Re:Krystena/all- Repeating phrases

[Guest guest]

In our case, we have experienced the increase of temperament issues

with steroids while becoming to high dosage use, but this is actually a

completely different issue. The speech problems and temperament changes are

a result of stroke episodes. Just after strokes that affect the

cognitive/speech area occur, we see a dramatic change in several areas: her

articulation, her memory/recall, her attitude/temperament along with

concentration level and ability to sit still, her cognitive abilities and

understanding. As Mito progresses and as more strokes occur, many children

start to chow more issues in these areas. It is just another part of their

brain being affected. Of course, not every Mito child has the same

reasoning, because like you mentioned, medications and other stimulus can

also cause changes in these areas.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (13 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (3) (some with Mito symptoms)

Re: Repeating phrases

Ann,

> It kind of gets on my nerves to hear him say the same thing over and

> over again. I say, " Ok honey. Let's talkabout something else. "

> Sometimes it works, sometimes it doesn't. Any ideas?

I don't know what all it means but my little (age 3) is doing

this same thing. What we have found works is to repeat the phrase back

to him, and sometimes that helps the " skipping record " . The other

thing is we have found some of Will's phrases are supposed to have a

specific response or Will continues to repeat it until you give him the

right line back. Example of this is he'll say " phew " over and over

again until you tell him " that was a close one " and then he says the

whole phrase back to you and can move on. This is definitely getting

worse around here and our Speech therapist isn't too sure what to make

of it either.

Sorry I don't have any info on the why side of this, but we are dealing

with it too

Hope that helps some,

J

Colo

Please contact mito-owner with any problems or questions.

[Guest guest]

In our case, we have experienced the increase of temperament issues

with steroids while becoming to high dosage use, but this is actually a

completely different issue. The speech problems and temperament changes are

a result of stroke episodes. Just after strokes that affect the

cognitive/speech area occur, we see a dramatic change in several areas: her

articulation, her memory/recall, her attitude/temperament along with

concentration level and ability to sit still, her cognitive abilities and

understanding. As Mito progresses and as more strokes occur, many children

start to chow more issues in these areas. It is just another part of their

brain being affected. Of course, not every Mito child has the same

reasoning, because like you mentioned, medications and other stimulus can

also cause changes in these areas.

See www.caringbridge.org/ia/mitomomof9 and this link to see a real look into

Mito using a photo collage of my girls at www.heartbeatsformito.org

Darla: mommy to

Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, G-tube,

hypotonicity, disautonomy, SID, dev. delays, asthma, cyclic vomiting...

Zipporrah (13 months) Mito, strokes, neuro-motor planning dysfunction, SID,

GERD, 100% G-tube fed, asthma, trach issues, aberrant subclavian artery,

disautonomy, hypo & hypertonicity, migraines, possible seizures, dumping

syndrome, iron deficiency...

Luke (16), Leah (14), Rachael (12), Isaac (10), Tirzah (8), Kezia (3), &

Marquis (3) (some with Mito symptoms)

Re: Repeating phrases

Ann,

> It kind of gets on my nerves to hear him say the same thing over and

> over again. I say, " Ok honey. Let's talkabout something else. "

> Sometimes it works, sometimes it doesn't. Any ideas?

I don't know what all it means but my little (age 3) is doing

this same thing. What we have found works is to repeat the phrase back

to him, and sometimes that helps the " skipping record " . The other

thing is we have found some of Will's phrases are supposed to have a

specific response or Will continues to repeat it until you give him the

right line back. Example of this is he'll say " phew " over and over

again until you tell him " that was a close one " and then he says the

whole phrase back to you and can move on. This is definitely getting

worse around here and our Speech therapist isn't too sure what to make

of it either.

Sorry I don't have any info on the why side of this, but we are dealing

with it too

Hope that helps some,

J

Colo

Please contact mito-owner with any problems or questions.