Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Chris- We just emailed Dr P as our doctor wanted us to reduce our son's shoes from 70 degrees to 55 degrees. Dr P concurred that 's outward rotation is extreme and he does need to have the shoes reduced. We have started the reduction by doing 5 degrees at a time. Since you have to reduce so much-I would maybe do 10 degrees at a time. We had him in the 55degrees for 3 nights(prior to putting them back at 70 on our own device) and he had a terrible time getting comfortable. Yesterday we began the first 5 degrees and last night he had no problems sleeping. I hope this helps but I believe a gradual reduction-ie every couple of days would be better. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10 hours(per Dr P) > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Chris- We just emailed Dr P as our doctor wanted us to reduce our son's shoes from 70 degrees to 55 degrees. Dr P concurred that 's outward rotation is extreme and he does need to have the shoes reduced. We have started the reduction by doing 5 degrees at a time. Since you have to reduce so much-I would maybe do 10 degrees at a time. We had him in the 55degrees for 3 nights(prior to putting them back at 70 on our own device) and he had a terrible time getting comfortable. Yesterday we began the first 5 degrees and last night he had no problems sleeping. I hope this helps but I believe a gradual reduction-ie every couple of days would be better. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10 hours(per Dr P) > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Kathleen, We were going to go down 10 at a time so it is nice to know that someone else has forged the way. We're going to try it and see... Chris Re: From 85 to 40??? Chris- We just emailed Dr P as our doctor wanted us to reduce our son's shoes from 70 degrees to 55 degrees. Dr P concurred that 's outward rotation is extreme and he does need to have the shoes reduced. We have started the reduction by doing 5 degrees at a time. Since you have to reduce so much-I would maybe do 10 degrees at a time. We had him in the 55degrees for 3 nights(prior to putting them back at 70 on our own device) and he had a terrible time getting comfortable. Yesterday we began the first 5 degrees and last night he had no problems sleeping. I hope this helps but I believe a gradual reduction-ie every couple of days would be better. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10 hours(per Dr P) > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Kathleen, We were going to go down 10 at a time so it is nice to know that someone else has forged the way. We're going to try it and see... Chris Re: From 85 to 40??? Chris- We just emailed Dr P as our doctor wanted us to reduce our son's shoes from 70 degrees to 55 degrees. Dr P concurred that 's outward rotation is extreme and he does need to have the shoes reduced. We have started the reduction by doing 5 degrees at a time. Since you have to reduce so much-I would maybe do 10 degrees at a time. We had him in the 55degrees for 3 nights(prior to putting them back at 70 on our own device) and he had a terrible time getting comfortable. Yesterday we began the first 5 degrees and last night he had no problems sleeping. I hope this helps but I believe a gradual reduction-ie every couple of days would be better. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10 hours(per Dr P) > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 I have a question...do you know why Dr. P. would suggest a different rotation for specific cases or different hours in the FAB? Just wondering how this aids the treatment, especially since he suggested something similar for our dd, via e-mail, but I don't understand why. Thanks! Marcia Re: From 85 to 40??? Chris- We just emailed Dr P as our doctor wanted us to reduce our son's shoes from 70 degrees to 55 degrees. Dr P concurred that 's outward rotation is extreme and he does need to have the shoes reduced. We have started the reduction by doing 5 degrees at a time. Since you have to reduce so much-I would maybe do 10 degrees at a time. We had him in the 55degrees for 3 nights(prior to putting them back at 70 on our own device) and he had a terrible time getting comfortable. Yesterday we began the first 5 degrees and last night he had no problems sleeping. I hope this helps but I believe a gradual reduction-ie every couple of days would be better. