RE: Wanting to know if Club Feet are associated with other abnormalities

[Guest guest]

Thanks so much Joy!! I will make sure to take lots of folic acid when

we try for another baby!

Glad to hear that Grant is doing well!!

& Grace

>

> > Thanks for the response Joy. I do have a couple more questions if

you

> > don't mind...first, how is Grant doing and what kind of treatment

is

> > he receiving for sb. Also wanted to know if it is genetic and or

> > heritary. I have always wondered whether my mom having a baby

born

> > with sb had something to do with Grace being born with cf.

> >

> > Hope little Grant is doing well!

>

>

> Hi, ,

>

> To answer your questions... Grant is doing well! At about 5-6

hours after

> birth Grant had surgery to close the opening on his back and then a

VP shunt

> was placed. He will be having a surgery in January to repair a

urethral

> stricture. He has been having casts about once a week to repair

the clubfeet.

> It's possible, and likely, that Grant will face a variety of

surgeries to

> repair, correct a few different things in the course of his

life.

>

> I believe spina bifida can be genetic and hereditary. In our case,

we have

> been told it's multi-factorial, meaning there were a variety of

reasons it

> occured, I guess. We brought up that Rose was born with clubfoot

and a sacral

> dimple and wondered if there was a connection. We were basically

told there

> could be a connection, but there've been no studies to prove it, so

no. I

> believe there is.

>

> Make sure you are taking a folic acid supplement every day. I was

taking folic

> acid prior to getting pregnant, but I don't assimilate it well. I

think I

> would be especially diligent and possibly take more than the

recommended amount

> if I were you considering there has been sb in the family. Perhaps

you could

> address this with your doctor or ask to speak to a genetic

counselor.

>

> I hope I answered your questions okay! I'm certainly willing to

answer more if

> you have them.

>

> Joy

>

> Rose (1-99)

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05) http://www.caringbridge.org/visit/grantphilip

>

>

>

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