Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi e! I enjoyed the picture of Chelsea. Looks like she was having fun with her bracelets. What did your neuro say about the Keppra? I hope Chelsea's seizures have settled and she is feeling better. Kim - Mom to and Lindsey (3) Partial Complex I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi e! I enjoyed the picture of Chelsea. Looks like she was having fun with her bracelets. What did your neuro say about the Keppra? I hope Chelsea's seizures have settled and she is feeling better. Kim - Mom to and Lindsey (3) Partial Complex I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 Happy late B-day to Chelsea as well. Hope she will start feeling better soon and is able to have lots of fun with her Barbie, even if it is just to carry it around. See www.caringbridge.org/ia/mitomomof9 and www.heartbeatsformito.org to see a photo look into what Mito looks like Darla: mommy to Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube, hypotonicity, disautonomy, SID, global delays, asthma, cyclic vomiting, bladder issues, wheelchair for distances, eye issues, autistic behaviors, gastric emptying issues... Zipporrah (14 months) Mito, strokes, neuro-motor planning dys., SID, GERD, dysphasia, 100% G-tube fed, speech delays, extreme fatigue, excessive phlegm, asthma, trach issues, aberrant subclavian artery, disautonomy, hypertonicity, migraines, possible seizures, dumping syndrome, iron deficiency, ... Luke (16), Leah (14), Rachael (13), Isaac (10), Tirzah (8), Kezia (4), & Marquis (3), Joey & (12 months) (some with Mito symptoms) Re: Asenath turns FIVE!!! > That is so awesome Darla! I hope you all had a wonderful day, and Asi felt > like a perfect little princess! I always forget that our girls' birthdays > are > close together, Chelsea turned 8 on the 27th of feb. We took her to > Toys'R'Us > as well and spent a leftover christmas gift card. Jeff wheeled her thru > the > Barbie aisle, and when he turned the corner, her noticed her eye had been > caught by a Mulan princess doll, which she proudly carried thru the store > ( & dropped 100 times!) She really can't play with barbie's, but loves them > so, oh > well, as long as she is happy! > I so loved the pic of your girls, they were just adorable! You'd better > be > careful when Kezia gets older, she is going to be a knock out! > Sorry this is such a late response, I have been down with the flu, and now > Chels has it, unfortunalty=( We had to postpone her bday party at the > butterfly > gardens until next Sat, but the people who helped me set it up were very > gracious in rescheduling! > > Wishing Asi many, many more Happy Birthdays!!!!! > > e, Chelsea's mom, Atypical Rett Syndrome, (FKA nonspecific mito) > Quote Link to comment Share on other sites More sharing options...
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