Re: Talked to a pediatrician about Ponseti

[Guest guest]

This is all good news, except the ear infection. I hope it clears up soon.

Curious, who is the Springfield Missouri doctor? Again there is a doctor close

(er) to my home I haven't heard anything about, like the one in Little Rock

Arkansas. Springfield is a 3 to 4 hour drive from here. How long has he/she

been doing the Ponseti method and how qualified is this doctor? I know you are

happy with the results and that says a lot but then again there are a lot of

docs lately using the method with out proper training.

thanks,

s.

Talked to a pediatrician about Ponseti

I had to take in for an ear infection on Friday and I saw a

pediatrician I haven't seen before. Since I like to take every

opportunity to tell doctors about Ponseti, I mentioned to him that

was born with clubfeet and that we were going to see our

orthopedic doctor that afternoon. He asked me who the doctor was and

I told him Dr. Mack at Shriner's in Springfield, MA. He looked

closely at 's feet and mentioned how great they looked. He said

there were several different methods for treating clubfoot and I

told him we used the Ponseti method.

Suddenly he became very interested and said he had just read about

Ponseti, but had never known anyone who used it. He continued to

look at 's feet while was happily walking around the

examining room. He began asking me questions about the method,

mentioning several times how unhappy he was with the results of his

other clubfoot patients who had had surgery. I told him about

Ponseti's 95% success rate and that we were four days away from

having major surgery when we found out about it.

He wanted to know if the casting was painful and I told him that

casting with 's original doctor always hurt him, but the

Ponseti casting never bothered him at all. He wanted to know why the

casts went all the way up the leg and when they did the tenotomy.

Finally, he said he was going to push for Ponseti in the future

because he was so unhappy with the results of his other patients. He

wanted to know what doctors in MA used Ponseti because there are no

doctors in Maine where we live.

I told him that I was thinking of writing a letter to our former

orthopedic doctor and tell him about our success with Ponseti so he

could give his patients another alternative besides surgery. The

pediatrician suggested I draft it with my pediatrician and have her

sign it too! I'm also going to send this pediatrician the article

that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

I'm a little disappointed that our pediatrician has not shared this

information with her colleagues. But I feel confident this guy

will get the word out to patients in their practice.

Now I'm thinking of writing the other pediatric practices in my area

and sending pics of 's feet to let them know about Ponseti too.

and 11/10/03 bilateral cf dbb 14/7

[Guest guest]

HAHAHA, OK, silly me, I read that totally wrong! Thanks for the correction!

s.

Talked to a pediatrician about

Ponseti

>

>

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

HAHAHA, OK, silly me, I read that totally wrong! Thanks for the correction!

s.

Talked to a pediatrician about

Ponseti

>

>

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

I'm sad to say my experience in this area is completely opposite. People dont'

want to know about Dr. Ponseti's treatment, they just want to talk about their

own problem-doctor or whatever and are not receptive to hearing there is an

alternative.

s.

Re: Talked to a pediatrician about Ponseti

,

Glad to hear that had such a good check-up with Dr Mack! Way to go little

guy!

I do hope the ear infection has cleared up by now...

It's wonderful that you got to share your story and show off those perfect feet

to someone who has influence over where children go for treatment.

I have shared Ponseti treatment information with anyone in our area I can think

of who might come into contact with parents babies born with clubfoot

(pediatricians, family practice doctors, OBs, OB departments at our local

hospitals, radiologists, midwives). My children's pediatrician and I put

together a little packet that has a note from him (anything on letterhead always

looks more official), a note from our family, a note from a Ponseti doctor

" near " us (who is 300 miles away...), a copy of the article in the journal

Pediatrics http://pediatrics.aappublications.org/cgi/content/abstract/113/2/376

and a reference section with a whole bunch of links (Dr Ponseti's site, the

Global HELP booklet, 's links site, this group) . I received several

follow-up calls from medical personnel wanting to know more. We're not in a

very populated area, but at least the word is out there.

Let me know if I can be any help as you put something together with your doctor.

