Re:Rosy/all- Zipporrah has pneumonia

[Guest guest]

I do not have a cough assist machine but don't think our ped would

think it necessary as when we asked about a suctioner, they didn't think it

was something we needed and so we didn't get one. Admittedly we didn't push

to get one at the time though. I am mostly concerned about Joey presently

as he still has a very deep cough and asthma wheezing quite often even

following treatments. I think he may need some steroids to get over the

hump. We have a doc appointment for Zipporrah, Joey, and (the

other little one) tomorrow morning so hopefully we will get more help if

still needing it then. I keep having to fight this bug off and then it

keeps coming back over and over again each time I think I am beating it.

Several of my other kids have been really struggling with it as well and

they have very red eyes (as Zipporrah did) and are just drained. Asenath is

still fighting it off but had a small episode on her left side (had to have

something didn't we?) and is still pretty exhausted. I hope this leaves the

home quickly! We are actually doing amazingly well though and everyone is

very cheerful and the twins' transition into our home is going wonderfully,

even with the illnesses, so we are all pleased. Keep praying for all the

kids though please.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

Re: Zipporrah has pneumonia

> Darla

>

> Do you have a cough assist machine? Zipporah should be able to benefit

> from

> it. It helps with coughing and clearing. It is non-invasive and the best

> tool

> around to help them cough. Ask you ped or pulmo for it.

>

> We'll keep you in our prayers and hope the rest of the kids will stay

> unaffected.

>

> best regards

> rosy

>

[Guest guest]

I do not have a cough assist machine but don't think our ped would

think it necessary as when we asked about a suctioner, they didn't think it

was something we needed and so we didn't get one. Admittedly we didn't push

to get one at the time though. I am mostly concerned about Joey presently

as he still has a very deep cough and asthma wheezing quite often even

following treatments. I think he may need some steroids to get over the

hump. We have a doc appointment for Zipporrah, Joey, and (the

other little one) tomorrow morning so hopefully we will get more help if

still needing it then. I keep having to fight this bug off and then it

keeps coming back over and over again each time I think I am beating it.

Several of my other kids have been really struggling with it as well and

they have very red eyes (as Zipporrah did) and are just drained. Asenath is

still fighting it off but had a small episode on her left side (had to have

something didn't we?) and is still pretty exhausted. I hope this leaves the

home quickly! We are actually doing amazingly well though and everyone is

very cheerful and the twins' transition into our home is going wonderfully,

even with the illnesses, so we are all pleased. Keep praying for all the

kids though please.

See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see

a photo look into what Mito looks like

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting,

bladder issues, wheelchair for distances, eye issues, autistic behaviors,

gastric emptying issues...

Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD,

dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive

phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy,

hypertonicity, migraines, possible seizures, dumping syndrome, iron

deficiency, ...

Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), &

Marquis (3), Joey & (12 months) (some with Mito symptoms)

Re: Zipporrah has pneumonia

> Darla

>

> Do you have a cough assist machine? Zipporah should be able to benefit

> from

> it. It helps with coughing and clearing. It is non-invasive and the best

> tool

> around to help them cough. Ask you ped or pulmo for it.

>

> We'll keep you in our prayers and hope the rest of the kids will stay

> unaffected.

>

> best regards

> rosy

>