Mayo trip next week (anyone else going?)

[Guest guest]

Our next Mayo trip is coming up this weekend. We will be in Rochester

from Sunday the 14th through Thursday the 18th. Kass Mc Nair will also be

there most of the week and I have had the pleasure of meeting her there

before so I am looking forward to reuniting with her. Are there any others

going next week? Both Kass and we plan to stay at the Mc House

if possible. If others are going let us know and we can get together.

We will be at St. 's Sunday and Monday and then at the RMH by

Monday evening I would assume. Please pray for Asenath as she will be

repeating her bi-yearly MRI and MRA. That means anesthesia of course.

That plus her regressions lately will be hard on her. We have lots of

appointments planned and hope to figure out some things while there. We

would appreciate your prayers for both girls and for strength for me, as

these trips seem to take a lot out of me.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

[Guest guest]

Our next Mayo trip is coming up this weekend. We will be in Rochester

from Sunday the 14th through Thursday the 18th. Kass Mc Nair will also be

there most of the week and I have had the pleasure of meeting her there

before so I am looking forward to reuniting with her. Are there any others

going next week? Both Kass and we plan to stay at the Mc House

if possible. If others are going let us know and we can get together.

We will be at St. 's Sunday and Monday and then at the RMH by

Monday evening I would assume. Please pray for Asenath as she will be

repeating her bi-yearly MRI and MRA. That means anesthesia of course.

That plus her regressions lately will be hard on her. We have lots of

appointments planned and hope to figure out some things while there. We

would appreciate your prayers for both girls and for strength for me, as

these trips seem to take a lot out of me.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (12 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (2) (some with Mito symptoms)

[Guest guest]

Darla,

Will be praying for you and your sweet little girls.

Hugs, Shirley, mom to and Jordan

--- Darla Klein wrote:

> Our next Mayo trip is coming up this weekend.

> We will be in Rochester

> from Sunday the 14th through Thursday the 18th.

> Kass Mc Nair will also be

> there most of the week and I have had the pleasure

> of meeting her there

> before so I am looking forward to reuniting with

> her. Are there any others

> going next week? Both Kass and we plan to stay at

> the Mc House

> if possible. If others are going let us know and we

> can get together.

> We will be at St. 's Sunday and Monday and

> then at the RMH by

> Monday evening I would assume. Please pray for

> Asenath as she will be

> repeating her bi-yearly MRI and MRA. That means

> anesthesia of course.

> That plus her regressions lately will be hard on

> her. We have lots of

> appointments planned and hope to figure out some

> things while there. We

> would appreciate your prayers for both girls and for

> strength for me, as

> these trips seem to take a lot out of me.

>

> See www.caringbridge.org/ia/mitomomof9 and this link

> to see a real look into

> Mito using a photo collage of my girls at

> www.heartbeatsformito.org

> Darla: mommy to

> Asenath (4) Mito, CNS Vasculitis, strokes,

> migraines, seizures, G-tube,

> hypotonicity, disautonomy, SID, dev. delays, asthma,

> cyclic vomiting...

> Zipporrah (12 months) Mito, strokes, neuro-motor

> planning dysfunction, SID,

> GERD, 100% G-tube fed, asthma, trach issues,

> aberrant subclavian artery,

> disautonomy, hypo & hypertonicity, migraines,

> possible seizures, dumping

> syndrome, iron deficiency...

> Luke (16), Leah (14), Rachael (12), Isaac (10),

> Tirzah (8), Kezia (3), &

> Marquis (2) (some with Mito symptoms)

>

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