Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 In all the years of going to doctors I've never had one stop the usual conversation and ask how I was feeling emotionally. That happened today and I was so startled. My GP spent almost an hour talking to me about how difficult it was dealing with my type of illness -- we don't even really have a name for it (some doctors are calling it neurosarcoidosis, others are not calling it anything but autoimmune mediated, steroid- sensitive cranial polyneuropathy - what a mouth full!). At any rate it was a most satisfying talk. I really think he made an attempt to understand my fears and frustrations. He offered to talk to my family and try to explain things. That should be interesting! Can't help but wonder if there is an ulterior motive? He mentioned seeing a psychologist to help vent my feelings and work through some of my fear issues. I have a fear of becoming helpless. I was totally bed-ridden when the balance mechanism in my ear was paralyzed a couple of years ago, and then again when I became sick with a serious double-pneumonia this summer. At any rate, I was touched by his obvious concern for " the rest of me. " Just thought I'd share this. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 In all the years of going to doctors I've never had one stop the usual conversation and ask how I was feeling emotionally. That happened today and I was so startled. My GP spent almost an hour talking to me about how difficult it was dealing with my type of illness -- we don't even really have a name for it (some doctors are calling it neurosarcoidosis, others are not calling it anything but autoimmune mediated, steroid- sensitive cranial polyneuropathy - what a mouth full!). At any rate it was a most satisfying talk. I really think he made an attempt to understand my fears and frustrations. He offered to talk to my family and try to explain things. That should be interesting! Can't help but wonder if there is an ulterior motive? He mentioned seeing a psychologist to help vent my feelings and work through some of my fear issues. I have a fear of becoming helpless. I was totally bed-ridden when the balance mechanism in my ear was paralyzed a couple of years ago, and then again when I became sick with a serious double-pneumonia this summer. At any rate, I was touched by his obvious concern for " the rest of me. " Just thought I'd share this. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Hi I am so glad you found a doctor who will see you as a person, instead of a patient, I have been blessed to have a doctor like that too. I do see a counselor though in fact she is someone I have know for years as a friend, someone I know from church, and at first I thought it would be strange, but it's not it's really good. It is good to talk to someone about your fears, my family just looks at me and says " that won't happen Mom " , yeah well now I'm using a cane, and if I want to go back to doing anything long term, will be a wheelchair. I'm waiting for an appeal hearing this March 12th to see if I get Remicade or not, and if not, don't know, but I do know that I wake up every day thankful, as God put this in my life for a reason, and every day I go to sleep thankful. Counseling is good, it's good to talk to someone other then family and doctors, I also journal, that is very helpful too. I write a letter to God in my journals. He answers me in my heart. God Bless, Marla In all the years of going to doctors I've never had one stop the usual conversation and ask how I was feeling emotionally. That happened today and I was so startled. My GP spent almost an hour talking to me about how difficult it was dealing with my type of illness -- we don't even really have a name for it (some doctors are calling it neurosarcoidosis, others are not calling it anything but autoimmune mediated, steroid- sensitive cranial polyneuropathy - what a mouth full!). At any rate it was a most satisfying talk. I really think he made an attempt to understand my fears and frustrations. He offered to talk to my family and try to explain things. That should be interesting! Can't help but wonder if there is an ulterior motive? He mentioned seeing a psychologist to help vent my feelings and work through some of my fear issues. I have a fear of becoming helpless. I was totally bed-ridden when the balance mechanism in my ear was paralyzed a couple of years ago, and then again when I became sick with a serious double-pneumonia this summer. At any rate, I was touched by his obvious concern for " the rest of me. " Just thought I'd share this. - -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2008 Report Share Posted March 1, 2008 Hi I am so glad you found a doctor who will see you as a person, instead of a patient, I have been blessed to have a doctor like that too. I do see a counselor though in fact she is someone I have know for years as a friend, someone I know from church, and at first I thought it would be strange, but it's not it's really good. It is good to talk to someone about your fears, my family just looks at me and says " that won't happen Mom " , yeah well now I'm using a cane, and if I want to go back to doing anything long term, will be a wheelchair. I'm waiting for an appeal hearing this March 12th to see if I get Remicade or not, and if not, don't know, but I do know that I wake up every day thankful, as God put this in my life for a reason, and every day I go to sleep thankful. Counseling is good, it's good to talk to someone other then family and doctors, I also journal, that is very helpful too. I write a letter to God in my journals. He answers me in my heart. God Bless, Marla In all the years of going to doctors I've never had one stop the usual conversation and ask how I was feeling emotionally. That happened today and I was so startled. My GP spent almost an hour talking to me about how difficult it was dealing with my type of illness -- we don't even really have a name for it (some doctors are calling it neurosarcoidosis, others are not calling it anything but autoimmune mediated, steroid- sensitive cranial polyneuropathy - what a mouth full!). At any rate it was a most satisfying talk. I really think he made an attempt to understand my fears and frustrations. He offered to talk to my family and try to explain things. That should be interesting! Can't help but wonder if there is an ulterior motive? He mentioned seeing a psychologist to help vent my feelings and work through some of my fear issues. I have a fear of becoming helpless. I was totally bed-ridden when the balance mechanism in my ear was paralyzed a couple of years ago, and then again when I became sick with a serious double-pneumonia this summer. At any rate, I was touched by his obvious concern for " the rest of me. " Just thought I'd share this. - -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer Quote Link to comment Share on other sites More sharing options...
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