Anyone know anything about Celiac Disease?

January 26, 2005

We are home from St.Louis. Pretty good trip!! Not too sure I like

the new Doctor.

He ran several blood test!!! Many my doctor here already ran.

They took about 20 X-Rays of his bones. And did a MRI.

So far all we know is the MRI is normal.

One of the thing he is checking for is Celiac Disease. I guess it

really is just like a allergic reaction to stuff like wheat. Yet

they do not get the proper nutrition. And the small bowel fails.

I guess you get joint pain and fatigue.

I'm really afraid this may have been a wasted trip.

The reason I said I was not really sure if I like him or not.

He said he would run these test, yet if they all come back normal.

He said it may all be in his head. Yes!!!You heard me.

He said maybe since Joey is sick, Dakota wants to be sick to.

Even if his fatigue and joint pain has been here even before Joey.

And way before Joey's Dx.

We left really mad, yet did not say nothing about it. Just hope

they would find something. I wanted to say sooooo bad. Can you

make you body have a Patecie rash all over it? Can you make you SED

rate high?

I'm afraid this dr. may be a joke. Yet they say he is the best in

the country.

Please pray for me!!

Tamara

January 26, 2005