Best,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

onemorebb wrote:

I had to take in for an ear infection on Friday and I saw a

pediatrician I haven't seen before. Since I like to take every

opportunity to tell doctors about Ponseti, I mentioned to him that

was born with clubfeet and that we were going to see our

orthopedic doctor that afternoon. He asked me who the doctor was and

I told him Dr. Mack at Shriner's in Springfield, MA. He looked

closely at 's feet and mentioned how great they looked. He said

there were several different methods for treating clubfoot and I

told him we used the Ponseti method.

Suddenly he became very interested and said he had just read about

Ponseti, but had never known anyone who used it. He continued to

look at 's feet while was happily walking around the

examining room. He began asking me questions about the method,

mentioning several times how unhappy he was with the results of his

other clubfoot patients who had had surgery. I told him about

Ponseti's 95% success rate and that we were four days away from

having major surgery when we found out about it.

He wanted to know if the casting was painful and I told him that

casting with 's original doctor always hurt him, but the

Ponseti casting never bothered him at all. He wanted to know why the

casts went all the way up the leg and when they did the tenotomy.

Finally, he said he was going to push for Ponseti in the future

because he was so unhappy with the results of his other patients. He

wanted to know what doctors in MA used Ponseti because there are no

doctors in Maine where we live.

I told him that I was thinking of writing a letter to our former

orthopedic doctor and tell him about our success with Ponseti so he

could give his patients another alternative besides surgery. The

pediatrician suggested I draft it with my pediatrician and have her

sign it too! I'm also going to send this pediatrician the article

that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

I'm a little disappointed that our pediatrician has not shared this

information with her colleagues. But I feel confident this guy

will get the word out to patients in their practice.

Now I'm thinking of writing the other pediatric practices in my area

and sending pics of 's feet to let them know about Ponseti too.

and 11/10/03 bilateral cf dbb 14/7

[Guest guest]

I'm sad to say my experience in this area is completely opposite. People dont'

want to know about Dr. Ponseti's treatment, they just want to talk about their

own problem-doctor or whatever and are not receptive to hearing there is an

alternative.

s.

Re: Talked to a pediatrician about Ponseti

,

Glad to hear that had such a good check-up with Dr Mack! Way to go little

guy!

I do hope the ear infection has cleared up by now...

It's wonderful that you got to share your story and show off those perfect feet

to someone who has influence over where children go for treatment.

I have shared Ponseti treatment information with anyone in our area I can think

of who might come into contact with parents babies born with clubfoot

(pediatricians, family practice doctors, OBs, OB departments at our local

hospitals, radiologists, midwives). My children's pediatrician and I put

together a little packet that has a note from him (anything on letterhead always

looks more official), a note from our family, a note from a Ponseti doctor

" near " us (who is 300 miles away...), a copy of the article in the journal

Pediatrics http://pediatrics.aappublications.org/cgi/content/abstract/113/2/376

and a reference section with a whole bunch of links (Dr Ponseti's site, the

Global HELP booklet, 's links site, this group) . I received several

follow-up calls from medical personnel wanting to know more. We're not in a

very populated area, but at least the word is out there.

Let me know if I can be any help as you put something together with your doctor.

Best,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

onemorebb wrote:

I had to take in for an ear infection on Friday and I saw a

pediatrician I haven't seen before. Since I like to take every

opportunity to tell doctors about Ponseti, I mentioned to him that

was born with clubfeet and that we were going to see our

orthopedic doctor that afternoon. He asked me who the doctor was and

I told him Dr. Mack at Shriner's in Springfield, MA. He looked

closely at 's feet and mentioned how great they looked. He said

there were several different methods for treating clubfoot and I

told him we used the Ponseti method.

Suddenly he became very interested and said he had just read about

Ponseti, but had never known anyone who used it. He continued to

look at 's feet while was happily walking around the

examining room. He began asking me questions about the method,

mentioning several times how unhappy he was with the results of his

other clubfoot patients who had had surgery. I told him about

Ponseti's 95% success rate and that we were four days away from

having major surgery when we found out about it.

He wanted to know if the casting was painful and I told him that

casting with 's original doctor always hurt him, but the

Ponseti casting never bothered him at all. He wanted to know why the

casts went all the way up the leg and when they did the tenotomy.

