] Re: DBB Question- (x-rays)

[Guest guest]

I'm sorry if we came across as harsh, we really don't mean to " attack " in any

way. I think some times we answer in haste and come across blunt by accident.

Yes, though - my 2 year old is treated by Dr. Ponseti and has never had an xray,

it's all done manually (check ups, etc.). I'll eat some of my own words here

too - later today I got a call from U of I regarding our appt. next week and

they do want to xray this trip but he is not a true Ponseti Case, he was

treated by a bad non-P doctor and Ponsti's clinic has been trying to help him

since then.

s.

I think I wasn't clear... Her doc isn't making the decision based

solely on an x-ray - she does check her range of motion, etc. and

then makes a determination. Her doc has had a great deal of success

with the Ponseti method. However, she also uses x-rays. has

had only had one x-ray before - after the casting was complete. I'm

eating my words because now I'm not sure why! So most club feet

children have NO x-rays? Last visit, she said she'd be doing another

x-ray. I'll look into it on Wednesday when I see her.

> > > >

> > > > Geeze, another doctor not prescribing the FAB correctly!

> > > Rrrggg! The whole success of the method depends on your FAB

> > > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!)

> > > >

> > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr.

> > > Ponseti's protocol prescribes the children wear the FAB 23

hours

> a

> > > day 7 days a week for 3 months. At that point it is reduced

to

> 18

> > > hours a day - crap I have crazy screaming kids here, hard to

> > > concentrate....um... help me out gang, is it 18 hours until

they

> > > bear weight? Then down to 14 hours a day, minimum of 12 till

> they

> > > graduate from it at around age 4 years old. I know the exact

> > > directions are here somewhere and if someone doesn't pipe up

> with

> > it

> > > you can probably locate it in the Files.

> > > >

> > > > The FAB does not interfer with normal development when worn

> > > according to Dr. P's prescription for use. Your baby will

roll,

> > sit

> > > up, crawl, cruise, everything normally (provided there isn't

> some

> > > other issue at work besides clubfoot). Some children roll and

> sit

> > > up earlier than normal due to it's use.

> > > >

> > > > Saying some kids don't tolerate it is a cop out in my

> opinion.

> > > Who gives them the choice? Oh sure some kids may hate the dang

> > > thing once in a while, but they hate holding hands crossing

busy

> > > streets, too, but do we let them run loose in traffic?? If he

> > hated

> > > diaper changes would you let him run around poopy? They

> don 't

> > > know what's good for them, that's why they have parents.

> > > >

> > > > What aggrivates me is what sounds like your doctor's lack of

> > > support in this area, almost giving the parents permission to

> not

> > > use the FAB which is going to lead to horrible results later

> on. I

> > > venture it is the doctor's own ignorance at work here and

Cheers

> to

> > > you for educating yourself as a parent!

> > > >

> > > > The main thing to keep in mind is that the FAB becomes your

> > > child's " Normal " . We were talking about this just recently -

> they

> > > grow up in it, it's part of them, part of their world, their

> life,

> > > their everything. Before too long it will really be little

moer

> > > than an extension of the child's pajamas. My little son here

> just

> > > turned 2 years old. Once he gets his FAB on at night he can

> hardly

> > > keep his eyes open, it's so normal to him that the shoes go on

> for

> > > bed. And in the morning soon as he eats his breakfast he knows

> > they

> > > come back off.

> > > >

> > > > I'm sorry to rant and rave, I really don't mean to, and I'm

so

> > > glad to have you in the group here. It's the doctors who don't

> > > support the parents in their use of the FAB that really

> aggrivate

> > me

> > > because with out the brace, these corrected children revert

back

> to

> > > being club footed.

> > > >

> > > > Best of luck to you!

> > > > s.

> > > > DBB Question

> > > >

> > > >

> > > > Hello Everyone,

> > > >

> > > > I have a three month old son named with moderate left

> > > > clubfoot who is currently wearing the DBB. He had 5 weeks of

> > > casts

> > > > (starting on day 4 of life) and then on week 6 starting

> wearing

> > > the

> > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks

> now

> > > for

> > > > 23 hours a day. We went for his checkup today and the doctor

> > said

> > > > that his foot looks good so far and to come back in 2 1/2

> > months.

> > > > He said that we should try to keep wearing the DBB for

> the

> > > 23

> > > > hours as long as possible but can start to cutdown on the

> hours

> > > once

> > > > it beings to interfere with his development. How do I know

> when

> > > > this is? How many hours should he wear the bar once it is

not

> 23

> > > > hours anymore? I asked the questions but did not really get

a

> > > good

> > > > answer on what we should be doing. Or maybe I just did not

> > > > understand. My doctor said a lot of times the babies just do

> not

> > > > want to wear the bars anymore or have issues with them. So

> far

> > > > is doing pretty well so I want to keep him wearing

them

> as

> > > > much as possible since I am afraid of relapse but I do not

> want

> > to

> > > > interfere with his normal development.