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10 hours(per Dr P) > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 I have a question...do you know why Dr. P. would suggest a different rotation for specific cases or different hours in the FAB? Just wondering how this aids the treatment, especially since he suggested something similar for our dd, via e-mail, but I don't understand why. Thanks! Marcia Re: From 85 to 40??? Chris- We just emailed Dr P as our doctor wanted us to reduce our son's shoes from 70 degrees to 55 degrees. Dr P concurred that 's outward rotation is extreme and he does need to have the shoes reduced. We have started the reduction by doing 5 degrees at a time. Since you have to reduce so much-I would maybe do 10 degrees at a time. We had him in the 55degrees for 3 nights(prior to putting them back at 70 on our own device) and he had a terrible time getting comfortable. Yesterday we began the first 5 degrees and last night he had no problems sleeping. I hope this helps but I believe a gradual reduction-ie every couple of days would be better. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10 hours(per Dr P) > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Hi Chris- My son is now 3 1/2 but we too had to do this around the time he started walking per our doctor and Dr. P's recomendation as well. With in just a few days his walk looked so much better. > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2005 Report Share Posted September 19, 2005 Hi Chris- My son is now 3 1/2 but we too had to do this around the time he started walking per our doctor and Dr. P's recomendation as well. With in just a few days his walk looked so much better. > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 So these are the children who would have previously been removed from the brace for loose ligaments right? I remember hearing a lot about loose ligaments when we first came here, but then they changed the bracing protocols due to the relapses associated with early release which included a few (enough to notice apparently) children who were termed loose like this. hummm... well the description of catching her foot on things as she walked really cleared up the loose ligament thing for me. Now I understand a little better what that means. I can see why that would have seemed like bracing needed to be discarded in the first place now. Reducing the abduction makes perfect sense for these children, absolutely. Good topic. I hope to hear that is more sure footed soon and the reduction goes smoothly. Kori At 09:50 PM 9/19/2005, you wrote: >Hi Chris- > >My son is now 3 1/2 but we too had to do this around the time he >started walking per our doctor and Dr. P's recomendation as well. >With in just a few days his walk looked so much better. > > > > > > > Hi All, > > Quick history: > > casted at birth incorrectly. At 4 weeks was casted >correctly and fully corrected by Ponseti trained Dr. She relapsed >at 9 mos and he recommended AFO's so we went to see Dr. P. He >recasted and fully corrected her and diagnosed her feet as severely >atypical. (Of course she always chooses the hard way to do >something). She relapsed again (darn those atypical feet) and Dr. >Ponseti casted them once more. She wears the PM's that are set at >85 degree by Dr. P at the moment. They were 90 so 85 is at least a >start in the right direction! We're due to go back to Dr. P in >October for a check. He's also deciding whether she'll need the >ATTT but will decide that after she's been walking about 6 mos. >Here in lies the issue. > > > > is 19 mos old and will cruise around anything and >everything. She pushes anything that will push around so she can >walk behind it and she CONSTANTLY wants us to 'walk' her around and >around the circle of the house. Walking isn't the issue. Balancing >on the other hand is. She has such loose ligaments that she can >turn her foot almost 180 degrees without it bothering her much and >when her foot gets caught we are often amazed at her 'flexibility'. >It is this flexibility however, and the ligaments that won't give >her enough of a base of support to balance herself. Our PT and our >Ped say that her outside ligaments that are stretched when the feet >are clubbed haven't shortened as they are supposed to do. And we >figure that keeping her feet at 85 degrees isn't helping the >situation. Her feet 'bow out' at the ankle area and her knee >hyperextends backwards. > > > > Dr. Ponseti just recommended that we take her to 40 to try to help >the situation and get back to him ASAP. Has anyone ever had any >issues like this as far as the ligaments go? And has anyone >decreased the angle so drastically in just a short time? Did your >child have difficulty with it? > > > > Thanks for your thoughts, > > Chris > > > > A waist is a terrible thing to mind. