Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Marla, I wish you the best on your appeal and I will pray for you. I have read many of Joyce Meyer's books and have found them all inspiring and encouraging to me and have helped me in my love walk. I have almost finished reading 90 minutes in Heaven by Don Piper. He was in a horrific car accident and was announced dead for 90 minutes and recounts his experience in Heaven. A minister happened by and God told him to pray for the guy in the car. All the parametics thought he was nuts but what could it hurt. After praying for a length of time Don 'came back' from heaven. And even though that part is reassuring and very interesting...the part where he has to trust in God for his long long recovery is what encouraged me. After the accident there were actual parts of many bones missing from his body and he has had to endure many operations. He talked about his 'new normal' which I am sure many of us can relate to. I won't say much more about it in case anyone wants to read it but it was a very relateable(sp?) story in many ways. As for me....My hand pain is acting up alot the last few days and I am on narcotics again which interfere with my already-altered sleep cycle. But I am in my warm bed, with food in my cupboard and friends on the internet....life couldn't get much better, hey?.... Merry CHRISTmas! hugs S.Marla Bramer wrote: I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Marla, I wish you the best on your appeal and I will pray for you. I have read many of Joyce Meyer's books and have found them all inspiring and encouraging to me and have helped me in my love walk. I have almost finished reading 90 minutes in Heaven by Don Piper. He was in a horrific car accident and was announced dead for 90 minutes and recounts his experience in Heaven. A minister happened by and God told him to pray for the guy in the car. All the parametics thought he was nuts but what could it hurt. After praying for a length of time Don 'came back' from heaven. And even though that part is reassuring and very interesting...the part where he has to trust in God for his long long recovery is what encouraged me. After the accident there were actual parts of many bones missing from his body and he has had to endure many operations. He talked about his 'new normal' which I am sure many of us can relate to. I won't say much more about it in case anyone wants to read it but it was a very relateable(sp?) story in many ways. As for me....My hand pain is acting up alot the last few days and I am on narcotics again which interfere with my already-altered sleep cycle. But I am in my warm bed, with food in my cupboard and friends on the internet....life couldn't get much better, hey?.... Merry CHRISTmas! hugs S.Marla Bramer wrote: I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 , Although this message is for Marla, I wanted to tell you that I am so glad you wrote it too b/c I want to read the book you're talking about. Merry Christmas to you and everyone else. Have a blessed day.Becky Solberg wrote: Marla, I wish you the best on your appeal and I will pray for you. I have read many of Joyce Meyer's books and have found them all inspiring and encouraging to me and have helped me in my love walk. I have almost finished reading 90 minutes in Heaven by Don Piper. He was in a horrific car accident and was announced dead for 90 minutes and recounts his experience in Heaven. A minister happened by and God told him to pray for the guy in the car. All the parametics thought he was nuts but what could it hurt. After praying for a length of time Don 'came back' from heaven. And even though that part is reassuring and very interesting...the part where he has to trust in God for his long long recovery is what encouraged me. After the accident there were actual parts of many bones missing from his body and he has had to endure many operations. He talked about his 'new normal' which I am sure many of us can relate to. I won't say much more about it in case anyone wants to read it but it was a very relateable(sp?) story in many ways. As for me....My hand pain is acting up alot the last few days and I am on narcotics again which interfere with my already-altered sleep cycle. But I am in my warm bed, with food in my cupboard and friends on the internet....life couldn't get much better, hey?.... Merry CHRISTmas! hugs S.Marla Bramer <mebramer (AT) gmail (DOT) com> wrote: I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Looking for last minute shopping deals? Find them fast with Yahoo! Search. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 , Although this message is for Marla, I wanted to tell you that I am so glad you wrote it too b/c I want to read the book you're talking about. Merry Christmas to you and everyone else. Have a blessed day.Becky Solberg wrote: Marla, I wish you the best on your appeal and I will pray for you. I have read many of Joyce Meyer's books and have found them all inspiring and encouraging to me and have helped me in my love walk. I have almost finished reading 90 minutes in Heaven by Don Piper. He was in a horrific car accident and was announced dead for 90 minutes and recounts his experience in Heaven. A minister happened by and God told him to pray for the guy in the car. All the parametics thought he was nuts but what could it hurt. After praying for a length of time Don 'came back' from heaven. And even though that part is reassuring and very interesting...the part where he has to trust in God for his long long recovery is what encouraged me. After the accident there were actual parts of many bones missing from his body and he has had to endure many operations. He talked about his 'new normal' which I am sure many of us can relate to. I won't say much more about it in case anyone wants to read it but it was a very relateable(sp?) story in many ways. As for me....My hand pain is acting up alot the last few days and I am on narcotics again which interfere with my already-altered sleep cycle. But I am in my warm bed, with food in my cupboard and friends on the internet....life couldn't get much better, hey?.... Merry CHRISTmas! hugs S.Marla Bramer <mebramer (AT) gmail (DOT) com> wrote: I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Looking for last minute shopping deals? Find them fast with Yahoo! Search. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Thank you , yes I read that book 90 minutes in heaven, it was really inspiring, I love it, I’ve read another book about heaven recently too, Can’t wait to get to Heaven, by Fannie Flagg, it’s a little different story but well worth the read. Merry CHRISTMAS, will be praying for you too, love ya, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg Sent: Monday, December 24, 2007 3:02 AM To: Neurosarcoidosis Subject: Re: Udate, Religious message and Christmas greetings. Marla, I wish you the best on your appeal and I will pray for you. I have read many of Joyce Meyer's books and have found them all inspiring and encouraging to me and have helped me in my love walk. I have almost finished reading 90 minutes in Heaven by Don Piper. He was in a horrific car accident and was announced dead for 90 minutes and recounts his experience in Heaven. A minister happened by and God told him to pray for the guy in the car. All the parametics thought he was nuts but what could it hurt. After praying for a length of time Don 'came back' from heaven. And even though that part is reassuring and very interesting...the part where he has to trust in God for his long long recovery is what encouraged me. After the accident there were actual parts of many bones missing from his body and he has had to endure many operations. He talked about his 'new normal' which I am sure many of us can relate to. I won't say much more about it in case anyone wants to read it but it was a very relateable(sp?) story in many ways. As for me....My hand pain is acting up alot the last few days and I am on narcotics again which interfere with my already-altered sleep cycle. But I am in my warm bed, with food in my cupboard and friends on the internet....life couldn't get much better, hey?.... Merry CHRISTmas! hugs S. Marla Bramer <mebramer (AT) gmail (DOT) com> wrote: I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Thank you , yes I read that book 90 minutes in heaven, it was really inspiring, I love it, I’ve read another book about heaven recently too, Can’t wait to get to Heaven, by Fannie Flagg, it’s a little different story but well worth the read. Merry CHRISTMAS, will be praying for you too, love ya, Marla From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Solberg Sent: Monday, December 24, 2007 3:02 AM To: Neurosarcoidosis Subject: Re: Udate, Religious message and Christmas greetings. Marla, I wish you the best on your appeal and I will pray for you. I have read many of Joyce Meyer's books and have found them all inspiring and encouraging to me and have helped me in my love walk. I have almost finished reading 90 minutes in Heaven by Don Piper. He was in a horrific car accident and was announced dead for 90 minutes and recounts his experience in Heaven. A minister happened by and God told him to pray for the guy in the car. All the parametics thought he was nuts but what could it hurt. After praying for a length of time Don 'came back' from heaven. And even though that part is reassuring and very interesting...the part where he has to trust in God for his long long recovery is what encouraged me. After the accident there were actual parts of many bones missing from his body and he has had to endure many operations. He talked about his 'new normal' which I am sure many of us can relate to. I won't say much more about it in case anyone wants to read it but it was a very relateable(sp?) story in many ways. As for me....My hand pain is acting up alot the last few days and I am on narcotics again which interfere with my already-altered sleep cycle. But I am in my warm bed, with food in my cupboard and friends on the internet....life couldn't get much better, hey?.... Merry CHRISTmas! hugs S. Marla Bramer <mebramer (AT) gmail (DOT) com> wrote: I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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