Finally, he said he was going to push for Ponseti in the future

because he was so unhappy with the results of his other patients. He

wanted to know what doctors in MA used Ponseti because there are no

doctors in Maine where we live.

I told him that I was thinking of writing a letter to our former

orthopedic doctor and tell him about our success with Ponseti so he

could give his patients another alternative besides surgery. The

pediatrician suggested I draft it with my pediatrician and have her

sign it too! I'm also going to send this pediatrician the article

that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

I'm a little disappointed that our pediatrician has not shared this

information with her colleagues. But I feel confident this guy

will get the word out to patients in their practice.

Now I'm thinking of writing the other pediatric practices in my area

and sending pics of 's feet to let them know about Ponseti too.

and 11/10/03 bilateral cf dbb 14/7

[Guest guest]

, you go girl! Good for you for sharing your Ponseti experience

with that ped! It sounds as though, based on hearing your

experience, he could be a huge proponent for the Ponseti Method --

which is fantastic news for any of his future clubfooted patients!

Keep on spreading the word!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti too.

>

> and 11/10/03 bilateral cf dbb 14/7

[Guest guest]

He's in Springfield, MA not Missouri, that's why you've never heard

of him. Dr. Mack, we love him!

and 11/10/03 bilateral cf dbb 14/7

> This is all good news, except the ear infection. I hope it clears

up soon. Curious, who is the Springfield Missouri doctor? Again

there is a doctor close (er) to my home I haven't heard anything

about, like the one in Little Rock Arkansas. Springfield is a 3 to

4 hour drive from here. How long has he/she been doing the Ponseti

method and how qualified is this doctor? I know you are happy with

the results and that says a lot but then again there are a lot of

docs lately using the method with out proper training.

> thanks,

> s.

> Talked to a pediatrician about

Ponseti

>

>

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

He's in Springfield, MA not Missouri, that's why you've never heard

of him. Dr. Mack, we love him!

and 11/10/03 bilateral cf dbb 14/7

> This is all good news, except the ear infection. I hope it clears

up soon. Curious, who is the Springfield Missouri doctor? Again

there is a doctor close (er) to my home I haven't heard anything

about, like the one in Little Rock Arkansas. Springfield is a 3 to

4 hour drive from here. How long has he/she been doing the Ponseti

method and how qualified is this doctor? I know you are happy with

the results and that says a lot but then again there are a lot of

docs lately using the method with out proper training.

> thanks,

> s.

> Talked to a pediatrician about

Ponseti

>

>

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

I tell everyone who comments on his shoes/bar about Dr. Ponseti!

Especially if they tell me that someone in their family had to wear

the shoes because of clubfoot. I tell them to make sure to pass

along the treatment name in case they should happen to have a child

with clubfoot too.

In fact, I just met a woman today at the fabric store who has a 21

year old nephew who had his foot broken to correct clubfoot. I told

her to be sure to tell him about the other treatment in case he ever

has a child with clubfoot.

> > This is all good news, except the ear infection. I hope it

clears

> up soon. Curious, who is the Springfield Missouri doctor? Again

> there is a doctor close (er) to my home I haven't heard anything

> about, like the one in Little Rock Arkansas. Springfield is a 3 to

> 4 hour drive from here. How long has he/she been doing the

Ponseti

> method and how qualified is this doctor? I know you are happy with

> the results and that says a lot but then again there are a lot of

> docs lately using the method with out proper training.

> > thanks,

> > s.

> > Talked to a pediatrician about

> Ponseti

> >

> >

> > I had to take in for an ear infection on Friday and I saw a

> > pediatrician I haven't seen before. Since I like to take every

> > opportunity to tell doctors about Ponseti, I mentioned to him

that

> > was born with clubfeet and that we were going to see our

> > orthopedic doctor that afternoon. He asked me who the doctor was

> and

> > I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> > closely at 's feet and mentioned how great they looked. He

> said

> > there were several different methods for treating clubfoot and I

> > told him we used the Ponseti method.

