Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 well im not sure where to startt. we went to the dr fri and some research test has came back pointing our dx to zellweger syndrome. he said most people with this die by the age of two. so we are very blessed as we will be celebrating brigittes sweet 16 on the 22 of this month.the way i understand it this is a peroxisome diease.now i need to learn all over. any way im not sure if this is the group i need to belong to but i dont know where to turn for a support group. i know i dont post often but its nice knowing someone is there if i have guestions so now i dont know. hope someone can help thanks karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 well im not sure where to startt. we went to the dr fri and some research test has came back pointing our dx to zellweger syndrome. he said most people with this die by the age of two. so we are very blessed as we will be celebrating brigittes sweet 16 on the 22 of this month.the way i understand it this is a peroxisome diease.now i need to learn all over. any way im not sure if this is the group i need to belong to but i dont know where to turn for a support group. i know i dont post often but its nice knowing someone is there if i have guestions so now i dont know. hope someone can help thanks karen Quote Link to comment Share on other sites More sharing options...
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