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 So these are the children who would have previously been removed from the brace for loose ligaments right? I remember hearing a lot about loose ligaments when we first came here, but then they changed the bracing protocols due to the relapses associated with early release which included a few (enough to notice apparently) children who were termed loose like this. hummm... well the description of catching her foot on things as she walked really cleared up the loose ligament thing for me. Now I understand a little better what that means. I can see why that would have seemed like bracing needed to be discarded in the first place now. Reducing the abduction makes perfect sense for these children, absolutely. Good topic. I hope to hear that is more sure footed soon and the reduction goes smoothly. Kori At 09:50 PM 9/19/2005, you wrote: >Hi Chris- > >My son is now 3 1/2 but we too had to do this around the time he >started walking per our doctor and Dr. P's recomendation as well. >With in just a few days his walk looked so much better. > > > > > > > Hi All, > > Quick history: > > casted at birth incorrectly. At 4 weeks was casted >correctly and fully corrected by Ponseti trained Dr. She relapsed >at 9 mos and he recommended AFO's so we went to see Dr. P. He >recasted and fully corrected her and diagnosed her feet as severely >atypical. (Of course she always chooses the hard way to do >something). She relapsed again (darn those atypical feet) and Dr. >Ponseti casted them once more. She wears the PM's that are set at >85 degree by Dr. P at the moment. They were 90 so 85 is at least a >start in the right direction! We're due to go back to Dr. P in >October for a check. He's also deciding whether she'll need the >ATTT but will decide that after she's been walking about 6 mos. >Here in lies the issue. > > > > is 19 mos old and will cruise around anything and >everything. She pushes anything that will push around so she can >walk behind it and she CONSTANTLY wants us to 'walk' her around and >around the circle of the house. Walking isn't the issue. Balancing >on the other hand is. She has such loose ligaments that she can >turn her foot almost 180 degrees without it bothering her much and >when her foot gets caught we are often amazed at her 'flexibility'. >It is this flexibility however, and the ligaments that won't give >her enough of a base of support to balance herself. Our PT and our >Ped say that her outside ligaments that are stretched when the feet >are clubbed haven't shortened as they are supposed to do. And we >figure that keeping her feet at 85 degrees isn't helping the >situation. Her feet 'bow out' at the ankle area and her knee >hyperextends backwards. > > > > Dr. Ponseti just recommended that we take her to 40 to try to help >the situation and get back to him ASAP. Has anyone ever had any >issues like this as far as the ligaments go? And has anyone >decreased the angle so drastically in just a short time? Did your >child have difficulty with it? > > > > Thanks for your thoughts, > > Chris > > > > A waist is a terrible thing to mind. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 - thanks for the reassurance. Does your son have atypical feet or was there some other issue or ? Chris Re: From 85 to 40??? Hi Chris- My son is now 3 1/2 but we too had to do this around the time he started walking per our doctor and Dr. P's recomendation as well. With in just a few days his walk looked so much better. > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 - thanks for the reassurance. Does your son have atypical feet or was there some other issue or ? Chris Re: From 85 to 40??? Hi Chris- My son is now 3 1/2 but we too had to do this around the time he started walking per our doctor and Dr. P's recomendation as well. With in just a few days his walk looked so much better. > Hi All, > Quick history: > casted at birth incorrectly. At 4 weeks was casted correctly and fully corrected by Ponseti trained Dr. She relapsed at 9 mos and he recommended AFO's so we went to see Dr. P. He recasted and fully corrected her and diagnosed her feet as severely atypical. (Of course she always chooses the hard way to do something). She relapsed again (darn those atypical feet) and Dr. Ponseti casted them once more. She wears the PM's that are set at 85 degree by Dr. P at the moment. They were 90 so 85 is at least a start in the right direction! We're due to go back to Dr. P in October for a check. He's also deciding whether she'll need the ATTT but will decide that after she's been walking about 6 mos. Here in lies the issue. > > is 19 mos old and will cruise around anything and everything. She pushes anything that will push around so she can walk behind it and she CONSTANTLY wants us to 'walk' her around and around the circle of the house. Walking isn't the