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I just

want to bring you all up to date; the insurance company has now denied Remicade

in the first appeal process, so we will be entering the second appeal

process! I am trying to do as I preach and stay positive, my husband says

we will take this to court if we have to, I suppose the way the court systems

work, I will be in a wheel chair by then, but again that is not positive

thinking.

I know I

have been blessed twice, as I do not get the fatigue since the healing I had a

year ago, and I also believe it is by the grace of God that I am still

walking. I can not lift my legs up off the ground when lying down, I can

only lift them up a little bit standing, I trip when I’m standing still,

funny site, I walk like a drunk, my husband just says to me, hey I felt that

earthquake too! He stays positive for me, (right this minute I’m a

crab, don’t tell anyone,) So I read a lot of self help books to try

and keep myself positive, I just finished reading one that was really good,

called “Simple Prayer” by Joyce Meyers. Basically how to pray

without all the heavy stuff, I found it very helpful. Now I’m

reading a book called “Full of Grace”, because I know it is by the

grace of God I can do the things I do! Some days my legs feel like a

block of cement they are so heavy, but I can still walk, sometime I drag my

right leg, but I am still walking. Has anyone else had these symptoms, I’m

wondering will it lead to “not” walking? How long? I’m

wondering if I will always be able to walk, but just become even more limited

then it is now, I am so glad I have my Handicap placard, or whatever it’s

called, yes I still get the look now and then, but I don’t care I can at

least with the assistance of the shopping cart get through the store. I can

even still do about 10 mins on the treadmill, some days.

So for

now I do know I am blessed, and I pray for blessings for each every one of us

dealing with this disease, all us orphans, as it is on the orphan disease list.(which

is why the insurance won’t approve it, as it is not on their list, well

duh) I’m glad we found each other; you are all a blessing to me,

Thank You.

And a

very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless

legs, no waking up). Love ya, Marla

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I just

want to bring you all up to date; the insurance company has now denied Remicade

in the first appeal process, so we will be entering the second appeal

process! I am trying to do as I preach and stay positive, my husband says

we will take this to court if we have to, I suppose the way the court systems

work, I will be in a wheel chair by then, but again that is not positive

thinking.

I know I

have been blessed twice, as I do not get the fatigue since the healing I had a

year ago, and I also believe it is by the grace of God that I am still

walking. I can not lift my legs up off the ground when lying down, I can

only lift them up a little bit standing, I trip when I’m standing still,

funny site, I walk like a drunk, my husband just says to me, hey I felt that

earthquake too! He stays positive for me, (right this minute I’m a

crab, don’t tell anyone,) So I read a lot of self help books to try

and keep myself positive, I just finished reading one that was really good,

called “Simple Prayer” by Joyce Meyers. Basically how to pray

without all the heavy stuff, I found it very helpful. Now I’m

reading a book called “Full of Grace”, because I know it is by the

grace of God I can do the things I do! Some days my legs feel like a

block of cement they are so heavy, but I can still walk, sometime I drag my

right leg, but I am still walking. Has anyone else had these symptoms, I’m

wondering will it lead to “not” walking? How long? I’m

wondering if I will always be able to walk, but just become even more limited

then it is now, I am so glad I have my Handicap placard, or whatever it’s

called, yes I still get the look now and then, but I don’t care I can at

least with the assistance of the shopping cart get through the store. I can

even still do about 10 mins on the treadmill, some days.

So for

now I do know I am blessed, and I pray for blessings for each every one of us

dealing with this disease, all us orphans, as it is on the orphan disease list.(which

is why the insurance won’t approve it, as it is not on their list, well

duh) I’m glad we found each other; you are all a blessing to me,

Thank You.

And a

very MERRY CHRISTMAS to all, and to all a good night ( no pain, no restless

legs, no waking up). Love ya, Marla

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