Mood Swings in Neurosarcoidosis

[Guest guest]

hi - i just joined, and do not have sarcoidosis but my boyfriend was recently

diagnosed. i

hope you won't mind me asking advice, as i've found your site to be terrific so

far, very

helpful for a loved one of someone with this disease. although my bf has been

diagnosed

with sarcoidosis, we suspect he has neuro, as he has had long-term extreme daily

headaches

and brain fogs, and so will soon be getting a brain mri.

my question is this: can neurosarcoidosis sometimes cause extreme and

unexpected mood

swings, rages, etc. that last for quite some time? he is not on prednizone

yet, so this is not

due to medication. he has been sick and unable to work for some time, so

certainly has valid

reasons to be angry, but i am looking for some sort of explanation that will

help me

understand/accept, since the sweet, loving man i met 4 years ago has been

showing rages

that make him all but unrecognizable, and i want to continue being there for him

if i can.

thanks in advance.

[Guest guest]

hi - i just joined, and do not have sarcoidosis but my boyfriend was recently

diagnosed. i

hope you won't mind me asking advice, as i've found your site to be terrific so

far, very

helpful for a loved one of someone with this disease. although my bf has been

diagnosed

with sarcoidosis, we suspect he has neuro, as he has had long-term extreme daily

headaches

and brain fogs, and so will soon be getting a brain mri.

my question is this: can neurosarcoidosis sometimes cause extreme and

unexpected mood

swings, rages, etc. that last for quite some time? he is not on prednizone

yet, so this is not

due to medication. he has been sick and unable to work for some time, so

certainly has valid

reasons to be angry, but i am looking for some sort of explanation that will

help me

understand/accept, since the sweet, loving man i met 4 years ago has been

showing rages

that make him all but unrecognizable, and i want to continue being there for him

if i can.

thanks in advance.

[Guest guest]

Hi antenea.. Welcome to the group.. but so sorry to hear that your boyfriend has this dreaded disease.. I do believe you mentioned mood swings, rages..things like that.. Anytime you have injury or disease to the brain.. you can most definately have mood swings/rage/ etc.. its just a part of how we are designed..

Unfortunately when people get placed on Predinsone they can get what is called "prednisone induced, Psychosis" not a good place to be for the person that is ill, or the caregiver.. if he is already displaying this types of symptoms.. you need to make sure that the doctor knows in advcance before he places him on prednisone.. it can and more probably will make it worse..

Its been my experience that prednisone will mask the symptoms for awhile, but as soon as you come off the symptoms reoccur.. so its not what I would want to be treated with.. Plus then you have the after effects of prednisone later. such as diabetes, brittle bones.. etc..

You do need to find a physican that is up to date on the current treatments and not just poo-poo it away.. there are a variety of ways to treat.. Be advised to, that the MRI may be negative.. not uncommon..

Does he have Sarcoidosis anywhere else in his body? Has he had a spinal tap, lab studies.. such as Ace, sed rate, CRP?

Please feel free to ask away, someone will get back to you as soon as possible..

I hope I haven't confused you.. but to answer you're question in a nutshell.. YES.. Neurosarc.. can and will change your mood, cause rage..anger, depression, and most of all fear.. which might just be one of your boyfriends reasons for his moodswings..

Take care sweetie..

,

NS+ Moderator

Mood Swings in Neurosarcoidosis

hi - i just joined, and do not have sarcoidosis but my boyfriend was recently diagnosed. i hope you won't mind me asking advice, as i've found your site to be terrific so far, very helpful for a loved one of someone with this disease. although my bf has been diagnosed with sarcoidosis, we suspect he has neuro, as he has had long-term extreme daily headaches and brain fogs, and so will soon be getting a brain mri. my question is this: can neurosarcoidosis sometimes cause extreme and unexpected mood swings, rages, etc. that last for quite some time? he is not on prednizone yet, so this is not due to medication. he has been sick and unable to work for some time, so certainly has valid reasons to be angry, but i am looking for some sort of explanation that will help me understand/accept, since the sweet, loving man i met 4 years ago has been showing rages that make him all but unrecognizable, and i want to continue being there for him if i can. thanks in advance.

No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1356 - Release Date: 4/2/2008 4:14 PM

[Guest guest]

Hi antenea.. Welcome to the group.. but so sorry to hear that your boyfriend has this dreaded disease.. I do believe you mentioned mood swings, rages..things like that.. Anytime you have injury or disease to the brain.. you can most definately have mood swings/rage/ etc.. its just a part of how we are designed..

