RE: Daily life is difficult as you all know. venting/correction to my response

[Guest guest]

Dear Ann,

This is what happens when you type fast. I just realized that in my

response I said it was over 2 DAYS since Samya died. It was 2 YEARS. I am

sorry and maybe I should reread it next time before sending. You must have

thought I was crazy to be giving advice after 2 days. That was God's humor.

God bless,

 

 

Suhad Haddad  --  Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna

with same disease.

Samya's Memorial Site: www.samyahaddad.com/.org/.net

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Daily life is difficult as you all know. venting

I think what I am having problems with has nothing to do with the

medial, feeding cleaning and tending to my very handicapped son.

Eli was born feb 15 2003 most people don't know that he was a day

late. He should have been born on The 14th. I think he wanted a day

all his own. well there is never any confution between loving my

child and caring for him. My mind starts to waver when I think of on

down the road and say this is after he is gone. 1s will I be able to

go on with out my preacious Eli and the husband wife thing.

When we were frist given the news about Eli. We cried and through

those tears we made an agreement not to ever leave our son. He needs

us now and we will be there. I guess we should have spent more about

us how all this has affected our family now and in the future. I

have been told to find some interests so I wont feel such a loss

when Eli dies. I waited a whole year before i dragged the idea out

again. Chad and I work so well as a team taking care of everything.

I am worried when there isn't anything to tend to what will happen

to us. Only God know. People just keep telling have many couples

split up after the death of their child. I pray that we will be

differant. I want so much more in life with my husband and yet I

still have time with my Eli snuggling and kissing.

Ann (Eli's Mommy) Leigh's disease will be 2 Feb 15

Elijah's Page

" http://www.caringbridge.org/co/elijahkurtz "

Please contact mito-owner with any problems or questions.

[Guest guest]

Dear Ann,

This is what happens when you type fast. I just realized that in my

response I said it was over 2 DAYS since Samya died. It was 2 YEARS. I am

sorry and maybe I should reread it next time before sending. You must have

thought I was crazy to be giving advice after 2 days. That was God's humor.

God bless,

 

 

Suhad Haddad  --  Mom to Samya (Died 12-10-02 of Leigh's Synd.) & Leanna

with same disease.

Samya's Memorial Site: www.samyahaddad.com/.org/.net

Email: Suhad1970@...

Alt Email: Suhad@...

AiM Chat: Suhad1970

Daily life is difficult as you all know. venting

I think what I am having problems with has nothing to do with the

medial, feeding cleaning and tending to my very handicapped son.

Eli was born feb 15 2003 most people don't know that he was a day

late. He should have been born on The 14th. I think he wanted a day

all his own. well there is never any confution between loving my

child and caring for him. My mind starts to waver when I think of on

down the road and say this is after he is gone. 1s will I be able to

go on with out my preacious Eli and the husband wife thing.

When we were frist given the news about Eli. We cried and through

those tears we made an agreement not to ever leave our son. He needs

us now and we will be there. I guess we should have spent more about

us how all this has affected our family now and in the future. I

have been told to find some interests so I wont feel such a loss

when Eli dies. I waited a whole year before i dragged the idea out

again. Chad and I work so well as a team taking care of everything.

I am worried when there isn't anything to tend to what will happen

to us. Only God know. People just keep telling have many couples

split up after the death of their child. I pray that we will be

differant. I want so much more in life with my husband and yet I

still have time with my Eli snuggling and kissing.

Ann (Eli's Mommy) Leigh's disease will be 2 Feb 15

Elijah's Page

" http://www.caringbridge.org/co/elijahkurtz "

Please contact mito-owner with any problems or questions.