultrasound!

October 3, 2005

ee,

I am sure you will have better luck with the

ultrasound at the hospital. The equipment there is

usually so much better than in office. I don't know

what to tell you about written information for him but

like , my ultrasound was done by a

perinatologist. We were not looking for clubfoot but

there was some suspicion that Kelsey might have Doen's

syndrome and they were looking for markers by

ultrasound since I adamantly refused amniocentesis.

This scan was done at 20 weeks and the perinatologist

thought he saw it but wanted me to come back at 24

weeks to confirm and sure enough, it was there. These

specialists are really amazing with what they can see

on ultrasound. THey diagnosed the cyst on Kelsey's

kidney the day before she was born. That amazes me.

Good luck with the Doctor.

Jenni

--- jennyandkelly wrote:

> ee-

> What kind of info are you looking for specifically?

> If you're

> looking for " ultrasound diagnosis " info- then I'm

> afraid that we

> don't have much on that. If you're looking for

> " general " Ponseti

> method info just to bring the guy up to speed, then

> I'd recommend

> printing off that booklet from Global HELP and also

> giving him the

> link to Dr. P's virtual hospital site and the

> http://members.tripod.com/ponseti_links-ivil site.

> Is this guy a regular OB-GYN or is he a

> perinatologist? You might

> be able to get your level 2 ultrasound conducted by

> a perinatologist

> or high-risk OB doctor who specializes in pre-natal

> diagnosis and

> counseling. For both of my subsequent pregnancies

> after I had

> (my first born with clubfoot), I saw a regular

> OB-GYN, but at my 20

> wk ultrasound, the perinatologist conducted a

> pointed u/s (level 2

> u/s) and then forwarded the results to my regular

> doctor.

> I hope you have this option at your hospital. Maybe

> your mid-wife

> can help you find someone who has dealt with

> clubfoot before.

> I hope you were just " seeing things " on both

> accounts at your

> ultrasound......it would be so wonderful if you

> wouldn't have to

> deal with crooked tootsies this time around- boy or

> girl! Fingers

> are crossed here for you.

>

> > GlacierHi All,

> >

> > You probably know I'm preggers with baby #3, and

> two previous 2

> had cf. Well I'm seeing a mid wife but saw a dr.

> today for an

> ultrasound. He argued cf cannot be picked up on u/s

> and

> stuff...anyway, he caved in to my wish to do a

> diagnostic u/s at 22

> weeks along instead of really trying to do anything

> today. It'll be

> done at a hospital instead of with his little

> office-model machine.

> >

> > What we did see briefly today was it looks like

> another boy, and I

> saw one foot shot that looked very suspicious to

> me....ugh on both

> counts. Sorry, I sure would like a daughter here.

> >

> > OK - here's what I'm asking you for... do we have

> in our files a

> fairly straight forward yet informative package of

> info I can print

> off and give to this guy? My midwife is very

> supportive but this

> dr. guy was a jerk. If so, can you tell me what

> file to look for?

> >

> > thanks,

> > s.

> >

> > [Non-text portions of this message have been

> removed]

>

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in DBB nights only for

left clubfoot.

__________________________________

Yahoo! Mail - PC Magazine Editors' Choice 2005

http://mail.yahoo.com

October 3, 2005

ee, also make sure they do at least a level 2 ultrasound. It's

usuallly considered standard nowadays, but you never know what kind

of equipment some doctors may still be using. The level 2 ultrasound

is very accurate and they say that if something is seen on this kind

of ultrasound (ie. clubfoot) then it's pretty definitive. Best of

luck to you, but I highly doubt there can possibly be a 3rd clubfoot

baby. I mean, what are the odds????

> > GlacierHi All,

> >

> > You probably know I'm preggers with baby #3, and two previous 2

> had cf. Well I'm seeing a mid wife but saw a dr. today for an

> ultrasound. He argued cf cannot be picked up on u/s and

> stuff...anyway, he caved in to my wish to do a diagnostic u/s at

22

> weeks along instead of really trying to do anything today. It'll

be

> done at a hospital instead of with his little office-model machine.

