Re: Sarcoid Group/Listserv

[Guest guest]

would be more than welcome here, and the other group would be FSR. Foundation for Sarcoidosis Research. The site is www.stopsarcoidosis.org.

Many of us here did start with "just" pulmonary sarcoidosis-- so he can get his questions and concerns answered here. A simple search of "sarcoidosis" will bring up several groups.

Take care,

Tracie

NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

would be more than welcome here, and the other group would be FSR. Foundation for Sarcoidosis Research. The site is www.stopsarcoidosis.org.

Many of us here did start with "just" pulmonary sarcoidosis-- so he can get his questions and concerns answered here. A simple search of "sarcoidosis" will bring up several groups.

Take care,

Tracie

NS Co-owner/moderatorSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Ebony, here is a site that provides a variety of resources, including in-person support groups by state. They also have a message board, which would be similar to this. I've not used it myself, so can't offer personal experience, but it might be worth checking out.

http://www.sarcoidosisonlinesites.com/

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: ebonywreh@...Date: Tue, 30 Oct 2007 13:50:14 +0000Subject: Sarcoid Group/Listserv

Hi everyone,I was wondering if anyone knew off of the top of their heads, a online group or listserv that is for those with just general sarcoid. told his brother who has sarcoid in his lungs about this group and he was very excited about it. But since this group is for those with neurosarc I didn't think that it would be of much help to him. If anyone knows of any please let me know. The only one I know about is SarcoidBuddy on MSN. I am a member of it also, but it doesn't seem to be nearly as active as this one. I will look for more later, but if anyone knows of any good ones please let me know.Thanks,Ebony Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now!

[Guest guest]

Ebony, here is a site that provides a variety of resources, including in-person support groups by state. They also have a message board, which would be similar to this. I've not used it myself, so can't offer personal experience, but it might be worth checking out.

http://www.sarcoidosisonlinesites.com/

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

"How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these."

~ Washington Carver

To: Neurosarcoidosis From: ebonywreh@...Date: Tue, 30 Oct 2007 13:50:14 +0000Subject: Sarcoid Group/Listserv

Hi everyone,I was wondering if anyone knew off of the top of their heads, a online group or listserv that is for those with just general sarcoid. told his brother who has sarcoid in his lungs about this group and he was very excited about it. But since this group is for those with neurosarc I didn't think that it would be of much help to him. If anyone knows of any please let me know. The only one I know about is SarcoidBuddy on MSN. I am a member of it also, but it doesn't seem to be nearly as active as this one. I will look for more later, but if anyone knows of any good ones please let me know.Thanks,Ebony Boo! Scare away worms, viruses and so much more! Try Windows Live OneCare! Try now!