issue. Balancing on the other hand is. She has such loose ligaments that she can turn her foot almost 180 degrees without it bothering her much and when her foot gets caught we are often amazed at her 'flexibility'. It is this flexibility however, and the ligaments that won't give her enough of a base of support to balance herself. Our PT and our Ped say that her outside ligaments that are stretched when the feet are clubbed haven't shortened as they are supposed to do. And we figure that keeping her feet at 85 degrees isn't helping the situation. Her feet 'bow out' at the ankle area and her knee hyperextends backwards. > > Dr. Ponseti just recommended that we take her to 40 to try to help the situation and get back to him ASAP. Has anyone ever had any issues like this as far as the ligaments go? And has anyone decreased the angle so drastically in just a short time? Did your child have difficulty with it? > > Thanks for your thoughts, > Chris > > A waist is a terrible thing to mind. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Kori, She doesn't really get her foot caught on 'things' per se. What happens is when she's moving her feet from underneath her or when we're taking her in and out of her high chair or she's going from sitting to standing sometimes her foot isn't turned out the same way yours and mine are because they are so loose and she has to give an extra tug or wiggle to get her leg to go where she wants it to go. Does that make sense? LOL Anyway, wanted to clear that up if there was any mud. My worry is this: She has already been sent down the path by both our local ortho and Dr. P for an ATTT. Her tendon is so strong that in just a few hours out of the shoe her feet are turned if you KWIM. However, when she stands on them they are fine and when she's totally relaxed like when sleeping or resting they are fine. Her big toes also still stick up about 50 percent of the time when she's active and even one does it when walking sometimes. Won't all of the work we've done to stretch those tendons (she's had her bar set at 90 degrees for a long time before he moved it to 85 at the last visit) be undone by having her feet at that angle? In other words, yes she has loose ligaments on one side of her feet but NOT on the other. LOL Chris Re: Re: From 85 to 40??? So these are the children who would have previously been removed from the brace for loose ligaments right? I remember hearing a lot about loose ligaments when we first came here, but then they changed the bracing protocols due to the relapses associated with early release which included a few (enough to notice apparently) children who were termed loose like this. hummm... well the description of catching her foot on things as she walked really cleared up the loose ligament thing for me. Now I understand a little better what that means. I can see why that would have seemed like bracing needed to be discarded in the first place now. Reducing the abduction makes perfect sense for these children, absolutely. Good topic. I hope to hear that is more sure footed soon and the reduction goes smoothly. Kori At 09:50 PM 9/19/2005, you wrote: >Hi Chris- > >My son is now 3 1/2 but we too had to do this around the time he >started walking per our doctor and Dr. P's recomendation as well. >With in just a few days his walk looked so much better. > > > > > > > Hi All, > > Quick history: > > casted at birth incorrectly. At 4 weeks was casted >correctly and fully corrected by Ponseti trained Dr. She relapsed >at 9 mos and he recommended AFO's so we went to see Dr. P. He >recasted and fully corrected her and diagnosed her feet as severely >atypical. (Of course she always chooses the hard way to do >something). She relapsed again (darn those atypical feet) and Dr. >Ponseti casted them once more. She wears the PM's that are set at >85 degree by Dr. P at the moment. They were 90 so 85 is at least a >start in the right direction! We're due to go back to Dr. P in >October for a check. He's also deciding whether she'll need the >ATTT but will decide that after she's been walking about 6 mos. >Here in lies the issue. > > > > is 19 mos old and will cruise around anything and >everything. She pushes anything that will push around so she can >walk behind it and she CONSTANTLY wants us to 'walk' her around and >around the circle of the house. Walking isn't the issue. Balancing >on the other hand is. She has such loose ligaments that she can >turn her foot almost 180 degrees without it bothering her much and >when her foot gets caught we are often amazed at her 'flexibility'. >It is this flexibility however, and the ligaments that won't give >her enough of a base of support to balance herself. Our PT and our >Ped say that her outside ligaments that are stretched when the feet >are clubbed haven't shortened as they are supposed to do. And we >figure that keeping her feet at 85 degrees isn't helping the >situation. Her feet 'bow out' at the ankle area and her knee >hyperextends backwards. > > > > Dr. Ponseti just recommended that we take her to 40 to try to help >the situation and get back to him ASAP. Has anyone ever had any >issues like this as far as the ligaments go? And has anyone >decreased the angle so drastically in just a short time? Did your >child have difficulty with it? > > > > Thanks for your thoughts, > > Chris > > > > A waist is a terrible thing to mind. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Kori, She doesn't really get her foot caught on 'things' per se. What happens is when she's moving her feet from underneath her or when we're taking her in and out of her high chair or she's going from sitting to standing sometimes her foot isn't turned out the same way yours and mine are because they are so loose and she has to give an extra tug or wiggle to get her leg to go where she wants it to go. Does that make sense? LOL Anyway, wanted to clear that up if there was any mud. My worry is this: She has already been sent down the path by both our local ortho and Dr. P for an ATTT. Her tendon is so strong that in just a few hours out of the shoe her feet are turned if you KWIM. However, when she stands on them they are fine and when she's totally relaxed like when sleeping or resting they are fine. Her big toes also still stick up about 50 percent of the time when she's active and even one does it when walking sometimes. Won't all of the work we've done to stretch those tendons (she's had her bar set at 90 degrees for a long time before he moved it to 85 at the last visit) be undone by having her feet at that angle? In other words, yes she has loose ligaments on one side of her feet but NOT on the other. LOL Chris Re: Re: From 85 to 40??? So these are the children who would have previously been removed from the brace for loose ligaments right? I remember hearing a lot about loose ligaments when we first came here, but then they changed the bracing protocols due to the relapses associated with early release which included a few (enough to notice apparently) children who were termed loose like this. hummm... well the description of catching her foot on things as she walked really cleared up the loose ligament thing for me. Now I understand a little better what that means. I can see why that would have seemed like bracing needed to be discarded in the first place now. Reducing the abduction makes perfect sense for these children, absolutely. Good topic. I hope to hear that is more sure footed soon and the reduction goes smoothly. Kori At 09:50 PM 9/19/2005, you wrote: >Hi Chris- > >My son is now 3 1/2 but we too had to do this around the time he >started walking per our doctor and Dr. P's recomendation as well. >With in just a few days his walk looked so much better. > > > > > > > Hi All, > > Quick history: > > casted at birth incorrectly. At 4 weeks was casted >correctly and fully corrected by Ponseti trained Dr. She relapsed >at 9 mos and he recommended AFO's so we went to see Dr. P. He >recasted and fully corrected her and diagnosed her feet as severely >atypical. (Of course she always chooses the hard way to do >something). She relapsed again (darn those atypical feet) and Dr. >Ponseti casted them once more. She wears the PM's that are set at >85 degree by Dr. P at the moment. They were 90 so 85 is at least a >start in the right direction! We're due to go back to Dr. P in >October for a check. He's also deciding whether she'll need the >ATTT but will decide that after she's been walking about 6 mos. >Here in lies the issue. > > > > is 19 mos old and will cruise around anything and >everything. She pushes anything that will push around so she can >walk behind it and she CONSTANTLY wants us to 'walk' her around and >around the circle of the house. Walking isn't the issue. Balancing >on the other hand is. She has such loose ligaments that she can >turn her foot almost 180 degrees without it bothering her much and >when her foot gets caught we are often amazed at her 'flexibility'. >It is this flexibility however, and the ligaments that won't give >her enough of a base of support to balance herself. Our PT and our >Ped say that her outside ligaments that are stretched when the feet >are clubbed haven't shortened as they are supposed to do. And we >figure that keeping her feet at 85 degrees isn't helping the >situation. Her feet 'bow out' at the ankle area and her knee >hyperextends backwards. > > > > Dr. Ponseti just recommended that we take her to 40 to try to help >the situation and get back to him ASAP. Has anyone ever had any >issues like this as far as the ligaments go? And has anyone >decreased the angle so drastically in just a short time? Did your >child have difficulty with it? > > > > Thanks for your thoughts, > > Chris > > > > A waist is a terrible thing to mind. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Marcia- Our doctor wanted us to reduce his degrees to 55 degrees because our son when standing in neutral-his foot rotates out to 90 degrees or more. He believes that because david is sooo flexible-ie through the hips/knees/feet, that the 70 degree angle is aiding this flexibility. As develops, his tendons/ligaments are expected to tighten-however, his fab is helping stretch them out even further. I emailed Dr ponseti with about 15 pictures and Dr Ponseti agreed with our doctors conclusion. He wants nights only-hence the 10 hours(although david sleeps 12) and to reduce the shoes to 55 degrees to see if that will help tighten up his foot ligaments-I know opposite problem most clubfeet kids have. I printed the global health booklet and it mentions that in some cases the kids shoes after the 23/7 wear needs to have the angle reduced to 55 or less degrees. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10/7 > > Hi All, > > Quick history: > > casted at birth incorrectly. At 4 weeks was casted > correctly and fully corrected by Ponseti trained Dr. She relapsed > at 9 mos and he recommended AFO's so we went to see Dr. P. He > recasted and fully corrected her and diagnosed her feet as severely > atypical. (Of course she always chooses the hard way to do > something). She relapsed again (darn those atypical feet) and Dr. > Ponseti casted them once more. She wears the PM's that are set at > 85 degree by Dr. P at the moment. They were 90 so 85 is at least a > start in the right direction! We're due to go back to Dr. P in > October for a check. He's also deciding whether she'll need the > ATTT but will decide that after she's been walking about 6 mos. > Here in lies the issue. > > > > is 19 mos old and will cruise around anything and > everything. She pushes anything that will push around so she can > walk behind it and she CONSTANTLY wants us to 'walk' her around and > around the circle of the house. Walking isn't the issue. Balancing > on the other hand is. She has such loose ligaments that she can > turn her foot almost 180 degrees without it bothering her much and > when her foot gets caught we are often amazed at her 'flexibility'. > It is this flexibility however, and the ligaments that won't give > her enough of a base of support to balance herself. Our PT and our > Ped say that her outside ligaments that are stretched when the feet > are clubbed haven't shortened as they are supposed to do. And we > figure that keeping her feet at 85 degrees isn't helping the > situation. Her feet 'bow out' at the ankle area and her knee > hyperextends backwards. > > > > Dr. Ponseti just recommended that we take her to 40 to try to help > the situation and get back to him ASAP. Has anyone ever had any > issues like this as far as the ligaments go? And has anyone > decreased the angle so drastically in just a short time? Did your > child have difficulty with it? > > > > Thanks for your thoughts, > > Chris > > > > A waist is a terrible thing to mind. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Marcia- Our doctor wanted us to reduce his degrees to 55 degrees because our son when standing in neutral-his foot rotates out to 90 degrees or more. He believes that because david is sooo flexible-ie through the hips/knees/feet, that the 70 degree angle is aiding this flexibility. As develops, his tendons/ligaments are expected to tighten-however, his fab is helping stretch them out even further. I emailed Dr ponseti with about 15 pictures and Dr Ponseti agreed with our doctors conclusion. He wants nights only-hence the 10 hours(although david sleeps 12) and to reduce the shoes to 55 degrees to see if that will help tighten up his foot ligaments-I know opposite problem most clubfeet kids have. I printed the global health booklet and it mentions that in some cases the kids shoes after the 23/7 wear needs to have the angle reduced to 55 or less degrees. Hope this helps! Kathleen mom to bcf 8/28/04 fab 10/7 > > Hi All, > > Quick history: > > casted at birth incorrectly. At 4 weeks was casted > correctly and fully corrected by Ponseti trained Dr. She relapsed > at 9 mos and he recommended AFO's so we went to see Dr. P. He > recasted and fully corrected her and diagnosed her feet as severely > atypical. (Of course she always chooses the hard way to do > something). She relapsed again (darn those atypical feet) and Dr. > Ponseti casted them once more. She wears the PM's that are set at > 85 degree by Dr. P at the moment. They were 90 so 85 is at least a > start in the right direction! We're due to go back to Dr. P in > October for a check. He's also deciding whether she'll need the > ATTT but will decide that after she's been walking about 6 mos. > Here in lies the issue. > > > > is 19 mos old and will cruise around anything and > everything. She pushes anything that will push around so she can > walk behind it and she CONSTANTLY wants us to 'walk' her around and > around the circle of the house. Walking isn't the issue. Balancing > on the other hand is. She has such loose ligaments that she can > turn her foot almost 180 degrees without it bothering her much and > when her foot gets caught we are often amazed at her 'flexibility'. > It is this flexibility however, and the ligaments that won't give > her enough of a base of support to balance herself. Our PT and our > Ped say that her outside ligaments that are stretched when the feet > are clubbed haven't shortened as they are supposed to do. And we > figure that keeping her feet at 85 degrees isn't helping the > situation. Her feet 'bow out' at the ankle area and her knee > hyperextends backwards. > > > > Dr. Ponseti just recommended that we take her to 40 to try to help > the situation and get back to him ASAP. Has anyone ever had any > issues like this as far as the ligaments go? And has anyone > decreased the angle so drastically in just a short time? Did your > child have difficulty with it? > > > > Thanks for your thoughts, > > Chris > > > > A waist is a terrible thing to mind. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Kori- If you could see my son and his " loose " ligaments, it is amazing. A lot of the times I say to myself-how did he do that? We have had some troubles with his progression-ie sitting/crawling/cruising because he can contort his body in nearly unhuman ways. I see his future in gymnastics if this continues! take care! kathleen > > > Hi All, > > > Quick history: > > > casted at birth incorrectly. At 4 weeks was casted > >correctly and fully corrected by Ponseti trained Dr. She relapsed > >at 9 mos and he recommended AFO's so we went to see Dr. P. He > >recasted and fully corrected her and diagnosed her feet as severely > >atypical. (Of course she always chooses the hard way to do > >something). She relapsed again (darn those atypical feet) and Dr. > >Ponseti casted them once more. She wears the PM's that are set at > >85 degree by Dr. P at the moment. They were 90 so 85 is at least a > >start in the right direction! We're due to go back to Dr. P in > >October for a check. He's also deciding whether she'll need the > >ATTT but will decide that after she's been walking about 6 mos. > >Here in lies the issue. > > > > > > is 19 mos old and will cruise around anything and > >everything. She pushes anything that will push around so she can > >walk behind it and she CONSTANTLY wants us to 'walk' her around and > >around the circle of the house. Walking isn't the issue. Balancing > >on the other hand is. She has such loose ligaments that she can > >turn her foot almost 180 degrees without it bothering her much and > >when her foot gets caught we are often amazed at her 'flexibility'. > >It is this flexibility however, and the ligaments that won't give > >her enough of a base of support to balance herself. Our PT and our > >Ped say that her outside ligaments that are stretched when the feet > >are clubbed haven't shortened as they are supposed to do. And we > >figure that keeping her feet at 85 degrees isn't helping the > >situation. Her feet 'bow out' at the ankle area and her knee > >hyperextends backwards. > > > > > > Dr. Ponseti just recommended that we take her to 40 to try to help > >the situation and get back to him ASAP. Has anyone ever had any > >issues like this as far as the ligaments go? And has anyone > >decreased the angle so drastically in just a short time? Did your > >child have difficulty with it? > > > > > > Thanks for your thoughts, > > > Chris > > > > > > A waist is a terrible thing to mind. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 Kori- If you could see my son and his " loose " ligaments, it is amazing. A lot of the times I say to myself-how did he do that? We have had some troubles with his progression-ie sitting/crawling/cruising because he can contort his body in nearly unhuman ways. I see his future in gymnastics if this continues! take care! kathleen > > > Hi All, > > > Quick history: > > > casted at birth incorrectly. At 4 weeks was casted > >correctly and fully corrected by Ponseti trained Dr. She relapsed > >at 9 mos and he recommended AFO's so we went to see Dr. P. He > >recasted and fully corrected her and diagnosed her feet as severely > >atypical. (Of course she always chooses the hard way to do > >something). She relapsed again (darn those atypical feet) and Dr. > >Ponseti casted them once more. She wears the PM's that are set at > >85 degree by Dr. P at the moment. They were 90 so 85 is at least a > >start in the right direction! We're due to go back to Dr. P in > >October for a check. He's also deciding whether she'll need the > >ATTT but will decide that after she's been walking about 6 mos. > >Here in lies the issue. > > > > > > is 19 mos old and will cruise around anything and > >everything. She pushes anything that will push around so she can > >walk behind it and she CONSTANTLY wants us to 'walk' her around and > >around the circle of the house. Walking isn't the issue. Balancing > >on the other hand is. She has such loose ligaments that she can > >turn her foot almost 180 degrees without it bothering her much and > >when her foot gets caught we are often amazed at her 'flexibility'. > >It is this flexibility however, and the ligaments that won't give > >her enough of a base of support to balance herself. Our PT and our > >Ped say that her outside ligaments that are stretched when the feet > >are clubbed haven't shortened as they are supposed to do. And we > >figure that keeping her feet at 85 degrees isn't helping the > >situation. Her feet 'bow out' at the ankle area and her knee > >hyperextends backwards. > > > > > > Dr. Ponseti just recommended that we take her to 40 to try to help > >the situation and get back to him ASAP. Has anyone ever had any > >issues like this as far as the ligaments go? And has anyone > >decreased the angle so drastically in just a short time? Did your > >child have difficulty with it? > > > > > > Thanks for your thoughts, > > > Chris > > > > > > A waist is a terrible thing to mind. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2005 Report Share Posted September 20, 2005 I can soooo relate Kathleen!!! We say she's a budding gymnast all of the time. Chris Re: From 85 to 40??? Kori- If you could see my son and his " loose " ligaments, it is amazing. A lot of the times I say to myself-how did he do that? We have had some troubles with his progression-ie sitting/crawling/cruising because he can contort his body in nearly unhuman ways. I see his future in gymnastics if this continues! take care! kathleen > > > Hi All, > > > Quick history: > > > casted at birth incorrectly. At 4 weeks was casted > >correctly and fully corrected by Ponseti trained Dr. She relapsed > >at 9 mos and he recommended AFO's so we went to see Dr. P. He > >recasted and fully corrected her and diagnosed her feet as severely > >atypical. (Of course she always chooses the hard way to do > >something). She relapsed again (darn those atypical feet) and Dr. > >Ponseti casted them once more. She wears the PM's that are set at > >85 degree by Dr. P at the moment. They were 90 so 85 is at least a > >start in the right direction! We're due to go back to Dr. P in > >October for a check. He's also deciding whether she'll need the > >ATTT but will decide that after she's been walking about 6 mos. > >Here in lies the issue. > > > > > > is 19 mos old and will cruise around anything and > >everything. She pushes anything that will push around so she can > >walk behind it and she CONSTANTLY wants us to 'walk' her around and > >around the circle of the house. Walking isn't the issue. Balancing > >on the other hand is. She has such loose ligaments that she can > >turn her foot almost 180 degrees without it bothering her much and > >when her foot gets caught we are often amazed at her 'flexibility'. > >It is this flexibility however, and the ligaments that won't give > >her enough of a base of support to balance herself. Our PT and our > >Ped say that her outside ligaments that are stretched when the feet > >are clubbed haven't shortened as they are supposed to do. And we > >figure that keeping her feet at 85 degrees isn't helping the > >situation. Her feet 'bow out' at the ankle area and her knee > >hyperextends backwards. > > > > > > Dr. Ponseti just recommended that we take her to 40 to try to help > >the situation and get back to him ASAP. Has anyone ever had any > >issues like this as far as the ligaments go? And has anyone > >decreased the angle so drastically in just a short time? Did your > >child have difficulty with it? > > > > > > Thanks for your thoughts, > > > Chris > > > > > > A waist is a terrible thing to mind. > > > > > > Quote Link to comment Share on other sites More sharing options...
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