> >

> > What we did see briefly today was it looks like another boy, and

I

> saw one foot shot that looked very suspicious to me....ugh on both

> counts. Sorry, I sure would like a daughter here.

> >

> > OK - here's what I'm asking you for... do we have in our files a

> fairly straight forward yet informative package of info I can

print

> off and give to this guy? My midwife is very supportive but this

> dr. guy was a jerk. If so, can you tell me what file to look for?

> >

> > thanks,

> > s.

> >

October 3, 2005

ee,

Not to, um, depress you or anything, but I grew up friends with a

family with 5 children. All but one of them were born with bilateral

clubfoot. Imagine the parents' surprise when the last one was born

with straight feet! They must have wondered what was wrong with her

feet...

It's interesting too. They were all treated by the same doc, 2 of

them needed surgeries, 2 didn't. Their mother tells me that all the

feet were about equally as severe at birth. Oh, and a few of the

grandkids also have clubfoot.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral

clubfoot, FAB 14/7)

> What are the odds indeed! (Um, the same as they were the last

time? hahhahahah)

> s.

>

> ----- I mean, what are the odds????

>

October 3, 2005

Oh you don't depress me. These things just happen and we'll accept that. I

think part of knowing early through an ultrasound is having the time to adjust

and accept so when the baby arrives you're in Action Mode rather than Shock

Mode. And ya, I bet baby #5 did surprise them! LOL!

s.

Re: Need Info For Doctor

ee,

Not to, um, depress you or anything, but I grew up friends with a

family with 5 children. All but one of them were born with bilateral

clubfoot. Imagine the parents' surprise when the last one was born

with straight feet! They must have wondered what was wrong with her

feet...

It's interesting too. They were all treated by the same doc, 2 of

them needed surgeries, 2 didn't. Their mother tells me that all the

feet were about equally as severe at birth. Oh, and a few of the

grandkids also have clubfoot.

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral

clubfoot, FAB 14/7)

> What are the odds indeed! (Um, the same as they were the last

time? hahhahahah)

> s.

>

> ----- I mean, what are the odds????

>

October 4, 2005

Well I admit acceptance is creeping in, it will be what ever it will be and I

can't do a darn thing about it so why pout?

s.

Re: Need Info For Doctor

Well ee, I have to say at least you are keeping your sense of

humor! If it were me I'd be going nuts! But we will keep our fingers

crossed that that " suspicious " view of the foot was nothing more than

baby putting his/HER(!) legs in crazy positions. When they diagnosed

Sammy's cf on the ultrasound it was very unclear the first time, he

kept putting his legs " cross-legged " so they couldn't really tell what

was going on. They really have to get a good lateral view to tell.

In any case we'll be thinking of you and have you and the little one

in our prayers.

> What are the odds indeed! (Um, the same as they were the last

time? hahhahahah)

> s.

>

> ----- I mean, what are the odds????

>

October 4, 2005

ee,

Did you get a new doctor? Go back to your old one, LOL!!

Woah, this is all you need at this point. Well I will keep my fingers crossed

for you. I'm sorry your not getting a girl. Are they 100% sure?

number23 wrote:

GlacierHi All,

You probably know I'm preggers with baby #3, and two previous 2 had cf. Well

I'm seeing a mid wife but saw a dr. today for an ultrasound. He argued cf

cannot be picked up on u/s and stuff...anyway, he caved in to my wish to do a

diagnostic u/s at 22 weeks along instead of really trying to do anything today.

It'll be done at a hospital instead of with his little office-model machine.

What we did see briefly today was it looks like another boy, and I saw one foot

shot that looked very suspicious to me....ugh on both counts. Sorry, I sure

would like a daughter here.

OK - here's what I'm asking you for... do we have in our files a fairly straight

forward yet informative package of info I can print off and give to this guy?

My midwife is very supportive but this dr. guy was a jerk. If so, can you tell

me what file to look for?

thanks,

s.

October 4, 2005