> >

> > Suddenly he became very interested and said he had just read

about

> > Ponseti, but had never known anyone who used it. He continued to

> > look at 's feet while was happily walking around the

> > examining room. He began asking me questions about the method,

> > mentioning several times how unhappy he was with the results of

> his

> > other clubfoot patients who had had surgery. I told him about

> > Ponseti's 95% success rate and that we were four days away from

> > having major surgery when we found out about it.

> >

> > He wanted to know if the casting was painful and I told him that

> > casting with 's original doctor always hurt him, but the

> > Ponseti casting never bothered him at all. He wanted to know why

> the

> > casts went all the way up the leg and when they did the tenotomy.

> > Finally, he said he was going to push for Ponseti in the future

> > because he was so unhappy with the results of his other patients.

> He

> > wanted to know what doctors in MA used Ponseti because there are

> no

> > doctors in Maine where we live.

> >

> > I told him that I was thinking of writing a letter to our former

> > orthopedic doctor and tell him about our success with Ponseti so

> he

> > could give his patients another alternative besides surgery. The

> > pediatrician suggested I draft it with my pediatrician and have

> her

> > sign it too! I'm also going to send this pediatrician the article

> > that Dr. Dobbs wrote and give him a list of Ponseti doctors in

MA.

> > I'm a little disappointed that our pediatrician has not shared

> this

> > information with her colleagues. But I feel confident this guy

> > will get the word out to patients in their practice.

> >

> > Now I'm thinking of writing the other pediatric practices in my

> area

> > and sending pics of 's feet to let them know about Ponseti

> too.

> >

> > and 11/10/03 bilateral cf dbb 14/7

> >

> >

> >

> >

> >

[Guest guest]

I tell everyone who comments on his shoes/bar about Dr. Ponseti!

Especially if they tell me that someone in their family had to wear

the shoes because of clubfoot. I tell them to make sure to pass

along the treatment name in case they should happen to have a child

with clubfoot too.

In fact, I just met a woman today at the fabric store who has a 21

year old nephew who had his foot broken to correct clubfoot. I told

her to be sure to tell him about the other treatment in case he ever

has a child with clubfoot.

> > This is all good news, except the ear infection. I hope it

clears

> up soon. Curious, who is the Springfield Missouri doctor? Again

> there is a doctor close (er) to my home I haven't heard anything

> about, like the one in Little Rock Arkansas. Springfield is a 3 to

> 4 hour drive from here. How long has he/she been doing the

Ponseti

> method and how qualified is this doctor? I know you are happy with

> the results and that says a lot but then again there are a lot of

> docs lately using the method with out proper training.

> > thanks,

> > s.

> > Talked to a pediatrician about

> Ponseti

> >

> >

> > I had to take in for an ear infection on Friday and I saw a

> > pediatrician I haven't seen before. Since I like to take every

> > opportunity to tell doctors about Ponseti, I mentioned to him

that

> > was born with clubfeet and that we were going to see our

> > orthopedic doctor that afternoon. He asked me who the doctor was

> and

> > I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> > closely at 's feet and mentioned how great they looked. He

> said

> > there were several different methods for treating clubfoot and I

> > told him we used the Ponseti method.

> >

> > Suddenly he became very interested and said he had just read

about

> > Ponseti, but had never known anyone who used it. He continued to

> > look at 's feet while was happily walking around the

> > examining room. He began asking me questions about the method,

> > mentioning several times how unhappy he was with the results of

> his

> > other clubfoot patients who had had surgery. I told him about

> > Ponseti's 95% success rate and that we were four days away from

> > having major surgery when we found out about it.

> >

> > He wanted to know if the casting was painful and I told him that

> > casting with 's original doctor always hurt him, but the

> > Ponseti casting never bothered him at all. He wanted to know why

> the

> > casts went all the way up the leg and when they did the tenotomy.

> > Finally, he said he was going to push for Ponseti in the future

> > because he was so unhappy with the results of his other patients.

> He

> > wanted to know what doctors in MA used Ponseti because there are

> no

> > doctors in Maine where we live.

