Remicade for the treatment of Neurosarcoidosis

[Guest guest]

www.meddean.luc.edu/depts/cme/Sarcoidosis-article.pdf

, this is a great article! Please EVERYONE-- BOOKMARK THIS IN YOUR FAVORITES AND PRINT IT OUT FOR YOUR MD'S. EVEN IF YOU CAN'T HANDLE REMICADE (AND IT'S NOT FOR EVERYONE)-- HE MENTIONS ENOUGH ALTERNATIVES AND THEIR RESPECITIVE RESULTS.

SARCOIDOSIS REQUIRES A COMBINATION APPROACH IN ALMOST EVERYONE OF US-- SO GETTING THE RIGHT "COCKTAIL" IS SO IMPORTANT.

Sincerely,

Tracie

NS Co-owner/moderatorSee AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

Please help me. I have been receiving IV remicade since March. It is

the only thing that has helped my simptoms so far. I have to have it

every three weeks. My insurance has decided that I should not be

getting Remicade and that it is only for cosmetic purposes and people

with Rhumitoid arthritus and cronse disease.

When i don't get the Remicade treatments i Lose my vision, which

means i can not work. My balance gets worse, my memory gets worse and

i have a dificult time carrying on a conversation because i can't

remember the words. My legs start to drag and i trip and fall more. I

had taken IV steroids but they didn't work and made my very sick. we

tried methotrexate and it did not work for me, I took celcept and it

did not work either. But the Remicade keeps me going.

Sorry for the book but i wanted to expalain why I am asking what i am

aksing.

I would like some of you to put in words how Remicade is working for

you and your symptoms. I am hoping that If i can get enough

testamonials and information to give to my insurance company maybe

they will see that Remicade is more than just a whim for people with

sarcoids. I appreciate any help i can get even if it's just reading

my message and passing the information on to someone else,

thanks

karen

[Guest guest]

Please help me. I have been receiving IV remicade since March. It is

the only thing that has helped my simptoms so far. I have to have it

every three weeks. My insurance has decided that I should not be

getting Remicade and that it is only for cosmetic purposes and people

with Rhumitoid arthritus and cronse disease.

When i don't get the Remicade treatments i Lose my vision, which

means i can not work. My balance gets worse, my memory gets worse and

i have a dificult time carrying on a conversation because i can't

remember the words. My legs start to drag and i trip and fall more. I

had taken IV steroids but they didn't work and made my very sick. we

tried methotrexate and it did not work for me, I took celcept and it

did not work either. But the Remicade keeps me going.

Sorry for the book but i wanted to expalain why I am asking what i am

aksing.

I would like some of you to put in words how Remicade is working for

you and your symptoms. I am hoping that If i can get enough

testamonials and information to give to my insurance company maybe

they will see that Remicade is more than just a whim for people with

sarcoids. I appreciate any help i can get even if it's just reading

my message and passing the information on to someone else,

thanks

karen

[Guest guest]

Here is the website from one of the top doctors in the U.S. and beyond for sarcoidosis. Dr. Baughman lists Remicade(infliximab) as one of the treatments even going so far as explaining how much and how often it should be administered. www.meddean.luc.edu/depts/cme/Sarcoidosis-article.pdf Hope this helps. hugs S.kap2569 wrote: Please help me. I have been receiving IV remicade since March. It is the only

thing that has helped my simptoms so far. I have to have it every three weeks. My insurance has decided that I should not be getting Remicade and that it is only for cosmetic purposes and people with Rhumitoid arthritus and cronse disease. When i don't get the Remicade treatments i Lose my vision, which means i can not work. My balance gets worse, my memory gets worse and i have a dificult time carrying on a conversation because i can't remember the words. My legs start to drag and i trip and fall more. I had taken IV steroids but they didn't work and made my very sick. we tried methotrexate and it did not work for me, I took celcept and it did not work either. But the Remicade keeps me going. Sorry for the book but i wanted to expalain why I am asking what i am aksing. I would like some of you to put in words how Remicade is working for you and your symptoms. I am hoping that If i can get enough

testamonials and information to give to my insurance company maybe they will see that Remicade is more than just a whim for people with sarcoids. I appreciate any help i can get even if it's just reading my message and passing the information on to someone else, thanks karen

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[Guest guest]

, I'm not using it, perhaps I should try it. Your Doctor(s) should be making that argument for you, if not, get another doctor. Another doctor or medical groups opinion is a good idea anyway. Insurance companies are more likely to believe them before emails from a yahoo group. Hope it all works out for you. Happy Holidays! Rick kap2569 wrote: Please help me. I have been receiving IV remicade since March.

It is the only thing that has helped my simptoms so far. I have to have it every three weeks. My insurance has decided that I should not be getting Remicade and that it is only for cosmetic purposes and people with Rhumitoid arthritus and cronse disease. When i don't get the Remicade treatments i Lose my vision, which means i can not work. My balance gets worse, my memory gets worse and i have a dificult time carrying on a conversation because i can't remember the words. My legs start to drag and i trip and fall more. I had taken IV steroids but they didn't work and made my very sick. we tried methotrexate and it did not work for me, I took celcept and it did not work either. But the Remicade keeps me going. Sorry for the book but i wanted to expalain why I am asking what i am aksing.I would like some of you to put in words how Remicade is working for you and your symptoms. I am hoping that If i can get enough

testamonials and information to give to my insurance company maybe they will see that Remicade is more than just a whim for people with sarcoids. I appreciate any help i can get even if it's just reading my message and passing the information on to someone else,thankskaren

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