Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 I just want to bring you all up to date; the insurance company has now denied Remicade in the first appeal process, so we will be entering the second appeal process! I am trying to do as I preach and stay positive, my husband says we will take this to court if we have to, I suppose the way the court systems work, I will be in a wheel chair by then, but again that is not positive thinking. I know I have been blessed twice, as I do not get the fatigue since the healing I had a year ago, and I also believe it is by the grace of God that I am still walking. I can not lift my legs up off the ground when lying down, I can only lift them up a little bit standing, I trip when I’m standing still, funny site, I walk like a drunk, my husband just says to me, hey I felt that earthquake too! He stays positive for me, (right this minute I’m a crab, don’t tell anyone,) So I read a lot of self help books to try and keep myself positive, I just finished reading one that was really good, called “Simple Prayer” by Joyce Meyers. Basically how to pray without all the heavy stuff, I found it very helpful. Now I’m reading a book called “Full of Grace”, because I know it is by the grace of God I can do the things I do! Some days my legs feel like a block of cement they are so heavy, but I can still walk, sometime I drag my right leg, but I am still walking. Has anyone else had these symptoms, I’m wondering will it lead to “not” walking? How long? I’m wondering if I will always be able to walk, but just become even more limited then it is now, I am so glad I have my Handicap placard, or whatever it’s called, yes I still get the look now and then, but I don’t care I can at least with the assistance of the shopping cart get through the store. I can even still do about 10 mins on the treadmill, some days. So for now I do know I am blessed, and I pray for blessings for each every one of us dealing with this disease, all us orphans, as it is on the orphan disease list.(which is why the insurance won’t approve it, as it is not on their list, well duh) I’m glad we found each other; you are all a blessing to me, Thank You. And a very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless legs, no waking up). Love ya, Marla Quote Link to comment Share on other sites More sharing options...
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