Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 i've been away this week for a death in my family and i am just now sitting down reviewing the emails. What Happened???? This group is my best and most realistic source of actual information and support i have. i can see now that we all have been through many and some more than others, but WE know its there. I wanted to tell you all that i am now going for surgery for several biopsies of muscle and nerves which this new neurologist believes firmly that i fall into the 5-10% of muscle sarcoid. this has been my biggest problem with my health, i have a full right leg brace, my hands and arms are contracted inward, my strength is rapidly weakening, moreso in the past 2-3 weeks and i cannot do the things i used to at all. i think of all of us every day and pray for our pains, and losses. i will let you know what the results of the biopsies are and where, it will be great for him to find the sarc in the muscles just for the point of they found what is causing these severe problems i'm having, but detramental in that i have a positive for sarcoid in the muscles which is even slimmer than having sarcoid in the first place. thanks so much to all who have shared their story, they have brought me great support and the attitude to continue on searching for the truth of the disease. thanks again and keep sharing with each other!!!!!!! love and god bless ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2007 Report Share Posted September 14, 2007 i've been away this week for a death in my family and i am just now sitting down reviewing the emails. What Happened???? This group is my best and most realistic source of actual information and support i have. i can see now that we all have been through many and some more than others, but WE know its there. I wanted to tell you all that i am now going for surgery for several biopsies of muscle and nerves which this new neurologist believes firmly that i fall into the 5-10% of muscle sarcoid. this has been my biggest problem with my health, i have a full right leg brace, my hands and arms are contracted inward, my strength is rapidly weakening, moreso in the past 2-3 weeks and i cannot do the things i used to at all. i think of all of us every day and pray for our pains, and losses. i will let you know what the results of the biopsies are and where, it will be great for him to find the sarc in the muscles just for the point of they found what is causing these severe problems i'm having, but detramental in that i have a positive for sarcoid in the muscles which is even slimmer than having sarcoid in the first place. thanks so much to all who have shared their story, they have brought me great support and the attitude to continue on searching for the truth of the disease. thanks again and keep sharing with each other!!!!!!! love and god bless ken Quote Link to comment Share on other sites More sharing options...
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