> > > >

> > > > Thank you,

> > > > Stacey

> > > > Mom to LCF 7/8/05

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I think I wasn't clear... Her doc isn't making the decision based

solely on an x-ray - she does check her range of motion, etc. and

then makes a determination. Her doc has had a great deal of success

with the Ponseti method. However, she also uses x-rays. has

had only had one x-ray before - after the casting was complete. I'm

eating my words because now I'm not sure why! So most club feet

children have NO x-rays? Last visit, she said she'd be doing another

x-ray. I'll look into it on Wednesday when I see her.

> > > >

> > > > Geeze, another doctor not prescribing the FAB correctly!

> > > Rrrggg! The whole success of the method depends on your FAB

> > > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!)

> > > >

> > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr.

> > > Ponseti's protocol prescribes the children wear the FAB 23

hours

> a

> > > day 7 days a week for 3 months. At that point it is reduced

to

> 18

> > > hours a day - crap I have crazy screaming kids here, hard to

> > > concentrate....um... help me out gang, is it 18 hours until

they

> > > bear weight? Then down to 14 hours a day, minimum of 12 till

> they

> > > graduate from it at around age 4 years old. I know the exact

> > > directions are here somewhere and if someone doesn't pipe up

> with

> > it

> > > you can probably locate it in the Files.

> > > >

> > > > The FAB does not interfer with normal development when worn

> > > according to Dr. P's prescription for use. Your baby will

roll,

> > sit

> > > up, crawl, cruise, everything normally (provided there isn't

> some

> > > other issue at work besides clubfoot). Some children roll and

> sit

> > > up earlier than normal due to it's use.

> > > >

> > > > Saying some kids don't tolerate it is a cop out in my

> opinion.

> > > Who gives them the choice? Oh sure some kids may hate the dang

> > > thing once in a while, but they hate holding hands crossing

busy

> > > streets, too, but do we let them run loose in traffic?? If he

> > hated

> > > diaper changes would you let him run around poopy? They

> don 't

> > > know what's good for them, that's why they have parents.

> > > >

> > > > What aggrivates me is what sounds like your doctor's lack of

> > > support in this area, almost giving the parents permission to

> not

> > > use the FAB which is going to lead to horrible results later

> on. I

> > > venture it is the doctor's own ignorance at work here and

Cheers

> to

> > > you for educating yourself as a parent!

> > > >

> > > > The main thing to keep in mind is that the FAB becomes your

> > > child's " Normal " . We were talking about this just recently -

> they

> > > grow up in it, it's part of them, part of their world, their

> life,

> > > their everything. Before too long it will really be little

moer

> > > than an extension of the child's pajamas. My little son here

> just

> > > turned 2 years old. Once he gets his FAB on at night he can

> hardly

> > > keep his eyes open, it's so normal to him that the shoes go on

> for

> > > bed. And in the morning soon as he eats his breakfast he knows

> > they

> > > come back off.

> > > >

> > > > I'm sorry to rant and rave, I really don't mean to, and I'm

so

> > > glad to have you in the group here. It's the doctors who don't

> > > support the parents in their use of the FAB that really

> aggrivate

> > me

> > > because with out the brace, these corrected children revert

back

> to

> > > being club footed.

> > > >

> > > > Best of luck to you!

> > > > s.

> > > > DBB Question

> > > >

> > > >

> > > > Hello Everyone,

> > > >

> > > > I have a three month old son named with moderate left

> > > > clubfoot who is currently wearing the DBB. He had 5 weeks of

> > > casts

> > > > (starting on day 4 of life) and then on week 6 starting

> wearing

> > > the

> > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks

> now

> > > for

> > > > 23 hours a day. We went for his checkup today and the doctor

> > said

> > > > that his foot looks good so far and to come back in 2 1/2

> > months.

> > > > He said that we should try to keep wearing the DBB for

> the

> > > 23

> > > > hours as long as possible but can start to cutdown on the

> hours

> > > once

> > > > it beings to interfere with his development. How do I know

> when

> > > > this is? How many hours should he wear the bar once it is

not

> 23

> > > > hours anymore? I asked the questions but did not really get

a

> > > good

> > > > answer on what we should be doing. Or maybe I just did not

> > > > understand. My doctor said a lot of times the babies just do

> not

> > > > want to wear the bars anymore or have issues with them. So

> far

> > > > is doing pretty well so I want to keep him wearing

them

> as

> > > > much as possible since I am afraid of relapse but I do not

> want

> > to

> > > > interfere with his normal development.