> >

> > I told him that I was thinking of writing a letter to our former

> > orthopedic doctor and tell him about our success with Ponseti so

> he

> > could give his patients another alternative besides surgery. The

> > pediatrician suggested I draft it with my pediatrician and have

> her

> > sign it too! I'm also going to send this pediatrician the article

> > that Dr. Dobbs wrote and give him a list of Ponseti doctors in

MA.

> > I'm a little disappointed that our pediatrician has not shared

> this

> > information with her colleagues. But I feel confident this guy

> > will get the word out to patients in their practice.

> >

> > Now I'm thinking of writing the other pediatric practices in my

> area

> > and sending pics of 's feet to let them know about Ponseti

> too.

> >

> > and 11/10/03 bilateral cf dbb 14/7

> >

> >

> >

> >

> >

[Guest guest]

,

Glad to hear that had such a good check-up with Dr Mack! Way to go little

guy!

I do hope the ear infection has cleared up by now...

It's wonderful that you got to share your story and show off those perfect feet

to someone who has influence over where children go for treatment.

I have shared Ponseti treatment information with anyone in our area I can think

of who might come into contact with parents babies born with clubfoot

(pediatricians, family practice doctors, OBs, OB departments at our local

hospitals, radiologists, midwives). My children's pediatrician and I put

together a little packet that has a note from him (anything on letterhead always

looks more official), a note from our family, a note from a Ponseti doctor

" near " us (who is 300 miles away...), a copy of the article in the journal

Pediatrics http://pediatrics.aappublications.org/cgi/content/abstract/113/2/376

and a reference section with a whole bunch of links (Dr Ponseti's site, the

Global HELP booklet, 's links site, this group) . I received several

follow-up calls from medical personnel wanting to know more. We're not in a

very populated area, but at least the word is out there.

Let me know if I can be any help as you put something together with your doctor.

Best,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

onemorebb wrote:

I had to take in for an ear infection on Friday and I saw a

pediatrician I haven't seen before. Since I like to take every

opportunity to tell doctors about Ponseti, I mentioned to him that

was born with clubfeet and that we were going to see our

orthopedic doctor that afternoon. He asked me who the doctor was and

I told him Dr. Mack at Shriner's in Springfield, MA. He looked

closely at 's feet and mentioned how great they looked. He said

there were several different methods for treating clubfoot and I

told him we used the Ponseti method.

Suddenly he became very interested and said he had just read about

Ponseti, but had never known anyone who used it. He continued to

look at 's feet while was happily walking around the

examining room. He began asking me questions about the method,

mentioning several times how unhappy he was with the results of his

other clubfoot patients who had had surgery. I told him about

Ponseti's 95% success rate and that we were four days away from

having major surgery when we found out about it.

He wanted to know if the casting was painful and I told him that

casting with 's original doctor always hurt him, but the

Ponseti casting never bothered him at all. He wanted to know why the

casts went all the way up the leg and when they did the tenotomy.

Finally, he said he was going to push for Ponseti in the future

because he was so unhappy with the results of his other patients. He

wanted to know what doctors in MA used Ponseti because there are no

doctors in Maine where we live.

I told him that I was thinking of writing a letter to our former

orthopedic doctor and tell him about our success with Ponseti so he

could give his patients another alternative besides surgery. The

pediatrician suggested I draft it with my pediatrician and have her

sign it too! I'm also going to send this pediatrician the article

that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

I'm a little disappointed that our pediatrician has not shared this

information with her colleagues. But I feel confident this guy

will get the word out to patients in their practice.

Now I'm thinking of writing the other pediatric practices in my area

and sending pics of 's feet to let them know about Ponseti too.

and 11/10/03 bilateral cf dbb 14/7

[Guest guest]

,

Glad to hear that had such a good check-up with Dr Mack! Way to go little

guy!

I do hope the ear infection has cleared up by now...

It's wonderful that you got to share your story and show off those perfect feet

to someone who has influence over where children go for treatment.

