Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 We did a label comparison ensure to pedia sure the biggest difference was in the amount of salt (ensure was higher). The Walmart brand of ensure is exact to the label brand of ensure and as it grows closer to the expiration date they would have sales of it for about 1/2 of its regular price. This is about 1/2 of ensure's price. If you call some of the dieticians/nutritionists at your hospital they may be able to tell you which of the insurances in your area will cover the supplements. If you talk with the salesperson who carries ensure as their product line you might be able to get some samples that have come too close to the expiration date to be able to be given away. If you look at the product labeling the carnation instant breakfast is very close nutritionally to the ensure. Billy has a tube and even with that some insurances will not cover the cost of the food. Twana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 We did a label comparison ensure to pedia sure the biggest difference was in the amount of salt (ensure was higher). The Walmart brand of ensure is exact to the label brand of ensure and as it grows closer to the expiration date they would have sales of it for about 1/2 of its regular price. This is about 1/2 of ensure's price. If you call some of the dieticians/nutritionists at your hospital they may be able to tell you which of the insurances in your area will cover the supplements. If you talk with the salesperson who carries ensure as their product line you might be able to get some samples that have come too close to the expiration date to be able to be given away. If you look at the product labeling the carnation instant breakfast is very close nutritionally to the ensure. Billy has a tube and even with that some insurances will not cover the cost of the food. Twana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 Thanks for the info! We did a label comparison ensure to pedia sure the biggest difference was in the amount of salt (ensure was higher). The Walmart brand of ensure is exact to the label brand of ensure and as it grows closer to the expiration date they would have sales of it for about 1/2 of its regular price. This is about 1/2 of ensure's price. If you call some of the dieticians/nutritionists at your hospital they may be able to tell you which of the insurances in your area will cover the supplements. If you talk with the salesperson who carries ensure as their product line you might be able to get some samples that have come too close to the expiration date to be able to be given away. If you look at the product labeling the carnation instant breakfast is very close nutritionally to the ensure. Billy has a tube and even with that some insurances will not cover the cost of the food. Twana Please contact mito-owner with any problems or questions. Yahoo! Groups Sponsor ADVERTISEMENT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 > > We did a label comparison ensure to pedia sure the biggest difference > was in the amount of salt (ensure was higher). You should NOT use ensure for a child under the age of ten. The osmolarity of ensure is unsafe for children. I am not sure that you can get that info from the label. It is NOT safe at all for younger children. Feeding difficulties can often be helped by going to a feeding therapist. Ours helped out eat. I am not talking about a dietician. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Debbie, Our son Joe drinks Pediasure by mouth. He doesn't have any type of feeding tube. He daily drinks 2-3 pediasure with Duocal powder added for calories. If it weren't for the pediasure and duocal, Joe would be a walking skeleton. He intakes orally without the pediasure almost double the normal amount of calories a kid his age needs, but still couldn't keep the weight on. His appetite is now around normal, as the pediasure seems to fill him quite a bit. We have private insurance through my DH's work. We have the Support Services Waiver program which provides Medicaid because of his medical issues and is not based on our income. The medicaid pays for the duocal. We have Indiana Children's Special Health Care Services (State based program for kids with medical needs) and they pick up the cost of the pediasure and many things that the other 2 insurance's won't. Many states have programs such as these which help families supplement financially when they have special needs children. Hope this helps some, AnnMarie L. - Complex IV Married to my best friend Rick, Mom of (15), (12), Cassandra (6) and Joe (5 on Dec.31) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) djvanaman@... wrote: Ensure/Pedia sure was RE: a couple of ?'s about Is there anyone out there that has a mito child that drinks Pediasure, by mouth, not tube fed & gets it covered by their insurance somehow? Our insurance co.denied the claim & we are struggling paying for it because it is so expensive. Or is there any other funding type