Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I agree with you - Dr. Ponsti has never xrayed either of my boys. s. DBB Question > > > > > > > > > Hello Everyone, > > > > > > I have a three month old son named with moderate left > > > clubfoot who is currently wearing the DBB. He had 5 weeks of > > casts > > > (starting on day 4 of life) and then on week 6 starting wearing > > the > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > > for > > > 23 hours a day. We went for his checkup today and the doctor > said > > > that his foot looks good so far and to come back in 2 1/2 > months. > > > He said that we should try to keep wearing the DBB for the > > 23 > > > hours as long as possible but can start to cutdown on the hours > > once > > > it beings to interfere with his development. How do I know when > > > this is? How many hours should he wear the bar once it is not 23 > > > hours anymore? I asked the questions but did not really get a > > good > > > answer on what we should be doing. Or maybe I just did not > > > understand. My doctor said a lot of times the babies just do not > > > want to wear the bars anymore or have issues with them. So far > > > is doing pretty well so I want to keep him wearing them as > > > much as possible since I am afraid of relapse but I do not want > to > > > interfere with his normal development. > > > > > > Thank you, > > > Stacey > > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 I agree with you - Dr. Ponsti has never xrayed either of my boys. s. DBB Question > > > > > > > > > Hello Everyone, > > > > > > I have a three month old son named with moderate left > > > clubfoot who is currently wearing the DBB. He had 5 weeks of > > casts > > > (starting on day 4 of life) and then on week 6 starting wearing > > the > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > > for > > > 23 hours a day. We went for his checkup today and the doctor > said > > > that his foot looks good so far and to come back in 2 1/2 > months. > > > He said that we should try to keep wearing the DBB for the > > 23 > > > hours as long as possible but can start to cutdown on the hours > > once > > > it beings to interfere with his development. How do I know when > > > this is? How many hours should he wear the bar once it is not 23 > > > hours anymore? I asked the questions but did not really get a > > good > > > answer on what we should be doing. Or maybe I just did not > > > understand. My doctor said a lot of times the babies just do not > > > want to wear the bars anymore or have issues with them. So far > > > is doing pretty well so I want to keep him wearing them as > > > much as possible since I am afraid of relapse but I do not want > to > > > interfere with his normal development. > > > > > > Thank you, > > > Stacey > > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 , I hope you don't take this the wrong way- but what you described in your post about your doctor making decisions on how long needs to wear her brace based on x-rays doesn't make sense at all from a " true Ponseti method standpoint " . Unless there are some extenuating circumstances, your doctor shouldn't need to x-ray 's feet at all, especially as young as she is! If the feet are fully corrected, the doctor should know just by examining the feet physically. Once the feet are corrected, the protocol with the brace wearing is pretty straight forward and has nothing to do with the position of the bones in the feet per an x- ray. Sorry to butt in- but this whole x-ray thing is sounding very suspicious to me. I would be on my toes about this doctor if I were you. Just my two cents, I hope I didn't offend you in any way. & (3-16-00, left clubfoot) http://ponseticlubfoot.freeservers.com/ > > > > > > Geeze, another doctor not prescribing the FAB correctly! > > Rrrggg! The whole success of the method depends on your FAB > > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!) > > > > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr. > > Ponseti's protocol prescribes the children wear the FAB 23 hours a > > day 7 days a week for 3 months. At that point it is reduced to 18 > > hours a day - crap I have crazy screaming kids here, hard to > > concentrate....um... help me out gang, is it 18 hours until they > > bear weight? Then down to 14 hours a day, minimum of 12 till they > > graduate from it at around age 4 years old. I know the exact > > directions are here somewhere and if someone doesn't pipe up with > it > > you can probably locate it in the Files. > > > > > > The FAB does not interfer with normal development when worn > > according to Dr. P's prescription for use. Your baby will roll, > sit > > up, crawl, cruise, everything normally (provided there isn't some > > other issue at work besides clubfoot). Some children roll and sit > > up earlier than normal due to it's use. > > > > > > Saying some kids don't tolerate it is a cop out in my opinion. > > Who gives them the choice? Oh sure some kids may hate the dang > > thing once in a while, but they hate holding hands crossing busy > > streets, too, but do we let them run loose in traffic?? If he > hated > > diaper changes would you let him run around poopy? They don 't > > know what's good for them, that's why they have parents. > > > > > > What aggrivates me is what sounds like your doctor's lack of > > support in this area, almost giving the parents permission to not > > use the FAB which is going to lead to horrible results later on. I > > venture it is the doctor's own ignorance at work here and Cheers to > > you for educating yourself as a parent! > > > > > > The main thing to keep in mind is that the FAB becomes your > > child's " Normal " . We were talking about this just recently - they > > grow up in it, it's part of them, part of their world, their life, > > their everything. Before too long it will really be little moer > > than an extension of the child's pajamas. My little son here just > > turned 2 years old. Once he gets his FAB on at night he can hardly > > keep his eyes open, it's so normal to him that the shoes go on for > > bed. And in the morning soon as he eats his breakfast he knows > they > > come back off. > > > > > > I'm sorry to rant and rave, I really don't mean to, and I'm so > > glad to have you in the group here. It's the doctors who don't > > support the parents in their use of the FAB that really aggrivate > me > > because with out the brace, these corrected children revert back to > > being club footed. > > > > > > Best of luck to you! > > > s. > > > DBB Question > > > > > > > > > Hello Everyone, > > > > > > I have a three month old son named with moderate left > > > clubfoot who is currently wearing the DBB. He had 5 weeks of > > casts > > > (starting on day 4 of life) and then on week 6 starting wearing > > the > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > > for > > > 23 hours a day. We went for his checkup today and the doctor > said > > > that his foot looks good so far and to come back in 2 1/2 > months. > > > He said that we should try to keep wearing the DBB for the > > 23 > > > hours as long as possible but can start to cutdown on the hours > > once > > > it beings to interfere with his development. How do I know when > > > this is? How many hours should he wear the bar once it is not 23 > > > hours anymore? I asked the questions but did not really get a > > good > > > answer on what we should be doing. Or maybe I just did not > > > understand. My doctor said a lot of times the babies just do not > > > want to wear the bars anymore or have issues with them. So far > > > is doing pretty well so I want to keep him wearing them as > > > much as possible since I am afraid of relapse but I do not want > to > > > interfere with his normal development. > > > > > > Thank you, > > > Stacey > > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 , I hope you don't take this the wrong way- but what you described in your post about your doctor making decisions on how long needs to wear her brace based on x-rays doesn't make sense at all from a " true Ponseti method standpoint " . Unless there are some extenuating circumstances, your doctor shouldn't need to x-ray 's feet at all, especially as young as she is! If the feet are fully corrected, the doctor should know just by examining the feet physically. Once the feet are corrected, the protocol with the brace wearing is pretty straight forward and has nothing to do with the position of the bones in the feet per an x- ray. Sorry to butt in- but this whole x-ray thing is sounding very suspicious to me. I would be on my toes about this doctor if I were you. Just my two cents, I hope I didn't offend you in any way. & (3-16-00, left clubfoot) http://ponseticlubfoot.freeservers.com/ > > > > > > Geeze, another doctor not prescribing the FAB correctly! > > Rrrggg! The whole success of the method depends on your FAB > > use!!!!!!! Why do docs not listen?????????? (FRUSTRATION!) > > > > > > OK Stacey, this is real simple and pretty cut-n-dry. Dr. > > Ponseti's protocol prescribes the children wear the FAB 23 hours a > > day 7 days a week for 3 months. At that point it is reduced to 18 > > hours a day - crap I have crazy screaming kids here, hard to > > concentrate....um... help me out gang, is it 18 hours until they > > bear weight? Then down to 14 hours a day, minimum of 12 till they > > graduate from it at around age 4 years old. I know the exact > > directions are here somewhere and if someone doesn't pipe up with > it > > you can probably locate it in the Files. > > > > > > The FAB does not interfer with normal development when worn > > according to Dr. P's prescription for use. Your baby will roll, > sit > > up, crawl, cruise, everything normally (provided there isn't some > > other issue at work besides clubfoot). Some children roll and sit > > up earlier than normal due to it's use. > > > > > > Saying some kids don't tolerate it is a cop out in my opinion. > > Who gives them the choice? Oh sure some kids may hate the dang > > thing once in a while, but they hate holding hands crossing busy > > streets, too, but do we let them run loose in traffic?? If he > hated > > diaper changes would you let him run around poopy? They don 't > > know what's good for them, that's why they have parents. > > > > > > What aggrivates me is what sounds like your doctor's lack of > > support in this area, almost giving the parents permission to not > > use the FAB which is going to lead to horrible results later on. I > > venture it is the doctor's own ignorance at work here and Cheers to > > you for educating yourself as a parent! > > > > > > The main thing to keep in mind is that the FAB becomes your > > child's " Normal " . We were talking about this just recently - they > > grow up in it, it's part of them, part of their world, their life, > > their everything. Before too long it will really be little moer > > than an extension of the child's pajamas. My little son here just > > turned 2 years old. Once he gets his FAB on at night he can hardly > > keep his eyes open, it's so normal to him that the shoes go on for > > bed. And in the morning soon as he eats his breakfast he knows > they > > come back off. > > > > > > I'm sorry to rant and rave, I really don't mean to, and I'm so > > glad to have you in the group here. It's the doctors who don't > > support the parents in their use of the FAB that really aggrivate > me > > because with out the brace, these corrected children revert back to > > being club footed. > > > > > > Best of luck to you! > > > s. > > > DBB Question > > > > > > > > > Hello Everyone, > > > > > > I have a three month old son named with moderate left > > > clubfoot who is currently wearing the DBB. He had 5 weeks of > > casts > > > (starting on day 4 of life) and then on week 6 starting wearing > > the > > > DBB. He has been wearing the DBB approxiamtely 6 1/2 weeks now > > for > > > 23 hours a day. We went for his checkup today and the doctor > said > > > that his foot looks good so far and to come back in 2 1/2 > months. > > > He said that we should try to keep wearing the DBB for the > > 23 > > > hours as long as possible but can start to cutdown on the hours > > once > > > it beings to interfere with his development. How do I know when > > > this is? How many hours should he wear the bar once it is not 23 > > > hours anymore? I asked the questions but did not really get a > > good > > > answer on what we should be doing. Or maybe I just did not > > > understand. My doctor said a lot of times the babies just do not > > > want to wear the bars anymore or have issues with them. So far > > > is doing pretty well so I want to keep him wearing them as > > > much as possible since I am afraid of relapse but I do not want > to > > > interfere with his normal development. > > > > > > Thank you, > > > Stacey > > > Mom to LCF 7/8/05 > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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