Unfortunately when people get placed on Predinsone they can get what is called "prednisone induced, Psychosis" not a good place to be for the person that is ill, or the caregiver.. if he is already displaying this types of symptoms.. you need to make sure that the doctor knows in advcance before he places him on prednisone.. it can and more probably will make it worse..

Its been my experience that prednisone will mask the symptoms for awhile, but as soon as you come off the symptoms reoccur.. so its not what I would want to be treated with.. Plus then you have the after effects of prednisone later. such as diabetes, brittle bones.. etc..

You do need to find a physican that is up to date on the current treatments and not just poo-poo it away.. there are a variety of ways to treat.. Be advised to, that the MRI may be negative.. not uncommon..

Does he have Sarcoidosis anywhere else in his body? Has he had a spinal tap, lab studies.. such as Ace, sed rate, CRP?

Please feel free to ask away, someone will get back to you as soon as possible..

I hope I haven't confused you.. but to answer you're question in a nutshell.. YES.. Neurosarc.. can and will change your mood, cause rage..anger, depression, and most of all fear.. which might just be one of your boyfriends reasons for his moodswings..

Take care sweetie..

,

NS+ Moderator

Mood Swings in Neurosarcoidosis

hi - i just joined, and do not have sarcoidosis but my boyfriend was recently diagnosed. i hope you won't mind me asking advice, as i've found your site to be terrific so far, very helpful for a loved one of someone with this disease. although my bf has been diagnosed with sarcoidosis, we suspect he has neuro, as he has had long-term extreme daily headaches and brain fogs, and so will soon be getting a brain mri. my question is this: can neurosarcoidosis sometimes cause extreme and unexpected mood swings, rages, etc. that last for quite some time? he is not on prednizone yet, so this is not due to medication. he has been sick and unable to work for some time, so certainly has valid reasons to be angry, but i am looking for some sort of explanation that will help me understand/accept, since the sweet, loving man i met 4 years ago has been showing rages that make him all but unrecognizable, and i want to continue being there for him if i can. thanks in advance.

No virus found in this incoming message.Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.5/1356 - Release Date: 4/2/2008 4:14 PM

[Guest guest]

Dear Antenea-99,

I am sorry your boyfriend is having such a hard time. He probably needs

to have some counseling. It is bad enough for him to be sick, but to

not be able to work can be emasculating to men. My husband was healthy

and out of work for 1 year when we first got married. I think it is

important because that way he could figure out what was stress and

depression and what was disease. Neuropsychological testing can be

helpful also to see what type of deficits he is having brain wise.

I know it must be difficult to watch the changes he is going through.

Please do your best to be understanding but be sure to take care of

yourself especially during the rages. Your safety must come first. I

speak only of this as a woman who has been abused in the past by a

parent and a former spouse.

Take care and ask any questions you want. We are here for both of you.

You may want to eventually get him online to vent. It may take care of

the rage issues.

Terri G.

> my question is this: can neurosarcoidosis sometimes cause extreme and

unexpected mood

> swings, rages, etc. that last for quite some time? he is not on

prednizone yet, so this is not

> due to medication. he has been sick and unable to work for some time,

so certainly has valid

> reasons to be angry, but i am looking for some sort of explanation

that will help me

> understand/accept, since the sweet, loving man i met 4 years ago has

been showing rages

> that make him all but unrecognizable, and i want to continue being

there for him if i can.

> thanks in advance.

>

[Guest guest]

Dear Antenea-99,

I am sorry your boyfriend is having such a hard time. He probably needs

to have some counseling. It is bad enough for him to be sick, but to

not be able to work can be emasculating to men. My husband was healthy

and out of work for 1 year when we first got married. I think it is

important because that way he could figure out what was stress and

depression and what was disease. Neuropsychological testing can be

helpful also to see what type of deficits he is having brain wise.

I know it must be difficult to watch the changes he is going through.

Please do your best to be understanding but be sure to take care of

yourself especially during the rages. Your safety must come first. I

speak only of this as a woman who has been abused in the past by a

parent and a former spouse.

Take care and ask any questions you want. We are here for both of you.

You may want to eventually get him online to vent. It may take care of

the rage issues.

Terri G.

> my question is this: can neurosarcoidosis sometimes cause extreme and

unexpected mood

> swings, rages, etc. that last for quite some time? he is not on

prednizone yet, so this is not

> due to medication. he has been sick and unable to work for some time,

so certainly has valid

> reasons to be angry, but i am looking for some sort of explanation

that will help me

> understand/accept, since the sweet, loving man i met 4 years ago has

been showing rages

> that make him all but unrecognizable, and i want to continue being

there for him if i can.

> thanks in advance.

>