sources out there that anyone knows about. Any pertinant info. is greatly appreciated. Thanks in advance. Debbie Vanaman (Mommy of Jaleigh...complex one) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Debbie, Our son Joe drinks Pediasure by mouth. He doesn't have any type of feeding tube. He daily drinks 2-3 pediasure with Duocal powder added for calories. If it weren't for the pediasure and duocal, Joe would be a walking skeleton. He intakes orally without the pediasure almost double the normal amount of calories a kid his age needs, but still couldn't keep the weight on. His appetite is now around normal, as the pediasure seems to fill him quite a bit. We have private insurance through my DH's work. We have the Support Services Waiver program which provides Medicaid because of his medical issues and is not based on our income. The medicaid pays for the duocal. We have Indiana Children's Special Health Care Services (State based program for kids with medical needs) and they pick up the cost of the pediasure and many things that the other 2 insurance's won't. Many states have programs such as these which help families supplement financially when they have special needs children. Hope this helps some, AnnMarie L. - Complex IV Married to my best friend Rick, Mom of (15), (12), Cassandra (6) and Joe (5 on Dec.31) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) djvanaman@... wrote: Ensure/Pedia sure was RE: a couple of ?'s about Is there anyone out there that has a mito child that drinks Pediasure, by mouth, not tube fed & gets it covered by their insurance somehow? Our insurance co.denied the claim & we are struggling paying for it because it is so expensive. Or is there any other funding type sources out there that anyone knows about. Any pertinant info. is greatly appreciated. Thanks in advance. Debbie Vanaman (Mommy of Jaleigh...complex one) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi, I don't know what state you are in. IN Children's Special Health tried to not cover Joe's also. Our Doc's wrote very strongly worded letters about his error of inborn metabolism and that without the additional supplementation this child would have significant deterioration with the end result being death. It was approved again and we haven't had any problems since. The original problem was that children who aren't tube fed are encouraged to have oral/normal diets. With our children, we have very different needs to meet. Nutrition is one of the key issues with Joe in able to keep him at his healthiest. It also helps that he is still well below average in his weight, although his height has improved significantly. As for the Carnation instant breakfast, Children's SHCS tried that one on us too and the ingredients and nutrients are not the same as pediasure. Our docs recommended the pediasure and to only use the carnation as an absolute last resort if we couldn't get approval on the pediasure. Hoping that you can get it reapproved. AnnMarie L. - Complex IV Married to my best friend Rick, Mom of (15), (12), Cassandra (6) and Joe (4 1/2) - complex IV, lactic acidosis, CP, tethered chord syndrome, dysautonomia, and a smile that never quits :-) djvanaman@... wrote: Well....we had a script & Arnett HMO will still not pay for her formula to be covered. Also, she has Children's with Special Heathcare Insurance and they were covering it and stopped recently...said they did not realize that she was not tube fed & /or under the age of 5...and that if she can still drink it that she needed to be on WIC. Well, that is the other problem...we cannot get WIC...we make too much money to qualify....same goes for Medicaid....she does not get that either. I may just have to check out the Carnation Instant Breakfast...she just turned three in September and weighs not much over 30lbs. I just wish there was more help out there for the middle-class people who cannot afford all of the "extras" that we encounter with mito. I am at a loss of what to do & was just wanting suggestions. Thanks for letting me vent.... Debbie Vanaman ----- Original Message ----- From: To: Mito Sent: Tuesday, November 30, 2004 8:54 PM Subject: Re: Ensure/Pedia sure was RE: a couple of ?'s about carnitine supp > Ensure/Pedia sure was RE: a couple of ?'s aboutIs there anyone out there that has a mito child that drinks Pediasure, by mouth, not tube fed & gets it covered by their insurance somehow? Insurance won't pay for it without a script. No insurance will, including medicaid. If you have a script, the rare insurance company will. Medicaid will also pay with a script. WIC will also pay with a script (for children under five). Carnation instant breakfast is less expensive and contains just about the same nutrients. I would use this instead of pediasure for a low weight child. You can also add cream to boost calories. Please contact mito-owner with any problems or questions. Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
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