> > > >

> > > > Thank you,

> > > > Stacey

> > > > Mom to LCF 7/8/05

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I think I wasn't clear... Her doc isn't making the decision based

solely on an x-ray - she does check her range of motion, etc. and

then makes a determination. Her doc has had a great deal of success

with the Ponseti method. However, she also uses x-rays. has

had only had one x-ray before - after the casting was complete. I'm

eating my words because now I'm not sure why! So most club feet

children have NO x-rays? Last visit, she said she'd be doing another

x-ray. I'll look into it on Wednesday when I see her.

> > > >

> > > > Geeze, another doctor not prescribing the FAB correctly!

> > > Rrrggg! The whole success of the method depends on your FAB

> > > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!)

> > > >

> > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr.

> > > Ponseti's protocol prescribes the children wear the FAB 23

hours

> a

> > > day 7 days a week for 3 months. At that point it is reduced

to

> 18

> > > hours a day - crap I have crazy screaming kids here, hard to

> > > concentrate....um... help me out gang, is it 18 hours until

they

> > > bear weight? Then down to 14 hours a day, minimum of 12 till

> they

> > > graduate from it at around age 4 years old. I know the exact

> > > directions are here somewhere and if someone doesn't pipe up

> with

> > it

> > > you can probably locate it in the Files.

> > > >

> > > > The FAB does not interfer with normal development when worn

> > > according to Dr. P's prescription for use. Your baby will

roll,

> > sit

> > > up, crawl, cruise, everything normally (provided there isn't

> some

> > > other issue at work besides clubfoot). Some children roll and

> sit

> > > up earlier than normal due to it's use.

> > > >

> > > > Saying some kids don't tolerate it is a cop out in my

> opinion.

> > > Who gives them the choice? Oh sure some kids may hate the dang

> > > thing once in a while, but they hate holding hands crossing

busy

> > > streets, too, but do we let them run loose in traffic?? If he

> > hated

> > > diaper changes would you let him run around poopy? They

> don 't

> > > know what's good for them, that's why they have parents.

> > > >

> > > > What aggrivates me is what sounds like your doctor's lack of

> > > support in this area, almost giving the parents permission to

> not

> > > use the FAB which is going to lead to horrible results later

> on. I

> > > venture it is the doctor's own ignorance at work here and

Cheers

> to

> > > you for educating yourself as a parent!

> > > >

> > > > The main thing to keep in mind is that the FAB becomes your

> > > child's " Normal " . We were talking about this just recently -

> they

> > > grow up in it, it's part of them, part of their world, their

> life,

> > > their everything. Before too long it will really be little

moer

> > > than an extension of the child's pajamas. My little son here

> just

> > > turned 2 years old. Once he gets his FAB on at night he can

> hardly

> > > keep his eyes open, it's so normal to him that the shoes go on

> for

> > > bed. And in the morning soon as he eats his breakfast he knows

> > they

> > > come back off.

> > > >

> > > > I'm sorry to rant and rave, I really don't mean to, and I'm

so

> > > glad to have you in the group here. It's the doctors who don't

> > > support the parents in their use of the FAB that really

> aggrivate

> > me

> > > because with out the brace, these corrected children revert

back

> to

> > > being club footed.

> > > >

> > > > Best of luck to you!

> > > > s.

> > > > DBB Question

> > > >

> > > >

> > > > Hello Everyone,

> > > >

> > > > I have a three month old son named with moderate left

> > > > clubfoot who is currently wearing the DBB. He had 5 weeks of

> > > casts

> > > > (starting on day 4 of life) and then on week 6 starting

> wearing

> > > the

> > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks

> now

> > > for

> > > > 23 hours a day. We went for his checkup today and the doctor

> > said

> > > > that his foot looks good so far and to come back in 2 1/2

> > months.

> > > > He said that we should try to keep wearing the DBB for

> the

> > > 23

> > > > hours as long as possible but can start to cutdown on the

> hours

> > > once

> > > > it beings to interfere with his development. How do I know

> when

> > > > this is? How many hours should he wear the bar once it is

not

> 23

> > > > hours anymore? I asked the questions but did not really get

a

> > > good

> > > > answer on what we should be doing. Or maybe I just did not

> > > > understand. My doctor said a lot of times the babies just do

> not

> > > > want to wear the bars anymore or have issues with them. So

> far

> > > > is doing pretty well so I want to keep him wearing

them

> as

> > > > much as possible since I am afraid of relapse but I do not

> want

> > to

> > > > interfere with his normal development.

> > > >

> > > > Thank you,

> > > > Stacey

> > > > Mom to LCF 7/8/05

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >