Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 Hello! I hope everyone is having a good day. I have a few questions. Dakota who is Joey's 11 year old brother who has shown soft signs of Mito, yet never tested. Has been dealing with several issues in the last 6 months. I have ask the question before about his patechiae rash which they really thought it was caused by Lupas. Well the finally ruled that out and says he has a second hand Arthritis from something. We are having trouble keeping Dakota awake. He can sleep 12 hours at night and wake up ready to go back to sleep. He is very forgetful. Lots of knee and hip pain, with no swelling. Just always looks like he always feels bad. He looks very pale, yet not anemic. His white and red blood count stays about 1.0 low. SED rate is high. Our doctor is planning on talking to a Diagnostic(sp?)Dr. in St. Louis and see if he has any ideas. Dakota has never been a complainer and I HATE to see him like this. I read some on CFS and they were talking about Fibromialsia(sp?). I wasn't sure if kids could get that or not. I always was told that is just a name of issue they can not find a Dx. for. Yet I have a very close friend who deals with it every day. And help would be great. Tamara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 Hello! I hope everyone is having a good day. I have a few questions. Dakota who is Joey's 11 year old brother who has shown soft signs of Mito, yet never tested. Has been dealing with several issues in the last 6 months. I have ask the question before about his patechiae rash which they really thought it was caused by Lupas. Well the finally ruled that out and says he has a second hand Arthritis from something. We are having trouble keeping Dakota awake. He can sleep 12 hours at night and wake up ready to go back to sleep. He is very forgetful. Lots of knee and hip pain, with no swelling. Just always looks like he always feels bad. He looks very pale, yet not anemic. His white and red blood count stays about 1.0 low. SED rate is high. Our doctor is planning on talking to a Diagnostic(sp?)Dr. in St. Louis and see if he has any ideas. Dakota has never been a complainer and I HATE to see him like this. I read some on CFS and they were talking about Fibromialsia(sp?). I wasn't sure if kids could get that or not. I always was told that is just a name of issue they can not find a Dx. for. Yet I have a very close friend who deals with it every day. And help would be great. Tamara Quote Link to comment Share on other sites More sharing options...
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