Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 Hey there How affected is her brain? was the sweetest loving child, but his brain was mainly affected and as he regressed, he developed dementia. The first big issue we had with it lasted five days...five days of inconsolable crying. Usually he would just get beside himself over something he couldn't do or something he couldn't understand properly. He sometimes would go in the hallway and think people were laughing about him, which of course, wasn't true. He would get to this point of no return and we would taco-him in a blanket and get him to bed...calm him down with a video. Sometimes he would remember it and sometimes he wouldn't. The more activity he had in the day, the worse it could be later in the day. He probably always had some autistic tendencies, especially having to have some things the same way allt he time. A good number of mito kids have autistic traits...some have full blown autism...the mito docs know its related in some cases but they don't know why yet. If you ever want to talk more about those behaviors, you are welcome to write me off the list. deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy. www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2005 Report Share Posted January 10, 2005 Hey there How affected is her brain? was the sweetest loving child, but his brain was mainly affected and as he regressed, he developed dementia. The first big issue we had with it lasted five days...five days of inconsolable crying. Usually he would just get beside himself over something he couldn't do or something he couldn't understand properly. He sometimes would go in the hallway and think people were laughing about him, which of course, wasn't true. He would get to this point of no return and we would taco-him in a blanket and get him to bed...calm him down with a video. Sometimes he would remember it and sometimes he wouldn't. The more activity he had in the day, the worse it could be later in the day. He probably always had some autistic tendencies, especially having to have some things the same way allt he time. A good number of mito kids have autistic traits...some have full blown autism...the mito docs know its related in some cases but they don't know why yet. If you ever want to talk more about those behaviors, you are welcome to write me off the list. deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy. www.LifeofLoveProject.orgwww.debwells.com Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.