I have shared Ponseti treatment information with anyone in our area I can think

of who might come into contact with parents babies born with clubfoot

(pediatricians, family practice doctors, OBs, OB departments at our local

hospitals, radiologists, midwives). My children's pediatrician and I put

together a little packet that has a note from him (anything on letterhead always

looks more official), a note from our family, a note from a Ponseti doctor

" near " us (who is 300 miles away...), a copy of the article in the journal

Pediatrics http://pediatrics.aappublications.org/cgi/content/abstract/113/2/376

and a reference section with a whole bunch of links (Dr Ponseti's site, the

Global HELP booklet, 's links site, this group) . I received several

follow-up calls from medical personnel wanting to know more. We're not in a

very populated area, but at least the word is out there.

Let me know if I can be any help as you put something together with your doctor.

Best,

Naomi

The Family

Naomi Hannah(02/21/01) Jonah(06/20/03, corrected bilateral clubfoot, FAB

14/7)

onemorebb wrote:

I had to take in for an ear infection on Friday and I saw a

pediatrician I haven't seen before. Since I like to take every

opportunity to tell doctors about Ponseti, I mentioned to him that

was born with clubfeet and that we were going to see our

orthopedic doctor that afternoon. He asked me who the doctor was and

I told him Dr. Mack at Shriner's in Springfield, MA. He looked

closely at 's feet and mentioned how great they looked. He said

there were several different methods for treating clubfoot and I

told him we used the Ponseti method.

Suddenly he became very interested and said he had just read about

Ponseti, but had never known anyone who used it. He continued to

look at 's feet while was happily walking around the

examining room. He began asking me questions about the method,

mentioning several times how unhappy he was with the results of his

other clubfoot patients who had had surgery. I told him about

Ponseti's 95% success rate and that we were four days away from

having major surgery when we found out about it.

He wanted to know if the casting was painful and I told him that

casting with 's original doctor always hurt him, but the

Ponseti casting never bothered him at all. He wanted to know why the

casts went all the way up the leg and when they did the tenotomy.

Finally, he said he was going to push for Ponseti in the future

because he was so unhappy with the results of his other patients. He

wanted to know what doctors in MA used Ponseti because there are no

doctors in Maine where we live.

I told him that I was thinking of writing a letter to our former

orthopedic doctor and tell him about our success with Ponseti so he

could give his patients another alternative besides surgery. The

pediatrician suggested I draft it with my pediatrician and have her

sign it too! I'm also going to send this pediatrician the article

that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

I'm a little disappointed that our pediatrician has not shared this

information with her colleagues. But I feel confident this guy

will get the word out to patients in their practice.

Now I'm thinking of writing the other pediatric practices in my area

and sending pics of 's feet to let them know about Ponseti too.

and 11/10/03 bilateral cf dbb 14/7

[Guest guest]

It's so important for us parents to spread the word to other's

because it seems so many doctors are just uninformed.

and 11/10/03 bilateral cf dbb 14/7

> > > This is all good news, except the ear infection. I hope it

> clears

> > up soon. Curious, who is the Springfield Missouri doctor?

Again

> > there is a doctor close (er) to my home I haven't heard anything

> > about, like the one in Little Rock Arkansas. Springfield is a 3

to

> > 4 hour drive from here. How long has he/she been doing the

> Ponseti

> > method and how qualified is this doctor? I know you are happy

with

> > the results and that says a lot but then again there are a lot

of

> > docs lately using the method with out proper training.

> > > thanks,

> > > s.

> > > Talked to a pediatrician about

> > Ponseti

> > >

> > >

> > > I had to take in for an ear infection on Friday and I

saw a

> > > pediatrician I haven't seen before. Since I like to take every

> > > opportunity to tell doctors about Ponseti, I mentioned to him

> that

> > > was born with clubfeet and that we were going to see our

> > > orthopedic doctor that afternoon. He asked me who the doctor

was

> > and

> > > I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> > > closely at 's feet and mentioned how great they looked.

He

> > said

> > > there were several different methods for treating clubfoot and

I

> > > told him we used the Ponseti method.

> > >

> > > Suddenly he became very interested and said he had just read

> about

> > > Ponseti, but had never known anyone who used it. He continued

to

> > > look at 's feet while was happily walking around

the

> > > examining room. He began asking me questions about the method,

> > > mentioning several times how unhappy he was with the results

of

> > his

> > > other clubfoot patients who had had surgery. I told him about

> > > Ponseti's 95% success rate and that we were four days away

from

> > > having major surgery when we found out about it.

> > >

> > > He wanted to know if the casting was painful and I told him

that

> > > casting with 's original doctor always hurt him, but the

> > > Ponseti casting never bothered him at all. He wanted to know

why

> > the

> > > casts went all the way up the leg and when they did the

tenotomy.

> > > Finally, he said he was going to push for Ponseti in the

future

> > > because he was so unhappy with the results of his other

patients.

> > He

> > > wanted to know what doctors in MA used Ponseti because there

are

> > no

> > > doctors in Maine where we live.

> > >

> > > I told him that I was thinking of writing a letter to our

former

> > > orthopedic doctor and tell him about our success with Ponseti

so

> > he

> > > could give his patients another alternative besides surgery.

The

> > > pediatrician suggested I draft it with my pediatrician and

have

> > her

> > > sign it too! I'm also going to send this pediatrician the

article

> > > that Dr. Dobbs wrote and give him a list of Ponseti doctors in

> MA.

> > > I'm a little disappointed that our pediatrician has not shared

> > this

> > > information with her colleagues. But I feel confident this

guy

> > > will get the word out to patients in their practice.

> > >

> > > Now I'm thinking of writing the other pediatric practices in

my

> > area

> > > and sending pics of 's feet to let them know about

Ponseti

> > too.

> > >

> > > and 11/10/03 bilateral cf dbb 14/7

> > >

> > >

> > >

> > >

> > >

[Guest guest]

It's so important for us parents to spread the word to other's

because it seems so many doctors are just uninformed.

and 11/10/03 bilateral cf dbb 14/7

> > > This is all good news, except the ear infection. I hope it

> clears

> > up soon. Curious, who is the Springfield Missouri doctor?

Again

> > there is a doctor close (er) to my home I haven't heard anything

> > about, like the one in Little Rock Arkansas. Springfield is a 3

to

> > 4 hour drive from here. How long has he/she been doing the

> Ponseti

> > method and how qualified is this doctor? I know you are happy

with

> > the results and that says a lot but then again there are a lot

of

> > docs lately using the method with out proper training.

> > > thanks,

> > > s.

> > > Talked to a pediatrician about

> > Ponseti

> > >

> > >

> > > I had to take in for an ear infection on Friday and I

saw a

> > > pediatrician I haven't seen before. Since I like to take every

> > > opportunity to tell doctors about Ponseti, I mentioned to him

> that

> > > was born with clubfeet and that we were going to see our

> > > orthopedic doctor that afternoon. He asked me who the doctor

was

> > and

> > > I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> > > closely at 's feet and mentioned how great they looked.

He

> > said

> > > there were several different methods for treating clubfoot and

I

> > > told him we used the Ponseti method.

> > >

> > > Suddenly he became very interested and said he had just read

> about

> > > Ponseti, but had never known anyone who used it. He continued

to

> > > look at 's feet while was happily walking around

the

> > > examining room. He began asking me questions about the method,

> > > mentioning several times how unhappy he was with the results

of

> > his

> > > other clubfoot patients who had had surgery. I told him about

> > > Ponseti's 95% success rate and that we were four days away

from

> > > having major surgery when we found out about it.

> > >

> > > He wanted to know if the casting was painful and I told him

that

> > > casting with 's original doctor always hurt him, but the

> > > Ponseti casting never bothered him at all. He wanted to know

why

> > the

> > > casts went all the way up the leg and when they did the

tenotomy.

> > > Finally, he said he was going to push for Ponseti in the

future

> > > because he was so unhappy with the results of his other

patients.

> > He

> > > wanted to know what doctors in MA used Ponseti because there

are

> > no

> > > doctors in Maine where we live.

> > >

> > > I told him that I was thinking of writing a letter to our

former

> > > orthopedic doctor and tell him about our success with Ponseti

so

> > he

> > > could give his patients another alternative besides surgery.

The

> > > pediatrician suggested I draft it with my pediatrician and

have

> > her

> > > sign it too! I'm also going to send this pediatrician the

article

> > > that Dr. Dobbs wrote and give him a list of Ponseti doctors in

> MA.

> > > I'm a little disappointed that our pediatrician has not shared

> > this

> > > information with her colleagues. But I feel confident this

guy

> > > will get the word out to patients in their practice.

> > >

> > > Now I'm thinking of writing the other pediatric practices in

my

> > area

> > > and sending pics of 's feet to let them know about

Ponseti

> > too.

> > >

> > > and 11/10/03 bilateral cf dbb 14/7

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Naomi,

What you put together is wonderful. Then did you send all that to

these different people or how did you distribute it? I'd love to do

something like that here.

and 11/10/03 bilateral cf dbb 14/7

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

Naomi,

What you put together is wonderful. Then did you send all that to

these different people or how did you distribute it? I'd love to do

something like that here.

and 11/10/03 bilateral cf dbb 14/7

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

I think some people are overwhelmed by clubfoot and just do what

seems easiest and that is to just follow what their doctor says. I

am sad to say we never researched clubfoot at all until we were

faced with major surgery. Had we done research earlier or had

contact with someone who knew about Ponseti things would've been

different. We were not expecting clubfoot and when was born we

just did what the doctors told us.

and 11/10/03 bilateral cf dbb 14/7

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

I think some people are overwhelmed by clubfoot and just do what

seems easiest and that is to just follow what their doctor says. I

am sad to say we never researched clubfoot at all until we were

faced with major surgery. Had we done research earlier or had

contact with someone who knew about Ponseti things would've been

different. We were not expecting clubfoot and when was born we

just did what the doctors told us.

and 11/10/03 bilateral cf dbb 14/7

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>

[Guest guest]

That's awesome!! You're really brave! I told our pedi about Ava's

treatment, he's always very interested when she has a checkup, but

I'm a chicken when it comes to telling anyone else (doctors, that

is...friends always get the 25 minute " Dr. Ponseti is a genius "

speech when they make the mistake of asking!!!)

> I had to take in for an ear infection on Friday and I saw a

> pediatrician I haven't seen before. Since I like to take every

> opportunity to tell doctors about Ponseti, I mentioned to him that

> was born with clubfeet and that we were going to see our

> orthopedic doctor that afternoon. He asked me who the doctor was

and

> I told him Dr. Mack at Shriner's in Springfield, MA. He looked

> closely at 's feet and mentioned how great they looked. He

said

> there were several different methods for treating clubfoot and I

> told him we used the Ponseti method.

>

> Suddenly he became very interested and said he had just read about

> Ponseti, but had never known anyone who used it. He continued to

> look at 's feet while was happily walking around the

> examining room. He began asking me questions about the method,

> mentioning several times how unhappy he was with the results of

his

> other clubfoot patients who had had surgery. I told him about

> Ponseti's 95% success rate and that we were four days away from

> having major surgery when we found out about it.

>

> He wanted to know if the casting was painful and I told him that

> casting with 's original doctor always hurt him, but the

> Ponseti casting never bothered him at all. He wanted to know why

the

> casts went all the way up the leg and when they did the tenotomy.

> Finally, he said he was going to push for Ponseti in the future

> because he was so unhappy with the results of his other patients.

He

> wanted to know what doctors in MA used Ponseti because there are

no

> doctors in Maine where we live.

>

> I told him that I was thinking of writing a letter to our former

> orthopedic doctor and tell him about our success with Ponseti so

he

> could give his patients another alternative besides surgery. The

> pediatrician suggested I draft it with my pediatrician and have

her

> sign it too! I'm also going to send this pediatrician the article

> that Dr. Dobbs wrote and give him a list of Ponseti doctors in MA.

> I'm a little disappointed that our pediatrician has not shared

this

> information with her colleagues. But I feel confident this guy

> will get the word out to patients in their practice.

>

> Now I'm thinking of writing the other pediatric practices in my

area

> and sending pics of 's feet to let them know about Ponseti

too.

>

> and 11/10/03 bilateral cf dbb 14/7

>

>

>

>

>